----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: DaveStreeter Message 4 in Discussion Hi Acro1974, You sound alike like me. I have Acro and my IGF-1 level is 245 using a 80-220 range. I tried Sandostain LAR 10mg and lowered my IGF-1 level to 137. While my IGF-1 level was lowered a still felt the same, headachces, fatigue and muscle pain. I'm 45 years old 3 years from surgury at UCSF and I'm currently seeing Dr. Katznelson at Stanford. I've tried every thing, Dosenex, Sandostain and 2 month ago I was put on Somvert 10mg. The Somavert has not lowered my IGF-1 so I just start the Somavert 20mg daily shots. As far as the GH goes I have a .6 and I think Minnie's response is correct. As long as you are contoling you IGF-1 which is produced from GH your Acro is under control. Normal GH is less then 10 using the my last blood work in April 2007. I'm also not sure about all the IFG-1 level. The essay test ranges are changed from time to time. A year ago my IGF-1 level was at 280 and considered normal using a 80-320 range. Then 6 months later my IGF-1 level is 245 using a 80-220 range and considered high. I did have some luck with starting testrostrone daily gel along with a thyriod med. This combonation seems to help with my muscles and give me a little more energy. Like you I have good days and bad. I seem to have bad day when I push myself. I have a basic 40 hour a week desk job. I try a walk about 1 to 2 miles a day and do yard work on the weekends along with play golf. Just this damm burning headache is making it hard to function. I you had any luck with other medicines or diets?? The hard part for me is trying to figure if these syptoms are from the active Acromegaly or the after effective of the Acro. Dr. Katznelson seems to think it's from the Acro but can not explain why if the meds lower my IGF-1 why I don't feel better. Thanks for your post it's helpful to read up on people with similar issues. I hope you start feeling better. Take Care, Dave ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
