I too received 35 hrs a week for 30 years now but was Just cut to no money
because the ILC I was with went under due to poor management by the director.
It was quite a blow to me. Now I can only get help if I qualify for Medicaid,
which I don't. So as of June I have been on my own. Still trying to get some
help by writing to local reps, Gov Etc. we will see.They make it so hard NOT to
get on Medicaid. I have tried my whole life to stay off it. Geez, what a system.
Kind regards,
Shirley Bell
www.ShirleyBellDesigns.com
----- Original Message -----
From: Larry Willis
To: quad-list@eskimo.com
Sent: Friday, August 07, 2015 12:05 PM
Subject: [QUAD-L] SCI
My wife manages the local Burger King while I watch the grass grow at home.
She works everyday...and gets me in and out of bed. She is pretty amazing. I
likely would have given up by now if not for her. Our combined incomes
disqualify us from any assistance.
Larry Willis
Retired and proud of it
Begin forwarded message:
From: Gmail <bobbiehumphre...@gmail.com>
Date: August 6, 2015 at 6:39:18 PM EDT
To: Larry Willis <lwillis82...@gmail.com>
Subject: Re: [QUAD-L] Old sci
Larry I just CAN'T believe you can't/don't get home health care! THAT is
truly fucked up.
My sweet Pete has been taking care of me for over 30 years now getting paid
for 40 hours per week! The pay is minimum wage but we've managed.
BTW~ the agency did not want to provide medical benefits as a full time
worker, so they got away with it by stating he was working Perdiem.
Fucking ass holes.
He dose EVERYTHING!! Changing the cath, but now the stoma, giving me a
suppository and wound care. A nurse never came out, only to do vitals to make
the insurance company happy.
But we were/are very greatful to receive 40 hours per week for all these
years.
Bobbie
Smile Everyday
On Aug 6, 2015, at 4:40 PM, Larry Willis <lwillis82...@gmail.com> wrote:
I feel the same way, Bobbie. Btw, my email accounts have somehow become
confused. Some say Bryce (my son) and others say Melissa (my wife), but it's
still me, Larry.
Larry Willis
Retired and proud of it
Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: Gmail <bobbiehumphre...@gmail.com>
Date: August 6, 2015 at 2:56:42 PM EDT
To: Bryce Willis <lwillis82...@msn.com>
Cc: "quad-list@eskimo.com" <quad-list@eskimo.com>
Subject: Re: [QUAD-L] Old sci
Bryce I TOTALY understand what your feeling and talking about.
Soooooo many days I feel as thou I'm not living anymore ... just
existing.
I hurt sooooo much EVERY SINGLE DAY.
What kind of quality of life is THAT?
Smile Everyday
On Aug 5, 2015, at 9:55 PM, Bryce Willis <lwillis82...@msn.com> wrote:
Me too, Bobbie. When I wake up in the morning, I hurt so bad all over
that I just don't think I can do it. Then I roll over on my back and the muscle
spasms begin. They hurt like hell and take my breath away. When I am finally in
my chair it takes a good two hours before I can function. Then fatigue hits me
and I hang my head for another hour of sleep.....if the pain has eased off.
This is every day....every stinking day. Then muddle through the day till
bedtime, then do it all over again. Stinks.
Sent from my iPad
Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: Gmail <bobbiehumphre...@gmail.com>
Date: August 5, 2015 at 9:38:35 PM EDT
To: "John S." <alcibiat...@yahoo.com>
Cc: Robert Vogel <rhvsh...@me.com>, Larry Willis
<lwillis82...@gmail.com>, "quad-list@eskimo.com" <quad-list@eskimo.com>
Subject: Re: [QUAD-L] Old sci
Me two John. I do NOT want to get even close. I'm ready to go to
sleep tonight and not wake up tomorrow. I'm ready. Bobbie
Smile Everyday
On Aug 5, 2015, at 5:29 PM, John S. <alcibiat...@yahoo.com> wrote:
I sure would hate to go near that record. God bless him.
Best Wishes,
John s.
-------- Original message --------
From: Robert Vogel <rhvsh...@me.com>
Date: 08/05/2015 3:51 PM (GMT-05:00)
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Larry Willis <lwillis82...@gmail.com>, quad-list@eskimo.com
Subject: Re: [QUAD-L] Old sci
Hi Bobbie and Larry,
Check out this link to March, 2015 New Mobility—an article and
link about Lee Goldstein, 82 years old
and 69 years post injury C6/7 para. Talk about beating the
odds!!! Fantastic book!!!
Here is the link:
http://www.newmobility.com/2015/03/so-far-so-good/
Cheers,
Bob Vogel
On Aug 5, 2015, at 9:13 AM, Gmail <bobbiehumphre...@gmail.com>
wrote:
1973 is when I had my accident. I'll be 60 this November.
Bobbie
Smile Everyday
On Aug 5, 2015, at 6:13 AM, Larry Willis
<lwillis82...@gmail.com> wrote:
Hey peeps, New Mobility magazine has a very good article
about aging with SCI. It looks at the Longevity Project, a research project
started in 1973 to track a group of SCI folks through the years. It also says
that in 1973 it was not believed possible for a quad to live forty years. Well
well.
Larry Willis
Retired and proud of it
