Thanks, Marty. I am having no great emotional upheaval over quitting Gleevec. Whatever will be, will be, and everything is a learning experience. It just feels strange after 14+ years. In other news, Monday a new platelet dr. decided to do a BMB. You won't believe this: It took him FOUR tries to get a viable sample. Never had this happen before. Four crunching entries. Sort of like having four BMB's at the same time. Afterwards I was almost in a state of shock and could not stand, nauseous, very stressed. (In Canada we do not get sedation or morphine for this procedure.) It took me 90 minutes to de-stress and had to drive myself home because he had not warned me that he intended to do this and to bring a driver along. There's one doctor who will NOT be doing another BMB on me!! I think he needs a few more lessons in how to do it. Anyway, I am fine....still low platelets. Life goes on.....Angie From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope@googlegroups.com Sent: Wednesday, June 17, 2015 7:29 AM Subject: Re: [CMLHope] Stopping Gleevec Hi Angie, You are not thee only one that has stopped your TKI and felt that way. sometimes something that we take as far as any TKI's ends up being a crutch for us and we always seem to worry if this or that will come back to haunt us. It is a normal human response and we worry about it. Angie, since your really feeling better without the Gleevec then you should learn to live your life in the best way that you can. I have seen this many times before. A man that both Zavie and I knew was on Alpha Interferon and suffered immensely from it's horrible side effects. He suffered for many years and when he was finally PCRU everyone told him to stop using it anymore but he still continued still suffering because it had become a crutch for him. He had the same feelings as you now have and after a lot of coaching from everyone he finally stopped it. He has been off of it for many years and no reoccurrence of CML ever came back to him. His system finally "burned out" his CML. Remember that everything in life has a double edged soared. If you do something will it come back to haunt you or if you don't do something will it come back to haunt you?? I just can't live my life that way, and if something does come back then I will deal with it.Remember me telling everyone that Leukemia is both a disease of not only the body but it also poisons the mind. Angie, why not start writing a diary and put everything in there that you have gone through the day? I do it and it lets me reflect about what I could have done better or worse during the day. I call it my frustrations and how to deal with them, and it really works for me as I am sure it will also work for you or anyone else. By the way I see that Giora sent you his response. read it if you haven't as yet. Here is something called "expect the best" Please read it and it will also help you with yourself. One last thing. I am not a doctor but have gone through a lot of things in my life health wise as you already know. Have you ever wondered why I am still alive? I did at one time but maybe it is because I try helping others as a promise that I once made to GOD and also received help myself from others. It is a two way street, or I am the luckiest son of a bitch on this planet ???18's, Marty EXPECT THE BEST, MINDOVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS ATANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSETHEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THEBEST THEN THAT IS WHAT YOU WILL GET.WHAT WE HAVE TO LEARNTO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT ANDNOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY.WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVESINTO THE AREA OF POSSIBILITY.EVERY GREAT THINGEVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE BEGINNING OF A DOUBTFULUNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME...FOCUS... 18's,Marty
On Tue, Jun 16, 2015 at 9:02 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: I just received an email from my oncologist telling me that it is safe for me to stop Gleevec for 3 months.I started Gleevec in January 2001, and reached cytogenic remission in July 2001. I've continued on 300mg per day.I was in the study for 12 years.I feel like it is my safety net between wellness and reoccurrence of CML.I am almost afraid to stop it. I no longer have any side effects from it.Who has stopped Gleevec, and what have you experienced as a result of doing so?Thanking you all for your input...Angie in Canada-- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
