Hi Marcie I loved the wig idea. My hair was coming out in clumps on Gleevec but for some reason it grew back in. On Ponatinib my hair is coming out again. So thin and my skin feels like leather. It feels so strange to look at your brush and see all that hair in it. Wigs for me too if it doesn't stop. Thanks for the update.
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Mar 26, 2016, at 1:26 PM, 'Marcie Goodman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Angie, what a time you have had! It must be a pleasure to be off the > Gleevec. My platelets and counts were good. The red cells and everything > related to them were off. Looks like I have perhaps developed severe iron > deficient anemia. I'll be having more labs and tests to try and figure it > out. I'm thrilled to be home and I'm from much better. > > Seven years of Gleevec destroyed my hair. So wigs for me and I love it. Never > have a bad hair day and never have to spend a second on it! > > Stay well. So good to hear from you. > > Marcie > > Sent from my iPhone > >> On Mar 24, 2016, at 8:37 PM, ANGELYN ESDERS <esd...@rogers.com> wrote: >> >> Hi. Marcie. >> Did your platelets also bottom out with your red cells? >> A year ago April I lost almost every single platelet, and also needed 6 >> blood transfusions in a week. The specialists had blamed it on my lupus. >> I recovered and strangely lost a LOT of hair....but I have been very well >> since then. My hair is growing back. >> Have been in remission from CML since July 2001. I have been off Gleevec for >> 10 months now. So far so good. >> With a tag-team like leukemia and lupus, one never knows what to expect next. >> Anyway, Life is good. No complaints. >> Angie in Canada >> >> >> From: 'Marcie Goodman' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope@googlegroups.com >> Sent: Thursday, March 24, 2016 5:07 PM >> Subject: Re: [CMLHope] To Susan Zimmerman >> >> Susan, as always, I have you and Roy in my prayers. Please let us know how >> your test turns out. >> >> I just got out of hospital because my red cells bottomed out and I became >> very sick. So some transfusions and several days later, just came home. I >> will be undergoing more tests, might have gallbladder problem which arose >> after I was discharged, naturally! Ultrasound tomorrow. Never dull but >> always interesting! >> >> Marcie >> >> >> >> Sent from my iPhone >> >>> On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>> Thanks for the encouragement. I may write him but not confident he would >>> have any different answers. Dr. Jessica Altman is completely on top of >>> things for me. I"ve been to two other specialists at Nwestern to dig into >>> causes....nothing unusual except cavernous malformations turns up. Have >>> checked everything at least three times over the yrs. So again off meds >>> hopefully for a long time unless #'s go high. >>> Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! >>> Hope all is well with you! >>> Susan F. Zimmerman >>> "All who humble themselves before the Lord shall be given every blessing, >>> and shall have wonderful peace." Ps.37:11 >>> >>> >>> On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>> Susan: >>> >>> Are you able to have an appointment with Dr. Druker in Portland, Oregon? >>> >>> At least email him >>> >>> Hugs, >>> Susan Rosenthal >>> >>> Have a wonderful day >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com/ >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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