I agree Dana, I did not know you had so many bladder issues. feel for you my friend. Shirley
> On January 22, 2023 at 6:51 AM Dana <wraydan...@gmail.com> wrote: > > Hi Todd, > We are dinosaurs. I like this way of communicating, Instead of on a > Facebook website. I don't feel like it is all private I feel like at least > with our group we are all able to share and not feel so exposed.I was > interested in getting information from Ed about his lifestyle as I found it > very interesting, but that email and several others that were speaking along > that line were lost. My Google is full. Dana > Dana > C 4-5. Complete, Tracheostomy,,ileo-conduit, problems with kidney stones > and blocking drainage i’m requiring nephrostomy tubes. I have told by my > kidney doctor that it happens because the conduit is open. I had bladder > cancer in 1986 when I was 12 years post. I had colon cancer in 2014. I didn’t > know that ileo-conduits wear out. Two out three die From the surgery. My > regular doctor wanted to put me on hospice, because we could not find a dr. > we have one of the top kidney doctors at KU Medical Center. > > > > > On Sun, Jan 15, 2023 at 2:49 PM Tod Santee <mr.san...@gmail.com > mailto:mr.san...@gmail.com > wrote: > > > > Hi Eric & Jim, > > I use (or more accurately, read) social media much more now, > > too, but certainy don't trust it much for sharing much personal info... > > particularly certain Quad-related info. But I suppose in these more recent > > years of many people oversharing anything & everything, maybe those who > > were once shy to engage via email feel less noticed among the throngs of > > social media users. For the most part, I still try to keep my real name > > and/or full-face photo off FB. As for Twitter, Instagram, and others... > > they're read-only in my book, and only rarely at that! > > Regardless, glad to see some dinosaurs remain! > > > > Best to ya's, > > --Tod > > > > On Sun, Jan 15, 2023, 11:52 AM Eric Olson <whee...@wi.rr.com > > mailto:whee...@wi.rr.com > wrote: > > > > > > > My guess is that people have moved to social > > media. People like us that still communicate via a listserv are dinosaurs > > lol > > > > > > On Sat, Jan 14, 2023 at 9:16 PM Tod Santee > > > <mr.san...@gmail.com mailto:mr.san...@gmail.com > wrote: > > > > > > > > > > Hi Jim... I've been a member > > > here a long time and I check in on Quad List messages from time to time, > > > though I rarely have much to offer when I see a question that seems like > > > it's been fully answered once I see it. I'm seeing fewer and fewer posts > > > and/or new members. Do you know if people are "meeting" or communicating > > > on a different forum or some other list? I've been meaning to ask for a > > > while now but I'm just getting more curious since I sometimes see a few > > > days between messages. > > > > > > > > Thanks! > > > > Tod Santee > > > > > > > > On Tue, Jan 10, 2023, 11:58 PM Jim Lubin > > > > <jlu...@makoa.org mailto:jlu...@makoa.org > wrote: > > > > > > > > > > > > > > > > > > What happens to the ABLE account after the > > > > > death of the account owner?click for more information > > > > > > > > > > > > > > > When the account owner passes away, the funds > > > > > in the ABLE account can be used for any outstanding qualified > > > > > disability expenses, including funeral and burial expenses. The ABLE > > > > > plan can advise you on what is needed such as a death certificate or > > > > > whether there is a special form to complete. It is up to the > > > > > individual state, whether or not to file a claim for Medicaid > > > > > recovery of funds which were paid on behalf of the account owner > > > > > since the account was opened. If someone has never received Medicaid, > > > > > this is not an issue. If the state pursues a claim, In addition to > > > > > allowing for the repayment of outstanding QDEs, including funeral and > > > > > burial expenses, Medicaid buy-in premiums paid since opening the ABLE > > > > > account will be reimbursed. Thereafter, the remainder of funds are > > > > > payable to the Estate. > > > > > > > > > > > > > > > > > > > > https://www.ablenrc.org/frequently-asked-questions/ > > > > > > > > > > > > > > > > > > > > > > > > > On Tue, Jan 10, 2023 at 7:48 AM SHIRLEY BELL > > > > > <sbell...@cox.net mailto:sbell...@cox.net > wrote: > > > > > > > > > > > > > > > > My > > > > > question that I can't find the answer to, is if you have an able > > > > > account and die doe the state get your money? Thanks Jim > > > > > > > > > > > > > > > > > > > > > > > > > On January 10, 2023 at > > > > > > 10:34 AM Jim Lubin <jlu...@makoa.org mailto:jlu...@makoa.org > > > > > > > wrote: > > > > > > > > > > > > > > Age Limit — Eligibility is currently > > > > > > > limited to people who developed their disability before age 26; > > > > > > > anyone who becomes disabled later in life does not qualify. > > > > > > > Fortunately, in late 2022, Congress signed off on adjusting this > > > > > > > age limitation beginning in 2026. At that time, individuals who > > > > > > > became disabled before age 46 (rather than age 26) will be > > > > > > > eligible to open an ABLE account. > > > > > > > > > > > > > > https://specialneedsanswers.com/an-introduction-to-able-accounts-17586 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >
