[CMLHope]
Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope]
Hi, I have never been on Gleevec or any other TKI's. I had a bone marrow transplant, and I also get these same kinds of back pain you describe. They feel like they are in the center of my back in the middle of my rib cage like someone was pushing down on my shoulders. When I lay down they seem to get better for a while. When these pains are very bad I put a heating pad on my back and just lie down. Hope you find some relief soon 18's Marty On Sun, May 5, 2013 at 10:57 AM, DAWN RODEGHIER drodegh...@sbcglobal.netwrote: Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope]
Hi Jim.I've had Arthritis for years, but mostly in my legs. Since treating the CML I've gone from walking to a wheel chair most of the time. I can still manage with a walker at times, but not for long. I was on Gleevec for years, but after taking 800 mg. a day towards the end, I was moved to Tasigna, which after about 3 years put me into remission. I developed Polymiagia during this time which is a type of Arthritis and really hurts my arms, neck, etc. I also have one place on the left side of my back about midway that causes so much pain that nothing helps. I've tried heat, and other things, but there isn't much that will take it away. It even wakes me up during the night. No one can tell me why it's just in that area. You might want to get a sed rate done to see if you have Polymiagia. That's how my Oncologist found it in me. The down side is that they treat it with Prednisone. I was on 10 mg. of that, but they have cut me down to 71/2 mg. and I can feel the difference. I can not raise my arms without a lot of pain, especially in the left side. Thank God I'm right handed. I'm not saying that the meds caused all of this, but think it has made my Arthritis much worse. I do use a Lidoderm 12 hour pain patch when the pain gets really bad, but mostly on my left back problem. I'm not sure I've helped at all, but my muscle and bone pain has increased so much in the past few years on these drugs. I know that my Oncologist checks me for it every time I see him, so think it is associated with the drugs we have to take. I know that he didn't want me on Sprycel because of this. Talk to your doctor and perhaps he can get to the bottom of it. Hope that your pain goes away so that you don't have to deal with another thing.18's to you and many hugs, Millie - Original Message - From: DAWN RODEGHIER To: cmlhope@googlegroups.com Sent: Sunday, May 05, 2013 10:57 AM Subject: [CMLHope] Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re:
I do have osteoarthritis but all my brothers and sisters have it so can't blame CML or Gleevec. This spring has been has been terrible with all the cold, damp, and severe weather swings. I do take OTC medicine and to much Aleve. Rixhaes H. On Sunday, May 5, 2013 9:57:26 AM UTC-5, rod wrote: Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re:
On Sunday, May 5, 2013 9:57:26 AM UTC-5, rod wrote: Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re:
On Sunday, May 5, 2013 9:47:12 PM UTC-5, Richard H wrote: I do have osteoarthritis but all my brothers and sisters have it so can't blame CML or Gleevec. This spring has been has been terrible with all the cold, damp, and severe weather swings. I do take OTC medicine and to much Aleve. Rixhaes H. On Sunday, May 5, 2013 9:57:26 AM UTC-5, rod wrote: Hi fellow warriors, I was wondering if I remember correctly that the subject of arthritis has come up regarding those of us on Gleevec and what was said. I'm on Gleevec and have been since it was approved in the states. About 6 weeks ago I started having medium to severe back pain in the mussels that are next to my shoulder blades toward the center of my back. I haven't done any heavy lifting or such it doesn't seem to want to go away. Has any one experienced any problems like this and what was done to get rid of it. desperately seeking ideas to help stop it? Thanks for any ideas and 18s to you all! Jim -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups CMLHope group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
