There are better treatments now. I'm on Ponatinib and its working good. I take 1 15 mg pill daily. I've been on most of the tkis. I got mutants on all except the one I'm in now. Yes go to specialist. Blessings.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 11, 2016, at 10:52 PM, 'rszim0...@aol.com' via CMLHope > <cmlhope@googlegroups.com> wrote: > > Are you speaking of interferon treatments? These were used before gleevec and > all the other new drugs. I was diagnosed in early 2005 and have been on all > the tki's except ponatinib. It would seem the doc would change you to another > drug instead of interferon. Are you going to a cml specialist? Highly > recommend either a university medical dept. Like northwestern in chicago (dr > jessica altman), or moffitt in tampa (dr. Pinilla), md anderson in texas, > johns hopkins in new york, dr. Talpaz at univ. Of michigan, or portland > oregon's dr. Druker who invented gleevec. I didnt mention mayo but that is > great also. Some small-town docs do not know their stuff. Please do not go > back on sprycel. Your symptoms w heart will only worsen. Yes interferon does > not give a good quality of life due to flu-like symptoms. I drive 2 1/2 hrs > to see my doc. Worth it!!!! Local blood tests if not seeing doc. Blessings > and best wishes to you!!! Susan Zimmerman from Granger, In. Near South Bend. > 18's to all and hope to hear from Marty or his relative!!! > > Sent from my Sprint phone > > ------ Original message------ > From: perk > Date: Thu, Aug 11, 2016 12:49 PM > To: CMLHope; > Subject:[CMLHope] Ferone treatment > > I was placed on Sprycel in 2008. While this treatment contained my WBC, it > caused fluid retention around my heart and lungs. My onc was to try a ferone > treatment. Has anyone had any experience with this form of treatment. It is > an injection and he said common side effects were flu-like symptoms. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
