I agree with Meredith! I've been here a long time and the Q-List is an
invaluable assert. Thank you so much Jim!!
Nan
________________________________
From: "jume9...@comcast.net" <jume9...@comcast.net>
To: quad-list <quad-list@eskimo.com>
Sent: Sunday, July 14, 2013 7:17 PM
Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
Jim,
You should be very proud with all that you have accomplished. We are grateful
for you
Meredith.
________________________________
From: "Jim Lubin" <jlu...@eskimo.com>
To: lwillis...@yahoo.com
Cc: quad-list@eskimo.com
Sent: Sunday, July 14, 2013 2:37:55 PM
Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
While I do agree with some of the negatives listed, I have done quite a few
things in my 24 years of being a quad that I would not have otherwise done.
* started support group for quads
* started support group for vent users
* started support group for people with transverse myelitis
* made a disability resources web site
* made a transverse myelitis web site, with information I found people
to translate to many languages, which led to international support groups that
didn't exist before
* personally raised more that $30,000 for charities
Ya, lot of down sides to (besides what has already been listed)
* being worried every time the power goes out that the ventilator might
stop working
* worried when the vent tube comes off that someone might not come fast
enough to fix it
* never being able to be left completely alone
On Sat, Jul 13, 2013 at 6:24 PM, <lwillis...@yahoo.com> wrote:
The list is indeed endless. There is not one damn positive thing about being a
quad. We speak out our hats about new doors opening, spiritual growth,
inspiration, and all that rot, but I have done nothing in my 43 years of quadom
that I could not have done better on two feet. A life of complete dependence,
constant pain, depression, dysfunctional body functions, and endless physical
breakdowns has nothing to commend it. At present I have 3 pressure sores,
cellulitis in my left leg, sinus infection, stomach and bladder pain, chronic
constipation, and myriad other fun ailments. The positive I always hear? "Well,
it could be worse." Sure, and hell could be a little hotter. Now that I have
cheered you all up, good night and God bless, quad buds. Sleep tight. I won't;
the arthritis in my neck and shoulders is killing me.
>
>Begin forwarded message:
>
>
>Resent-From: quad-list@eskimo.com
>>From: "shirley bell" <sbell...@cox.net>
>>Date: July 12, 2013, 12:43:31 PM EDT
>>To: "donald scott" <rollingl...@yahoo.com>
>>Cc: <quad-list@eskimo.com>
>>Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
>>
>>
>The list is endless! I agree with everyones
complaints. But I try to focus on
>>Best,
>>Shirley Bell
>>
>>www.ShirleyBellDesigns.com
>>----- Original Message -----
>>>From: donald scott
>>>To: quad-list@eskimo.com
>>>Sent: Thursday, July 11, 2013 6:50 PM
>>>Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
>>>
>>>
>>>My top 5 would be.
>>>
>>>1. Worrying about current and future cuts in caregiver hours and
>>>Medicare/MediCal.
>>>
>>>2. Not being able to make enough money to be comfortable.
>>>
>>>3. Having to depending on others for life's routine crap.
>>>
>>>4. Knowing how to do things like mechanical, electrical, construction,
>>>engineering, etc. and not being physically able to do it alone.
>>>
>>>5. No more normal SEX...Along with other fun activities like off roading,
>>>camping, hiking, hunting, rollercoasters, etc..
>>>From: Gmail <bobbiehumphre...@gmail.com>
>>>To: quad-list@eskimo.com
>>>Sent: Thursday, July 11, 2013 10:58 AM
>>>Subject: [QUAD-L] Top 5 things I hate about being a Quad
>>>
>>>
>>>
>>>
>>>
>>>These are my top 5 things I hate
about being a Quad.
>>>
>>>
>>>1. Having someone else prepare food for YOU
their way.
>>>
>>>2. Getting up and in bed when your aid can make it, not when
you wish to.
>>>
>>>3. People telling me "... how lucky you are not to have to
work."
>>>
>>>4. Limited selection of clothing.
>>>
>>>5. Aging and
Quadrum.
>>>
>>>
>>>Bobbie
>>>
>>>
>>>Sent from my
iPad
>>>
>>>
>>>
>>>
>>>
