I suspect that your specialist in Louisiana are sending you to Craig for an evaluation. Craig may or may not agree with your specialist's recommendations. You will be at one of the best facilities for an evaluation. Best Wishes In a message dated 3/12/2012 2:57:07 P.M. Central Daylight Time, [email protected] writes:
Yes, many quads have Syringomyelia---i was diagnossed in about 1999 but doctors here in St.louis said they will not touch it unless I lose the function that I currently have. They told Ron-- another missouri quad the same thing. ( it is very dangerous and risky and sometimes the surgury does not help ) Dan H. ____________________________________ From: Bobbie Humphreys <[email protected]> To: Lda Nscia <[email protected]> Cc: "[email protected]" <[email protected]> Sent: Mon, March 12, 2012 2:36:04 PM Subject: Re: [QUAD-L] Syringomyelia ( cyst on spine ) I was diagnosed with a syrinx in 1995, never had surgery. Why dose your Doctor feel the need? Have you lost some function and or feeling? Bobbie C-4,5,6,7 1973 Sent from my iPad On Mar 12, 2012, at 2:55 PM, Lda Nscia <[email protected]_ (mailto:[email protected]) > wrote: I have recently been diagnosed with Syringomylelia ( cyst or syrinx on spine ) and am awaiting surgery at Craig Hospital in Denver. I would like to hear from others who have had this surgery to get a patients perspective. Glenn Louisiana Disability Alliance, NSCIA P.O. Box 86632, Baton Rouge, LA 70817 Ph: 225-436-4519 [email protected]_ (mailto:[email protected])
