On 05/26/2016 08:16 PM, Renato Iannella wrote:
On 26 May 2016, at 17:42, Marc Twagirumukiza
<marc.twagirumuk...@agfa.com <mailto:marc.twagirumuk...@agfa.com>> wrote:
However it's the responsibility of every one to make its data public
or not.
This doesn't prevent us to provide a*way of expressing data*(for those
who want to do so) with FHIR standard usingschema.org <http://schema.org/>
I think the onus is on the spec development side to show how privacy
issues are addressed (mitigated).
Hence, using “Privacy-By-Design” principles [1] (for example).
The current FHIR core spec uses a secure protocol for exchange of data
(ie good design) for XML/JSON.
But if we then say - here is how you encode FHIR data in public web
pages and publish schema.org <http://schema.org> URIs - then we must be
able to specifically address these privacy concerns. (I imagine a lot of
Privacy Advocacy groups would be interested if they saw that.)
I think it is important to distinguish two separate and orthogonal concerns:
1. What data should be shared or exchanged?
2. What does the data mean?
Security and privacy are all about #1 -- not #2. Schema.org and
healthcare vocabularies address #2 -- not #1. They are all about
creating a shared understanding of what the data means, in order to
achieve interoperability between parties that have already decided to
exchange data. This is completely orthogonal to the question of whether
that data should be shared or exchanged.
Privacy-By-Design principles are very relevant to protocol
specifications, but they are not very relevant to vocabularies whose
purpose is to enable shared understanding of data meaning.
David Booth
Just for your example, we are already expressing our internal
healthcare data (and EHR data) usingschema.org
<http://schema.org/>(although they are not public).
This has a benefit when we need to share such data with another APIs
and there HL7 FHIR comes in as a standard.
Does that mean you are encoding FHIR Data using RDFa/Microdata? (and
using schema.org <http://schema.org> URIs for all the FHIR concepts?)
Cheers - Renato
[1] https://www.w3.org/TR/2012/NOTE-app-privacy-bp-20120703/
