[QUAD-L] Special needs trusts
Could somebody on this list contact me personally regarding special need trusts. Is there a handbook out there? A handbook for me, the beneficiary? I've look on line till my eyes were bulging out of my head. Bobbie
Re: Fwd: [QUAD-L] Getting Old, Panic
I found a thing that holds the blankets above your feet in bed. I would need 2, instead of one at the botom, I could use 2, 1 on each side to hold the blankets above my arms. They were not cheap. Maybe I can find 2 old wire hangers and make them. That might help. At this point I'll try anything. Greg > Greg, I have almost that same problem about once a week. I will > wake up very uncomfortable but I can't tell if I am hot or cold. My > hands are always like icicles regardless. And I have the shivers,
Fwd: [QUAD-L] Getting Old, Panic
I think I have already shared this, but my hands are like chunks of ice beginning at the wrist. Don't know what triggers it, when, or why. I hold them in front of a heater and they gradually warm up. More manure on the marvelous mountain of quad quackery. Larry Willis Retired and proud of it Begin forwarded message: > From: greg > Date: October 3, 2015 at 3:31:38 PM EDT > To: Larry Willis > Subject: Re: Fwd: [QUAD-L] Getting Old, Panic, > > I often fall asleep a few times in the day, but luckily I don't need as much > sleep as I use to. > Though I am going nutz, I just don't know what to try next. My arms, mostly > the back of my forearms, wake me up just burning cold, though they are warm. > Yet the first thing I do when I get up is go sit in the sun. It relaxes my > muscles and helps stop my shaking. > > Why does warmth from blanket cause cold shaking, but warmth from sun feel > great. > > I'm going to try a sun / heat lamp in bed. Maybe that might help > I hope. > > Thx, Greg > >> Greg, that sounds like a nightly bit of hell. How do you get any >> rest? Like I said, I have a touch of it but nothing to the extent >> that you do. God bless you, my friend. I pray that you find relief >> and comfort and sweet gentle sleep. Larry >> >> Larry WillisRetired and proud of it >> >> >> Begin forwarded message: >> >> >>> Resent-From: quad-list@eskimo.com >>> From: greg >>> Date: October 2, 2015 at 4:24:23 PM EDT >>> To: >>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic >>> >>> >>> I probably wake up 3-4 times a night, shaking cold (most of the >>> time I'm warm though) sometimes I can't get back to sleep for >>> hours. I maybe go all night not waking up shaking 3 nights a >>> month. I've tried meds, changing position, a drink before bed, >>> head raised, lowered, heavier blankets, lighter blankets, just a >>> sheet, etc. >>> >>> I say I'm overheated but really I'm just toasty warm. I can feel >>> warm hands on my face, but temp is normal. It's only in bed, with >>> a blanket. My arms feel like they are bruised and in ice water. >>> During the day they kind of feel that way, but not so bad I shake >>> uncontrollably. Once I get up, I stop shaking in about 10 >>> minutes. Though my arms always feel like ice water. >>> >>> I was in the hospital about 8 months ago or so, and it did it in >>> their bed too. So it's not my mattress. >>> >>> Thx, Greg >>> >>> Greg, I have almost that same problem about once a week. I will wake up very uncomfortable but I can't tell if I am hot or cold. My hands are always like icicles regardless. And I have the shivers, something my father used to doand he was able-bodied. Our body thermostats are screwed up. I get overheated, think I am cold, pile on more covers and get even hotter. Sucks to the high heavens. Hate it. Larry WillisRetired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > > From: greg > > Date: September 30, 2015 at 8:30:46 PM EDT > > To: > > Subject: Re: Fwd: [QUAD-L] Getting Old, Panic > > I went 20 years before I had my first panic attack. I've only > had > > a few what I would call panic attacks. Where I just had to > get up > > in the middle of the night. The few bad ones I notice I got > > really overheated and could not get the blanket off. When I'm > > really hot, I just don't feel like I'm getting enough air. If > I > > lay to flat I can't breath as good either. I have the bed > remote, > > but it has fallen a few times. > > > I more often get this obsessive worrying. Then that leads to > > worrying I'm going to have an attack if I lay down. Only once > it > > was bad enough I stayed up all night in my chair. Then I feel > bad > > I gave in to it. > > > I have bed, fan, tv, remotes now. I have them all tied onto > the > > bed remote. Unfortunately to use one I have to uncover my arm > and > > often can't get it covered back up. Luckily, most of the tv is > > voice controlled. I still need to get control of my lights. I > had > > it on my Sicare, but the switch receiver burned/shorted out. > > > My biggest issue at night is for some reason just getting > pretty > > warm, not even overheated, just enough to feel warm hands. My > > arms start feeling like they are frozen. I feel so cold I > start > > uncontrollably shaking. I uncover my arms and it gets better, > but > > just until I get for real cold. I only shake that bad when my >
Fwd: [QUAD-L] Getting Old, Panic
I may be slinging manure, but under cover your body absorbs its own heat and builds up heat like a greenhouse. The sun/air allow the heat to warm the skin then dissipate., that discourages overheating. I could be wrong though! Larry Willis Retired and proud of it Begin forwarded message: > From: greg > Date: October 3, 2015 at 3:31:38 PM EDT > To: Larry Willis > Subject: Re: Fwd: [QUAD-L] Getting Old, Panic > > I often fall asleep a few times in the day, but luckily I don't need as much > sleep as I use to. > Though I am going nutz, I just don't know what to try next. My arms, mostly > the back of my forearms, wake me up just burning cold, though they are warm. > Yet the first thing I do when I get up is go sit in the sun. It relaxes my > muscles and helps stop my shaking. > > Why does warmth from blanket cause cold shaking, but warmth from sun feel > great. > > I'm going to try a sun / heat lamp in bed. Maybe that might help > I hope. > > Thx, Greg > >> Greg, that sounds like a nightly bit of hell. How do you get any >> rest? Like I said, I have a touch of it but nothing to the extent >> that you do. God bless you, my friend. I pray that you find relief >> and comfort and sweet gentle sleep. Larry >> >> Larry WillisRetired and proud of it >> >> >> Begin forwarded message: >> >> >>> Resent-From: quad-list@eskimo.com >>> From: greg >>> Date: October 2, 2015 at 4:24:23 PM EDT >>> To: >>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic >>> >>> >>> I probably wake up 3-4 times a night, shaking cold (most of the >>> time I'm warm though) sometimes I can't get back to sleep for >>> hours. I maybe go all night not waking up shaking 3 nights a >>> month. I've tried meds, changing position, a drink before bed, >>> head raised, lowered, heavier blankets, lighter blankets, just a >>> sheet, etc. >>> >>> I say I'm overheated but really I'm just toasty warm. I can feel >>> warm hands on my face, but temp is normal. It's only in bed, with >>> a blanket. My arms feel like they are bruised and in ice water. >>> During the day they kind of feel that way, but not so bad I shake >>> uncontrollably. Once I get up, I stop shaking in about 10 >>> minutes. Though my arms always feel like ice water. >>> >>> I was in the hospital about 8 months ago or so, and it did it in >>> their bed too. So it's not my mattress. >>> >>> Thx, Greg >>> >>> Greg, I have almost that same problem about once a week. I will wake up very uncomfortable but I can't tell if I am hot or cold. My hands are always like icicles regardless. And I have the shivers, something my father used to doand he was able-bodied. Our body thermostats are screwed up. I get overheated, think I am cold, pile on more covers and get even hotter. Sucks to the high heavens. Hate it. Larry WillisRetired and proud of it Begin forwarded message: > Resent-From: quad-list@eskimo.com > > From: greg > > Date: September 30, 2015 at 8:30:46 PM EDT > > To: > > Subject: Re: Fwd: [QUAD-L] Getting Old, Panic > > I went 20 years before I had my first panic attack. I've only > had > > a few what I would call panic attacks. Where I just had to > get up > > in the middle of the night. The few bad ones I notice I got > > really overheated and could not get the blanket off. When I'm > > really hot, I just don't feel like I'm getting enough air. If > I > > lay to flat I can't breath as good either. I have the bed > remote, > > but it has fallen a few times. > > > I more often get this obsessive worrying. Then that leads to > > worrying I'm going to have an attack if I lay down. Only once > it > > was bad enough I stayed up all night in my chair. Then I feel > bad > > I gave in to it. > > > I have bed, fan, tv, remotes now. I have them all tied onto > the > > bed remote. Unfortunately to use one I have to uncover my arm > and > > often can't get it covered back up. Luckily, most of the tv is > > voice controlled. I still need to get control of my lights. I > had > > it on my Sicare, but the switch receiver burned/shorted out. > > > My biggest issue at night is for some reason just getting > pretty > > warm, not even overheated, just enough to feel warm hands. My > > arms start feeling like they are frozen. I feel so cold I > start > > uncontrollably shaking. I uncover my arms and it gets better, > but > > just until I get for real cold. I only shake that bad when my > > arms get warm from blank