Agreed, the technology issue isn't difficult. We already let patients subscribe to be notified of potential trials. However, trolling the EHR and contacting patients would be a difficult sell. We would prefer to send a message through the patient portal.
I'm part of the HL7 FHIR development process. I haven't seen this come up as a use case. jm James McClay, MD jmcc...@unmc.edu<mailto:jmcc...@unmc.edu> 402-559-3587 From: Gpc-dev [mailto:gpc-dev-boun...@listserv.kumc.edu] On Behalf Of Russ Waitman Sent: Friday, December 02, 2016 2:14 PM To: 'Maryan Zirkle' <mzir...@pcori.org> Cc: Steve Fennel <sfen...@kumc.edu>; GPC-DEV@LISTSERV.KUMC.EDU; data.pcor...@listserv.kumc.edu Subject: RE: patient side matching Hi Maryan, Ccing GPC-DEV and the data committee. I think we do have sites in GPCworking in the HL7/FHIR and definitely across PCORnet space but not sure about bluebutton parts. We would solve that stated use case, I think most would use their existing data infrastructure and EMRs/patient portals. The larger issue would be the IRB regulatory concerns around patient and provider contact and likely less a technology issue. Russ From: Maryan Zirkle [mailto:mzir...@pcori.org] Sent: Friday, December 02, 2016 9:56 AM To: Russ Waitman Cc: Steve Fennel Subject: patient side matching Hi Russ and Steve, Do you have any knowledge of work being done in this area within PCORnet? Your Network? "Patient-side matching: Utilize the BlueButton API using FHIR, plus any other data sources such as the NCI clinical trials API, to create a service that would alert a patient, caregiver, or provider when a patient is eligible for a clinical trial within a designated distance based on the patient's demographic and clinical information." Thanks, Maryan Zirkle MD, MS, MA Program Officer, Research Infrastructure Program Patient Centered Outcomes Research Institute (PCORI) 1828 L Street, NW, 9th Floor Washington, DC 20036 C: 202.744.6190 mzir...@pcori.org|<mailto:mzir...@pcori.org|> www.pcori.org<https://urldefense.proofpoint.com/v2/url?u=http-3A__www.pcori.org&d=DwMFAg&c=ZukO2fIan9e5E9v43wuy1w&r=2VCh0Oru51DJNpJ2_4EbvA&m=NYrIl4ZemG1sXxRtsBr37K1Wj4QGVJ15J_OmCIRO644&s=mtepe-rgqFcmMloLGSlhtOvbLGcnqilarwDph1pZr7s&e=> The information in this e-mail may be privileged and confidential, intended only for the use of the addressee(s) above. Any unauthorized use or disclosure of this information is prohibited. If you have received this e-mail by mistake, please delete it and immediately contact the sender.
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