Thank you greenie.

18's

Marty

On Sat, Apr 25, 2015 at 9:31 PM, Myvety2k via CMLHope <
cmlhope@googlegroups.com> wrote:

>  Marty, I'm always glad to here good news from you, it's up lifting.
>
> greenie
>
>  In a message dated 4/25/2015 7:41:34 P.M. Eastern Daylight Time,
> wa2...@gmail.com writes:
>
> Hi Jeanie,
>
> I had the same problem after my kidney transplant. My pulse was beating in
> the 145 and sometimes higher. The doctor gave me Cartizem and now my heart
> beats are normal but even more my blood pressure is just about perfect.
>
> 18's,
>
> Marty
>
> On Sat, Apr 25, 2015 at 6:24 PM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>>  Hi every one,
>> I hope this Friday finds you guys all keeping the faith and doing well.
>>
>> I have been taking ponatinib now for 4 months.  You are supposed to reach
>> a good response in 6 months with a 12 month steady response.  My blood is
>> almost back to normal but I have had a lot of side effects.
>>
>> Rash
>> Dry skin. Bad
>> Rash
>> High blood pressure
>> Constipation
>> Headaches
>>
>> There is a chance of blood clots and heart problems and more.
>>
>> The blood pressure meds don't work well with me and I have tried a lot.
>> Any suggestions?
>>
>> Hang I'm there Marty.  Maybe next year we will both feel like traveling
>> the world.
>>
>> Prayers & Blessings Jeanie [image: ðŸÂ][image: ðŸÂ]18,s
>> Dx 1/2004
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>>
>> On Mar 10, 2015, at 6:31 AM, Myvety2k via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>  Hi  Group, As of last Tuesday I have lost 5 pounds and I don't know
>> why.  Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going
>> over to get some blood work at 7 a.m.  Comprehensive metabolic panel, cbc
>> (no diff), vitamin B12 level and TSH, Ultrasensitive.  Also he want's me to
>> have a colonoscopy to screen for colon cancer Friday.  I really don't need
>> 2 different kinds of cancer so I'm worried.  Will let you all know what
>> happens.
>>
>> greenie
>>
>>  In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time,
>> swanson.sherri...@gmail.com writes:
>>
>>  Richard,  That is great news about the your haemoglobin. I also think
>> it's great that your drs are talking to one another.  That is so important.
>> Last week, I had to get a transfusion as my counts were so low. I went to
>> my onc and he did the usual blood draw and my WBC was 2.4.  That was enough
>> to send me over to the hospital for type and cross match and a transfusion.
>>
>> I too am eager to hear about Marty and pray for him everyday.
>>
>> Sherri
>>
>> On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>>  Richard, excellent news and I'm happy to hear that your hemoglobin has
>>> stabilized.  Glad that your doctors are in sync, too, because that will
>>> certainly make your life easier. Yay!
>>>
>>> Marcie
>>>
>>> Sent from my iPhone
>>>
>>> On Mar 10, 2015, at 12:15 AM, Richard H <rbhuffm...@gmail.com> wrote:
>>>
>>>   I visited my VA ONC today and both ONCs are bck on the same page.
>>> The better news is it appears that my hemoglobin has stabilized at 10.5. we
>>> are going to move forward with the testing program until the end of May.
>>> Another piece of news that makes me very happy is that both ONC's works at
>>> Kansas University Cancer Center. The VA contracts it's Doctors and Fellows
>>> (Doctors in training).  They can access all my records at both offices with
>>> the new Cerner Medical Systems that are being installed world wide.
>>>
>>> I am anxiously waiting for more news from Marty, and him keeping him my
>>> prayers.
>>>
>>> Richard H.
>>>
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