Hi and yes I use bag balm. My son bought it at a farm store. I had rashes, boils, and you name it while on Gleevec. It works really well. My doctor gave me some hydrocortizone cream. Try anything you can and see what works for you. Mile soda water solution is good also. Blessings Jeanie<3 In a message dated 3/31/2016 1:19:35 P.M. Eastern Daylight Time, wa2...@gmail.com writes:
Hi Kate, I am sad that you have to be here, but at the same time I am also glad that your here. Sad you have CML but glad because you will be able to learn many things from everyone of us that are here. Do you know or possibly know of anyone that have used Bag Balm? Well you actually now know of someone that did.. Me. If you have any rashes or worse on your body, as long as they are not in places that come in contact with your clothing because this is very greasy and you don't want it on any of your clothing. When I had my bone marrow transplant 27 years ago I had to undergo total body radiation after my procedure was completed my body suffered from severe burns. My toes were black my ears, nose, fingers, head, hands and most other parts, even the bottoms of my feet, and that was the worst of it because I was living in a plastic 6 by 9 bubble in the hospital at the time and all of the radiation had to be finished at the time. They were not even allowed to enter this bubble because it would expose me to any types of bacteria, or mold or any types of viruses, so I had to survive living in pain until I was finally able to get out of there. They tried many different things like Kerry oil or lotion but it only worked very little to heal all of the burns. A friend of mine told me to try Bag Balm so I tried it and it finally worked! Bag Balm comes in small square green tins usually in either 1 ounce or 8 ounce sizes. They are very inexpensive usually between $6 to $8. They will last over 27 years or more providing that you don't touch it with your fingers but a Q-tip would be fine because you only need a very small amount. I have had my 8 ounce tin for over 27 years now and still use it from time to time and about one half is still left, so you may just wand the one ounce tin, but since the price between the 8 ounce and one ounce are only a couple of dollars then you make up your mind. Remember it was and still is used for the otters of cows usually in the winter time when they are chapped. http://www.amazon.com/s/?ie=UTF8&keywords=vermont+original+bag+balm&tag=goog hydr-20&index=aps&hvadid=92441825437&hvpos=1t2&hvexid=&hvnetw=s&hvrand=80041 28417658345&hvpone=&hvptwo=&hvqmt=b&hvdev=c&ref=pd_sl_6tq5alc55b_b_p10 On Tue, Mar 29, 2016 at 11:53 PM, Richard H <_rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) > wrote: I only know that some CMLers have a rash but not acne. Most I have heard of treat with an anti-itch creme. I am sure others will be able to tell you more. I haven't had one, just remember the talk. Welcome to the club that no one wants to be a member of. I have been around for 14 years Richard H. On Tuesday, March 29, 2016 at 1:42:02 PM UTC-5, candles wrote: Hi all, I am real new to the CML world only 14 months out from diagnosis. I have learned a lot from reading posts here. It's been helpful. My dr is a CML dr and I've had very good results medicine wise but he has no answers for side effects.... Specially bad acne break outs. All he says it's because I'm on the young side to have developed CML. I'm almost 57. Been seeing a dermatologist but results have been minimal. Anyone out there got any suggestions? I'm taking 200mg daily of gleevec. Was on 400 of tasigna which was hell on earth. Anything would be helpful. 18's Kate Sent from my iPhone On Mar 28, 2016, at 9:51 PM, 'Susan Zimmerman' via CMLHope <cml...@googlegroups.com> wrote: Marcie, So glad the gall bladder settled down. I give our God ALL the credit for that! So sorry to hear about your husband's issues as well. Is he doing ok now? Not sposed to take turns at the hospital. How will you ever get in a vacation? Blessings at Passover time. Love, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 ____________________________________ On Saturday, March 26, 2016 'Marcie Goodman' via CMLHope <cml...@googlegroups.com> wrote: Thanks, Susan. I missed an appointment for blood labs because my husband was in the hospital and having complications from his medical issues. No one to blame but myself. The pain on side has gone so at least for now I'm not going to worry about it. I'll be following up this week with my doctor for more labs and tests. So glad you are doing well. This is the season for miracles and I wish you and Roy and the family a happy and very blessed Easter. Marcie Sent from my iPhone On Mar 24, 2016, at 5:25 PM, 'Susan Zimmerman' via CMLHope <cml...@googlegroups.com> wrote: So sorry to hear about a hospital stay. These are not places we want to hang out....low red cells does not sound good, but I'm sure you have great docs. Was that low a gradual thing or quick? Seems they should or could have caught it before you bottomed out if it was gradual. I sure hope it turns out the gallbladder is fine. He still heals today so I'll pray! You could have gotten time off work in an easier way, I'm sure. Hope you gets lots of extra tlc and consider this part of it!!! You are special to me and many others on here! Keep us updated!!! 18's and fight on, Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 ____________________________________ On Thursday, March 24, 2016 'Marcie Goodman' via CMLHope <cml...@googlegroups.com> wrote: Susan, as always, I have you and Roy in my prayers. Please let us know how your test turns out. I just got out of hospital because my red cells bottomed out and I became very sick. So some transfusions and several days later, just came home. I will be undergoing more tests, might have gallbladder problem which arose after I was discharged, naturally! Ultrasound tomorrow. Never dull but always interesting! Marcie Sent from my iPhone On Mar 24, 2016, at 5:01 PM, 'Susan Zimmerman' via CMLHope <cml...@googlegroups.com> wrote: Thanks for the encouragement. I may write him but not confident he would have any different answers. Dr. Jessica Altman is completely on top of things for me. I"ve been to two other specialists at Nwestern to dig into causes....nothing unusual except cavernous malformations turns up. Have checked everything at least three times over the yrs. So again off meds hopefully for a long time unless #'s go high. Tomorrow getting tested again w bcr/abl. Best answers are through prayer!!! Hope all is well with you! Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace." Ps.37:11 ____________________________________ On Thursday, March 17, 2016 'Susan Rosenthal' via CMLHope <cml...@googlegroups.com> wrote: Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
