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an sp is still indwelling
----- Original Message -----
Sent: Tuesday, December 28, 2004 5:32
PM
Subject: Re: [QUAD-L] Mitrofanoff
Procedure
hi,
I have seriously considered this surgery, as an
indwelling foley in the meatus is so troublesome over time. I also really
would like to swim, mithrofanoff is the only thing aside from intermittent
cathing through meatus, that will allow me to swim (according to my Dr.).
After some serious consideration, I am choosing to have a superpubic instead.
My partner doesn't qualify for "family leave" to care for me while in the hosp
and recovering at home, so we can't even consider the possibility that she
could get time off. I don't relish the idea of having my internal organs
messed with unless absolutely necessary. Not to mention being in the hospital
for 10 days. Ironically, hospital care is the most dangerous care there is for
us. No turning help, BP assistance is poor, infection is twice as
likely...blah blah. They just don't have the time or concern that family
members have, and that we need.
My opinion, you choose what's right for
you.
River
On Dec 28, 2004, at 5:05 PM, B. Kimberlin
wrote:
The women I have known that have had this procedure took some
time to recuperate fully. You might want to consider the summer
break.
Billy
Stacy Harim
<[EMAIL PROTECTED]> wrote:
I was supposed to get
the surgery in January, but it doesn't look like the timing is going to work
out. I am thinking about spring break but still not sure. I was
told I would be in the hospital a week.
Stacy
-----
Original Message -----
From:
[EMAIL PROTECTED]
To:
quad-list@eskimo.com
Sent:
Tuesday, December 28, 2004 4:58 PM
Subject:
[QUAD-L] Mitrofanoff Procedure
Thanks
Liz for the update on this proceedure. Having a doctor that
has
performed a number of these precedures instills more confidence in
the
consideration of having it done.
W
In a message dated 12/28/04
3:13:44 PM, [EMAIL PROTECTED]
writes:
<< I am a c6 and use self contained caths. I
refer to them as pee-n-toss. I
self cath through a stoma in my belly
button. There is no apparent "flap".
it looks the same as it
did before surgery. I have some scarring but it
has
faded. My doc used part of my intestine. They also
may use your appendix.
Talk to your surgeon and tell him you want to
talk to HIS patients that have
had the procedure.
It's a big
surgery. At least 10 days in the hospital. >>
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