i am at home getting rehabilitation.

18's

Marty

On Fri, Jul 3, 2015 at 3:22 PM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi Marty.
> Are you in the hospital?
>
> My Motto: Faith and Pills
> Jeanie 🐟🐟18,s
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Jul 3, 2015, at 3:19 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>
> Hi, everyone,
>
> I did have a stroke on Friday the 26 i am slowly getting better.
> just affected my speech but still working through it.
>
> 18's
>
> Marty
>
> On Thu, Jul 2, 2015 at 9:54 PM, 'Marcie Goodman' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Marty, when did that happen?  I hope you are feeling well and I'll be
>> saying prayers for you.  Please take good care. Hugs to you.
>>
>> 18s
>>
>> Marcie
>>
>> Sent from my iPad
>>
>> On Jul 2, 2015, at 9:47 PM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>
>> Hi. Susan
>>
>> unfortunately i had a stroke. getting better.
>>
>> 18's
>>
>> Marty
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> On Mon, Jun 29, 2015 at 2:18 PM, 'Susan Zimmerman' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>> Pete,
>>> When I was at Moffitt from 2005 til 2007, I saw Dr. Javier Panilla.  He
>>> is GREAT!!!
>>>
>>> 18'S,
>>> Susan F. Zimmerman
>>>
>>>
>>> -----Original Message-----
>>> From: Pete Pabon <nyc...@hotmail.com>
>>> To: cmlhope <cmlhope@googlegroups.com>
>>> Sent: Mon, Jun 15, 2015 12:36 am
>>> Subject: RE: [CMLHope] Platelets
>>>
>>>   *Jeanie,who do you see at Moffitt?*
>>>
>>>
>>>
>>>  ------------------------------
>>> Date: Sun, 14 Jun 2015 20:23:18 -0700
>>> From: rbhuffm...@gmail.com
>>> To: cmlhope@googlegroups.com
>>> Subject: Re: [CMLHope] Platelets
>>>
>>>  I do understand Skip.  I have a sister that has been anemic all her
>>> life, and she is doing fine at 5.  I have been having problems every time I
>>> get close 7.9.    Just again shows how we each find our spot that works for
>>> us.
>>>
>>>  Richard H.
>>>
>>> On Sunday, June 14, 2015 at 8:08:33 AM UTC-5, easyskip_2002 wrote:
>>>
>>>
>>> I have had very low platelets and ANC and RBC and plus some others plus
>>> high Ferritin counts over 7000 most weeks I have critical platelets and
>>> white counts of 1.2 or up to 2.01  neut 0.20 yet with no meds I have 0.8
>>> log reduction. I fell fine been doing this for 37 years I tell you this as
>>> I want all to know Low counts should looked but not to spoil your day
>>>  Zevie was astounded when I send him on of my blood reports with 1.0 white
>>> 88 RBC 0zero platelets  ANC of 0.20
>>> hooe this helps
>>>  Skip Dx 1977
>>> Sent from Yahoo Mail on Android
>>> <https://overview.mail.yahoo.com/mobile/?.src=Android>
>>> ------------------------------
>>>    *From*:"'Icandoallttc' via CMLHope" < cml...@googlegroups.com>
>>> *Date*:Tue, May 19, 2015 at 9:01 AM
>>> *Subject*:Re: [CMLHope] Platelets
>>>
>>>  I also have problems with platelets and WBC.   They go way too high.
>>> Only on Tasigna did they drop too Lowe.  Go figure.  We are all unique in
>>> how we respond to the tkis.
>>>  Moffitt tomorrow.  I am hoping for good results.
>>>  5 months on ponatinib.
>>>
>>> Prayers & Blessings Jeanie [image: Fish] [image: Fish]18,s
>>> Dx 1/2004
>>>  Started Gleevec 2/2004
>>>  Started Tasigna  9/2009
>>>  Started Sprycel 11/2009
>>>  Started Ponatinib January 2015
>>>
>>> On May 17, 2015, at 7:08 AM, Gopalsamy Ragavan < graga...@gmail.com>
>>> wrote:
>>>
>>>   I have problems with platelet count. Diagnosed in 2012 Started with
>>> Gleevec. Now with Sprycel. With Sprycel, platelet counts go down. Started
>>> with 140mg per day and now taking 50mg per day. One moth of Sprycel
>>> medication and two months rest for platelet recovery. This is how current
>>> medication is going on. I take papaya leaf tea everyday to improve
>>> platelets.
>>>
>>>  On Sat, May 16, 2015 at 9:29 AM, ANGELYN ESDERS <esd...@rogers.com>
>>> wrote:
>>>
>>>   Does anyone have problems maintaining their platelet level?
>>>  Mine fall down to almost ZERO, which is a dangerous place to be. I am
>>> covered with big purple bruises and petechiae and look like I have been in
>>> a bar fight. Even a light scratch on my skin brings the blood to the
>>> surface. It is called Thrombocytopenia. My red cells also plummet and I had
>>> 6 blood transfusions  last week.
>>>  My confidence waivers a little as it seems they don't really know what
>>> to do about me. I have lots of complications. More specialists on the
>>> horizon, but every step forward is followed by 3 steps back. I am on
>>> massive prednisone for the moment.
>>>  Can anyone share  info on this?
>>>  Angie in Canada....
>>>  Gleevec pioneer since 2001
>>>
>>> --
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