Prayers Marty!!' 💋❤️ My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center
> On Mar 21, 2016, at 10:05 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Thanks > > 18's > > Marty > >> On Monday, March 21, 2016, Myvety2k via CMLHope <cmlhope@googlegroups.com> >> wrote: >> Marty, got my fingers crossed. >> >> greenie >> >> In a message dated 3/21/2016 8:41:14 A.M. Eastern Daylight Time, >> wa2...@gmail.com writes: >> Hi Beth, >> >> I am actually still in the hospital but maybe today I will be getting out >> just have to wait for the doctors when they make their rounds. I will keep >> everyone updated. >> >> 18's, >> >> Marty >> >> bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: >> Dear Marty, >> So glad you are out of the hospital! And Peg, you are so right about what >> you said to Jeanie...Hope everyone is doing as well as possible. Thinking of >> all of you...love, and 18's Beth >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >> To: peg <peg....@live.com> >> Cc: CMLHope <cmlhope@googlegroups.com> >> Sent: Fri, Mar 18, 2016 11:19 am >> Subject: [CMLHope] Re: Dizzy all day >> >> Thanks Peg, >> You are so right. I was reading the side effects of ponatinib and i was >> thinking I have to take this??! >> Well yes I do and blood clots and heart problems are right up there high on >> the list. >> My potassium tends to be high also and you can get heart problems from that. >> Just have to fight on and thanks again. >> >> >> >> My Motto: Faith and Pills❤️ >> With 💗Jeanie 🐟🐟18,s Chi >> Dx 1/2004. CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib January 2015 >> Dr Balducci Moffitt Cancer Center >> >> On Mar 18, 2016, at 12:00 PM, peg <peg....@live.com> wrote: >> >> >> Hi Jeanie, >> >> I was traveling on business this week and just checked in and am wondering >> if you are feeling better? >> >> I had to caution another cancer patient recently not to write off sudden >> changes as normal...caused by treatment, age, etc. The new generation of >> meds to treat CML and other cancers can have side effects that can be deadly >> if not caught in time. Sprycel was a really good example of this. Prior to >> the FDA warning that it can cause deadly pulmonary hypertension no one was >> paying attention to folks that were already on it. When one of our CML >> warriors started feeling weak and dizzy, even her doctor dismissed it, for >> months, until she collapsed and woke up in the cardiac care unit. She >> almost died, and had a long road to recovery. Her spreading the word saved >> other lives! Everyone should know their meds, know what the symptoms are >> of the dangerous side effects and alert their doctor if those symptoms >> present. It doesn't hurt to tell the doctor you are concerned it is a side >> effect of your meds, you would be surprised how many doctors are not >> familiar with the side effects of the meds they are prescribing! >> >> I think those of us living with cancer or any other chronic disease are kind >> of stoic and don't whine a lot...but sometimes we should. >> >> Note to Marty...since I am sure you are reading this...you are in my >> prayers!! >> >> Fight on, >> Peg >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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