Yes Beth I miss your uplifting posts. I know we are all fighting and it gets to be hard, but sharing does help. I am doing good on Ponatinib with few side effects but the side pain I with me all the time. And yes Beth waiting to get our blood results can be scary. It always surprises me when the doctor walks in and all is good. It's like I'm waiting for the bomb to drop. I go to Moffitt every three months now. I'm still in remission. However leukemia can rear its ugly head ant time as we all know. I tend to live each day as best I can and try not to worry. Share with us what you can Beth and keep in touch. ❤️❤️😇😇
My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Chi Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Beth, yes, a long time since you've posted. Please let us know your results. > Sending prayers and hugs. > > Marcie > > Sent from my iPhone > >> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> Thank you Richard for your kind words and prayers. They are always so >> appreciated. You are such a stable presence here. I so appreciate your >> thoughts and help. I hope everyone is navigating the best they can. Know >> that I think of all of you often...haven't written much because of my own >> journey...I am sorry if I missed out on communicating with those who are >> struggling recently. All of you are in my heart. >> >> I do BCR abl next week..so please keep your fingers crossed. I have more >> anxiety about this one for some reason... My basic blood work shows some >> changes that are in the wrong direction...hopefully things are stable in the >> CML realm. >> >> Will keep you posted.. >> >> Much love and 18's, Beth >> >> -----Original Message----- >> From: Richard H <rbhuffm...@gmail.com> >> To: CMLHope <cmlhope@googlegroups.com> >> Sent: Sun, May 1, 2016 11:11 pm >> Subject: Re: [CMLHope] Prayers are offered. >> >> Thank you. >> Richard >> >>> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote: >>> Just one thing to say Richard H. Your like the rock of Gibraltar. >>> >>> 18's to you! >>> >>> Marty >>> >>>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H <rbhuf...@gmail.com> wrote: >>>> I am sorry to hear about all the problems everyone is reporting. I am >>>> lifting prayers for healing to those with problems and for the caregivers >>>> prayers of understanding and strength to help them be the support they >>>> want and need to be. >>>> >>>> I am just coasting with all my problems and trying to deal with lower >>>> strength because of them. I have changed a couple of Doctors because they >>>> started practicing too far away. They have reviewed my records and have >>>> updated me on things that I don't remember being told about and clarified >>>> some things that were given as side inference. I am also adding a new >>>> heart med and will be monitored to see if I need to change others on my >>>> list. >>>> >>>> 18's >>>> >>>> Richard H. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to cml...@googlegroups.com >>>> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+u...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
