Richard,
Sorry your blood test did not come out favorable. In the 7 years my husband
has had CML I have come to the realization that it is a lifetime roller-coaster
ride. You and your doctor are on top of things. Better days ahead!
Joyce in IL
Jeanie,
Good luck on your blood tests on the 30th. My husband has had transfusions,
too, while on Sprycel. They constantly think he is losing blood somewhere, but
they can't find anything in the colonoscopies or endoscopes. Waiting for the
next shoe to drop. God bless and keep you.
Joyce in IL
On Mar 24, 2015, at 9:18 AM, 'Icandoallttc' via CMLHope wrote:
> Sorry to hear that Richard but hang in there. I went through the same thing
> with tasigna. I had 3 blood transfusions while on it. I didn't want the
> transfusions and believe he could have just taken me off the meds until it
> came back up. I've never had procrit. I've been really tired on ponatinib
> and find myself sleepy a lot. I get my next blood test the 30th. That
> will tell the tale. My prayers go up for you. Yes I worry about Marty. He
> is so brave.
> Thanks for all your uplifts.
>
> Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s
>
> On Mar 24, 2015, at 12:11 AM, Richard H <rbhuffm...@gmail.com> wrote:
>
>> I had my CBC-DIFF blood test today. Not good for me. My HGB is dropped
>> from 10.2 to 9.6. ONC is ordering the iron test so we can be prepared to
>> start Procrit again, and IF that fails we will discuss proceeding downward
>> until it is transfusion time or just proceed to the next drug. Yes, I
>> expected this result as my fatigue has been increasing.
>>
>> It has tried to be spring here the last couple of weeks, but they say we are
>> going to have winter's last fling starting with rain and ending with sleet
>> pellet/penny size on Saturday.
>>
>> I too am becoming anxious about our Marty. He is in my daily prayers.
>>
>> 18's as Marty advocates.
>>
>> Richard H.
>>
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