Hi Marty and all So good to hear from you but sorry To hear about your cancer on nose
I think I told you about my sister having a small mole on her ankle that turned out to be cancer she had to have skin grafted on and it turned out to be a weekly visit to Moffitt. Yes sometimes we have to take something just to get some rest. Your courage inspires me to keep going. Remember Millie? No matter what she could always make me smile. How brave she was at the end. How are you Beth and all. Let’s hear from everyone. ❤️ My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center 0 CBL. ABL > On May 16, 2018, at 9:25 PM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Jeanie, I almost forgot something. When you read Pslam 1188. Take a close > look at the numbers, what are the two numbers in the center? 18, and this is > what i learned many years ago. That is because i always use them every time i > end any message that i send out. I do most things for a reason. > > 18's > > Marty > >> On Wed, May 16, 2018 at 7:23 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >> You know what Jeanie i also love you! and just about everyone here. How's >> that. >> >> I just don't know why some people and institutions have so many rules like >> not accepting you for having pain. I will now go out of my "polite mode" and >> call them AZZ Wipes, because let it happen to them and they wouldn't be as >> nice as i am. >> >> Okay back into my polite mode. Jeanie, i have had some very bad times with >> pain especially when i had to live in that plastic bubble and had the >> mucocytes in my entire digestive tract. >> From my lips to my rectum. It was by far the worst pain that i have ever >> experienced in my life. >> >> It got so bad that i would say to myself that i just wanted to die and they >> put me on a Morphine drip with a button in the inside of that bubble. I >> tried it and no relief so i kept pushing the button and it did no good until >> i fell asleep. Once i got up the pain didn't leave so eventually i became >> addicted to that Morphine and would start hallucinating and it kept on going >> until i was severely addicted. For the next few months i had to become UN >> addicted and that was the terrible part but i did it. >> >> I had to live 24-7 with that pain. But there were "good times coming up" One >> day my transplant coordinator first gowned up and put on booties, serial >> surgical mask, serial gown two sets of serial surgical gloves and before >> she came in she turned on the >> Laminar air flow chamber blower to high and when she got inside she made >> sure that i was always up wind of her so no bacteria would be transferred to >> me. That was how only certain people could enter that chamber. She sat down >> downwind of me and motioned that she wanted me to hear what she was going to >> tell me. >> however she couldn't touch me or any part of me and she whispered three >> words to me. "It's only Temporary" and i knew exactly what she said. Then >> she immediately left the chamber. >> >> Jeanie do you know why i am telling you this? Well that was one of the >> reasons that i became to know that my mind does control my body. Yes the >> pain was still there but i put it in the back of my mind. It took about a >> week to finally get my white cell count to approach that magic number to get >> to 1,000 and shortly when i was put on a solid food diet, i was finally able >> to get out of there after seven awful months. Now you know why! And that was >> the time that i garbed that clock with that second hand that always >> tormented me off the plastic wall and smashed it on the floor. I finally got >> even!!! >> >> Now on today. I had an operation yesterday using Mohs surgery on the bridge >> of my nose to get rid of a Basil Cell Carcinoma and that came out with >> little problems, so i had to go back to have the sutures put in and about >> two hours later came the pain after the Anastasia wore off, and the pain >> started, and it hurts now so i did what i did then and had my mind sort of >> control my body, but i think tonight i will take a pain reliving pill so >> that i can get some sleep tonight. I am simply getting too old for this. >> >> Listen i can't make up these stories because they are all true. >> >> Now, i really liked your story about how everyone in your family kissed >> eachother when they said hello and good by. that is very inspirational to >> me, but since i am immuno compromised all that i can do is never shake hands >> but bump fists together and that seems to do the trick. >> >> Now i would like to send you a very beautiful video called The Center of the >> Bible. I think that i may have sent it before but even so just sit back and >> enjoy it. The music and video are just terrific. >> >> 18's, >> >> Marty >> >>> On Wed, May 16, 2018 at 4:43 PM, 'Jeanie' via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> Hi Marty >>> First I want to tell you that I love you because you >>> Lift my heart as do all of you on this list. >>> Yes this was my fourth tki and probably >>> My last chance as far as tki’s are >>> Concerned. The Sprycel I had been >>> On for four years was great as long >>> As it lasted. >>> Yes my onc told me to go right >>> To the eye dr bit other than needing >>> Far vision glasses they seem to >>> Be okay. Moffitt is great but they >>> Won’t take care of your pain. >>> I thought that was weird. They have >>> Two big pain centers there >>> And wouldn’t take me. Told me to >>> Go to a pain clinic. >>> Had a wonderful day today. >>> Was reading the Bible on kisses >>> Today and it’s interesting. >>> Our family kissed hello and goodby. >>> Probably handed down from generations. >>> Google kisses and Bible. >>> Prayers to all and Holy kisses. >>> ❤️ >>> >>> My Motto: >>> Faith and Pills >>> With Love >>> 🐠18's >>> Dx 1/2004 CML Leukemia >>> Started Gleevec 2/2004 >>> Started Tasigna 9/2009 >>> Started Sprycel 11/2009 >>> Started Ponatinib 1/ 2015 >>> New Doctor--Dr Martine Extermann >>> Moffitt Cancer center >>> >>> 0 CBL. ABL >>> >>>> On May 13, 2018, at 1:05 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> >>>> >>>> Marty Gartenberg <wa2...@gmail.com> >>>> 12:55 PM (9 minutes ago) >>>> >>>> to cmlhope >>>> Hi Jeanie, or should i say Grandma? >>>> >>>> I am quite filmier with Iclusig or ponatinib because i always research >>>> anything to do with them or CML. And yes there are a lot of bad things >>>> that could happen when taking it. However, if it does work for you or >>>> anyone else then you should consider it a life saving therapy because your >>>> still alive, and that is called 18's which i always end anything which i >>>> post because that is the way i feel about all of you. I remember more then >>>> thirty years ago that's three decades ago, it was done for me and i now do >>>> it for everyone. >>>> >>>> Also you should know that it is not recommended for newly diagnosed >>>> patients first beginning therapy. One must get their eyes checked for what >>>> could be problems later. >>>> >>>> It is very simple to go to an ophthalmologist and have him or her check it >>>> out... Just do it! >>>> >>>> Remember no one is immune to death but it is yourself that helps to >>>> preserve yourself. >>>> With all that i have been through and most of you already know what i am >>>> talking about, then all you can do is to go on and try to preserve >>>> yourself as best as you can, and from what i am seeing then you are! And >>>> part of that is to enjoy your life. >>>> >>>> Two of my favorite sayings are what Forrest Gump said in the movie... >>>> "Life is just like a box of Chocolates, you never know what you get" As i >>>> read that to me it meant that you don't know just what you got but since >>>> his mother said that then since it came out a box of Chocolates then how >>>> could any of them be bad? >>>> >>>> And the other saying was.. "That's enough about that" >>>> >>>> >>>> Remember> 18's, >>>> >>>> Marty >>>> >>>> >>>> >>>>> On Sun, May 13, 2018 at 12:55 PM, Marty Gartenberg <wa2...@gmail.com> >>>>> wrote: >>>>> Hi Jeanie, or should i say Grandma? >>>>> >>>>> I am quite filmier with Iclusig or ponatinib because i always research >>>>> anything to do with them or CML. And yes there are a lot of bad things >>>>> that could happen when taking it. However, if it does work for you or >>>>> anyone else then you should consider it a life saving therapy because >>>>> your still alive, and that is called 18's which i always end anything >>>>> which i post because that is the way i feel about all of you. I remember >>>>> more then thirty years ago that's three decades ago, it was done for me >>>>> and i now do it for everyone. >>>>> >>>>> Also you should know that it is not recommended for newly diagnosed >>>>> patients first beginning therapy. One must get their eyes checked for >>>>> what could be problems later. >>>>> >>>>> It is very simple to go to an ophthalmologist and have him or her check >>>>> it out... Just do it! >>>>> >>>>> Remember no one is immune to death but it is yourself that helps to >>>>> preserve yourself. >>>>> With all that i have been through and most of you already know what i am >>>>> talking about, then all you can do is to go on and try to preserve >>>>> yourself as best as you can, and from what i am seeing then you are! And >>>>> part of that is to enjoy your life. >>>>> >>>>> Two of my favorite sayings are what Forrest Gump said in the movie... >>>>> "Life is just like a box of Chocolates, you never know what you get" As i >>>>> read that to me it meant that you don't know just what you got but since >>>>> his mother said that then since it came out a box of Chocolates then how >>>>> could any of them be bad? >>>>> >>>>> And the other saying was.. "That's enough about that" >>>>> >>>>> >>>>> Remember> 18's, >>>>> >>>>> Marty >>>>> >>>>> >>>>>> On Sun, May 13, 2018 at 11:12 AM, 'Jeanie' via CMLHope >>>>>> <cmlhope@googlegroups.com> wrote: >>>>>> Hi Marty and all >>>>>> I am so glad you told me about what to expect from a stroke. As they run >>>>>> in our family I will know what to expect. >>>>>> My chemo was taken off the market at first because of heart attacks and >>>>>> blood clots. They then decide it would do more good than bad so they put >>>>>> it back on. I know it had me in remission in three months. >>>>>> Look up Ponatinib and you will see what I mean. >>>>>> Happy Mother’s Day to all the mothers on this group. I started my family >>>>>> when I was 18 and had 5 babies in 10 years. Those were the busiest years >>>>>> of my life and I enjoyed every minute of them. >>>>>> My youngest daughter and her daughter are picking me up for lunch. >>>>>> Have a great day everyone. >>>>>> ❤️ >>>>>> >>>>>> My Motto: >>>>>> Faith and Pills >>>>>> With Love >>>>>> 🐠18's >>>>>> Dx 1/2004 CML Leukemia >>>>>> Started Gleevec 2/2004 >>>>>> Started Tasigna 9/2009 >>>>>> Started Sprycel 11/2009 >>>>>> Started Ponatinib 1/ 2015 >>>>>> New Doctor--Dr Martine Extermann >>>>>> Moffitt Cancer center >>>>>> >>>>>> 0 CBL. ABL >>>>>> >>>>>>> On May 11, 2018, at 6:22 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>>>>> >>>>>>> Jeanie, >>>>>>> >>>>>>> Sorry to hear about your family having these such problems. If I could >>>>>>> kick that stroke man in where the sun don't shine i am sure that his >>>>>>> butt will never be the same. >>>>>>> >>>>>>> It all comes down to the doctor/s that take care of you. You may find >>>>>>> that the majority of them are good caring people with your best >>>>>>> intentions in mind then there are some that don't really care about you >>>>>>> or me and i happen to know thank GOD only a very few of them. >>>>>>> >>>>>>> While we were on our cruise and got back the buzz in the neighborhood >>>>>>> was that one of my neighbors went in for some back surgery and it was >>>>>>> successful for a few days and then died from a surgical sponge that was >>>>>>> left inside of her. >>>>>>> >>>>>>> You know what? the same thing also happened to me when I had what is >>>>>>> called a TURP procedure but it wasn't a sponge but one of the stents >>>>>>> that was left in me and blocked the output of my prostate causing the >>>>>>> worst pain that i had in a long time. I had to be rushed to my local >>>>>>> hospital and they had to remove that stent. Oh yes i almost forgot that >>>>>>> the "doctor" had left on vacation and no one was covering for him. >>>>>>> >>>>>>> Now there are some of the people of today that are very incapable of >>>>>>> even understanding what the meaning of the Hippocratic oath actually >>>>>>> means. >>>>>>> >>>>>>> Don't get me wrong most of these doctors actually helped to save my >>>>>>> life, many times. And this is what i dedicate to them. >>>>>>> >>>>>>> Now there must have been a very good reason why someone would drill >>>>>>> holes into someones skull? Did you ever find out why he did that? It >>>>>>> sounds on the surface like Jeffrey Dahmer. I can not understand why >>>>>>> surgical things are left behind because every shred of anything is >>>>>>> always counted and counted again. >>>>>>> >>>>>>> I can tell you for a fact that there are so many good doctors in this >>>>>>> world, but you have to find them and that's what makes a very big >>>>>>> difference. One thing more: If it were not for the nurses that always >>>>>>> took such good care of me then i wouldn't be alive today. >>>>>>> >>>>>>> I give credit to all of the people that are so dedicated to all of us, >>>>>>> but... Well in my case, it's about about 98.6% My temperature, and the >>>>>>> rest of the 1.4% they can go to where the sun don't shine (one of my >>>>>>> favorite sayings and for good reason >>>>>>> >>>>>>> 18's, >>>>>>> >>>>>>> Marty >>>>>>> >>>>>>>> On Fri, May 11, 2018 at 9:40 AM, 'Jeanie' via CMLHope >>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>> Hi Marty and all >>>>>>>> That is so interesting about your stroke. My mother had the same thing >>>>>>>> in her late 70s. She lived alone but her son lived up the street and >>>>>>>> somehow she managed to call him. His wife answered and told her hubby >>>>>>>> it was a prank call because my mother was just jabbering in the phone. >>>>>>>> He looked at her and said that’s mom. They called 911 and soon she >>>>>>>> was in the hospital. By the time I got there I learned the only thing >>>>>>>> she could do was sign her name. She had to relearn everything. I took >>>>>>>> her to speech class every week and she had a tablet she was learning >>>>>>>> to write again. It took her about a year of therapy. My grandmother >>>>>>>> also had a stroke the same way. So far my sister and I have been >>>>>>>> lucky. My older sister died from the stroke she had and I always >>>>>>>> thought the doctor didn’t treat her right. They drilled s hole in her >>>>>>>> head and I think they should have just let the brain heal. >>>>>>>> Yes Marty. Learning and doing something daily will help keep our brain >>>>>>>> going. But also if you are tired rest >>>>>>>> Beth so sorry about your botched surgery. That is why I have refused >>>>>>>> to go under the knife for my pain. I may have to eventually but right >>>>>>>> now pills and faith are keeping me going. >>>>>>>> You guys are so uplifting and I look forward to your post. >>>>>>>> Marty I get s little sad when I hear about you and Shelly and how you >>>>>>>> help each other. I lost my hubby 20 years ago due to diabetes and >>>>>>>> heart failure. I was his caregiver and we had been childhood >>>>>>>> sweethearts. It was hard to let go. >>>>>>>> More later—— >>>>>>>> Love >>>>>>>> Jean >>>>>>>> >>>>>>>> My Motto: >>>>>>>> Faith and Pills >>>>>>>> With Love >>>>>>>> 🐠18's >>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>> Started Gleevec 2/2004 >>>>>>>> Started Tasigna 9/2009 >>>>>>>> Started Sprycel 11/2009 >>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>> Moffitt Cancer center >>>>>>>> >>>>>>>> 0 CBL. ABL >>>>>>>> >>>>>>>>> On May 10, 2018, at 11:52 PM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>> wrote: >>>>>>>>> >>>>>>>>> Hi Beth, >>>>>>>>> >>>>>>>>> Believe me once you put your mind to it there isn't anything that you >>>>>>>>> can't do. All that you have to do is to try it. Yes at first you may >>>>>>>>> fail but once you get it into your head you will thieve. >>>>>>>>> It is a matter of will. >>>>>>>>> A story for you: Several years ago right after my kidney transplant >>>>>>>>> my wife and i went furniture shopping when i suddenly felt dizzy and >>>>>>>>> clasped to the floor, i tried to get up but i just managed to crawl >>>>>>>>> on the floor. Shelly was really trying to help me to a seat and the >>>>>>>>> manager came over and told us that he just called 911. Within less >>>>>>>>> then ten minutes i was in an ambulance on my way to the hospital. >>>>>>>>> When one of the paramedics asked me how i was feeling i didn't know >>>>>>>>> what he was saying, it was like someone was mumbling to me. Once they >>>>>>>>> got me to the hospital they seemed to be moving there mouths but all >>>>>>>>> that i heard were these funny sounds coming out of their mouths. When >>>>>>>>> i came out of my coma i couldn't understand English. In my mind i was >>>>>>>>> trying to ask for a glass of water but didn't know how to say it >>>>>>>>> >>>>>>>>> It was very frustrating and i knew in my mind that i could talk but >>>>>>>>> not anything with English but i did remember that i was still able to >>>>>>>>> speak and understand five different foreign languages and the Morse >>>>>>>>> Code because ever since i was a young man i was a ham radio operator, >>>>>>>>> but how could i try to convey it to anyone. I was in bed and badly >>>>>>>>> needed some water. So i started yelling in different languages and >>>>>>>>> tapping on the table with my fingers in >>>>>>>>> Morse Code but only my right hand would work, until one of the nurses >>>>>>>>> understood what i was asking for in Hungarian one of the languages >>>>>>>>> that my parents taught me when i was a young child. From that day on >>>>>>>>> while i was still in the hospital there was always a pitcher of cold >>>>>>>>> water on my table. >>>>>>>>> >>>>>>>>> It took me over a year to teach myself how to learn English again, >>>>>>>>> and i did it all by myself. An usual thing happened to me when i went >>>>>>>>> to see my ophthalmologist because he was checking for any symptom >>>>>>>>> that the stroke may have caused to my eyes, but he found nothing >>>>>>>>> thank GOD. I then mentioned to him what had happened to me when i >>>>>>>>> could not speak >>>>>>>>> English This is what he told me. He has another patient that also had >>>>>>>>> a similar stroke in the same region of the brain that i had mine in. >>>>>>>>> He then tells me that this man suddenly started speaking words with a >>>>>>>>> heavy French accent but not French but English with a heavy French >>>>>>>>> accent. This lasted for about almost two years and he is back to >>>>>>>>> normal. Amazing what can happen. >>>>>>>>> >>>>>>>>> So this is another example of what your mind can do. All you have to >>>>>>>>> do it to try and help yourself. >>>>>>>>> >>>>>>>>> To my understanding the human brain uses about 10% of it's capacity, >>>>>>>>> more or less. If you know to the contrary please let me know. >>>>>>>>> >>>>>>>>> 18's, >>>>>>>>> >>>>>>>>> Marty >>>>>>>>> >>>>>>>>>> On Thu, May 10, 2018 at 9:59 PM, bkbarney via CMLHope >>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>> Just beautiful Marty!!! I love the stained glass... >>>>>>>>>> >>>>>>>>>> thanks for sharing!! >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> -----Original Message----- >>>>>>>>>> From: Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>>>>> Sent: Wed, May 9, 2018 8:40 am >>>>>>>>>> Subject: Re: [CMLHope] Beth >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> On Wed, May 9, 2018 at 9:38 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>> wrote: >>>>>>>>>> Beth, Jeanie your learning from eachother and i am also learning >>>>>>>>>> from the both of you as you are learning from me. This is what it >>>>>>>>>> is. I always say that life is a learning process and well, it is. >>>>>>>>>> You must learn something new every day of your life. >>>>>>>>>> >>>>>>>>>> Now i would like to send you some pictures that i took of some of my >>>>>>>>>> projects that me and my wife did together mostly when i wasn't >>>>>>>>>> feeling very well, but i still did it. Shelly did the cutting for >>>>>>>>>> the most part and i did the grinding and fitting and the soldering, >>>>>>>>>> sometimes switching off but we did it together. And it made both of >>>>>>>>>> us feel that much better. >>>>>>>>>> >>>>>>>>>> Everything that you may see in these three pictures are things that >>>>>>>>>> we personally accomplished by ourselves including the crown moldings >>>>>>>>>> as well as the moldings on the ceiling. Both of us never said that >>>>>>>>>> maybe we should stop, but sat down and rested for a while and had >>>>>>>>>> lunch or watched TV and then got back to "business". Sure it >>>>>>>>>> sometimes taxed me out but i still continued on for weeks at a time >>>>>>>>>> or even months. >>>>>>>>>> >>>>>>>>>> There is a point to all of this, just get your priorities together >>>>>>>>>> and there is nothing that you can't accomplish. >>>>>>>>>> >>>>>>>>>> 18's, >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>> On Wed, May 9, 2018 at 6:40 AM, 'Jeanie' via CMLHope >>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>> Hi Beth and all >>>>>>>>>> I know exactly what you mean Beth. Sometimes I just want to go back >>>>>>>>>> to bed and do nothing. >>>>>>>>>> I have found however if you make a plan of what you want to >>>>>>>>>> accomplish that day it helps a lot. Even write it down. Start on it >>>>>>>>>> even if you don’t feel like finishing it. >>>>>>>>>> One time I made a plan to read the Bible again all the way through. >>>>>>>>>> I have read it before but this was just another plan. So each day I >>>>>>>>>> read a little and soon I had accomplished my plan. Well not soon but >>>>>>>>>> I did it. >>>>>>>>>> Getting through Job is difficult but well worth it especially since >>>>>>>>>> he fought disease daily. He had boils all over his body. Can you >>>>>>>>>> imagine! >>>>>>>>>> I love the part where it got to Leviathan. My granddaughter even >>>>>>>>>> drew me a picture of him. >>>>>>>>>> Now today is walking and gardening as long as I feel like it. If I >>>>>>>>>> get tired or weary I just rest. >>>>>>>>>> I remember when I was in the hospital and they wheeled that big old >>>>>>>>>> blood cleansing machine in my room I was in for it. They would hook >>>>>>>>>> it up and I had to my still for about 4 hours while my blood ran >>>>>>>>>> through this machine. I thought it would never be over. It never >>>>>>>>>> did any good. The next day my platelets and whites were right back >>>>>>>>>> up. I learned from Moffitt they don’t even do that. They just give >>>>>>>>>> you the pills and hope for the best. >>>>>>>>>> This last chemo Ponatinib has been the best chemo yet with the least >>>>>>>>>> side effects except for hair falling out. >>>>>>>>>> What do you take? I developed mutants to all the other chemo >>>>>>>>>> Just each day at a time and make a plan. Prayers. >>>>>>>>>> You have helped me a lot Beth. >>>>>>>>>> ❤️ >>>>>>>>>> >>>>>>>>>> My Motto: >>>>>>>>>> Faith and Pills >>>>>>>>>> With Love >>>>>>>>>> 🐠18's >>>>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>>>> Started Gleevec 2/2004 >>>>>>>>>> Started Tasigna 9/2009 >>>>>>>>>> Started Sprycel 11/2009 >>>>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>>>> Moffitt Cancer center >>>>>>>>>> >>>>>>>>>> 0 CBL. ABL >>>>>>>>>> >>>>>>>>>> On May 8, 2018, at 11:40 PM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>> wrote: >>>>>>>>>> >>>>>>>>>> Just look at what your writing... >>>>>>>>>> Each and every day is another day so keep on blessing your >>>>>>>>>> medication because without it then it wouldn't be another day. Don't >>>>>>>>>> despair because you may feel like life is trying to give you a >>>>>>>>>> difficult time but then there are other days that that will restore >>>>>>>>>> your faith. >>>>>>>>>> >>>>>>>>>> I have been there and what i found out is that i am still here and >>>>>>>>>> by the way so are you. >>>>>>>>>> >>>>>>>>>> I have always told everyone that Leukemia is a powerful disease and >>>>>>>>>> so it is BUT so is your mind... Use it! >>>>>>>>>> >>>>>>>>>> 18's, >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>> PS why do you think that all of my posts ends up with 18's? >>>>>>>>>> >>>>>>>>>> Because it means LIFE. >>>>>>>>>> >>>>>>>>>> On Tue, May 8, 2018 at 10:52 PM, bkbarney via CMLHope >>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>> Dear Marty, >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> I sing praises every day....for my life and for sprycel. I even >>>>>>>>>> bless my medication in my hand before I take it each night.. my >>>>>>>>>> little ritual. the side effects of the medication coupled with the >>>>>>>>>> two botched surgeries have left me with a great deal to navigate >>>>>>>>>> daily. I know I am blessed. But today I am just very very very >>>>>>>>>> weary. Tomorrow is another day... >>>>>>>>>> >>>>>>>>>> Hope everyone is well and enjoying spring...one day at a >>>>>>>>>> time...breath in the flowers and enjoy!!! >>>>>>>>>> >>>>>>>>>> Love to each and every one of you...and thanks for reading.. >>>>>>>>>> >>>>>>>>>> 18's B >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> -----Original Message----- >>>>>>>>>> From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> >>>>>>>>>> To: cmlhope <cmlhope@googlegroups.com> >>>>>>>>>> Sent: Tue, May 8, 2018 2:21 pm >>>>>>>>>> Subject: Re: [CMLHope] Beth >>>>>>>>>> >>>>>>>>>> Hi Beth and great news. Are you any pain? Marty I wanted to asked >>>>>>>>>> you if you they gave you any meds for pain? Did you ever have to >>>>>>>>>> take anything for leukemia ever again? Can you walk well? >>>>>>>>>> My daughter bought me a wheel chair just in case I get to tired of >>>>>>>>>> walking. >>>>>>>>>> Do you walk well Beth? >>>>>>>>>> So happy you are in remission. I’m in remission too but I know >>>>>>>>>> from experience how leukemia can test it’s ugly head. >>>>>>>>>> Prayer and pills is my motto and it’s working. >>>>>>>>>> Good luck >>>>>>>>>> Jean >>>>>>>>>> >>>>>>>>>> My Motto: >>>>>>>>>> Faith and Pills >>>>>>>>>> With Love >>>>>>>>>> 🐠18's >>>>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>>>> Started Gleevec 2/2004 >>>>>>>>>> Started Tasigna 9/2009 >>>>>>>>>> Started Sprycel 11/2009 >>>>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>>>> Moffitt Cancer center >>>>>>>>>> >>>>>>>>>> 0 CBL. ABL >>>>>>>>>> >>>>>>>>>> On May 8, 2018, at 8:40 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>> wrote: >>>>>>>>>> >>>>>>>>>> Beth, Beth, Beth, >>>>>>>>>> >>>>>>>>>> What can i say, As you mentioned you are now UN-detectable, but what >>>>>>>>>> you should have written should have more piazzas to it. Something >>>>>>>>>> like shouting it at the top of your voice on the top of a high >>>>>>>>>> mountain with your hands and arms reaching upward and stretched and >>>>>>>>>> extended out to HIM. >>>>>>>>>> >>>>>>>>>> Well Beth sometimes i get carried away but please scroll down. >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> BUT NOT THIS TIME🌷 >>>>>>>>>> >>>>>>>>>> Do you know why? It took place more then 30 years ago. Once my bone >>>>>>>>>> marrow transplant was finished after being confined inside of that >>>>>>>>>> bubble that i was in about a week before i was to be finally >>>>>>>>>> discharged i still had to wait that one week and i was fixated on >>>>>>>>>> the clock within that bubble with that second hand ticking away. >>>>>>>>>> Tick Tock, tick tock, tick tock............ I waited for the seconds >>>>>>>>>> to tick away the whole day and night until i finally fell asleep, >>>>>>>>>> and then i was woken up again and it continued on for most of that >>>>>>>>>> never ending week. I was in there for seven months and let me tell >>>>>>>>>> you it was more then horrible but i had to do it until the final >>>>>>>>>> seconds that i was able to finally to leave there, or so i thought >>>>>>>>>> only to find myself back in there two weeks later because of a >>>>>>>>>> severe infection from my in chest Hickman catheter that put me back >>>>>>>>>> in there for another two weeks. >>>>>>>>>> >>>>>>>>>> Was it all over? Not until i was about to leave that plastic bubble >>>>>>>>>> and at that time i raised my hands fully extended and ripped that >>>>>>>>>> clock right off the wall and since i finally had my shoes on i >>>>>>>>>> STOMPED the life of that clock to death. >>>>>>>>>> >>>>>>>>>> However, on that original day that i was discharged from the >>>>>>>>>> hospital it was raining like cats and dogs coming out of the sky and >>>>>>>>>> i just stood there in the street and let the rain populate on my >>>>>>>>>> face and then i remember raising my hands and arms up toward HIM and >>>>>>>>>> it was finally over with. >>>>>>>>>> >>>>>>>>>> Oh yes i am not kidding, about a week later i received a bill in the >>>>>>>>>> mail for $25 for the clock that i put out of my misery and it was >>>>>>>>>> marked PAID. And there was a reason for that. To be continued. >>>>>>>>>> >>>>>>>>>> There is a Moral to this story... Beth all that you need to do it >>>>>>>>>> put your hands and arms up toward the sky and HE will do the rest. >>>>>>>>>> >>>>>>>>>> 18's >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> -- >>>>>>>>>> [CMLHope] >>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>> ------------------------------------------------- >>>>>>>>>> >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>> For more options, visit this group at >>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>> --- >>>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>>> Groups "CMLHope" group. >>>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>>> >>>>>>>>> -- >>>>>>>>> -- >>>>>>>>> [CMLHope] >>>>>>>>> A support group of http://cmlhope.com >>>>>>>>> ------------------------------------------------- >>>>>>>>> >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>> For more options, visit this group at >>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>> --- >>>>>>>>> You received this message because you are subscribed to the Google >>>>>>>>> Groups "CMLHope" group. >>>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>>> send an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>>> >>>>>>>> -- >>>>>>>> -- >>>>>>>> [CMLHope] >>>>>>>> A support group of http://cmlhope.com >>>>>>>> ------------------------------------------------- >>>>>>>> >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>> To unsubscribe from this group, send email to >>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>> For more options, visit this group at >>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups "CMLHope" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>>> >>>>>>> -- >>>>>>> -- >>>>>>> [CMLHope] >>>>>>> A support group of http://cmlhope.com >>>>>>> ------------------------------------------------- >>>>>>> >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
