#478: ADAPTABLE monitoring
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Reporter: schandaka | Owner: schandaka
Type: enhancement | Status: assigned
Priority: major | Milestone: adaptable-monitor
Component: data-sharing | Resolution:
Keywords: | Blocked By: 274, 476, 496
Blocking: |
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Comment (by mwennberg):
I ran the ADAPTABLE query at KUMC and found that no patients had
encounters after the date of trial enrollment. We realized that this was
due to our encounters being date shifted in the CDM whereas our
PCORNET_TRIAL table had the actual date that the patient was enrolled. I
followed up with Laura Qualls who confirmed that we should date shift the
trial enrollment date just like we do all of our other dates in the CDM.
Laura Qualls' response on 4/26/2017 was
{{{
Yes, date shifting must be applied consistently for all CDM dates for the
same patient.
}}}
I also raised a question regarding the level of PHI disclosure. Their
preliminary work-plan had that we were disclosing PHI, which I was
surprised by. Her response was:
{{{
We went with “PHI” to be conservative, but after consulting with our IRB
expert have
determined that it is a Limited Data Set. It can’t be considered de-
identified because
of the inclusion of the TRIAL_PARTICIPANT_ID. We have updated the Work
Plan accordingly.
}}}
--
Ticket URL:
<http://informatics.gpcnetwork.org/trac/Project/ticket/478#comment:32>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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