Marty, sorry you've been through such a painful time but so glad you are doing better. Thoughts and prayers are with you.
18s Marcie Sent from my iPhone > On May 5, 2015, at 2:51 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > HI Suzieq > > From my understanding The first patent for Gleevec expires in July 2015. This > is the earliest predictable date that a generic version could become > available. However this will probably be something that Novartis will fight > and make some minor changes to it and maybe refilled it again. They will > loose a lot of money so you can bet they intend to do something about it, or > maybe they will give everyone a break with the cost of it. Only the future > will tell. > > I read your post and I would like to comment on the second statement that > you made. > First some people just don't know how to speak to people. Even this doctor > that you mentioned. They give false and stupid advice especially to the newly > diagnosed. By saying that she will be cured in one year is observed and gives > false hope. > > You are correct about her looking for a new onc that specializes in CML. > However as I have said many times it is my feeling that CML will be cured in > the near future. If so I would love to say, I told you so, and I will!. > > Then you made a comment that goes against my grain, and that was that you > thought that you were going to die because of all the side effects. I hope > that you remember me saying that CML poisons your body as well as your mind. > > Your mind is a very powerful tool to be able to help yourself. I would like > for you and everyone to read this. > > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. > TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF > YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER > MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > How do you think that I was able to have a bone marrow transplant and living > in a small plastic bubble that was in the hospital for seven months? It is > because I was able to use my mind to focus... > > Why do you think that I always end any of my posts with 18's? Well, it is > because it means life, and that is positive thinking. > > 18's, > > Marty > >> On Tue, May 5, 2015 at 11:35 AM, Suzieq <sheila.a.wat...@gmail.com> wrote: >> Hello there fellow CML Survivors: >> >> My 1st question: Does anyone know about the patent on Gleevec and if it's >> about to expire? I was thinking it had up till this month, or the last >> time I saw the information on it, I thought their extension ended sometime >> in May of 2015. I don't remember where it was that we could go and look at >> that information. I told my husband that I thought for sure the price >> would drop on Gleevec by now, but from what I've seen from some new cases, >> it looks as if it's increased in price. Course, I didn't see the quantity >> that the price was for, that could make a difference, I'm sure. >> >> 2nd question: How many TKI's are there now for CML (approved and also those >> in trials)? There are two groups I am in on Facebook and so many new cases >> being dx'ed every day that it's just unreal. I get upset with some of the >> CML Survivors in these groups and what they will tell these newly dx'ed >> people who seem scared to death & looking for good information. I even >> talked to my doctor about some of this stuff that they are saying. One told >> a new dx'ed person that his doctor told him when he was first dx'ed, "well, >> will put you on this drug (didn't specify which one) and you will take it >> every day. This and this will happen and you'll be cured within a year." I >> about came unglued when I read that. And, I made sure in my comment to >> this newly dx'ed person when I was trying to uplift her and give her advice >> of what I went through and what helped me over the past 11 years that I >> would be very leary of any doctor who told me that I would be "cured" in a >> year! Infact, I would be finding another Hem./Onc quickly. I told her that >> as far as I knew, there still is no cure for CML that they know of. That >> these drugs are too new and not enough research to let them know if it might >> be a cure one day. I told her that you can become "undetected" or "non >> detected" after being on the TKI's after some time. I told her that I call >> it a "drug induced remission" (those are my words, not a doctors, lol). >> There are these "so called experts" who have CML and looked at all the info >> and try and tell the new ones that there's studies going on and some seemed >> to be cured. (that's false information) My doctor told me (and I have read >> the info, too) that the one study that was done in England, I believe it >> was, had several go off their Gleevec. Within a year's time, 50% had their >> CML return. I'm thinking that discussion I had with her (doctor) was about >> 2 & 1/2 years ago when I asked to lower my Gleevec dosage. >> >> I always mention this group to those in the groups on FaceBook. I tell them >> that after I was dx'ed in January 2004 & started Gleevec soon there after, >> I thought I was going to die because of the awful side effects. I said that >> I spent most of my time lying on my living room sofa or before the throne in >> the bathroom. After about 4 months of this, I accidently run upon this >> group(CML Hope) on line and it is what "saved" me. Back then, I think >> Gleevec was the only drug at the time besides the trials for Tasigna & >> Sprycel. We all had each other to help & we did. Whatever we found that >> helped relieve a certain side effect, we shared. What worked for trying to >> keep food down, we shared. If someone needed help explaining all the tests >> and those numbers, we shared. >> >> So you see, I still appreciate each and every one of you. I miss those >> who've gone on before us. God bless you and please have a wonderful day >> today. Thank you >> >> Keep Looking up, >> Breath in, Breath out, Move Forward, >> >> Suzieq >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
