I think I have already shared this, but my hands are like chunks of ice beginning at the wrist. Don't know what triggers it, when, or why. I hold them in front of a heater and they gradually warm up. More manure on the marvelous mountain of quad quackery. Larry Willis Retired and proud of it
Begin forwarded message: > From: greg <g...@eskimo.com> > Date: October 3, 2015 at 3:31:38 PM EDT > To: Larry Willis <lwillis82...@gmail.com> > Subject: Re: Fwd: [QUAD-L] Getting Old, Panic, > > I often fall asleep a few times in the day, but luckily I don't need as much > sleep as I use to. > Though I am going nutz, I just don't know what to try next. My arms, mostly > the back of my forearms, wake me up just burning cold, though they are warm. > Yet the first thing I do when I get up is go sit in the sun. It relaxes my > muscles and helps stop my shaking. > > Why does warmth from blanket cause cold shaking, but warmth from sun feel > great. > > I'm going to try a sun / heat lamp in bed. Maybe that might help > I hope. > > Thx, Greg > >> Greg, that sounds like a nightly bit of hell. How do you get any >> rest? Like I said, I have a touch of it but nothing to the extent >> that you do. God bless you, my friend. I pray that you find relief >> and comfort and sweet gentle sleep. Larry >> >> Larry WillisRetired and proud of it >> >> >> Begin forwarded message: >> >> >>> Resent-From: quad-list@eskimo.com >>> From: greg <g...@eskimo.com> >>> Date: October 2, 2015 at 4:24:23 PM EDT >>> To: <quad-list@eskimo.com> >>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic >>> >>> >>> I probably wake up 3-4 times a night, shaking cold (most of the >>> time I'm warm though) sometimes I can't get back to sleep for >>> hours. I maybe go all night not waking up shaking 3 nights a >>> month. I've tried meds, changing position, a drink before bed, >>> head raised, lowered, heavier blankets, lighter blankets, just a >>> sheet, etc. >>> >>> I say I'm overheated but really I'm just toasty warm. I can feel >>> warm hands on my face, but temp is normal. It's only in bed, with >>> a blanket. My arms feel like they are bruised and in ice water. >>> During the day they kind of feel that way, but not so bad I shake >>> uncontrollably. Once I get up, I stop shaking in about 10 >>> minutes. Though my arms always feel like ice water. >>> >>> I was in the hospital about 8 months ago or so, and it did it in >>> their bed too. So it's not my mattress. >>> >>> Thx, Greg >>> >>> >>>> Greg, I have almost that same problem about once a week. I will >>>> >>>> wake up very uncomfortable but I can't tell if I am hot or >>>> cold. My >>>> >>>> hands are always like icicles regardless. And I have the >>>> shivers, >>>> >>>> something my father used to do....and he was able-bodied. Our >>>> body >>>> >>>> thermostats are screwed up. I get overheated, think I am cold, >>>> pile >>>> >>>> on more covers and get even hotter. Sucks to the high heavens. >>>> Hate >>>> >>>> it. >>>> >>>> >>>> Larry WillisRetired and proud of it >>>> >>>> >>>> Begin forwarded message: >>>> >>>> >>>>> Resent-From: quad-list@eskimo.com >>>>> >>>> >>>>> From: greg <g...@eskimo.com> >>>>> >>>> >>>>> Date: September 30, 2015 at 8:30:46 PM EDT >>>>> >>>> >>>>> To: <quad-list@eskimo.com> >>>>> >>>> >>>>> Subject: Re: Fwd: [QUAD-L] Getting Old, Panic >>>>> >>>> >>>>> I went 20 years before I had my first panic attack. I've only >>>>> had >>>>> >>>> >>>>> a few what I would call panic attacks. Where I just had to >>>>> get up >>>>> >>>> >>>>> in the middle of the night. The few bad ones I notice I got >>>>> >>>> >>>>> really overheated and could not get the blanket off. When I'm >>>>> >>>> >>>>> really hot, I just don't feel like I'm getting enough air. If >>>>> I >>>>> >>>> >>>>> lay to flat I can't breath as good either. I have the bed >>>>> remote, >>>>> >>>> >>>>> but it has fallen a few times. >>>>> >>>>> >>>>> I more often get this obsessive worrying. Then that leads to >>>>> >>>> >>>>> worrying I'm going to have an attack if I lay down. Only once >>>>> it >>>>> >>>> >>>>> was bad enough I stayed up all night in my chair. Then I feel >>>>> bad >>>>> >>>> >>>>> I gave in to it. >>>>> >>>>> >>>>> I have bed, fan, tv, remotes now. I have them all tied onto >>>>> the >>>>> >>>> >>>>> bed remote. Unfortunately to use one I have to uncover my arm >>>>> and >>>>> >>>> >>>>> often can't get it covered back up. Luckily, most of the tv is >>>>> >>>> >>>>> voice controlled. I still need to get control of my lights. I >>>>> had >>>>> >>>> >>>>> it on my Sicare, but the switch receiver burned/shorted out. >>>>> >>>>> >>>>> My biggest issue at night is for some reason just getting >>>>> pretty >>>>> >>>> >>>>> warm, not even overheated, just enough to feel warm hands. My >>>>> >>>> >>>>> arms start feeling like they are frozen. I feel so cold I >>>>> start >>>>> >>>> >>>>> uncontrollably shaking. I uncover my arms and it gets better, >>>>> but >>>>> >>>> >>>>> just until I get for real cold. I only shake that bad when my >>>>> >>>> >>>>> arms get warm from blankets, temp normal, or my temp drops to >>>>> >>>> >>>>> 95.5 or lower. >>>>> >>>>> >>>>> I don't think it's Dysreflexia, that usually drops my temp. No >>>>> >>>> >>>>> other way of getting warm causes this. Once I start shaking >>>>> that >>>>> >>>> >>>>> bad I start feeling like I NEED to get up. >>>>> >>>>> >>>>> Greg
