Do any of you have problem with legs blood vessels because of Gleevec?
From: Myvety2k via CMLHope
Sent: Saturday, January 16, 2016 1:39 PM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on...
Richard H. I agree, well said. I started Gleevec the first week in Janurary
2000 16 years ago and I'm still pumping blood. Of course the way these people
drive here in Southwest Florida it's like driving in the Indy 500 with
blindfolds on.
greenie
In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time,
rbhuffm...@gmail.com writes:
Marti it is good to hear your (voice) and see you here. I agree with you and
Jeanie. I'll start my 14th year the first of March with this wonderful group
of loving and caring friends. This history we give can only be given thru
leadership of having been there fighting the fight. But leadership always
needs a significant special leader (General, Admiral) too narrow our path so
that we can win the current battle. Thanks for keeping us looking up to the
sunrise of a new day and helping wash away all the doubt, fear, and other dark
thoughts that detract us from fulfilling this life we have on Planet Earth.
18's
Richard H.
On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote:
Hi Marty and good to hear from you. We were wondering what happened.
I believe the founder and narrator of this group is Rob. His mother had
leukemia. Are you there Rob???
Most of us have been here a long time. I believe the group was once a
yahoo group.
We are all warriors and help each other when we can.
This makes my 12 th year and I joined the group early on.
And yes we are all leaders in our own way and pioneers with the tkis so
that've can give our knowledge to the new warriors.
I fight with faith and pills and I am a Christian.
Much love.
💋😇❤️💝💗
My Motto: Faith and Pills
Jeanie 🐟🐟18,s
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center
On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
For some reason my message did not come out so I am trying it once more,
I do hope it does come through
This is directed to Sandi and everyone else.
Dearest Sandi, and I really mean that, but for a very special reason. It
is not the words that I wright but it is my meaning. You and everyone else here
are only here because all of us are meant to be here. Am I strong well maybe I
am or I probably wouldn't be here right now.
My question to you and everyone else that may be reading this are you
also strong. You know what? You have to be because you are battling an awful
disease, but my friends just like me am I still here, and are you. You bet we
are.
So no matter how strong I may be and no matter how strong any of you may
be, guess what? We are still here together and until "uncle GOD" determinants
otherwise this is where we stay.
How many times have I been at deaths door? Now look at what you have. You
have life, just as I do and do you know why it's really very simple because
about a bit more then a decade ago some mortal man discovered a pill that
changed the course of your lives. You, all of you are living proof.
So I am not what anyone thinks about me because your living proof just as
I am we are all strong in spite of what you think.
Am I a leader of this group perhaps I am, however what about each and
everyone else. Please try to understand people that are in a group are the
power of that group.
OK so lately I have a little more activity in my life health wise then
normal (whatever that may be)
So please lets everyone stop calling me the leader of this group because
we all are some a little more some a little bit less but when we all come
together we are a force to recon with.
Remember 18's Have you ever noticed that I have never left it out before?
Who knows maybe there is a reason. 18's is life, at least in my book.
Marty
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