Re: [QUAD-L] Autonomic Dysreflexia and pain
I just thought of a problem that I have from time to time. Check for wrinkles under you. After several hours they can feel like knives. Best wishes john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Quadius Date:12/05/2014 6:28 PM (GMT-05:00) To: Don Price Cc: Larry Willis ,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain If you're having lactose intolerance you can try multiple things to ameliorate the situation. Lactase, avoiding dairy, using substitutes. Me I have more of a dairy allergy most of the time. On Thursday, December 4, 2014, Don Price wrote: Sounds like you might have some food allergies. Remember that allergies CAN develop over time, so just because you've never been lactose intolerant doesn't mean that hasn't changed. The one you hear about now is gluten sensitivity, but there are many foods that could be causing you to have reactions. Excessive gas in the stomach or intestines could easily cause A.D., as well as inflame your digestive tract. It might be worth seeing and allergist, or at least trying a change in diet to see what happens. For example, no dairy products for two weeks. Other common allergens include: eggs, nuts, shellfish, soy and wheat products. Carbonated beverages can cause gas too. Good luck. I hope you guys can figure it out! Don. From: Larry Willis To: "quad-list@eskimo.com" Sent: Thursday, December 4, 2014 9:24 AM Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain Empty bowels always makes me feel better. Sometimes I wish I could get by without eating anything at all. But, alas, hunger pangs interfere. I eat, become bloated and painful, and the whole thing starts over again. Bummer. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: jume9...@comcast.net Date: November 24, 2014 at 5:25:01 PM EST To: alcibiates2 , quad-list Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain You are correct and I do that. Also, i have noticed that when you have a thorough bowel movement it helps the medicine work better...weird I know, but true for me. Anyone else notice that? From: "alcibiates2" To: jume9...@comcast.net, "quad-list" Sent: Monday, November 24, 2014 1:21:23 PM Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I think that the first thing everyone needs to know about most pain drugs is that you must continually break the forming addiction. Staying on one drug will cause it to lose its effectiveness.at that point you are taking the drug and its not doing anything but feeding an addiction. No one in pain wants to hear this but the fact is you must find another drug or device while you detox. The drug needs to come from another family of drugs. Altering your medications and using milder drugs whatever the pain isn't quite as bad can help extend the use of Norco or vicodin. Don't get me wrong, I'm totally sympathetic I've been on the trip myself. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: jume9...@comcast.net Date:11/24/2014 3:40 PM (GMT-05:00) To: quad-list Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I have the same thing with pinched nerves from my disc. Also, when I first broke my neck My hip on one side got inflamed with calcium deposits (hetertopicosification) witch has left me crooked. The last few years my whole other side has deterorated and so Norco has stopped working very well. What is the next step up in pain management.? They won't operate. Meredith From: "alcibiates2" To: "Danny Hearn" , "quad-list" Sent: Monday, November 24, 2014 5:57:02 AM Subject: Re: [QUAD-L] Autonomic Dysreflexia I was told it was disintegrating disc disease. There's no cure for it. It causes nerves to be pinched as well as making it impossible to position comfortably. Spending long times sitting in the chair is really painful.I'm to the point now where I get out of bed for a couple hours each day. Best wishes. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/24/2014 5:44 AM (GMT-05:00) To: alcibiates2 ,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia John, I read that many quads develope disc problems in their backs, did they do anything for yours or do you just get by as best you can with that?? thanks, Dan** On Sunday, November 23, 2014 6:55 PM, alcibiates2 wrote: Dan, I've had some fractures that were almost undetectable but really sent my bp up and pulse way down. Just the weight of my foot separated my tibia at the mantle below the knee. Chalky bones and deterioration of spinal disc's have played hell with me. Try sitting straight up and take something for pain. Don't recline until your pulse returns to
Re: [QUAD-L] Autonomic Dysreflexia and pain
If you're having lactose intolerance you can try multiple things to ameliorate the situation. Lactase, avoiding dairy, using substitutes. Me I have more of a dairy allergy most of the time. On Thursday, December 4, 2014, Don Price wrote: > Sounds like you might have some food allergies. Remember that allergies > CAN develop over time, so just because you've never been lactose intolerant > doesn't mean that hasn't changed. The one you hear about now is gluten > sensitivity, but there are many foods that could be causing you to have > reactions. Excessive gas in the stomach or intestines could easily cause > A.D., as well as inflame your digestive tract. It might be worth seeing and > allergist, or at least trying a change in diet to see what happens. For > example, no dairy products for two weeks. Other common allergens include: > eggs, nuts, shellfish, soy and wheat products. Carbonated beverages can > cause gas too. > > Good luck. I hope you guys can figure it out! > > Don. > > -- > *From:* Larry Willis > > *To:* "quad-list@eskimo.com > " < > quad-list@eskimo.com > > > *Sent:* Thursday, December 4, 2014 9:24 AM > *Subject:* Fwd: [QUAD-L] Autonomic Dysreflexia and pain > > Empty bowels always makes me feel better. Sometimes I wish I could get by > without eating anything at all. But, alas, hunger pangs interfere. I eat, > become bloated and painful, and the whole thing starts over again. Bummer. > > Sent from my iPad > > Begin forwarded message: > > *Resent-From:* quad-list@eskimo.com > > *From:* jume9...@comcast.net > > *Date:* November 24, 2014 at 5:25:01 PM EST > *To:* alcibiates2 >, quad-list < > quad-list@eskimo.com > > > *Subject:* *Re: [QUAD-L] Autonomic Dysreflexia and pain* > > > > You are correct and I do that. Also, i have noticed that when you have a > thorough bowel movement it helps the medicine work better...weird I know, > but true for me. Anyone else notice that? > > ---------- > *From: *"alcibiates2" > > *To: *jume9...@comcast.net > , "quad-list" < > quad-list@eskimo.com > > > *Sent: *Monday, November 24, 2014 1:21:23 PM > *Subject: *Re: [QUAD-L] Autonomic Dysreflexia and pain > > I think that the first thing everyone needs to know about most pain drugs > is that you must continually break the forming addiction. Staying on one > drug will cause it to lose its effectiveness.at that point you are taking > the drug and its not doing anything but feeding an addiction. No one in > pain wants to hear this but the fact is you must find another drug or > device while you detox. > The drug needs to come from another family of drugs. Altering your > medications and using milder drugs whatever the pain isn't quite as bad can > help extend the use of Norco or vicodin. > Don't get me wrong, I'm totally sympathetic I've been on the trip > myself. > john s > > > Sent from my Verizon Wireless 4G LTE smartphone > > > Original message > From: jume9...@comcast.net > > Date:11/24/2014 3:40 PM (GMT-05:00) > To: quad-list > Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain > > I have the same thing with pinched nerves from my disc. Also, when I first > broke my neck My hip on one side got inflamed with calcium deposits > (hetertopicosification) witch has left me crooked. The last few years my > whole other side has deterorated and so Norco has stopped working very > well. What is the next step up in pain management.? They won't operate. > > Meredith > -- > *From: *"alcibiates2" > > *To: *"Danny Hearn" >, "quad-list" < > quad-list@eskimo.com > > > *Sent: *Monday, November 24, 2014 5:57:02 AM > *Subject: *Re: [QUAD-L] Autonomic Dysreflexia > > I was told it was disintegrating disc disease. There's no cure for it. It > causes nerves to be pinched as well as making it impossible to position > comfortably. Spending long times sitting in the chair is really painful.I'm > to the point now where I get out of bed for a couple hours each day. > Best wishes. > john s > > > Sent from my Verizon Wireless 4G LTE smartphone > > > Original message > From: Danny Hearn > Date:11/24/2014 5:44 AM (GMT-05:00) > To: alcibiates2 ,quad-list@eskimo.com > > Subject: Re: [QUAD-L] Autonomic Dysreflexia > > John, I read that many quads develope disc problems in their backs, did > they do anything for yours or do you just get by as best you can with > that?? thanks, Dan** > > > On Sunday, November 2
Re: [QUAD-L] Autonomic Dysreflexia and pain
Bob, thanks for all of those great articles. Best Wishes In a message dated 12/4/2014 12:07:38 P.M. Central Standard Time, rhvsh...@mac.com writes: I agree with Don, food allergies CAN develop over time and at any age. I developed celiac disease at age 50 (bummer!). I *think* folks with SCI are more susceptible to developing food allergies because we get hit with so many bugs that require antibiotics, which mess up the good bacteria in our gut. In some people a good probiotic taken daily can help. Here is a New Mobility article I wrote about Celiac Disease and Non-Gluten Sensitivity http://www.newmobility.com/2013/05/paramedic-gluten-sensitivity-celiac-disea se-and-sci/ Bob V On Dec 4, 2014, at 9:00 AM, Don Price wrote: Sounds like you might have some food allergies. Remember that allergies CAN develop over time, so just because you've never been lactose intolerant doesn't mean that hasn't changed. The one you hear about now is gluten sensitivity, but there are many foods that could be causing you to have reactions. Excessive gas in the stomach or intestines could easily cause A.D., as well as inflame your digestive tract. It might be worth seeing and allergist, or at least trying a change in diet to see what happens. For example, no dairy products for two weeks. Other common allergens include: eggs, nuts, shellfish, soy and wheat products. Carbonated beverages can cause gas too. Good luck. I hope you guys can figure it out! Don. From: Larry Willis <_lwillis82153@gmail.com_ (mailto:lwillis82...@gmail.com) > To: "_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) " <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > Sent: Thursday, December 4, 2014 9:24 AM Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain Empty bowels always makes me feel better. Sometimes I wish I could get by without eating anything at all. But, alas, hunger pangs interfere. I eat, become bloated and painful, and the whole thing starts over again. Bummer. Sent from my iPad Begin forwarded message: Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) From: _jume@comcast.net_ (mailto:jume9...@comcast.net) Date: November 24, 2014 at 5:25:01 PM EST To: alcibiates2 <_alcibiates2@yahoo.com_ (mailto:alcibiat...@yahoo.com) >, quad-list <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain You are correct and I do that. Also, i have noticed that when you have a thorough bowel movement it helps the medicine work better...weird I know, but true for me. Anyone else notice that? From: "alcibiates2" <_alcibiates2@yahoo.com_ (mailto:alcibiat...@yahoo.com) > To: _jume@comcast.net_ (mailto:jume9...@comcast.net) , "quad-list" <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > Sent: Monday, November 24, 2014 1:21:23 PM Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I think that the first thing everyone needs to know about most pain drugs is that you must continually break the forming addiction. Staying on one drug will cause it to lose its _effectiveness.at_ (http://effectiveness.at/) that point you are taking the drug and its not doing anything but feeding an addiction. No one in pain wants to hear this but the fact is you must find another drug or device while you detox. The drug needs to come from another family of drugs. Altering your medications and using milder drugs whatever the pain isn't quite as bad can help extend the use of Norco or vicodin. Don't get me wrong, I'm totally sympathetic I've been on the trip myself. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: _jume@comcast.net_ (mailto:jume9...@comcast.net) Date:11/24/2014 3:40 PM (GMT-05:00) To: quad-list Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I have the same thing with pinched nerves from my disc. Also, when I first broke my neck My hip on one side got inflamed with calcium deposits (hetertopicosification) witch has left me crooked. The last few years my whole other side has deterorated and so Norco has stopped working very well. What is the next step up in pain management.? They won't operate. Meredith From: "alcibiates2" <_alcibiates2@yahoo.com_ (mailto:alcibiat...@yahoo.com) > To: "Danny Hearn" <_ddh247@sbcglobal.net_ (mailto:ddh...@sbcglobal.net) >, "quad-list" <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) > Sent: Monday, November 24, 2014 5:57:02 AM Subject: Re: [QUAD-L] Autonomic Dysreflexia I was told it was disintegrating disc disease. There's no cure for it. It cause
Re: [QUAD-L] Autonomic Dysreflexia and pain
I agree with Don, food allergies CAN develop over time and at any age. I developed celiac disease at age 50 (bummer!). I *think* folks with SCI are more susceptible to developing food allergies because we get hit with so many bugs that require antibiotics, which mess up the good bacteria in our gut. In some people a good probiotic taken daily can help. Here is a New Mobility article I wrote about Celiac Disease and Non-Gluten Sensitivity http://www.newmobility.com/2013/05/paramedic-gluten-sensitivity-celiac-disease-and-sci/ Bob V On Dec 4, 2014, at 9:00 AM, Don Price wrote: > Sounds like you might have some food allergies. Remember that allergies CAN > develop over time, so just because you've never been lactose intolerant > doesn't mean that hasn't changed. The one you hear about now is gluten > sensitivity, but there are many foods that could be causing you to have > reactions. Excessive gas in the stomach or intestines could easily cause > A.D., as well as inflame your digestive tract. It might be worth seeing and > allergist, or at least trying a change in diet to see what happens. For > example, no dairy products for two weeks. Other common allergens include: > eggs, nuts, shellfish, soy and wheat products. Carbonated beverages can cause > gas too. > > Good luck. I hope you guys can figure it out! > > Don. > > From: Larry Willis > To: "quad-list@eskimo.com" > Sent: Thursday, December 4, 2014 9:24 AM > Subject: Fwd: [QUAD-L] Autonomic Dysreflexia and pain > > Empty bowels always makes me feel better. Sometimes I wish I could get by > without eating anything at all. But, alas, hunger pangs interfere. I eat, > become bloated and painful, and the whole thing starts over again. Bummer. > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: quad-list@eskimo.com >> From: jume9...@comcast.net >> Date: November 24, 2014 at 5:25:01 PM EST >> To: alcibiates2 , quad-list >> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >> > > >> You are correct and I do that. Also, i have noticed that when you have a >> thorough bowel movement it helps the medicine work better...weird I know, >> but true for me. Anyone else notice that? >> >> From: "alcibiates2" >> To: jume9...@comcast.net, "quad-list" >> Sent: Monday, November 24, 2014 1:21:23 PM >> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >> >> I think that the first thing everyone needs to know about most pain drugs is >> that you must continually break the forming addiction. Staying on one drug >> will cause it to lose its effectiveness.at that point you are taking the >> drug and its not doing anything but feeding an addiction. No one in pain >> wants to hear this but the fact is you must find another drug or device >> while you detox. >> The drug needs to come from another family of drugs. Altering your >> medications and using milder drugs whatever the pain isn't quite as bad can >> help extend the use of Norco or vicodin. >> Don't get me wrong, I'm totally sympathetic I've been on the trip myself. >> john s >> >> >> Sent from my Verizon Wireless 4G LTE smartphone >> >> >> Original message >> From: jume9...@comcast.net >> Date:11/24/2014 3:40 PM (GMT-05:00) >> To: quad-list >> Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain >> >> I have the same thing with pinched nerves from my disc. Also, when I first >> broke my neck My hip on one side got inflamed with calcium deposits >> (hetertopicosification) witch has left me crooked. The last few years my >> whole other side has deterorated and so Norco has stopped working very well. >> What is the next step up in pain management.? They won't operate. >> >> Meredith >> From: "alcibiates2" >> To: "Danny Hearn" , "quad-list" >> Sent: Monday, November 24, 2014 5:57:02 AM >> Subject: Re: [QUAD-L] Autonomic Dysreflexia >> >> I was told it was disintegrating disc disease. There's no cure for it. It >> causes nerves to be pinched as well as making it impossible to position >> comfortably. Spending long times sitting in the chair is really painful.I'm >> to the point now where I get out of bed for a couple hours each day. >> Best wishes. >> john s >> >> >> Sent from my Verizon Wireless 4G LTE smartphone >> >> >> Original message >> From: Danny Hearn >> Date:11/24/2014 5:44 AM (GMT-05:00) >> To: alcibiates2 ,
Re: [QUAD-L] Autonomic Dysreflexia and pain
You are correct and I do that. Also, i have noticed that when you have a thorough bowel movement it helps the medicine work better...weird I know, but true for me. Anyone else notice that? - Original Message - From: "alcibiates2" To: jume9...@comcast.net, "quad-list" Sent: Monday, November 24, 2014 1:21:23 PM Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I think that the first thing everyone needs to know about most pain drugs is that you must continually break the forming addiction. Staying on one drug will cause it to lose its effectiveness.at that point you are taking the drug and its not doing anything but feeding an addiction. No one in pain wants to hear this but the fact is you must find another drug or device while you detox. The drug needs to come from another family of drugs. Altering your medications and using milder drugs whatever the pain isn't quite as bad can help extend the use of Norco or vicodin. Don't get me wrong, I'm totally sympathetic I've been on the trip myself. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: jume9...@comcast.net Date:11/24/2014 3:40 PM (GMT-05:00) To: quad-list Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I have the same thing with pinched nerves from my disc. Also, when I first broke my neck My hip on one side got inflamed with calcium deposits (hetertopicosification) witch has left me crooked. The last few years my whole other side has deterorated and so Norco has stopped working very well. What is the next step up in pain management.? They won't operate. Meredith - Original Message - From: "alcibiates2" To: "Danny Hearn" , "quad-list" Sent: Monday, November 24, 2014 5:57:02 AM Subject: Re: [QUAD-L] Autonomic Dysreflexia I was told it was disintegrating disc disease. There's no cure for it. It causes nerves to be pinched as well as making it impossible to position comfortably. Spending long times sitting in the chair is really painful.I'm to the point now where I get out of bed for a couple hours each day. Best wishes. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/24/2014 5:44 AM (GMT-05:00) To: alcibiates2 ,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia John, I read that many quads develope disc problems in their backs, did they do anything for yours or do you just get by as best you can with that?? thanks, Dan** On Sunday, November 23, 2014 6:55 PM, alcibiates2 wrote: Dan, I've had some fractures that were almost undetectable but really sent my bp up and pulse way down. Just the weight of my foot separated my tibia at the mantle below the knee. Chalky bones and deterioration of spinal disc's have played hell with me. Try sitting straight up and take something for pain. Don't recline until your pulse returns to your normal never be afraid to 911 yourself to an er. Tip:take a copy of a medical definition of AD with you along with your med list. I swear they can be pig ignorant of what is going on and what to do. Help has gotten ambivalent in Cincinnati. Best Wishes, John s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/23/2014 4:42 AM (GMT-05:00) To: quad-list@eskimo.com Subject: [QUAD-L] Autonomic Dysreflexia Man, I hate having dysreflexia and unable to find the cause, I have been having it on and off for about 3 days and have had almost no sleep for the last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. that we can find. When I try to lay down at night after a while I get real hot and clammy, my heart begins to pound and act up. I do have a syrinx and bad neck and back pain but not sure if that can be the problem. I guess Monday I'll try to call my primary doctor and get checkup and bloodwork for a start, This stuff is depressing and drives my wife crazy making her lose sleep also, plus she is a caregiver to an elderly woman with alzheimers 4 days a week. This Quad related stuff can be so challenging at times ! Well I guess i'm done venting...it's about 3:45 am. Hope To get better before long. Dan H***
Re: [QUAD-L] Autonomic Dysreflexia and pain
I think that the first thing everyone needs to know about most pain drugs is that you must continually break the forming addiction. Staying on one drug will cause it to lose its effectiveness.at that point you are taking the drug and its not doing anything but feeding an addiction. No one in pain wants to hear this but the fact is you must find another drug or device while you detox. The drug needs to come from another family of drugs. Altering your medications and using milder drugs whatever the pain isn't quite as bad can help extend the use of Norco or vicodin. Don't get me wrong, I'm totally sympathetic I've been on the trip myself. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: jume9...@comcast.net Date:11/24/2014 3:40 PM (GMT-05:00) To: quad-list Subject: Re: [QUAD-L] Autonomic Dysreflexia and pain I have the same thing with pinched nerves from my disc. Also, when I first broke my neck My hip on one side got inflamed with calcium deposits (hetertopicosification) witch has left me crooked. The last few years my whole other side has deterorated and so Norco has stopped working very well. What is the next step up in pain management.? They won't operate. Meredith From: "alcibiates2" To: "Danny Hearn" , "quad-list" Sent: Monday, November 24, 2014 5:57:02 AM Subject: Re: [QUAD-L] Autonomic Dysreflexia I was told it was disintegrating disc disease. There's no cure for it. It causes nerves to be pinched as well as making it impossible to position comfortably. Spending long times sitting in the chair is really painful.I'm to the point now where I get out of bed for a couple hours each day. Best wishes. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/24/2014 5:44 AM (GMT-05:00) To: alcibiates2 ,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia John, I read that many quads develope disc problems in their backs, did they do anything for yours or do you just get by as best you can with that?? thanks, Dan** On Sunday, November 23, 2014 6:55 PM, alcibiates2 wrote: Dan, I've had some fractures that were almost undetectable but really sent my bp up and pulse way down. Just the weight of my foot separated my tibia at the mantle below the knee. Chalky bones and deterioration of spinal disc's have played hell with me. Try sitting straight up and take something for pain. Don't recline until your pulse returns to your normal never be afraid to 911 yourself to an er. Tip:take a copy of a medical definition of AD with you along with your med list. I swear they can be pig ignorant of what is going on and what to do. Help has gotten ambivalent in Cincinnati. Best Wishes, John s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/23/2014 4:42 AM (GMT-05:00) To: quad-list@eskimo.com Subject: [QUAD-L] Autonomic Dysreflexia Man, I hate having dysreflexia and unable to find the cause, I have been having it on and off for about 3 days and have had almost no sleep for the last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. that we can find. When I try to lay down at night after a while I get real hot and clammy, my heart begins to pound and act up. I do have a syrinx and bad neck and back pain but not sure if that can be the problem. I guess Monday I'll try to call my primary doctor and get checkup and bloodwork for a start, This stuff is depressing and drives my wife crazy making her lose sleep also, plus she is a caregiver to an elderly woman with alzheimers 4 days a week. This Quad related stuff can be so challenging at times ! Well I guess i'm done venting...it's about 3:45 am. Hope To get better before long. Dan H***
Re: [QUAD-L] Autonomic Dysreflexia and pain
I have the same thing with pinched nerves from my disc. Also, when I first broke my neck My hip on one side got inflamed with calcium deposits (hetertopicosification) witch has left me crooked. The last few years my whole other side has deterorated and so Norco has stopped working very well. What is the next step up in pain management.? They won't operate. Meredith - Original Message - From: "alcibiates2" To: "Danny Hearn" , "quad-list" Sent: Monday, November 24, 2014 5:57:02 AM Subject: Re: [QUAD-L] Autonomic Dysreflexia I was told it was disintegrating disc disease. There's no cure for it. It causes nerves to be pinched as well as making it impossible to position comfortably. Spending long times sitting in the chair is really painful.I'm to the point now where I get out of bed for a couple hours each day. Best wishes. john s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/24/2014 5:44 AM (GMT-05:00) To: alcibiates2 ,quad-list@eskimo.com Subject: Re: [QUAD-L] Autonomic Dysreflexia John, I read that many quads develope disc problems in their backs, did they do anything for yours or do you just get by as best you can with that?? thanks, Dan** On Sunday, November 23, 2014 6:55 PM, alcibiates2 wrote: Dan, I've had some fractures that were almost undetectable but really sent my bp up and pulse way down. Just the weight of my foot separated my tibia at the mantle below the knee. Chalky bones and deterioration of spinal disc's have played hell with me. Try sitting straight up and take something for pain. Don't recline until your pulse returns to your normal never be afraid to 911 yourself to an er. Tip:take a copy of a medical definition of AD with you along with your med list. I swear they can be pig ignorant of what is going on and what to do. Help has gotten ambivalent in Cincinnati. Best Wishes, John s Sent from my Verizon Wireless 4G LTE smartphone Original message From: Danny Hearn Date:11/23/2014 4:42 AM (GMT-05:00) To: quad-list@eskimo.com Subject: [QUAD-L] Autonomic Dysreflexia Man, I hate having dysreflexia and unable to find the cause, I have been having it on and off for about 3 days and have had almost no sleep for the last 2 days. Bladder and bowels all seem fine-no pressure sores or etc. that we can find. When I try to lay down at night after a while I get real hot and clammy, my heart begins to pound and act up. I do have a syrinx and bad neck and back pain but not sure if that can be the problem. I guess Monday I'll try to call my primary doctor and get checkup and bloodwork for a start, This stuff is depressing and drives my wife crazy making her lose sleep also, plus she is a caregiver to an elderly woman with alzheimers 4 days a week. This Quad related stuff can be so challenging at times ! Well I guess i'm done venting...it's about 3:45 am. Hope To get better before long. Dan H***
