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Hi Dan...I wanted to respond to your post because my pain has increased as
time has gone by. I have been injured 13 years and my pain started a
couple months after my injury and has gotten steadily worse over the
years. I have severe burning and needles basically from my chest down to
my feet. I have tried all kinds of medication and none have helped or only
helped a little and for a short time. I also tried Lyrica, but it did not
do anything for my pain. I have heard from other people with spinal cord
injuries who have pain that some people's pain gets less over the years and
others get worse, so I'm not sure why some people are forced to endure this
horrible pain and that it gets worse. Also, like you and Ron (and others
on the list), I also have a syrinx, which I found out about five years
ago. I had the shunt surgery done, hoping it would reduce my pain, but did
nothing for it. Fortunately I haven't lost any function.
Anyway,
just wanted to pass on my experience...
Corie
----- Original Message -----
Sent: Thursday, October 19, 2006 6:50
AM
Subject: Re: [QUAD-L] LYRICA
Kathy and others.........has your pain increased as time
has gone by ? I just passed 9 years as a quad, I thought In time things
would get better but it seems to be the opposite. The 1st 3 or 4 years I could
sleep like a baby most of the night but now I suffer most the nights in pain
getting very little good sleep rest-- I feel exhausted all the time. I take
amitriptyline ( elavil ) at nights to sleep and it helps some. At night it
seems my blood does not circulate good, I think I may try one of those air
pressure relief electric mattresses that shift your weight when I can afford
it, I know a few of the quads say they really help. Anyway I'm just
curious to know if most of your pain levels increased -- got better -- or
remained about the same
???
Dan
[EMAIL PROTECTED] wrote:
Hi Ron,
I had been taking
neurotin for 7 years and it had increased to 1200 mg 3x a
day. My neuropathy really covers me all over and I can take
different muscle relaxers , pain pills, and botox shots
and still have pain.
My doctors had told me about lyrica
and it is the "new" miracle medicine that is suppose to work wonders.
I have been on it for 6 weeks and they have raised it once. I am
taking 300 mg 2x a day and they say it can be increased a lot
more. My baclofen has also been increased to 20 mg 3x
a day. Right now I am super sensitive to touch. Bathing is
horrible, I can't stand the feel of the bath cloth and towel going up
and down my skin. I am crying by the time I am dressed. Then I
have to take the pain pills.
The pain clinic is a new doctor to me
and he says if I will hang in there he believes that lyrica will solve my
pain when we find the right dose. I wish they could increase it
faster.
Kathy in Mississippi
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- Re: [QUAD-L] LYRICA Corie Jones
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