I didn’t get pictures for some reason. Can you resend? Thanks Love you so very much Jean
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 10, 2018, at 11:52 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Beth, > > Believe me once you put your mind to it there isn't anything that you can't > do. All that you have to do is to try it. Yes at first you may fail but once > you get it into your head you will thieve. > It is a matter of will. > A story for you: Several years ago right after my kidney transplant my wife > and i went furniture shopping when i suddenly felt dizzy and clasped to the > floor, i tried to get up but i just managed to crawl on the floor. Shelly was > really trying to help me to a seat and the manager came over and told us that > he just called 911. Within less then ten minutes i was in an ambulance on my > way to the hospital. When one of the paramedics asked me how i was feeling i > didn't know what he was saying, it was like someone was mumbling to me. Once > they got me to the hospital they seemed to be moving there mouths but all > that i heard were these funny sounds coming out of their mouths. When i came > out of my coma i couldn't understand English. In my mind i was trying to ask > for a glass of water but didn't know how to say it > > It was very frustrating and i knew in my mind that i could talk but not > anything with English but i did remember that i was still able to speak and > understand five different foreign languages and the Morse Code because ever > since i was a young man i was a ham radio operator, but how could i try to > convey it to anyone. I was in bed and badly needed some water. So i started > yelling in different languages and tapping on the table with my fingers in > Morse Code but only my right hand would work, until one of the nurses > understood what i was asking for in Hungarian one of the languages that my > parents taught me when i was a young child. From that day on while i was > still in the hospital there was always a pitcher of cold water on my table. > > It took me over a year to teach myself how to learn English again, and i did > it all by myself. An usual thing happened to me when i went to see my > ophthalmologist because he was checking for any symptom that the stroke may > have caused to my eyes, but he found nothing thank GOD. I then mentioned to > him what had happened to me when i could not speak > English This is what he told me. He has another patient that also had a > similar stroke in the same region of the brain that i had mine in. He then > tells me that this man suddenly started speaking words with a heavy French > accent but not French but English with a heavy French accent. This lasted for > about almost two years and he is back to normal. Amazing what can happen. > > So this is another example of what your mind can do. All you have to do it to > try and help yourself. > > To my understanding the human brain uses about 10% of it's capacity, more or > less. If you know to the contrary please let me know. > > 18's, > > Marty > >> On Thu, May 10, 2018 at 9:59 PM, bkbarney via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Just beautiful Marty!!! I love the stained glass... >> >> thanks for sharing!! >> >> >> >> -----Original Message----- >> From: Marty Gartenberg <wa2...@gmail.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Wed, May 9, 2018 8:40 am >> Subject: Re: [CMLHope] Beth >> >> >> >> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >> Beth, Jeanie your learning from eachother and i am also learning from the >> both of you as you are learning from me. This is what it is. I always say >> that life is a learning process and well, it is. You must learn something >> new every day of your life. >> >> Now i would like to send you some pictures that i took of some of my >> projects that me and my wife did together mostly when i wasn't feeling very >> well, but i still did it. Shelly did the cutting for the most part and i did >> the grinding and fitting and the soldering, sometimes switching off but we >> did it together. And it made both of us feel that much better. >> >> Everything that you may see in these three pictures are things that we >> personally accomplished by ourselves including the crown moldings as well as >> the moldings on the ceiling. Both of us never said that maybe we should >> stop, but sat down and rested for a while and had lunch or watched TV and >> then got back to "business". Sure it sometimes taxed me out but i still >> continued on for weeks at a time or even months. >> >> There is a point to all of this, just get your priorities together and there >> is nothing that you can't accomplish. >> >> 18's, >> >> Marty >> >> On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Hi Beth and all >> I know exactly what you mean Beth. Sometimes I just want to go back to bed >> and do nothing. >> I have found however if you make a plan of what you want to accomplish that >> day it helps a lot. Even write it down. Start on it even if you don’t feel >> like finishing it. >> One time I made a plan to read the Bible again all the way through. I have >> read it before but this was just another plan. So each day I read a little >> and soon I had accomplished my plan. Well not soon but I did it. >> Getting through Job is difficult but well worth it especially since he >> fought disease daily. He had boils all over his body. Can you imagine! >> I love the part where it got to Leviathan. My granddaughter even drew me a >> picture of him. >> Now today is walking and gardening as long as I feel like it. If I get tired >> or weary I just rest. >> I remember when I was in the hospital and they wheeled that big old blood >> cleansing machine in my room I was in for it. They would hook it up and I >> had to my still for about 4 hours while my blood ran through this machine. I >> thought it would never be over. It never did any good. The next day my >> platelets and whites were right back up. I learned from Moffitt they don’t >> even do that. They just give you the pills and hope for the best. >> This last chemo Ponatinib has been the best chemo yet with the least side >> effects except for hair falling out. >> What do you take? I developed mutants to all the other chemo >> Just each day at a time and make a plan. Prayers. >> You have helped me a lot Beth. >> ❤️ >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 11:40 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Just look at what your writing... >> Each and every day is another day so keep on blessing your medication >> because without it then it wouldn't be another day. Don't despair because >> you may feel like life is trying to give you a difficult time but then there >> are other days that that will restore your faith. >> >> I have been there and what i found out is that i am still here and by the >> way so are you. >> >> I have always told everyone that Leukemia is a powerful disease and so it is >> BUT so is your mind... Use it! >> >> 18's, >> >> Marty >> >> PS why do you think that all of my posts ends up with 18's? >> >> Because it means LIFE. >> >> On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Dear Marty, >> >> >> I sing praises every day....for my life and for sprycel. I even bless my >> medication in my hand before I take it each night.. my little ritual. the >> side effects of the medication coupled with the two botched surgeries have >> left me with a great deal to navigate daily. I know I am blessed. But today >> I am just very very very weary. Tomorrow is another day... >> >> Hope everyone is well and enjoying spring...one day at a time...breath in >> the flowers and enjoy!!! >> >> Love to each and every one of you...and thanks for reading.. >> >> 18's B >> >> >> >> >> -----Original Message----- >> From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Tue, May 8, 2018 2:21 pm >> Subject: Re: [CMLHope] Beth >> >> Hi Beth and great news. Are you any pain? Marty I wanted to asked you if >> you they gave you any meds for pain? Did you ever have to take anything for >> leukemia ever again? Can you walk well? >> My daughter bought me a wheel chair just in case I get to tired of walking. >> Do you walk well Beth? >> So happy you are in remission. I’m in remission too but I know from >> experience how leukemia can test it’s ugly head. >> Prayer and pills is my motto and it’s working. >> Good luck >> Jean >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center >> >> 0 CBL. ABL >> >> On May 8, 2018, at 8:40 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Beth, Beth, Beth, >> >> What can i say, As you mentioned you are now UN-detectable, but what you >> should have written should have more piazzas to it. Something like shouting >> it at the top of your voice on the top of a high mountain with your hands >> and arms reaching upward and stretched and extended out to HIM. >> >> Well Beth sometimes i get carried away but please scroll down. >> >> >> >> >> >> >> >> BUT NOT THIS TIME🌷 >> >> Do you know why? It took place more then 30 years ago. Once my bone marrow >> transplant was finished after being confined inside of that bubble that i >> was in about a week before i was to be finally discharged i still had to >> wait that one week and i was fixated on the clock within that bubble with >> that second hand ticking away. Tick Tock, tick tock, tick tock............ I >> waited for the seconds to tick away the whole day and night until i finally >> fell asleep, and then i was woken up again and it continued on for most of >> that never ending week. I was in there for seven months and let me tell you >> it was more then horrible but i had to do it until the final seconds that i >> was able to finally to leave there, or so i thought only to find myself back >> in there two weeks later because of a severe infection from my in chest >> Hickman catheter that put me back in there for another two weeks. >> >> Was it all over? Not until i was about to leave that plastic bubble and at >> that time i raised my hands fully extended and ripped that clock right off >> the wall and since i finally had my shoes on i STOMPED the life of that >> clock to death. >> >> However, on that original day that i was discharged from the hospital it was >> raining like cats and dogs coming out of the sky and i just stood there in >> the street and let the rain populate on my face and then i remember raising >> my hands and arms up toward HIM and it was finally over with. >> >> Oh yes i am not kidding, about a week later i received a bill in the mail >> for $25 for the clock that i put out of my misery and it was marked PAID. >> And there was a reason for that. To be continued. >> >> There is a Moral to this story... Beth all that you need to do it put your >> hands and arms up toward the sky and HE will do the rest. >> >> 18's >> >> Marty >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A 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