In our state is not funded through the CIL's, but rather from the Department
Of Disability And The Aging.  I get this twofold as I am receiving PCA's for
myself so today we just happened to do the yearly application (as I am not
eligible for Medicaid it is even more complicated because I am grandfathered
in from 19 years ago so that was an extra seven pages) and I had to sign 19
pages!  That is up from 12 last year.
Because I am a caregiver myself I have to also fill out two lengthy
applications for my two guys that live with me.  That is up to 24 pages.  So
it is not your CIL, but government bureaucracy.  Maybe it is time to get
involved with your CIL and see if it cannot be improved.  Our CIL is always
looking for volunteers and we can do so much to help others I feel the CIL
is a very worthy organization to support.
Joan

-----Original Message-----
From: Dan [mailto:d...@unh.edu] 
Sent: Wednesday, May 02, 2012 2:15 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Independent living?

How many of you hirer PCAs? My state used to have an excellent independent
living center. It was one of the first in the nation. Sadly, over the years
it has deteriorated into what I call a non-Independent living Center. When I
first started, I made the rules. I decided how many hours of help, I needed
per day. Once the dollars were approved by the state. I was on my own.

Now, the bureaucrats have taken over. What used to be a one-page sign up for
a new PCA has now turned into 15! They have to have background checks,
medical checks, references, a waiting time. The timesheets that I use to
fill out were very simple -- Jill Smith worked 20 hours this week. Jill
signs - I sign.

Now we have to follow -- at least we're supposed to -- a voluminous book
full of rules and regulations. Everything from what you can and cannot wear
to the proper body mechanics of lifting to Mandatory meetings, to Defensive
driving, etc. etc.

How can they call themselves an independent living center? There is nothing
independent about this.

Has any of this happened to your independent living center?

Dan

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