I live with it the best I can. Keeping very busy has been my long term therapy. It gives me something else to think about. Idle time is not good for me. I do take 1.5 tabs of Hydrocodone in the evening. Doesn’t help a lot with the actual pain, but it helps me not obsess on it.
If a doctor or scientist came to me and said I could now have a choice between having voluntary movement again but all the same pain, or no pain but still no voluntary movement, it might be a hard choice. Steve – C4, 20 years From: Danny Hearn [mailto:[email protected]] Sent: Thursday, April 16, 2009 1:18 PM To: 'quad-list'; Steve Oldaker Subject: RE: [QUAD-L] strange pains thanks for your input on this Steve, do you just live with it as best you can or do you still try pain meds? Dan H. --- On Thu, 4/16/09, Steve Oldaker <[email protected]> wrote: From: Steve Oldaker <[email protected]> Subject: RE: [QUAD-L] strange pains To: [email protected], "'quad-list'" <[email protected]> Date: Thursday, April 16, 2009, 11:29 AM Danny, I have experienced nearly the exact same pains you described in the same locations 24/7/365 for 20 years. The affected areas also feel like they are immersed in buckets of ice water. I’ve tried pain meds, anti-seizure meds, anti-depressants, biofeedback, acupuncture and hypnosis. Sadly, nothing has worked. I hope you find a solution. Steve – C4, 20 years From: Danny Hearn [mailto:[email protected]] Sent: Thursday, April 16, 2009 12:11 PM To: [email protected] Subject: [QUAD-L] strange pains HELLO GANG, I HAVE BEEN GETTING INCREASING PAINS-----IT HAPPENS A LOT WHEN I SLEEP OR WHEN I'M UP IN MY CHAIR-----ESPECIALLY IF I'M SLEEPY OR TRY TO DOZE OFF IN MY CHAIR----------- TO DESCRIBE IT IS LIKE THIS..........MY HANDS FEET LEGS , BACK BECOME VERY PAINFULL AND TINGELY----( SUCH AS WHEN A PERSONS HANDS OR FEET USED TO FALL ASLEEP, WHEN LAYING ON THRM WRONG, BEFORE INJURY OR PARALASIS. ) IT IS HAPPENING TO ME MORE OFTEN THESE DAYS......IT IS VERY PAINFULL AND CAUSES ME TO SPASM MORE THAN USUAL. IT SEEMS MY ONLY RELIEF IS BY TAKING PAIN MEDS SUCH AS VICODEN. I KNOW THAT I HAVE A SYRINX...SUCH AS MANY OF YOU ALSO,, AND HAVE HAD BLADDER UTI PROBLEM MUCH OF THIS YEAR, BUT DOC'S QUIT TREATING IT DUE TO FEAR OF MUTATION OR WORSE NON TREATABLE UTI FORMING. HAVE ANY OF YOU EVER EXPERIENCED THIS KIND OF PAINS??? THANKS, DAN H. 11.6 YEARS POST ST. LOUIS, MO. AREA.
