Re: [CMLHope] Re: Newly diagnosed
Hey Draz, Keep on smiling. Great news! I also see that your using my trademark 18's. Do you know what it means? The number 18 stands for life, and it is pronounced CHI like clearing your throat. 18's to you. Marty On Fri, Oct 28, 2011 at 7:49 AM, Draz wrote: > Got results my PCR results and it has been confirmed I'm now in major > mol response stage ^_^ > My BCR-ABL% is now 0.001% and if things go like this doctor says there > is a big chance of being in complete molecular response by january > when my next PCR is. > > Soo happy now nobody can remove the smile of my face xD > > On 12 sep, 11:13, Draz wrote: > > Well in a few weeks I get my second bone marrow aspiration and > > hopefully then have some good results. > > For now just chilling and taking it easy, learning and writing about > > it as an archive for myself and hopefully some new patients might get > > educated as well. > > > > I'm blogging onhttp://cml-and-me.com/ > > > > If someone would like to share their story for future patients I would > > be glad to have you as a guest blogger ^_^ > > > > 18's > > Draz > > > > On 6 aug, 03:13, Martin Gartenberg wrote: > > > > > > > > > > > > > > > > > Hi Drazen, > > > > > I am happy to hear that you have been doing your "homework" about your > CML. > > > Please do not be discouraged if your PCR has not droped as yet because > you > > > really need the drugs to do their job. > > > > > It may take weeks or months or even years, so just hang in there and > live > > > your life and enjoy it. > > > > > 18's > > > > > Marty > > > > > On Thu, Aug 4, 2011 at 7:33 AM, Draz wrote: > > > > Thanks for all the replies and information on PCR. I've arranged for > > > > my oncologist and the researchers to provide me with more information > > > > on my current status and PCR results. > > > > This should be during my next visit, hope to see positive answers. > > > > They did say they were sorry nobody mentioned my PCR results last > > > > week, maybe cause I was bombarding them with other questions :) > > > > > > Hmm I'll need to maybe also create a simple blog and just for myself > > > > keep things in place and vent a little bit when needed. > > > > > > Once again thank you all > > > > > > On 3 aug, 10:31, Draz wrote: > > > > > Hi all, > > > > > > > First time poster here, recently (3 weeks ago) I've been diagnosed > > > > > with CML at a chronic stage with white bloodcell count 309. > Treatment > > > > > started of with Glivec (Imatinib) and almost 2 weeks ago they > switched > > > > > it to Nilotinib and I was placed in the researchgroup. Last week > > > > > Thursday my count was 64 and the doctor said it was ok for me to > start > > > > > working a few hours a day and so on. All great news considering > it's > > > > > cancer, we're talking about. > > > > > > > Now according to the Nilotinib research documentation I should be > > > > > receiving PCR results but I have no idea when or what those > actually > > > > > are. Can someone shed some light for me when these results start > > > > > coming in cause so far I've only been getting white bloodcell > count. > > > > > > > Regards > > > > > Drazen > > > > > > -- > > > > [CMLHope] > > > > A support group ofhttp://cmlhope.com > > > > - > > > > > > You received this message because you are subscribed to the Google > Groups > > > > "CMLHope" group. > > > > To post to this group, send email to CMLHope@googlegroups.com > > > > To unsubscribe from this group, send email to > > > > cmlhope-unsubscr...@googlegroups.com > > > > For more options, visit this group at > > > >http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: ordering Gleevec or imatinib from a Canadian Rx company
Carol - Imatinib/Gleevec is not available in generic form from Canada. I have seen ads for so-called "Canadian" pharmacies claiming to sell generic Gleevec but would not trust my personal health to them. The National CML Society offers assistance in dealing with insurance and co-pay issues and would be able to help you further. http://www.nationalcmlsociety.org/ Good luck to you and your husband, Pat Elliott Phoenix, Arizona On Oct 27, 6:36 pm, Catlubr wrote: > Hi all, > I haven't posted for a very long time. I need assistance with > information from anyone who is getting their Gleevec or imatinib from > a Canadian pharmacy. If so, which one? My husband, Clyde, may be > switching over to Medicare and we discovered how expensive it will be > for Gleevec on Part D. Does anyone go through Canada to obtain the > drug? If so, do the Drs. approve of ordering the generic form via the > brand name drug? > > Any assistance will be greatly appreciated. > > Carol Furumoto > Clyde Dx 9/99 -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Newly diagnosed
Got results my PCR results and it has been confirmed I'm now in major mol response stage ^_^ My BCR-ABL% is now 0.001% and if things go like this doctor says there is a big chance of being in complete molecular response by january when my next PCR is. Soo happy now nobody can remove the smile of my face xD On 12 sep, 11:13, Draz wrote: > Well in a few weeks I get my second bone marrow aspiration and > hopefully then have some good results. > For now just chilling and taking it easy, learning and writing about > it as an archive for myself and hopefully some new patients might get > educated as well. > > I'm blogging onhttp://cml-and-me.com/ > > If someone would like to share their story for future patients I would > be glad to have you as a guest blogger ^_^ > > 18's > Draz > > On 6 aug, 03:13, Martin Gartenberg wrote: > > > > > > > > > Hi Drazen, > > > I am happy to hear that you have been doing your "homework" about your CML. > > Please do not be discouraged if your PCR has not droped as yet because you > > really need the drugs to do their job. > > > It may take weeks or months or even years, so just hang in there and live > > your life and enjoy it. > > > 18's > > > Marty > > > On Thu, Aug 4, 2011 at 7:33 AM, Draz wrote: > > > Thanks for all the replies and information on PCR. I've arranged for > > > my oncologist and the researchers to provide me with more information > > > on my current status and PCR results. > > > This should be during my next visit, hope to see positive answers. > > > They did say they were sorry nobody mentioned my PCR results last > > > week, maybe cause I was bombarding them with other questions :) > > > > Hmm I'll need to maybe also create a simple blog and just for myself > > > keep things in place and vent a little bit when needed. > > > > Once again thank you all > > > > On 3 aug, 10:31, Draz wrote: > > > > Hi all, > > > > > First time poster here, recently (3 weeks ago) I've been diagnosed > > > > with CML at a chronic stage with white bloodcell count 309. Treatment > > > > started of with Glivec (Imatinib) and almost 2 weeks ago they switched > > > > it to Nilotinib and I was placed in the researchgroup. Last week > > > > Thursday my count was 64 and the doctor said it was ok for me to start > > > > working a few hours a day and so on. All great news considering it's > > > > cancer, we're talking about. > > > > > Now according to the Nilotinib research documentation I should be > > > > receiving PCR results but I have no idea when or what those actually > > > > are. Can someone shed some light for me when these results start > > > > coming in cause so far I've only been getting white bloodcell count. > > > > > Regards > > > > Drazen > > > > -- > > > [CMLHope] > > > A support group ofhttp://cmlhope.com > > > - > > > > You received this message because you are subscribed to the Google Groups > > > "CMLHope" group. > > > To post to this group, send email to CMLHope@googlegroups.com > > > To unsubscribe from this group, send email to > > > cmlhope-unsubscr...@googlegroups.com > > > For more options, visit this group at > > >http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
