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New Message on Pituitary Chat

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From: CaroCSA
Message 2 in Discussion

Hi Laura; I am sorry to hear about your grandmother. I posted last week all the 
horrible side effects I also have with cabergoline. And many people have the 
same problems or worse. One of the side effects is the valve problems. I think 
you are right in worrying about it. 
I also see my endo every 6 months, but I have decided to stop the cabergoline 
until I feel better and I will ask to see my endo in 3 months to check my blood 
and see how I am doing. I was on Dostinex for 5 years without any problems, it 
all started with the generic cabergoline. So see if you can find out about 
Dostinex. If I have no other options than going back to cabergoline, I will 
suggest a lower dosage. A pharmacist explained to me that even though the 
generics have the same drug dosage as the originals, it can be prepared 
differently and absorbed or dissolve faster. So the result is a higher dosage 
of absorption so that could be the problem.
I think we patients have to be more active in our health care because we are 
the ones who know how we feel. I listen to my body and I think we should not be 
scared to tell the docs what we want. Even if they disagree..
Best of luck, Carolina

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