Hi Jeanie, Sorry to hear about the pain your having. Hmm it sounds to me like a case of gout but i could be wrong, for instance the gout usually starts in the lower feet particularly in the big toe but can also manifest it self in any joint of your body. It did for me and i suffered all kinds of terrible pain.
That was right after my diagnoses when i was put on Allopurinal and Hydrea. About two weeks later my gout was gone and so was my very white cell count. So what this meant is it usually takes about two weeks to distinguishes the gout. It's to bad however that my white blood count was going up until i got my BMT, but at least it "cured the gout". >From then on no more gout but every once in a while it's ugly head "craps"😖 up on me if i eat anything containing purines like red meat, mushrooms etc which is my favorite especially smothered in mushrooms. Now there is more... Once i received my BMT and my Kidney transplant i had to be put on Prednisone which will eliminate with in 30 minutes or so even when you have an active attack. I have been taking Allopurinal for over 30 years and Prednisone for the last 7 years. Yes i have no gout or very little gout for all of there years, however there is both good and bad... I have already described the good but the bad is that it increased my blood sugar level... Jeanie, i am not a doctor but to answer your question, yes i would go see a doctor because it is you that should have your questions answered. And maybe i am wrong about the gout, who knows, but something to talk about with your doctor? Okay now Jeanie i have to answer a comment that you made. It is a really good to hear that you began your post to me. I even copied and pasted it "Thanks Sweetheart" i liked that and thought it was cute and i am passing this onto you 🌷 By the way as you probably know that i live in Florida, in West Palm Beach in a town called Boynton Beach right near the Florida Turnpike. Where do you live? You have a great day. 18's, Marty On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope < cmlhope@googlegroups.com> wrote: > Thanks Sweetheart > Those were beautiful. You always brighten our day. > I have been in so much pain lately and don't know if I should go to a dr > or not. It started in my little right finger and then creeped on up my > arm. Now my heel and sometimes ankles are killing me. The pain usually > wakes me up nightly. I get up and massage it good. Do any of my warriors > suggest another dr? > Anyway I loved the video and appreciation day is a wonderful idea. My > blood work show no leukemia. My pain is probably old age and the answer > more pills. Do any of you have this. It clears up during the day most of > the time. > My new dr seems to be kk. I haven't met with her that much yet. I guess > the next step would be to try and get off pills. There are trials for that. > Have a wonderful day everyone. > Love you so very much > Jeanie from Fl > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Feb 16, 2018, at 11:36 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > So that you know my annual appreciation day could be on any day and could > happen on any other day. It was set on my actual birthday May 21st which > is also on the day of my bone marrow transplant. > > So just to let you know how much all of you mean to me i am including this > to every one of you. > Please turn the volume up, sit back and relax, and enjoy this. I sincerely > hope that it will put everything in prospective to you. > > 18's, > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > <AbsolutelyFantasticSlideshow.pps> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
