Re: [AI] RP hopelessness
. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I have? 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it's time for darkness, hmmm, no I don't know how to describe that but it's more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction. Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- LL.M candidate at Faculty of Law in University of Delhi Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- Best Regards, Zujar... An optimist laughs to forget, whereas a pessimist forgets to laugh! Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- vivek, Ph.919868954833, New Delhi Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in
Re: [AI] RP hopelessness
. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1.Can I anyhow retain what little I have? 2.If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it's time for darkness, hmmm, no I don't know how to describe that but it's more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction. Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- LL.M candidate at Faculty of Law in University of Delhi Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- Best Regards, Zujar... An optimist laughs to forget, whereas a pessimist forgets to laugh! Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- vivek, Ph.919868954833, New Delhi Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http
Re: [AI] RP hopelessness
I dont think we would be doing whatever we are if we were not blind! Learn to turn everything you have into your strength and dont waste time and energy just thinking of things others have! If you can transform everything you have into your strength, you will be pleasantly shocked as to what you can already do and are not doing... Cheer up everyone... and spread it around every moment and everywhere! Preeti Preeti Monga Director Silver Linings HR Solutions Pvt. Ltd. Mobile: +91 9871701646 Landline: 011 22781446 E-mail: preeti.mo...@silver-linings.co.in Website: www.silver-linings.co.in -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Mohit Shah Shah Sent: Sunday, September 09, 2012 11:02 PM To: accessindia@accessindia.org.in Subject: Re: [AI] RP hopelessness Hi Ekinath bro, Sorry for my late reply -- I just saw this post after talking to you. You have always been a source of inspiration for me even though you may not know it. One can find many successful blind people, but it's very hard to find cheerful blind people. This may sound a bit absurd, but it is actually what I have learnt on the basis of my experiences. I have been partially blind for all the 18 years of my life so far and have very little vision. I always try to cherish the limited vision that I have even though it's not really of much use. Even today, there are uncountable occasions when I find it hard to truly accept the fact of my visual impairment. No words of wisdom can really help you much in those times. And one question which always remains in the mind of a blind person, no matter how successful he or she becomes, is Would I have been able to do more than this if I had been sighted? But the mantra that I always try to follow is this: It is our choices that make us what we truly are, far more than our abilities. I am sure you will remain just as amazing and cheerful even if you lose your remaining sight. And that is what really matters. I'd prefer being a happy blind person instead of being a sulking and universally disliked sighted person. Cheers, Rahul P.S. On another note, I would strongly suggest everyone to see Randy Pausch's last lecture video on YouTube. It is very inspiring and really helps you to put everything in life into perspective. On 8/21/12, vivekananda vivekka...@gmail.com wrote: I am suffering from Glucoma, i am having some sight whenever crossing road I use white cane though I can see vehicles from quiet far, my friends do not hasitate to use white cane. On 8/21/12, Zujar Shabbir Kanchwala zujarbri...@gmail.com wrote: Hi All, I too have experienced ssuch incidents where people doubt if I'm really challenged. And also, I'm not a very good user of the cane. Anyway what's importaant is that we accept the reality and never pretend to be normal sighted. I started using the cane when I was around 18 studying in class 12. I prefer to ask the driver about the bus # and its route, mostly I get a satisfactory answer from him and sometimes from the passengers inside. I travel by the normal first/second class coach in the railway trains coz I'm comfortable with it, not to hide my disability. One good thing is that I'm able to restrict loss of vision due to treatment since the age of 2 years, I'm 35 now. My ophthalmo has clarified that the medicines he prescribe are for retention and not for cure, I follow his instructions strictly and believe it has helped me. I understand not being able to see something that could be seen earlier is a painful experience but its really important for us to be prepared when we know that its ought to happen. Think of ways to overcome difficulties rather than cripping over something that's not under our control. Vision loss can happen with anyone, the difference for us is that we know about it in advance. Isn't this an advantage and an opportunity for us to prepare for the future? Dear friend, don't lose hope - keep your cool and you'd be able to think of the positive side of the situation. Wish you ALL THE BEST... On 8/20/12, Shona Man shonam...@gmail.com wrote: The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha
Re: [AI] RP hopelessness
Hello access Indians, I and my brother have the same problem of RP. I had a substantial vision till my graduation, till my age of 19. But there after till the age of 30 it diminished very fast. But since then for last 2 and half years it has not diminished significantly. My parents were aware of the situation so they decided to keep us in the special school. There we learned the alternative methods of studying. At the same time we enjoyed all the moment of our vision in childhood with our cousins. The only solution to the emotional problem is you must accept the reality right from your childhood. Yes even today also I have the stigma of using cane for mobility. But I am trying to come out of the stigma. Sometime this little vision creates some funny incidences. Many a times when I walk with my white cane some people observes me very closely. And a times I change my direction of walking due to the barriers on the way which I can see even before my cane hits it. So some peoples say “he is really blind or acting”. When I wait for the bus and when I ask the number “excuse me madam what is the number?” at that time the face of the person is really lookable. So rather than regretting for what we don’t have always enjoy of what we have. zoher kheriwala taheri menswear mumbai. skype id zoher.kheriwala - Original Message - From: Vamshi. G gvamsh...@gmail.com To: accessindia@accessindia.org.in Sent: Monday, August 20, 2012 8:23 PM Subject: Re: [AI] RP hopelessness Hi Ekinath, This is a person with RP who has lost substantial part of his vision in the last 10 years, and has only around 5% vision. I dare say that even born blind people can not always empathise with persons with deteriorating vision conditions. The challenges faced by these people may seem silly to born blind people. For example, asking for someone else's help is such an easy task for those who experienced blindness from childhood when compared to those who loose vision during adulthood. After all, learning cycling is easier at the age of ten than at the age of 30! Having said this, I must admit that born blind people have their own set of serious challenges. And please do not think that I'm trying to create differences amongst the community. Many born blind people on this very list have been my friends and mentors in my life. Coming to your questions, my answers are as follows: 1. Can I anyhow retain what little I have? There is no scientifically validated treatment that can arrest the deterioration. Though some treatments like ayurvedic treatment at Sridheryeem, Kerala claim to do so, the experiences of patients has not been uniform. While some have reported arrest of deterioration for some years, others haven't got any benefit. A scientific study has proved that protection of eyes from exposure to bright sunlight may slow down the deterioration to some extent. And no study has shown that intake of vitamin A can do any good in this regard. So, the answer to this question is a sorry. 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. This depends upon the kind of treatment. The bionic eye, which is a commercially available treatment option for persons with RP in some parts of west, is useful only for those who have lost significant part of their vision due to RP. To be more precise, it is specifically for people like you. But its current cost is unreasonably high even for people in the west. Other treatment options like gene therapy and stem cell therapy are still under clinical trials and may take some more time before being commercially available. But as you pointed out, gene therapy is possible only for those who have some residual vision. But going by what you have described, your condition in the recent past wouldn't have been ideal for this treatment. So, there is nothing for you to worry about because of the recent developments. 3. I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it’s time for darkness, hmmm, no I don’t know how to describe that but it’s more horrible than darkness. I totally agree with you on this. Enjoy whatever vision you have. That's what I do, especially with my fast deteriorating vision condition.Make lot of outings, see beautiful places, meet lot of people to capture their images so that you can visualise them even after turning blind, see beautiful heroines in films (smile), and do anything and everything that you feel like doing with your residual vision. Finally, I would like you to be part of Retina India, an organisation established with special focus on retinal disorders. Though I have learnt how to cope up with visual impairment to a great extent from Access India mailing
Re: [AI] RP hopelessness
Hi All, I too have experienced ssuch incidents where people doubt if I'm really challenged. And also, I'm not a very good user of the cane. Anyway what's importaant is that we accept the reality and never pretend to be normal sighted. I started using the cane when I was around 18 studying in class 12. I prefer to ask the driver about the bus # and its route, mostly I get a satisfactory answer from him and sometimes from the passengers inside. I travel by the normal first/second class coach in the railway trains coz I'm comfortable with it, not to hide my disability. One good thing is that I'm able to restrict loss of vision due to treatment since the age of 2 years, I'm 35 now. My ophthalmo has clarified that the medicines he prescribe are for retention and not for cure, I follow his instructions strictly and believe it has helped me. I understand not being able to see something that could be seen earlier is a painful experience but its really important for us to be prepared when we know that its ought to happen. Think of ways to overcome difficulties rather than cripping over something that's not under our control. Vision loss can happen with anyone, the difference for us is that we know about it in advance. Isn't this an advantage and an opportunity for us to prepare for the future? Dear friend, don't lose hope - keep your cool and you'd be able to think of the positive side of the situation. Wish you ALL THE BEST... On 8/20/12, Shona Man shonam...@gmail.com wrote: The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha Shamanna geethas2...@gmail.com wrote: Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I have? 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I
Re: [AI] RP hopelessness
I am suffering from Glucoma, i am having some sight whenever crossing road I use white cane though I can see vehicles from quiet far, my friends do not hasitate to use white cane. On 8/21/12, Zujar Shabbir Kanchwala zujarbri...@gmail.com wrote: Hi All, I too have experienced ssuch incidents where people doubt if I'm really challenged. And also, I'm not a very good user of the cane. Anyway what's importaant is that we accept the reality and never pretend to be normal sighted. I started using the cane when I was around 18 studying in class 12. I prefer to ask the driver about the bus # and its route, mostly I get a satisfactory answer from him and sometimes from the passengers inside. I travel by the normal first/second class coach in the railway trains coz I'm comfortable with it, not to hide my disability. One good thing is that I'm able to restrict loss of vision due to treatment since the age of 2 years, I'm 35 now. My ophthalmo has clarified that the medicines he prescribe are for retention and not for cure, I follow his instructions strictly and believe it has helped me. I understand not being able to see something that could be seen earlier is a painful experience but its really important for us to be prepared when we know that its ought to happen. Think of ways to overcome difficulties rather than cripping over something that's not under our control. Vision loss can happen with anyone, the difference for us is that we know about it in advance. Isn't this an advantage and an opportunity for us to prepare for the future? Dear friend, don't lose hope - keep your cool and you'd be able to think of the positive side of the situation. Wish you ALL THE BEST... On 8/20/12, Shona Man shonam...@gmail.com wrote: The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha Shamanna geethas2...@gmail.com wrote: Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I
[AI] RP hopelessness
Hey Eki, Don’t be discouraged. I know you very closely and I also know that you will come out of this very soon. Why don’t you inquire about Embryonic stem cells about which people have shared on accessindia previously. I am pasting below the old article. I hope it will help you. Embryonic stem cells improve vision for two womenBy Elizabeth Cohen, Senior Medical Correspondent January 24, 2012 -- Updated 0321 GMT (1121 HKT) Embryonic stem cell breakthrough Source: CNN STORY HIGHLIGHTS This is the first documented time these controversial cells have helped someone During the study, stem cells derived from an embryo were injected into retinal tissue Researcher emphasizes that the results are preliminary (CNN) -- Two women with untreatable eye diseases said they had dramatic improvements in their vision after injections of human embryonic stem cells, making it the first documented time these controversial cells have helped someone. This is a big step forward for regenerative medicine, said Dr. Steven Schwartz at UCLA's Jules Stein Eye Institute. It's nowhere near a treatment for vision loss, but it's a signal that embryonic stem-cell based strategies may work. Schwartz added several caveats - that the study was preliminary, only in two patients, and that it's difficult to measure vision in low-vision patients. But even so he was thrilled and excited about the study. Schwartz and his colleagues published their study in The Lancet. For each patient, stem cells derived from an embryo were injected into their retinal tissue. They had to take anti-rejection drugs for a short period so their eyes wouldn't reject the foreign tissue. Dr. Steven Schwartz and a 51-year-old patient who says her vision has improved after stem cell treatment.Before her stem cell surgery in July, Sue Freeman, 78, couldn't take a walk, go shopping or cook by herself because of macular degeneration, a disease that affects millions of Americans and for which there is no cure. I couldn't pour a glass of water without spilling it on the counter, she said. Now, after surgery in one eye, she cooks, shops and walks on her own. I can even read my own writing now, she added. And I've noticed other things. My husband and I were walking around one of our rental properties and I noticed scuff marks on the wall. I told him we need to fix this, and he said, 'You're seeing things better, but that's making my honey-do list even longer.' Schwartz, chief of the retina division at Jules Stein, emphasized that the results are preliminary and it is possible the patients' vision could get worse again. Researchers will now try the procedure in 22 more patients in research centers in the United States. The second patient in the study, a 51-year-old woman who preferred not to use her name, said she first noticed a change in her vision a few weeks after surgery when she woke up one morning and looked at an armoire across her bedroom. It has a lot of detailed carvings and I thought wow, I was missing those before, she said. I thought, is this for real? Later, she noticed she could see the knobs on her stove, which she couldn't see before at a certain distance. Before having the surgery, the patient couldn't read any of the letters on an eye chart with extra large letters for people with vision problems, but after the surgery, she could read five letters on the chart, according to the study. Before the surgery, she couldn't see how many fingers an examiner was holding up in front of her face, but afterward she could. In a commentary in The Lancet, Dr. Anthony Atala, director of the Institute for Regenerative Medicine at Wake Forest School of Medicine, warned that the report was preliminary, in only two patients, and with a short-term follow-up. But the results are impressive, especially considering the progressive nature of both diseases, he added. The stem cells were derived from an embryo created in a fertility clinic by a couple that chose not to use it to create a pregnancy, said Gary Rabin, chief executive officer of Advanced Cell Technology, who said the couple donated the embryo to the company. According to Dr. Robert Lanza, chief scientific officer at Advanced Cell Technology and a co-author of the study, the embryo was destroyed after the stem cells were derived, but in the future, doctors will be able to derive stem cells from an embryo without destroying it. This is the first time a scientific study has been published about the results of an embryonic stem cell trial, but not the first time these cells have been used. Geron became the first company to get FDA approval for human trials using cells grown from human embryonic stem cells in 2009, but abandoned that effort for financial reasons in 2011. Many who consider an embryo to be human life have objected to embryonic stem cell research. In his commentary, Atala said induced pluripotent stem cells, which can be made without destroying an embryo, may also be useful. These cells, which
Re: [AI] RP hopelessness
The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha Shamanna geethas2...@gmail.com wrote: Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1.Can I anyhow retain what little I have? 2.If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it's time for darkness, hmmm, no I don't know how to describe that but it's more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction. Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in -- LL.M candidate at Faculty of Law in University of Delhi Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest
Re: [AI] RP hopelessness
Hi friends, Allmost every member of this group has his life full with these very emotional and heart touching insidents. Ekenath sir I totally agree with you. I also have allmost similar conditions like geetha mam mentioned but ya it makes me chearful to see light. But I don't get bothered at nights as well. I can't see anything except any window opened or closed on my computer screen I rather turn it off. it depends on acceptence. Earlier I was capable of reading printed books and doing a lot of things which I can't even think of doing now but it is a part of our life. I will not touch upon that aspect for now in this very short interwell of only 9 to 10 months which took away a large percentage of my very little eyesight which I had earlierit gave me a lot of hardships from convincing my family, friends to adjusting myself to study with screen readers. But somehow now I don't even get bothered about that because it will never comeback. I have a lot of plans to keep my life chearful. @ Shona mam! I also had the same condition earlier in my life. But that was only my acceptence and ability to talk about my disability without any hesitation which helped me a lot in getting out from this tromatic situation. Yes I know I can't drive, I can't see any movie, I can't makeout anybuddies facial expressions. But there are certain things which keep me chearful. I don't have very large number of friends but those who are with me they don't forget to include me in any social gathering. It was me who told them without any hesitation the way of holding my hand, the methods of my studies. Even some of them are patient enough to listen about screen readers without even moving from their place. They don't call me because of any liability but some of them love my different sskills like cracking jokes and solving anybuddies tech problems. I never forget to make them laugh even in toughest situations. When I used to be quite it used to hert me alot when somebuddy asked about my disability or somebuddy who pulled me like a cart instead of gentally holding my hand. But these accessindian fellos helped me a lot in a large number of aspects throughout my life. Till 2010 I didn't have any visually impaired friend but now I have a lot. I enjoy the extracted audio of movies lying on my bed without straining my eyes. Yesterday our old monitor got damaged. Everybuddy was panicked till I reached home from my coaching class. it was not turned off properly so showing some boot options like start window normally or safe mode etc. I started that and asked about the light which lightsup constently when we do any heavy work like booting or shutdown. My dad said it was not and I just pressed enter pc got booted in couple of seconds. and from then I am writing mails chatting skyping whereas they are worried about screen and asking for my laptop. So I took this situation on a very positive note. regards On 8/20/12, Shona Man shonam...@gmail.com wrote: The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha Shamanna geethas2...@gmail.com wrote: Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye
Re: [AI] RP hopelessness
condition earlier in my life. But that was only my acceptence and ability to talk about my disability without any hesitation which helped me a lot in getting out from this tromatic situation. Yes I know I can't drive, I can't see any movie, I can't makeout anybuddies facial expressions. But there are certain things which keep me chearful. I don't have very large number of friends but those who are with me they don't forget to include me in any social gathering. It was me who told them without any hesitation the way of holding my hand, the methods of my studies. Even some of them are patient enough to listen about screen readers without even moving from their place. They don't call me because of any liability but some of them love my different sskills like cracking jokes and solving anybuddies tech problems. I never forget to make them laugh even in toughest situations. When I used to be quite it used to hert me alot when somebuddy asked about my disability or somebuddy who pulled me like a cart instead of gentally holding my hand. But these accessindian fellos helped me a lot in a large number of aspects throughout my life. Till 2010 I didn't have any visually impaired friend but now I have a lot. I enjoy the extracted audio of movies lying on my bed without straining my eyes. Yesterday our old monitor got damaged. Everybuddy was panicked till I reached home from my coaching class. it was not turned off properly so showing some boot options like start window normally or safe mode etc. I started that and asked about the light which lightsup constently when we do any heavy work like booting or shutdown. My dad said it was not and I just pressed enter pc got booted in couple of seconds. and from then I am writing mails chatting skyping whereas they are worried about screen and asking for my laptop. So I took this situation on a very positive note. regards On 8/20/12, Shona Man shonam...@gmail.com wrote: The worldd for me too is a growing dark due to disappearing my center vision. I was a person' who was a naughty' kiddy and having amaising arrangement of my personal contacts, but everything has been lost on the account of my diminishing vision. Many people consider me as a sighted person as my eyes do not reflect any sense of blindness by looking on them, but there is a dark inside these two little balls. I have lost many of my relations because I do not often visit them and most of the time confine my self at my resident pllace. But I think a lot' if I had been a sighted person' could enjoy every moment of my life, as by driving, by making every one pleased by my activities but alas! nothing is with me which could me pleased when i have lost my sight. On 8/20/12, Geetha Shamanna geethas2...@gmail.com wrote: Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me
Re: [AI] RP hopelessness
Dear friend. I was really sad when I heard this mail. I also feel sometimes that y God snached from us the necessary things. I will deffinatly write u mail in detail. I have copied yr email id. I want to become ur friend. I don't know but it looks ur nature is alike of mine. wait for my mail. On 8/19/12, Ekinath Khedekar ekin...@gmail.com wrote: Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said “then it will go all dark right?” No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there’s no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1.Can I anyhow retain what little I have? 2.If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it’s time for darkness, hmmm, no I don’t know how to describe that but it’s more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- “The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction.” Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in
Re: [AI] RP hopelessness
dear friend, I came to know that acupuncture treatment is giving good results for RP. Even I am suffering from RP. Now I am aged about 35 years. I am having two children. When I came to know that I am going to loss my sight in couple of years. My heart was filled with sorrows. I am 23 years old when I came to know my disease. That is the age where I can settle my life. All of my friends are got good jobs and settled. Now I did not settle yet. No need to loss your confidence. Almighty God know which is good for us. There are many persons who loss there vision suddenly. An example Mr. Vikram who completed MBA and done IBM he is ready to fly USA in a week. suddenly he met with a accident and loss his sight. We are better comparing from them because we know and prepared our mind to accept the future. Good luck. Another thing which makes me painful is that when ever i open my laptop my wife will come and ask about the medicine for RP. It is regular phenomenon of my life. How I can tell her that it will take lot of years. Rather than me my wife is very much eager to hear the news of my medicine. She is keeping lot of hope. regards, sk. sazid -- On Sun, 19/8/12, nitesh gupta nitesh...@gmail.com wrote: From: nitesh gupta nitesh...@gmail.com Subject: Re: [AI] RP hopelessness To: accessindia@accessindia.org.in Date: Sunday, 19 August, 2012, 6:07 PM Dear friend. I was really sad when I heard this mail. I also feel sometimes that y God snached from us the necessary things. I will deffinatly write u mail in detail. I have copied yr email id. I want to become ur friend. I don't know but it looks ur nature is alike of mine. wait for my mail. On 8/19/12, Ekinath Khedekar ekin...@gmail.com wrote: Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said “then it will go all dark right?” No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there’s no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I have? 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it’s time for darkness, hmmm, no I don’t know how to describe that but it’s more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- “The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction.” Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in
Re: [AI] RP hopelessness
Hai friend, please don't lose your heart. When I was ready to undertake my job in 2002 after completing my electronic engineering deploma, I lost my sight in just 10 days! I couldn't even join at my work place. I too am suffering from RP. The doctors had nothing to say. Now I have a shadow vision. To be precise 1/60, so says my doctor. Now I have recovered my shock and ready to face the future. Let us hope for the best. Stem cell treatment and the like are fast improving fast. Be coragious. Everything will be OK ONEDAY. We shall overcome deep in my heart I do believe we shall over come oneday. With regards, Jaison Bellarmine-Original message- From: shaik sazid Sent: 19/08/2012, 8:41 pm To: accessindia@accessindia.org.in Subject: Re: [AI] RP hopelessness dear friend, I came to know that acupuncture treatment is giving good results for RP. Even I am suffering from RP. Now I am aged about 35 years. I am having two children. When I came to know that I am going to loss my sight in couple of years. My heart was filled with sorrows. I am 23 years old when I came to know my disease. That is the age where I can settle my life. All of my friends are got good jobs and settled. Now I did not settle yet. No need to loss your confidence. Almighty God know which is good for us. There are many persons who loss there vision suddenly. An example Mr. Vikram who completed MBA and done IBM he is ready to fly USA in a week. suddenly he met with a accident and loss his sight. We are better comparing from them because we know and prepared our mind to accept the future. Good luck. Another thing which makes me painful is that when ever i open my laptop my wife will come and ask about the medicine for RP. It is regular phenomenon of my life. How I can tell her that it will take lot of years. Rather than me my wife is very much eager to hear the news of my medicine. She is keeping lot of hope. regards, sk. sazid -- On Sun, 19/8/12, nitesh gupta nitesh...@gmail.com wrote: From: nitesh gupta nitesh...@gmail.com Subject: Re: [AI] RP hopelessness To: accessindia@accessindia.org.in Date: Sunday, 19 August, 2012, 6:07 PM Dear friend. I was really sad when I heard this mail. I also feel sometimes that y God snached from us the necessary things. I will deffinatly write u mail in detail. I have copied yr email id. I want to become ur friend. I don't know but it looks ur nature is alike of mine. wait for my mail. On 8/19/12, Ekinath Khedekar ekin...@gmail.com wrote: Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said “then it will go all dark right?” No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there’s no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I have? 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it’s time for darkness, hmmm, no I don’t know how to describe that but it’s more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- “The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction.” Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com
Re: [AI] RP hopelessness
Hi Ekinath, I fully understand your fear of losing the little vision you have, although it is practically of no use. Although I have been nearly blind since birth, the little vision I have had has kept me going. Just being able to see light makes me cheerful as well, especially on sunny days. Did you have your eyes examined for cataract? Doctors recently discovered cataract in both my eyes and operated them. I have been able to see a lot more light ever since. I do not wish to raise hopes -- cataract surgeries don't always result in an improvement in vision. But if you do undergo tests for cataract now or later and if doctors do determine cataract, do have it removed. It might help sometimes. It is important to accept reality otherwise and carry on with life. Try learning to meditate. It is an effective way of grounding oneself in reality. Geetha -Original Message- From: accessindia-boun...@accessindia.org.in [mailto:accessindia-boun...@accessindia.org.in] On Behalf Of Ekinath Khedekar Sent: 19 August 2012 07:55 To: accessindia Subject: [AI] RP hopelessness Hi Friends, Today and last night I was a little senti. My right eye in which I have mere light vision has been paining for couple of days and therefore, I visited a specialist. She told me nothing abnormal nieghter pressure not anything to worry but just an usual degeneration of my retina due to RP and recent maleria. So it means I might lose my taken for granted just a light perception. Friends, it struck me hard. I have zero vision in my left eye. And some of you will exactly understand what it means. I mean I shared this with my close friend but she could not appreciate and said then it will go all dark right? No sighted person can understand this but totally blind persons. I am very scared to lose this little vision. Practically, this remaining vision is of no use, but I can see light which makes me cheerful. I can make out shadows etc. and appreciate weather. But it might go away and then what will follow is not even darkness, but complete elimination of one of the senses. I will never be able to see again. What frustrates me is that there's no way out or around RP to be able to enjoy the beautiful gift of seeing partially though. So questions for the learned and experienced: 1. Can I anyhow retain what little I have? 2. If I lose all my sight will any break through treatment in future can be availed by me because they say at least little vision is must to treat. Last but not the least: I have made up my mind to enjoy every bit moment that has been given to me before I lose all my sight. I will take lot of leaves and plan more outings so those last moments of light are saved in before it's time for darkness, hmmm, no I don't know how to describe that but it's more horrible than darkness. kindly answer my queries and help me do the best in circumstances. Cheers -- The waves breaking on the surface draw all the attention, but it is the current beneath the water that determines your direction. Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in Search for old postings at: http://www.mail-archive.com/accessindia@accessindia.org.in/ To unsubscribe send a message to accessindia-requ...@accessindia.org.in with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in
