Thanks 18's
Marty On Monday, March 21, 2016, Myvety2k via CMLHope <cmlhope@googlegroups.com> wrote: > Marty, got my fingers crossed. > > greenie > > In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, > wa2...@gmail.com <javascript:_e(%7B%7D,'cvml','wa2...@gmail.com');> > writes: > > Hi Beth, > > I am actually still in the hospital but maybe today I will be getting out > just have to wait for the doctors when they make their rounds. I will keep > everyone updated. > > 18's, > > Marty > > bkbarney via CMLHope <cmlhope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>> wrote: > Dear Marty, > So glad you are out of the hospital! And Peg, you are so right about what > you said to Jeanie...Hope everyone is doing as well as possible. Thinking > of all of you...love, and 18's Beth > > -----Original Message----- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>> > To: peg <peg....@live.com > <javascript:_e(%7B%7D,'cvml','peg....@live.com');>> > Cc: CMLHope <cmlhope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>> > Sent: Fri, Mar 18, 2016 11:19 am > Subject: [CMLHope] Re: Dizzy all day > > Thanks Peg, > You are so right. I was reading the side effects of ponatinib and i was > thinking I have to take this??! > Well yes I do and blood clots and heart problems are right up there high > on the list. > My potassium tends to be high also and you can get heart problems from > that. > Just have to fight on and thanks again. > > > > My Motto: Faith and Pills❤️ > With 💗Jeanie 🐟🐟18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Mar 18, 2016, at 12:00 PM, peg <peg....@live.com > <javascript:_e(%7B%7D,'cvml','peg....@live.com');>> wrote: > > > Hi Jeanie, > > I was traveling on business this week and just checked in and am wondering > if you are feeling better? > > I had to caution another cancer patient recently not to write off sudden > changes as normal...caused by treatment, age, etc. The new generation of > meds to treat CML and other cancers can have side effects that can be > deadly if not caught in time. Sprycel was a really good example of this. > Prior to the FDA warning that it can cause deadly pulmonary hypertension no > one was paying attention to folks that were already on it. When one of our > CML warriors started feeling weak and dizzy, even her doctor dismissed it, > for months, until she collapsed and woke up in the cardiac care unit. She > almost died, and had a long road to recovery. Her spreading the word saved > other lives! Everyone should know their meds, know what the symptoms are > of the dangerous side effects and alert their doctor if those symptoms > present. It doesn't hurt to tell the doctor you are concerned it is a side > effect of your meds, you would be surprised how many doctors are not > familiar with the side effects of the meds they are prescribing! > > I think those of us living with cancer or any other chronic disease are > kind of stoic and don't whine a lot...but sometimes we should. > > *Note to Marty...since I am sure you are reading this...you are in my > prayers!!* > > Fight on, > Peg > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > <javascript:_e(%7B%7D,'cvml','CMLHope@googlegroups.com');> > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope-unsubscr...@googlegroups.com');> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com > <javascript:_e(%7B%7D,'cvml','cmlhope%2bunsubscr...@googlegroups.com');>. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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