Thanks

18's

Marty

On Monday, March 21, 2016, Myvety2k via CMLHope <cmlhope@googlegroups.com>
wrote:

> Marty, got my fingers crossed.
>
> greenie
>
> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time,
> wa2...@gmail.com <javascript:_e(%7B%7D,'cvml','wa2...@gmail.com');>
> writes:
>
> Hi Beth,
>
> I am actually still in the hospital but maybe today I will be getting out
> just have to wait for the doctors when they make their rounds. I will keep
> everyone updated.
>
> 18's,
>
> Marty
>
> bkbarney via CMLHope <cmlhope@googlegroups.com
> <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>> wrote:
> Dear Marty,
> So glad you are out of the hospital! And Peg, you are so right about what
> you said to Jeanie...Hope everyone is doing as well as possible. Thinking
> of all of you...love, and 18's Beth
>
> -----Original Message-----
> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com
> <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>>
> To: peg <peg....@live.com
> <javascript:_e(%7B%7D,'cvml','peg....@live.com');>>
> Cc: CMLHope <cmlhope@googlegroups.com
> <javascript:_e(%7B%7D,'cvml','cmlhope@googlegroups.com');>>
> Sent: Fri, Mar 18, 2016 11:19 am
> Subject: [CMLHope] Re: Dizzy all day
>
> Thanks Peg,
> You are so right.  I was reading the side effects of ponatinib and i was
> thinking I have to take this??!
> Well yes I do and blood clots and heart problems are right up there high
> on the list.
> My potassium tends to be high also and you can get heart problems from
> that.
> Just have to fight on and thanks again.
>
>
>
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 18, 2016, at 12:00 PM, peg <peg....@live.com
> <javascript:_e(%7B%7D,'cvml','peg....@live.com');>> wrote:
>
>
> Hi Jeanie,
>
> I was traveling on business this week and just checked in and am wondering
> if you are feeling better?
>
> I had to caution another cancer patient recently not to write off sudden
> changes as normal...caused by treatment, age, etc.  The new generation of
> meds to treat CML and other cancers can have side effects that can be
> deadly if not caught in time.  Sprycel was a really good example of this.
> Prior to the FDA warning that it can cause deadly pulmonary hypertension no
> one was paying attention to folks that were already on it.  When one of our
> CML warriors started feeling weak and dizzy, even her doctor dismissed it,
> for months, until she collapsed and woke up in the cardiac care unit.  She
> almost died, and had a long road to recovery. Her spreading the word saved
> other lives!   Everyone should know their meds, know what the symptoms are
> of the dangerous side effects and alert their doctor if those symptoms
> present. It doesn't hurt to tell the doctor you are concerned it is a side
> effect of your meds, you would be surprised how many doctors are not
> familiar with the side effects of the meds they are prescribing!
>
> I think those of us living with cancer or any other chronic disease are
> kind of stoic and don't whine a lot...but sometimes we should.
>
> *Note to Marty...since I am sure you are reading this...you are in my
> prayers!!*
>
> Fight on,
> Peg
>
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