Pete,
When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla. He is
GREAT!!!
18'S,
Susan F. Zimmerman
-----Original Message-----
From: Pete Pabon <nyc...@hotmail.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Mon, Jun 15, 2015 12:36 am
Subject: RE: [CMLHope] Platelets
Jeanie,who do you see at Moffitt?
Date: Sun, 14 Jun 2015 20:23:18 -0700
From: rbhuffm...@gmail.com
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] Platelets
I do understand Skip. I have a sister that has been anemic all her life, and
she is doing fine at 5. I have been having problems every time I get close
7.9. Just again shows how we each find our spot that works for us.
Richard H.
On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote:
I have had very low platelets and ANC and RBC and plus some others plus high
Ferritin counts over 7000 most weeks I have critical platelets and white counts
of 1.2 or up to 2.01 neut 0.20 yet with no meds I have 0.8 log reduction. I
fell fine been doing this for 37 years I tell you this as I want all to know
Low counts should looked but not to spoil your day Zevie was astounded when I
send him on of my blood reports with 1.0 white 88 RBC 0zero platelets ANC of
0.20
hooe this helps
Skip Dx 1977
Sent from Yahoo Mail on Android
From:"'Icandoallttc' via CMLHope" <
cml...@googlegroups.com>
Date:Tue, May 19, 2015 at 9:01 AM
Subject:Re: [CMLHope] Platelets
I also have problems with platelets and WBC. They go way too high. Only on
Tasigna did they drop too Lowe. Go figure. We are all unique in how we
respond to the tkis.
Moffitt tomorrow. I am hoping for good results.
5 months on ponatinib.
Prayers & Blessings Jeanie 18,s
Dx 1/2004
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan <
graga...@gmail.com> wrote:
I have problems with platelet count. Diagnosed in 2012 Started with Gleevec.
Now with Sprycel. With Sprycel, platelet counts go down. Started with 140mg per
day and now taking 50mg per day. One moth of Sprycel medication and two months
rest for platelet recovery. This is how current medication is going on. I take
papaya leaf tea everyday to improve platelets.
On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS
<esd...@rogers.com> wrote:
Does anyone have problems maintaining their platelet level?
Mine fall down to almost ZERO, which is a dangerous place to be. I am covered
with big purple bruises and petechiae and look like I have been in a bar fight.
Even a light scratch on my skin brings the blood to the surface. It is called
Thrombocytopenia. My red cells also plummet and I had 6 blood transfusions
last week.
My confidence waivers a little as it seems they don't really know what to do
about me. I have lots of complications. More specialists on the horizon, but
every step forward is followed by 3 steps back. I am on massive prednisone for
the moment.
Can anyone share info on this?
Angie in Canada....
Gleevec pioneer since 2001
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