Re: [QUAD-L] Mitrofanoff Procedure

[Dana Miller]

I don't know what a Mitrofanoff Procedure is, but I had an augmentation back 
in '88-'89 (?)
and love it!  Its a rough surgery, but well worth it.  My procedure took 9 
hours to do!  I think they
have gotten better at it by now.  As long as you keep the catheters 'clean' 
and then sterilize them, you can use the same set over and over again! At 
the end of a day, the cath I had been using is put in a bleach/water 
solution, when all 30 have been used, they are boiled for 20 minutes.  Have 
not had a uti in months!  I think the bleach is the reason as that is the 
only thing I have changed.
I am a C5-6 and my stoma (hole) is to the right of my belly button.  I can 
control how often I cath, by how much I drink.  If I go on a day trip I can 
go all day without cathing.

I did have to have my urethra completely closed off after a while as I would 
leak during transfers
and such.  I do have to tell docs etc. when I go in for a surgery that the 
stoma is the 'only' way to get to my bladder. 
take care,

Dana and ?
[EMAIL PROTECTED]
----- Original Message ----- 
From: "Liz" <[EMAIL PROTECTED]>
To: "Jessica Ann Gordon" <[EMAIL PROTECTED]>; "Quad List" 
<quad-list@eskimo.com>
Sent: Tuesday, December 28, 2004 11:54 AM
Subject: Re: [QUAD-L] Mitrofanoff Procedure


I had it done in '96 with an augment.  Best thing I ever did.
go to www.sciwire.com
there's alot of info there under the care section
----- Original Message -----
From: "Jessica Ann Gordon" <[EMAIL PROTECTED]>
To: "Quad List" <quad-list@eskimo.com>
Sent: Tuesday, December 28, 2004 12:39 PM
Subject: [QUAD-L] Mitrofanoff Procedure

i'm a c6/c7 female quad thinking about having the mitrofanoff procedure 
in
order to catheterize myself. has anyone had this done and could u offer
any
advice? r u happy w/ the results? any info would be greatly appreciated!
jessica