[CMLHope] Medical Articles 9/17
Medical Articles 9/17 http://cmlhope.com/?p=1986 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE
Jeanie: I am sorry to hear of this.but, I do know that there are so many more opportunities available today than when Gleevec became first available. So, we can thank the Lord for this as well as our wonderful research development people... I don't remember if you said or not beforebut when did you begin Gleevec..I was just curious how long you've been taking it before getting to this point Well.I am heading out for the wonderful, sunny state of Florida tomorrow morning with my mom. Having to take her back down to check on her house for sale as well as her doctor appointments next week then we will bring another load of her stuff back with us. Right now, I am doing really well.no complaints. I did learn one thing, I put my good ole' standby athletic shoes back on my feet lo and behold, the pain in my knees and legs has gone away! It was the shoes I was wearing all the time..I know now a good pair of shoes is worth the money spent. (smile) Not the cute little sandals or slides flip flops. (smile). Everyone take carewill check in once in a while the next couple of weeks if I can pick up some wireless internet along the way. God Bless take care, Jeanie. Our prayers are with you. Keep Looking Up, Suzieq --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] what's the importance of BCR ABL Mutation Analysis?
Hi to all: Hope all going well around everybody. After 4 years of PCRU, I am positive for around 8 month. I am going to do Mutation analysis but my onc believe that it's not so important. I am in 800 mg and he said to me that after 3 month I should do another QPCR and if it’s still rising I should switch to Sprycel. He believes, in spite of BCR ABL Mutation Analysis result, sometimes Sprycel work for T315I or the other Mutations. And it’s better that in every status, I try Sprycel. But I want to know more about the importance of this test. God Bless Everybody Being Happy Hoosha --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] what's the importance of BCR ABL Mutation Analysis?
Hi to all: Hope all going well around everybody. After 4 years of PCRU, I am positive for around 8 month. I am going to do Mutation analysis but my onc believe that it's not so important. I am in 800 mg and he said to me that after 3 month I should do another QPCR and if it’s still rising I should switch to Sprycel. He believes, in spite of BCR ABL Mutation Analysis result, sometimes Sprycel work for T315I or the other Mutations. And it’s better that in every status, I try Sprycel. But I want to know more about the importance of this test. God Bless Everybody Being Happy Hoosha --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Medical Articles 9/17
I was not shocked by the article regarding liver failure with Gleevec. Prior to them letting me start the Gleevec in the clinical trial, I had to sign an affadavit saying that I was warned about Gleevec with Tylenol. They had deaths due to people taking the two together before they realized the deadly combination. I have not taken a Tylenol since I started the Gleevec. I hope everyone knows this. Suzzie --- On Wed, 9/17/08, Rob [EMAIL PROTECTED] wrote: From: Rob [EMAIL PROTECTED] Subject: [CMLHope] Medical Articles 9/17 To: cmlhope@googlegroups.com, [EMAIL PROTECTED] Date: Wednesday, September 17, 2008, 12:24 PM Medical Articles 9/17 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to Lynn
Hi Lynn, So good to hear from you. I sure am glad you thought of me and to pray for me. Yes, I am trusting in God, and I know He has a plan for each of us. What meds are you taking now? I am praying for all, and let's all keep on being CML WARRIORS. I have not been feeling well at all ever since my BMA and BMB. But each day will bring something new, so I look forward to the challenge. Nay in all things we are more than conquerors through him that loved us. Blessings to all, Jeanie3 In a message dated 9/16/2008 3:14:05 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Dear Jeanie, Your trust is certainly in the right place! Just the other evening I felt the need to pray for you.Odd, since we have never met except for email. God certainly knows what we each need. I am sure you will be fine once you start on a new drug. I myself thought I was finished when I thought I wouldn't be able to take Gleevec any longer. God pulled me through that and He will pull you through this bump in the road! Who knows; perhaps the new drug will be a blessing in many ways! Thinking of you! Lynn Franklin - Original Message - From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:CMLHope@googlegroups.com) Sent: Tuesday, September 16, 2008 4:21 PM Subject: [CMLHope] CML HAS GONE INTO ACCELERATED PHASE Hi all, I got some bad news today. My Chronic CML has gone into accelerated phase. I don't know what they are going to do as of yet. Probably change my meds. As you all know, my trust is in God. I'll let you know when I find out what they are going to do. Pray for me and all in need. Blessings, Jeanie3 **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to millie
Hi Millie and thanks so much for your prayers and uplifting note. Did you go into accelerated phase when he switched you? On the Tasigna, did you have to have cardiograms daily? Yes, that would be hard; I remember taken an antibiotic that had to be taken on an empty stomach; hard to time it. I am just waiting for my Dr to call and tell me what he wants to do. I think they are still doing cytogenics on the test and they aren't ready yet. I'm 70, and am still hanging in there. I noticed my left leg was swelling today, and that has never happened to me before. I do know some of our cml'ers have swelling. Also the front of leg is hurting. Blessings to you and your e-mail has helped me so much. Jeanie3 In a message dated 9/16/2008 1:48:48 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Jeanie3 I've been reading some of the messages you've posted and know that you are having a time with it all. Just recently my meds had to be changed. You might laugh, but my Onc. of 15 yrs and I have decided that I don't need to know everything and it works best for me. If it's something I must know, he'll tell me. All I know is that my Gleevec wasn't working for me anymore. He switched me to Tasigna and , although I worried a lot about the side effects, things have worked out for me. I'm not having nearly as many side affects and that's a good thing. The hardest part about taking it is doing it every 12 hours and trying to fit my meals in so that I can do this. It has ended up that I have to set the alarm for 5:00 A.M. and take my meds then, and that's fine. You can't eat 2 hours prior, or an hour after taking the meds. At any rate this has worked out for me. I'm due to take it in about 15 min. and then will start working on my supper for the day. I do have a heart condition too...I have a Pace Maker..just had a new one put in a few months ago. All in all am doing well for a 69 yr. old. I am in a wheel chair and walker, do to other problems, but am not giving up the fight. You take care and know that we're all out there keeping up with what you're dealing with and always hoping for the best. None of can give up. My thoughts and Prayers to you, Millie **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to susieq
In a message dated 9/17/2008 11:47:19 A.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Thanks SuzieQ, Yes, thank heavens we have other choices. I began taking Gleevec in Feb of 2004. Blood stabilized until Oct of 2008. Then my platelets went up to about 900. They just found blast in my blood last week. Have a wonderful trip and take care of yourself. Blessings, Jeanie3 Jeanie: I am sorry to hear of this.but, I do know that there are so many more opportunities available today than when Gleevec became first available. So, we can thank the Lord for this as well as our wonderful research development people... I don't remember if you said or not beforebut when did you begin Gleevec..I was just curious how long you've been taking it before getting to this point Well.I am heading out for the wonderful, sunny state of Florida tomorrow morning with my mom. Having to take her back down to check on her house for sale as well as her doctor appointments next week then we will bring another load of her stuff back with us. Right now, I am doing really well.no complaints. I did learn one thing, I put my good ole' standby athletic shoes back on my feet lo and behold, the pain in my knees and legs has gone away! It was the shoes I was wearing all the time..I know now a good pair of shoes is worth the money spent. (smile) Not the cute little sandals or slides flip flops. (smile). Everyone take carewill check in once in a while the next couple of weeks if I can pick up some wireless internet along the way. God Bless take care, Jeanie. Our prayers are with you. Keep Looking Up, Suzieq **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to millie
Hi Jeanie.Just on my way out to take my Tasigna, but it can wait a moment. I then will start supper and that will give me time to wait the extra hour. It's not difficult, once I started. No, I didn't need the EKG's every day, but probably once a week, for a while. They just did another one yesterday, but it's been a while since I had one. Everything is great with that. I've noticed a few things since on the new med. I don't have the weight gain, or the swelling (water), and don't miss it at all. On Gleevec I had diarrhea and that seems to be gone too. I feel my life is so much better. Please let me know what your doctor decides for you. As I said before, I don't know why he switched me.just said the Gleevec wasn't working as well as he wanted it too. You're in my thoughts and prayers. Millie - Original Message - From: [EMAIL PROTECTED] To: CMLHope@googlegroups.com Sent: Wednesday, September 17, 2008 4:52 PM Subject: [CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to millie Hi Millie and thanks so much for your prayers and uplifting note. Did you go into accelerated phase when he switched you? On the Tasigna, did you have to have cardiograms daily? Yes, that would be hard; I remember taken an antibiotic that had to be taken on an empty stomach; hard to time it. I am just waiting for my Dr to call and tell me what he wants to do. I think they are still doing cytogenics on the test and they aren't ready yet. I'm 70, and am still hanging in there. I noticed my left leg was swelling today, and that has never happened to me before. I do know some of our cml'ers have swelling. Also the front of leg is hurting. Blessings to you and your e-mail has helped me so much. Jeanie3 In a message dated 9/16/2008 1:48:48 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Jeanie3 I've been reading some of the messages you've posted and know that you are having a time with it all. Just recently my meds had to be changed. You might laugh, but my Onc. of 15 yrs and I have decided that I don't need to know everything and it works best for me. If it's something I must know, he'll tell me. All I know is that my Gleevec wasn't working for me anymore. He switched me to Tasigna and , although I worried a lot about the side effects, things have worked out for me. I'm not having nearly as many side affects and that's a good thing. The hardest part about taking it is doing it every 12 hours and trying to fit my meals in so that I can do this. It has ended up that I have to set the alarm for 5:00 A.M. and take my meds then, and that's fine. You can't eat 2 hours prior, or an hour after taking the meds. At any rate this has worked out for me. I'm due to take it in about 15 min. and then will start working on my supper for the day. I do have a heart condition too...I have a Pace Maker..just had a new one put in a few months ago. All in all am doing well for a 69 yr. old. I am in a wheel chair and walker, do to other problems, but am not giving up the fight. You take care and know that we're all out there keeping up with what you're dealing with and always hoping for the best. None of can give up. My thoughts and Prayers to you, Millie -- Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Jeanie
In a message dated 9/17/2008 8:45:58 A.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Jeanie: I am sorry to hear about the move into accelerated phase. Please know that I am thinking of you and praying that your doctor will put you on something else that works for you. So good luck to you--I'm sure there is just the treatment out there that will work for you. Margot Thanks so much Margot, I am looking forward to the new treatment. I know it's going to be a challenge but everyday with CML is a challange. Let's all keep on praying. Blessings, Jeanie3 **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514) --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: Medical Articles 9/17
Hi Suzzie, If my memory is working, the patient who died actually overdosed on Tylenol. He was taking 7 grams a day. Zavie On Wed, Sep 17, 2008 at 3:31 PM, Susan Armour [EMAIL PROTECTED]wrote: *I was not shocked by the article regarding liver failure with Gleevec. Prior to them letting me start the Gleevec in the clinical trial, I had to sign an affadavit saying that I was warned about Gleevec with Tylenol. They had deaths due to people taking the two together before they realized the deadly combination.* *I have not taken a Tylenol since I started the Gleevec. I hope everyone knows this.* * Suzzie* --- On *Wed, 9/17/08, Rob [EMAIL PROTECTED]* wrote: From: Rob [EMAIL PROTECTED] Subject: [CMLHope] Medical Articles 9/17 To: cmlhope@googlegroups.com, [EMAIL PROTECTED] Date: Wednesday, September 17, 2008, 12:24 PM Medical Articles 9/17 http://cmlhope.com/?p=1986 -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb 07 3.2 log reduction Jun 07 PCRU 11/06 at The Ottawa Hospital e-mail: [EMAIL PROTECTED] Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 Yahoo ID: zaviem --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] Re: what's the importance of BCR ABL Mutation Analysis?
First a big *YAHOOO!!! YIPPEEE!!!* *Number 1214 in the Zero Club* *Zavie* *If you indeed have the T315I mutation then Sprycel won't help and you would be wasting valuable time. If you are starting to lose your remission then mutation testing is essential in order to determine the course of action. Different drugs are effective for different mutations. You must have the mutation testing done.* ** *Zavie* ** How 2008/9/15 Hoosha Maghzi [EMAIL PROTECTED] Hi to all: Hope all going well around everybody.. After 4 years of PCRU, I am positive for around 8 month. I am going to do Mutation analysis but my onc believe that it's not so important. I am in 800 mg and he said to me that after 3 month I should do another QPCR and if it's still rising I should switch to Sprycel. He believes, in spite of BCR ABL Mutation Analysis result, sometimes Sprycel work for T315I or the other Mutations. And it's better that in every status, I try Sprycel. But I want to know more about the importance of this test. God Bless Everybody Being Happy Hoosha -- Zavie Miller (age 69) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH (suspect) 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb 07 3.2 log reduction Jun 07 PCRU 11/06 at The Ottawa Hospital e-mail: [EMAIL PROTECTED] Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 Yahoo ID: zaviem --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
