Hi all,
   As some here may not know the views of Mr.JP Gadkari of the National trust 
act and Paarivar as recently as 2009 when the same topic was
discussed, it is beeter to read his views again. His views on "Disabled  due to 
Mental illness" is well known.So will Mr.Gadkari answer how many disabled  due 
to Mental illnesss are covered under the National trust act ? How many disabled 
due to mental illness are part of the "gharando " scheme? How many disabled  
due mental illness are part of the Arunima scheme? His  letter to the Chairman 
of the national trust in 2009 is below.

Deal All,
 
It is good that the controversial question whether Mental Illness should be 
included as a disability under the National Trust Act or not has come to the 
fore.
 
This controversy has been brewing since 2003, soon after the National Trust Act 
became operative and the provision of legal guardianship became applicable for 
adults with mental retardation, autism, cerebral palsy and multiple 
disabilities which are covered under the Act.
 
While it was only a murmur in the beginning, it has now assumed a vociferous 
form and there is a noisy campaign through all available means, particularly 
through I.T. All kinds of arguments are being put forward to justify the demand 
that mental illness should be brought under the purview of the National Trust 
Act.
 
Why this strident campaign and flurry of e-mails from all and sundry now and 
the time chosen for it? There is a particular reason for this.  You are all 
aware that the process of reviewing all the disability related legislations and 
amending them suitably in order to bring them in line with the provisions of 
the United Nations Convention on the Rights of Persons with Disabilities 
[UNCRPD] is on.  Drafts for amending the Persons with Disabilities Act, 1995 
and the National Trust Act for the welfare of persons with autism, cerebral 
palsy, mental retardation and multiple disabilities are already in 
circulation. A huge debate at present is going on at the national level on 
these drafts. 
 
For the last five years or so mental illness lobby have been actively 
pursuading a demand that mental illness should be covered by the National Trust 
Act though there is a separate legislation called the Mental Health [MH] Act of 
1987 in existence. The main argument of this lobby is that there is no 
simplified legal guardianship provision in the MH Act and therefore, they would 
like to have the benefit of this provision under the National Trust Act.
 
The very basis of this argument is completely knocked off if the proposed 
amendment to the National Trust Act on abolition of the guardianship provision 
replacing it with the Supported Decision Making [SDM] structure is approved. 
But this is a hypothetical assumption. Even if the provision of legal 
guardianship remains in the National Trust Act there is no justification at all 
for the mental illness lobby to demand the inclusion of mental illness which is 
unfortunately included in the list of disabilities in the PD Act 1995. 
 
One has to take a serious note of the fact that mental illness with its very 
nomenclature is an illness - a disease and it cannot be termed  as a 
disability.  This illness can be cured with medication and probably a prolonged 
treatment.  What these persons need is rehabilitation measures once they are 
cured.  These provisions are there in the MH Act and also in the PD Act 1995.  
There is absolutely no justification of their demand for inclusion under the NT 
Act.
 
It will not be out of place here to look at the historical background and 
the hard struggle which had to be waged by the parents of persons with 
intellectual and developmental disabilities to prove that mental retardation or 
intellectual and developmental disabilities cannot be equated with mental 
illness. The parent movement which was then at its infant stage won a 
significant battle when the Indian Lunacy Act of 1912 was repealed, the 
mentally retarded were taken out of its purview  and the MH Act was enacted for 
the purpose of giving relief to the persons with mental illness.
 
The parents movement which had started taking firm roots in India by the time 
the PD Act  was enacted in 1995 carried forward this struggle when it was 
noticed that there were no adequate provisions in the PD Act to fulfil the 
specific needs of persons with intellectual and developmental disabilities by 
demanding a seperate legislation for persons with these disabilities. The 
parents movement under the leadership of Parivaar succeeded in this battle too 
with the National Trust Act being enacted in 1999.
 
When the National Trust Act was being drafted this historical background was 
kept in mind and the provision of legal guardianship was included in it.  It 
was also kept in mind that the enactment of NT Act was specifically for the 
persons with intellectual and developmental disabilities and not for persons 
with mental illness or disease. It is therefore, totally unjustifiable on the 
part of mental illness lobby to call it (non-inclusion of mental illness in the 
NT Act) as a "mistake". Therefore, there is no question 
of "correcting" this"mistake" as being demanded by some of the protogonist of 
the mental health lobby. In our view it was a mistake to include mental illness 
in the list of disabilities under the P.D. Act
 
It is surprising and painful to note that all and sundry without even having 
the rudimentary knowledge of the nature of intellectual and developmental 
disabilities are equating even the persons with cerebral palsy and autism with 
mental illness. Let these elements concentrate on the problem of mental illness 
only.
 
Since the debate has been going on, some interesting aspects have also come up. 
For instance, the NT CEO Mr. Atul Prasad has raised some important questions 
even indirectly suggesting to make provision of Legal Guardianship for MI under 
the MH Act itself. 
 
Mr. Atul Prasad has also raised another important question "whether we should 
compartmentalise disabilities or should we have a comprehensive Act with 
special chapters to deal with specific requirements (needs), if any, of 
different disabilities?" 
 
To the first question or the suggestion made by Mr. Prasad we fully agree that 
necessary  provision for legal guardianship should be made for the mentally ill 
in the MH Act itself.
 
We have no objection at all to have one comprehensive Act with special chapter 
to deal with specific requirements and needs of different disabilities and 
keeping intact the beneficial provisions in the existing Acts and also adding 
more appropriate provisions in the light of those provided in the UNCRPD.
 
J P Gadkari
President, PARIVAAR 
 
 

 
"Greatness lies not in never falling but in rising everytime we fall"
Captain Johann samuhanand,  BANGALORE  INDIA
91 80  42023252   
www.captainjohann.blogspot.com
 



>________________________________
> From: THE DISPATCH <[email protected]>
>To: [email protected]; [email protected]; 
>Access India <[email protected]>; 
>[email protected]; Posterous Dispatch 
><[email protected]>; Posterous MH News 
><[email protected]>; Posterous WMIF 
><[email protected]>; GG Dispatch On Disability 
><[email protected]> 
>Sent: Sunday, 1 July 2012 11:00 PM
>Subject: [MhaReformIndia:650] Why one comprehensive disability law is 
>undesirable
> 
>
>June 28, 2012
>
>J P GADKARI
>With reference to the editorial, ‘A law that 
enables,’ published in The Hindu on June 18, 2012, J.P. Gadkari, director of 
PARIVAAR, 
>a 
national confederation of  parents organisations of persons with 
intellectual and developmental disabilities, says:
> 
>The idea of an “umbrella” disability legislation 
suggested at the conclusion of the editorial is not a new one.  A group of 
some disability activists started pleading for ‘One Comprehensive Disability 
Law’ as soon as the Ministry of Social Justice and Empowerment set up  a 
committee consisting of representatives of mainstream disability organisations 
in the country on April 30, 2010.  They started agitating for changing the 
terms of reference of the committee which was assigned the task of drafting a 
new disability law (in consonance with the UNCRPD ratified by the Government of 
India on October 1, 2007) to replace the existing PwD Act 1995.
> 
>The Drafting Committee which consisted of 
representatives of all sections of disability took this issue for consideration 
at the very outset of its deliberation although it could have stuck to the 
terms 
of reference of the Committee and proceeded with its agenda.  Going out of 
the way, it devoted lot of its precious time with a full-fledged discussion on 
the issue of ‘One Comprehensive disability legislation vs Multiple laws’ as 
they 
exist today. 
> 
>After a thorough discussion, the Committee with an 
over-whelming majority came to the conclusion in favour of multiple laws, as 
they exist today, albeit with necessary amendments to bring them in line with 
the UNCRPD.  Their conclusion was based on the need to provide specific 
services, particularly for persons with intellectual and developmental 
disabilities [PwIDDs] and psycho-social disabilities.
> 
>The committee members belonging to this sector also 
explained that though the PwD Act 1995 had included Mental Retardation and 
Mental illness, it was necessary to have a separate legislation to meet their 
specific needs particularly dealing with rehabilitation and habilitation and 
life-long care. They also pointed out that despite the inclusion of these two 
disabilities in the PwD Act, they still remained most marginalised among the 
persons with various disabilities.  Therefore, they expressed the 
apprehension that they will again become marginalised if they become part of 
One 
Comprehensive disability law.
> 
>Later this majority view of the Committee was upheld by 
the Ministry of Social Justice and Empowerment and the Committee went ahead 
with 
its mandate and completed its job by the end of June 2011 and submitted the 
draft for the new Rights of Persons with Disabilities bill to the 
Ministry.
> 
>During its deliberations and countrywide consultations, 
the Committee also took the view that all other disability laws should also be 
amended simultaneously with close coordination between the Ministries of 
SJ&E, Ministry of Health and HRD in order to avoid inconsistencies and 
duplication.
> 
>Early this year the National Advisory Council undertook 
the exercise of extensively review the Rights of Persons with Disabilities Bill 
and has broadly concurred with the stand taken by the Committee.
> 
>We, therefore feel that there is broad unanimity and 
consensus in the entire disability sector on this issue and an umbrella law 
idea 
is not acceptable to it.
> 
>http://www.thehindu.com/opinion/op-ed/article3577736.ece
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