----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 5 in Discussion Jean in Colorado!!!! I always miss you when I do not see you!!!! Thanks for educating us all. I have heard awesome things about Dr. Friedman. I did not go to him because of the cost and he wanted me off my Estrogen for 1 month prior to seeing him. If you were to ever see me off of Estrogen you would understand my decision-:) Do you physically visit him or are your working with him via phone at this point? How long have you been seeing him? I really do not think I need him at this point just because the only hormone that is not normal for me since surgery is Estrogen. I love my Estrogen-:) MISS YOU!!!! LOVE & HUGS, Tina On Feb 2, 2008 5:49 PM, JeanatPreparedPet <[EMAIL PROTECTED]> wrote: New Message on Pituitary Chat Low IGF1 ?? Reply Reply to Sender Recommend Message 4 in Discussion From: JeanatPreparedPet Hi, I have high Gh and normal to very low IGF-1. According to some of my IGF-1's, I am a candidate for GH injections. I am aware of perhaps 2 others in my situation. I am with Minnie on this, if your situation is at all rare, then you must go to physicians who are capable of recognizing that not everything fits into a formula. I use the Oral Glucose Tolerance Test as well as 24hr. Growth Hormone to check my status. Please be aware that Growth Hormone has a 20 minute half life, and if not frozen within the 20 minute window, the blood sample is inaccurate and worthless. I am in Colorado and of the 3 OGTT's I had done, only one was done correctly. I see Dr. Friedman in Los Angeles. He gets it. There are reasons other than acromegaly for elevated GH and low IGF-1. Most are associated with extreme dieting, i.e anorexias, malabsortion of nutrients, liver disease or failure and kidney disease. These have been ruled out for me. Another, not well known test for down the road might be Growth Hormone Releasing Hormone, however; even with this test, IGF-1 will usually be elevated. If you find anything out, please post to this board as I can use any insights you may have gained. In my case we have not found a tumor and I am on medication. Also, it never matters how many doctors your husband has seen, only the qualtity of their care matters. Jean in Colorado View other groups in this category. To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
