Thanks Marty and everyone. How long did it take for tingling to go away? My Motto: Faith and Pills With Love Jeanie š free 18ās to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal
> On Jul 24, 2018, at 9:50 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hi Jeanie and Joyce, > > First to Jeanie: I am very sorry that you are having this problem but you > should know that this will be corrected very soon. And the fact that your > having all of these problems especially about your swaeting and the temporary > loss or tingling of one of your fingers. I am "happy" that you brought this > up because that is also what happened to me as well. In my case it was my > pinky on my right hand, but it will go away. > > Now I did ask you if your dose may be incorrect because if in fact it was 50 > mg and not micrograms then you would have been in the hospital for sure and > who knows what would have happened to you. You see that is what is GOOD about > this CMLhope site. And you know why, it is because other people care about > each other. > > So now let's bring in Joyce: So miss Joyce I need you to stand up and very > gently pat yourself on the back, and if you want to curtsy a little bit then > be my guest.š > > Oh please don't let me forget those cherries for Jeanie as well.š > > 18's, > > Marty > >> On Tue, Jul 24, 2018 at 7:51 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Thank you Joyce >> Yes I was wrong about dosage. It was 0.05mg >> I took a whole 5o this morning but Iām sweating really bAd and shaking. >> So Iām going back to half. >> I woke up a few months ago and my right finger was numb. >> Anyone have that? >> >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> š free >> 18ās to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> >> 0 CBL. ABL >> >>> On Jul 19, 2018, at 10:34 PM, Joyce Mesnarich <joy...@htc.net> wrote: >>> >>> Jeanie, >>> I would take the dosage your Dr advised. My husband is taking 150. He has >>> been taking it so long that we canāt really remember how often he did blood >>> tests when he first started. I think it was every 3 months. Now he gets >>> tested every 6 months. That, evidently, is what Medicare will pay for and >>> deems necessary. I takes a while for your body to build up the thyroid. >>> I think you should take the whole dosage. It may even be adjusted higher >>> as you go along and they find the right amount that you need. 50 sounds >>> like a very low dose. Donāt think you should have any problems with it. >>> Hope you feel better soon. My husband never noticed any difference in how >>> he felt. He was diagnosed before he had any symptoms, I guess. >>> God bless and keep you, >>> Joyce in Southern Illinois >>> >>> >>>> On Jul 19, 2018, at 1:29 PM, 'Jeanie' via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> >>>> My dr gave me 50 mg but I am taking half. Should I take the full dose? >>>> 18ās >>>> How often to get tested? >>>> My Motto: >>>> Faith and Pills >>>> With Love >>>> Jeanie >>>> š free >>>> Dx 1/2004 CML Leukemia >>>> Started Gleevec 2/2004 >>>> Started Tasigna 9/2009 >>>> Started Sprycel 11/2009 >>>> Started Ponatinib 1/ 2015 >>>> New Doctor--Dr Martine Extermann >>>> Moffitt Cancer center sept 2017 >>>> Dr Balducci retired >>>> >>>> 0 CBL. ABL >>>> >>>>> On Jul 17, 2018, at 3:39 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>>> >>>>> Great drug! I have been taking it for many, many years. What dose is he >>>>> on? >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>>> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich <joy...@htc.net> wrote: >>>>>> Jeanie, >>>>>> My husband has had hypothyroidism for yearsā¦..before he got CML. It >>>>>> never caused him any problems. It was diagnosed at a regular office >>>>>> visit with a blood test. He takes levothyroxin and has regular blood >>>>>> tests. >>>>>> >>>>>> Joyce in Southern Illinois >>>>>> >>>>>> >>>>>>> On Jul 17, 2018, at 10:57 AM, 'Jeanie' via CMLHope >>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>> >>>>>>> Anyone have a thyroid problem? >>>>>>> >>>>>>> My Motto: >>>>>>> Faith and Pills >>>>>>> With Love >>>>>>> Jeanie >>>>>>> š free >>>>>>> Dx 1/2004 CML Leukemia >>>>>>> Started Gleevec 2/2004 >>>>>>> Started Tasigna 9/2009 >>>>>>> Started Sprycel 11/2009 >>>>>>> Started Ponatinib 1/ 2015 >>>>>>> New Doctor--Dr Martine Extermann >>>>>>> Moffitt Cancer center sept 2017 >>>>>>> Dr Balducci retired >>>>>>> >>>>>>> 0 CBL. ABL >>>>>>> >>>>>>>> On Jul 15, 2018, at 12:44 PM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>> wrote: >>>>>>>> >>>>>>>> Okay Jeanie, >>>>>>>> >>>>>>>> Since there is a lot to talk about I will do it between your lines. >>>>>>>> >>>>>>>> Hi >>>>>>>> Thatās cute >>>>>>>> When I first started dating my hubby I was 16. When we went to leave I >>>>>>>> hugged and kissed my mom and dad goodbye. He told me later he had >>>>>>>> never seen that before. >>>>>>>> >>>>>>>> OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM >>>>>>>> THE WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE >>>>>>>> WOULD HUG AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS >>>>>>>> FIRST HUG ME THEN KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A >>>>>>>> KNIPPLE. DO YOU KNOW WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER >>>>>>>> WANTED ME TO FORGET HIM. >>>>>>>> >>>>>>>> HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT >>>>>>>> OF TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I >>>>>>>> LEARNED LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM >>>>>>>> WOULD NEVER FORGET THEM >>>>>>>> >>>>>>>> His mom and dad never hugged or kissed him. It was just the way we >>>>>>>> were. >>>>>>>> Kiss goodbye and kiss hello. >>>>>>>> >>>>>>>> BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE, >>>>>>>> SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE >>>>>>>> ON THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE >>>>>>>> >>>>>>>> I THINK THAT HE JUST NEEDED A KNIPPLE. >>>>>>>> >>>>>>>> Same way with my kids. I tell them a hug is better than a pill. >>>>>>>> How are you today? >>>>>>>> >>>>>>>> HEY JEANIE, KINPPLES FOR EVERY ONE. š >>>>>>>> >>>>>>>> Iām waiting on my daughter as she will take me to a late lunch. >>>>>>>> I find my appetite not as good as it used to be. How bout you? >>>>>>>> >>>>>>>> BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE >>>>>>>> DIDN'T HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED >>>>>>>> TO MAKE DO. A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME... >>>>>>>> >>>>>>>> I loved Millieās cooking and recipes. I sure do miss her. >>>>>>>> She fought hard. >>>>>>>> I remember when she started losing the use of her arms she said she >>>>>>>> didnāt know what she would do if she couldnāt do her sewing and etc. >>>>>>>> though I never met her I felt I knew her all my life. More laterāā >>>>>>>> >>>>>>>> THAT'S WHY I CALLED HER MOMMY LOTTIE. >>>>>>>> >>>>>>>> And she knew what 18's meant. >>>>>>>> >>>>>>>> So 18's, >>>>>>>> >>>>>>>> Marty, and a Knipple to you. >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>> On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope >>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>> Hi >>>>>>>>> Thatās cute >>>>>>>>> When I first started dating my hubby I was 16. When we went to leave >>>>>>>>> I hugged and kissed my mom and dad goodbye. He told me later he had >>>>>>>>> never seen that before. His mom and dad never hugged or kissed him. >>>>>>>>> It was just the way we were. >>>>>>>>> Kiss goodbye and kiss hello. >>>>>>>>> Same way with my kids. I tell them a hug is better than a pill. >>>>>>>>> How are you today? >>>>>>>>> Iām waiting on my daughter as she will take me to a late lunch. >>>>>>>>> I find my appetite not as good as it used to be. How bout you? >>>>>>>>> I loved Millieās cooking and recipes. I sure do miss her. >>>>>>>>> She fought hard. >>>>>>>>> I remember when she started losing the use of her arms she said she >>>>>>>>> didnāt know what she would do if she couldnāt do her sewing and etc. >>>>>>>>> though I never met her I felt I knew her all my life. More laterāā >>>>>>>>> >>>>>>>>> My Motto: >>>>>>>>> Faith and Pills >>>>>>>>> With Love >>>>>>>>> Jeanie >>>>>>>>> š free >>>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>>> Started Gleevec 2/2004 >>>>>>>>> Started Tasigna 9/2009 >>>>>>>>> Started Sprycel 11/2009 >>>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>>> Moffitt Cancer center sept 2017 >>>>>>>>> Dr Balducci retired >>>>>>>>> >>>>>>>>> 0 CBL. ABL >>>>>>>>> >>>>>>>>>> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>> wrote: >>>>>>>>>> >>>>>>>>>> Jeanie, And I love you to, but when you say " Love you so very much" >>>>>>>>>> Do you mean like hugging me so much that your going to crush me >>>>>>>>>> until my ribs crumble? >>>>>>>>>> >>>>>>>>>> Ah yet another opportunity to let me say again... >>>>>>>>>> >>>>>>>>>> 18's, >>>>>>>>>> >>>>>>>>>> Marty >>>>>>>>>> >>>>>>>>>>> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope >>>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>>> So true Marty >>>>>>>>>>> You arenāt even on tkiās and look what youāve been through. >>>>>>>>>>> Thank you for this email. >>>>>>>>>>> Love you so very much >>>>>>>>>>> Jeanie >>>>>>>>>>> >>>>>>>>>>> My Motto: >>>>>>>>>>> Faith and Pills >>>>>>>>>>> With Love >>>>>>>>>>> Jeanie >>>>>>>>>>> š free >>>>>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>>>>> Started Gleevec 2/2004 >>>>>>>>>>> Started Tasigna 9/2009 >>>>>>>>>>> Started Sprycel 11/2009 >>>>>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>>>>> Moffitt Cancer center sept 2017 >>>>>>>>>>> Dr Balducci retired >>>>>>>>>>> >>>>>>>>>>> 0 CBL. ABL >>>>>>>>>>> >>>>>>>>>>>> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>>>> wrote: >>>>>>>>>>>> >>>>>>>>>>>> Oh Jeanie, >>>>>>>>>>>> >>>>>>>>>>>> first let me take you back to something I wrote to Richard >>>>>>>>>>>> >>>>>>>>>>>> I have heard a lot of people mentioning that they blame some of >>>>>>>>>>>> the TKI that they are taking. Perhaps that may be so, but what if >>>>>>>>>>>> it isn't that at all? That is why they need to consult with their >>>>>>>>>>>> doctors because that is his or her job. šAnd if they feel that >>>>>>>>>>>> there is someone that can help as well then get a second opinion.š >>>>>>>>>>>> Don't forget they won't be hurt or offended because they are all >>>>>>>>>>>> getting together to help you. >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> And we will now continue on. Please read this. I took the time to >>>>>>>>>>>> write it for a reason and I see that you took my šadviceš. A lot >>>>>>>>>>>> more... But I want to hug your grand-daughter. My father once >>>>>>>>>>>> taught me a lesson and I think that you may want to pass this onto >>>>>>>>>>>> her, and yourself as well. >>>>>>>>>>>> >>>>>>>>>>>> When a person/s learns something new everyday then they become >>>>>>>>>>>> smarter. When a person/s refuses to learn something every day then >>>>>>>>>>>> they revert back to yesterday. >>>>>>>>>>>> >>>>>>>>>>>> Hum, let me think..... Oh yea I think that your grand-daughter >>>>>>>>>>>> already knows this? >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> "Take it Day by day and as my granddaughter says". She said āevery >>>>>>>>>>>> little thingās gonna be alright.ā >>>>>>>>>>>> ā¤ļø >>>>>>>>>>>> Blood transfusions: A sort of long story but learning something >>>>>>>>>>>> new every day made me smarter and I am still alive... Jeanie I >>>>>>>>>>>> don't blame you for not wanting other peoples blood in you but let >>>>>>>>>>>> me ask you a question? How many units of blood did you require? >>>>>>>>>>>> Did it help you? Well i needn't know the answer because I already >>>>>>>>>>>> know but nothing that you told me but I know and here is why. >>>>>>>>>>>> >>>>>>>>>>>> I had O+ blood and my sister had B+ blood. So my transplant doctor >>>>>>>>>>>> told me that since my white blood count was past 186,000 that I >>>>>>>>>>>> need to have the bone marrow transplant now. Or I may not survive >>>>>>>>>>>> because I was in Blast crises that I was in. >>>>>>>>>>>> >>>>>>>>>>>> But he knew about my blood type wasn't a match for my sister but >>>>>>>>>>>> everything was perfect but the matching type. He told me that >>>>>>>>>>>> there may be a way to change my blood type but it could also cause >>>>>>>>>>>> my death. I then told him that i was dieing anyway so let's try >>>>>>>>>>>> it. >>>>>>>>>>>> >>>>>>>>>>>> He started it before my transplant. It would require that I would >>>>>>>>>>>> have to get many, many blood transfusions as well a a lot of >>>>>>>>>>>> platelets infusions, and Gama globulin and other human blood >>>>>>>>>>>> products. >>>>>>>>>>>> >>>>>>>>>>>> Who already knew about this? R***** Z********. Who showed up with >>>>>>>>>>>> 41 "members" of his "family" >>>>>>>>>>>> (Yes you know what I mean about this) ready to donate blood. But >>>>>>>>>>>> there was a problem. At that time there was a new disease called >>>>>>>>>>>> AIDS and all of the blood banks started testing and this slowed >>>>>>>>>>>> down the collection of gathering of blood. >>>>>>>>>>>> >>>>>>>>>>>> Not to keep you on the edge of your seat. I once helped save a >>>>>>>>>>>> woman's life because she was dying of stage four breast cancer and >>>>>>>>>>>> I did this because I knew a doctor who may help her, and it took >>>>>>>>>>>> more then two years. He never forgot me. >>>>>>>>>>>> >>>>>>>>>>>> Some people just have their power but most don't. He was one of >>>>>>>>>>>> those that did to a certain extent. The way that I look about it >>>>>>>>>>>> was one life foe another. >>>>>>>>>>>> >>>>>>>>>>>> In order to have my blood type converted from O to B I needed 96 >>>>>>>>>>>> units of blood and I already knew where 41 of them came from. Just >>>>>>>>>>>> to let you know if a donated unit of blood did not match my blood >>>>>>>>>>>> profile it would be switched and someone else would get that unit >>>>>>>>>>>> of blood and a "trade" was made. I am now called a Chimera with B+ >>>>>>>>>>>> blood in me. >>>>>>>>>>>> >>>>>>>>>>>> Now I am going forward in my life once more: Twenty years later my >>>>>>>>>>>> kidneys started started to fail. I was on Dialysis for four years >>>>>>>>>>>> and through a miracle I was able to get a kidney transplant and >>>>>>>>>>>> while I was outside of the operating room I noticed a white cooler >>>>>>>>>>>> with a red cross and it said "Human organs, B right side short >>>>>>>>>>>> urethra. >>>>>>>>>>>> >>>>>>>>>>>> I almost jumped out of the gurney because it was B type and then I >>>>>>>>>>>> remembered that I used to be O type. Now what are the chances that >>>>>>>>>>>> this could ever happen? >>>>>>>>>>>> >>>>>>>>>>>> Now Jeanie and all of the rest of you reading this, don't you >>>>>>>>>>>> think that there truly Miracles floating around? Just ask your >>>>>>>>>>>> grand daughter....Now you already know what I know. Have you >>>>>>>>>>>> learned anything new today? I have. >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> 18's >>>>>>>>>>>> >>>>>>>>>>>> Marty >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>>> On Tue, Jul 10, 2018 at 6:01 AM, 'Jeanie' via CMLHope >>>>>>>>>>>>> <cmlhope@googlegroups.com> wrote: >>>>>>>>>>>>> Hi all >>>>>>>>>>>>> I had this problem when on Tasigna. My hmg dropped to 8. I argued >>>>>>>>>>>>> with my onc as I didnāt want someone elseās blood in me. I knew >>>>>>>>>>>>> if he would take me off the tasigna the hbg would come back up. >>>>>>>>>>>>> He finally talked me into it and I had to stay for hours getting >>>>>>>>>>>>> transfusions. As most of you know not fun. Tasigna about killed >>>>>>>>>>>>> me and I landed back in the hospital until I could talk my doctor >>>>>>>>>>>>> into giving me Sprycel. I decided to make the move to Moffitt and >>>>>>>>>>>>> never regretted it. >>>>>>>>>>>>> Good luck to everyone. Take it Day by day and as my >>>>>>>>>>>>> granddaughter says, āevery little thingās gonna be alright.ā >>>>>>>>>>>>> ā¤ļø >>>>>>>>>>>>> >>>>>>>>>>>>> My Motto: >>>>>>>>>>>>> Faith and Pills >>>>>>>>>>>>> With Love >>>>>>>>>>>>> Jeanie >>>>>>>>>>>>> š free >>>>>>>>>>>>> Dx 1/2004 CML Leukemia >>>>>>>>>>>>> Started Gleevec 2/2004 >>>>>>>>>>>>> Started Tasigna 9/2009 >>>>>>>>>>>>> Started Sprycel 11/2009 >>>>>>>>>>>>> Started Ponatinib 1/ 2015 >>>>>>>>>>>>> New Doctor--Dr Martine Extermann >>>>>>>>>>>>> Moffitt Cancer center sept 2017 >>>>>>>>>>>>> Dr Balducci retired >>>>>>>>>>>>> >>>>>>>>>>>>> 0 CBL. ABL >>>>>>>>>>>>> >>>>>>>>>>>>>> On Jul 9, 2018, at 10:21 AM, Marty Gartenberg <wa2...@gmail.com> >>>>>>>>>>>>>> wrote: >>>>>>>>>>>>>> >>>>>>>>>>>>>> Richard, first thing is when your hemoglobin drops to 10 or >>>>>>>>>>>>>> below then is the time that procrit generic Epoetin Alfa should >>>>>>>>>>>>>> start. It should increase your red/hemoglobin count. However it >>>>>>>>>>>>>> may take a week or two to start showing results. Why don't you >>>>>>>>>>>>>> mention this to your doctor. >>>>>>>>>>>>>> Also, have your kidney function checked as well. >>>>>>>>>>>>>> >>>>>>>>>>>>>> When my kidneys started to fail I was on Dialsys and found that >>>>>>>>>>>>>> my hemoglobin level started dropping. Kidney function has a lot >>>>>>>>>>>>>> to do with that. The reason why is because there is a hormone >>>>>>>>>>>>>> called Erythropoietin which is released in response to hypoxia >>>>>>>>>>>>>> (low levels of oxygen at tissue level) in the renal circulation. >>>>>>>>>>>>>> It stimulates erythropoiesis (production of red blood cells) in >>>>>>>>>>>>>> the bone marrow. I am writing this in bold font to make sure >>>>>>>>>>>>>> that it can be understood, it is that important! >>>>>>>>>>>>>> >>>>>>>>>>>>>> When I was on Diaysis sometimes my HGB would drop to from 7% to >>>>>>>>>>>>>> 9% and I felt like I coulden't even get out of bed. My wife >>>>>>>>>>>>>> would help me into her car and help me into the Dialysis center. >>>>>>>>>>>>>> I lived a horrible life until I had a kidney Transplant. >>>>>>>>>>>>>> >>>>>>>>>>>>>> I have heard a lot of people mentioning that they blame some of >>>>>>>>>>>>>> the TKI that they are taking. Perhaps that may be so, but what >>>>>>>>>>>>>> if it isn't that at all? That is why they need to consult with >>>>>>>>>>>>>> their doctors because that is his or her job. And if they feel >>>>>>>>>>>>>> that there is someone that can help as well then get a second >>>>>>>>>>>>>> opinion. Don't forget they won't be hurt or offended because >>>>>>>>>>>>>> they are all getting together to help you. >>>>>>>>>>>>>> >>>>>>>>>>>>>> Richard and everyone else, there was a time a very long time ago >>>>>>>>>>>>>> that my father tought me something. He said that everyone needs >>>>>>>>>>>>>> to learn something new everyday because it will make you >>>>>>>>>>>>>> smarter. If you refuse to learn something new everyday then you >>>>>>>>>>>>>> will revert back to yesterday. And he was right! >>>>>>>>>>>>>> >>>>>>>>>>>>>> 18's >>>>>>>>>>>>>> >>>>>>>>>>>>>> Marty >>>>>>>>>>>>>> >>>>>>>>>>>>>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H >>>>>>>>>>>>>>> <rbhuffm...@gmail.com> wrote: >>>>>>>>>>>>>>> Yes, I have been struggling with this for years. I have had >>>>>>>>>>>>>>> Transfusions, and now check my CBC every month to see if I need >>>>>>>>>>>>>>> to take Procreate to bring my blood level back up. I am >>>>>>>>>>>>>>> currently on 200 mg Gleevec daily because my CML levels will >>>>>>>>>>>>>>> rise if I don't use it as a maintenance feature. I am >>>>>>>>>>>>>>> approaching 16 1/2 years since diagnosis. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> Richard H. >>>>>>>>>>>>>>> >>>>>>>>>>>>>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>>>>>>>>>>>>>>> I suddenly became terribly anemic and my doctor cut my intake >>>>>>>>>>>>>>>> of 400mg Gleevec daily in half. It took five months but I am >>>>>>>>>>>>>>>> no longer anemic and the CML does not seem to have become >>>>>>>>>>>>>>>> visible as yet. Has anyone else had a problem like this? >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>> -- >>>>>>>>>>>>>>> [CMLHope] >>>>>>>>>>>>>>> A support group of http://cmlhope.com >>>>>>>>>>>>>>> ------------------------------------------------- >>>>>>>>>>>>>>> >>>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>>>>>>>>>> To unsubscribe from this group, send email to >>>>>>>>>>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>>>>>>>>>> For more options, visit this group at >>>>>>>>>>>>>>> http://groups.google.com/group/CMLHope >>>>>>>>>>>>>>> --- >>>>>>>>>>>>>>> You received this message because you are subscribed to the >>>>>>>>>>>>>>> Google Groups "CMLHope" group. >>>>>>>>>>>>>>> To unsubscribe from this group and stop receiving emails from >>>>>>>>>>>>>>> it, send an email to cmlhope+unsubscr...@googlegroups.com. 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Google >>>>>>> Groups "CMLHope" group. >>>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>>> To unsubscribe from this group, send email to >>>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>>> For more options, visit this group at >>>>>>> http://groups.google.com/group/CMLHope >>>>>>> --- >>>>>>> You received this message because you are subscribed to the Google >>>>>>> Groups "CMLHope" group. >>>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>>> For more options, visit https://groups.google.com/d/optout. >>>>>> >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>>> To unsubscribe from this group, send email to >>>>>> cmlhope-unsubscr...@googlegroups.com >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an email to cmlhope+unsubscr...@googlegroups.com. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to CMLHope@googlegroups.com >>>>> To unsubscribe from this group, send email to >>>>> cmlhope-unsubscr...@googlegroups.com >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> --- >>>>> You received this message because you are subscribed to the Google Groups >>>>> "CMLHope" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send an >>>>> email to cmlhope+unsubscr...@googlegroups.com. >>>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
