HI Suzieq >From my understanding The first patent for Gleevec expires in July 2015. This is the earliest predictable date that a generic version could become available. However this will probably be something that Novartis will fight and make some minor changes to it and maybe refilled it again. They will loose a lot of money so you can bet they intend to do something about it, or maybe they will give everyone a break with the cost of it. Only the future will tell.
I read your post and I would like to comment on the second statement that you made. First some people just don't know how to speak to people. Even this doctor that you mentioned. They give false and stupid advice especially to the newly diagnosed. By saying that she will be cured in one year is observed and gives false hope. You are correct about her looking for a new onc that specializes in CML. However as I have said many times it is my feeling that CML will be cured in the near future. If so I would love to say, I told you so, and I will!. Then you made a comment that goes against my grain, and that was that you thought that you were going to die because of all the side effects. I hope that you remember me saying that CML poisons your body as well as your mind. Your mind is a very powerful tool to be able to help yourself. I would like for you and everyone to read this. EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... How do you think that I was able to have a bone marrow transplant and living in a small plastic bubble that was in the hospital for seven months? It is because I was able to use my mind to focus... Why do you think that I always end any of my posts with 18's? Well, it is because it means life, and that is positive thinking. 18's, Marty On Tue, May 5, 2015 at 11:35 AM, Suzieq <sheila.a.wat...@gmail.com> wrote: > Hello there fellow CML Survivors: > > My 1st question: Does anyone know about the patent on Gleevec and if > it's about to expire? I was thinking it had up till this month, or the > last time I saw the information on it, I thought their extension ended > sometime in May of 2015. I don't remember where it was that we could go > and look at that information. I told my husband that I thought for sure > the price would drop on Gleevec by now, but from what I've seen from some > new cases, it looks as if it's increased in price. Course, I didn't see > the quantity that the price was for, that could make a difference, I'm > sure. > > 2nd question: How many TKI's are there now for CML (approved and also > those in trials)? There are two groups I am in on Facebook and so many new > cases being dx'ed every day that it's just unreal. I get upset with some > of the CML Survivors in these groups and what they will tell these newly > dx'ed people who seem scared to death & looking for good information. I > even talked to my doctor about some of this stuff that they are saying. > One told a new dx'ed person that his doctor told him when he was first > dx'ed, "well, will put you on this drug (didn't specify which one) and you > will take it every day. This and this will happen and you'll be cured > within a year." I about came unglued when I read that. And, I made sure > in my comment to this newly dx'ed person when I was trying to uplift her > and give her advice of what I went through and what helped me over the past > 11 years that I would be very leary of any doctor who told me that I would > be "cured" in a year! Infact, I would be finding another Hem./Onc > quickly. I told her that as far as I knew, there still is no cure for CML > that they know of. That these drugs are too new and not enough research to > let them know if it might be a cure one day. I told her that you can > become "undetected" or "non detected" after being on the TKI's after some > time. I told her that I call it a "drug induced remission" (those are my > words, not a doctors, lol). There are these "so called experts" who have > CML and looked at all the info and try and tell the new ones that there's > studies going on and some seemed to be cured. (that's false information) > My doctor told me (and I have read the info, too) that the one study that > was done in England, I believe it was, had several go off their Gleevec. > Within a year's time, 50% had their CML return. I'm thinking that > discussion I had with her (doctor) was about 2 & 1/2 years ago when I asked > to lower my Gleevec dosage. > > I always mention this group to those in the groups on FaceBook. I tell > them that after I was dx'ed in January 2004 & started Gleevec soon there > after, I thought I was going to die because of the awful side effects. I > said that I spent most of my time lying on my living room sofa or before > the throne in the bathroom. After about 4 months of this, I accidently > run upon this group(CML Hope) on line and it is what "saved" me. Back > then, I think Gleevec was the only drug at the time besides the trials for > Tasigna & Sprycel. We all had each other to help & we did. Whatever we > found that helped relieve a certain side effect, we shared. What worked > for trying to keep food down, we shared. If someone needed help > explaining all the tests and those numbers, we shared. > > So you see, I still appreciate each and every one of you. I miss those > who've gone on before us. God bless you and please have a wonderful day > today. Thank you > > Keep Looking up, > Breath in, Breath out, Move Forward, > > Suzieq > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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