Re: [CMLHope] Re: Arthritis ?

2013-05-15 Thread Marty Gartenberg
Hi Suzieq,

Yes cheries are good at preventing the gout. However most cherry juice is
made with other ingredients such as grape juice which won't do a thing to
help prevent the gout. If fresh cheries are in season that would be a much
better choice. I eat pounds of them when they are in season.

There are very few pure cherry juice on the market, so you need to read the
label on the bottle.

Please discuss your suspition of having the gout with your doctor. Maybe he
or she could subscribe some Allopurnial for you to try out.

18's,

Marty


On Wed, May 15, 2013 at 6:11 PM, Suzieq  wrote:

> Marty & Patrick:
>
> Thank ya'll both.  This is something to think about and will discuss it
> with my doctor when I see her.  I had to change my appointment from today
> until the 29th.  I have a really bad bout of sinusitis, head cold, coughing
> and hacking and didn't want to go up to the center and expose some of those
> there that might have compromised immune systems.
>
> I may go up to the grocery store and pick up some Cherry Juice as that is
> suppose to be excellent for gout.  It helps clear the uric acid from your
> system. My husband had to take the Allipurnial once as he had a bout of
> gout.
>
> Thank y'all so much for your help, prayers, & good wishes.  I've missed
> coming here to visit and talking with all of you.  I won't be so scarce
> again. :)
>
> Keep Looking Up,
> Suzieq
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/groups/opt_out.
>
>
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.




Re: [CMLHope] Re: posting my blood panel results today

2013-05-15 Thread bkbarney
OK. I just got confused, You said you were in a new study with two others. 
Always looking at options! Thanks. Feel good!! Beth



-Original Message-
From: Myvety2k 
To: cmlhope 
Sent: Wed, May 15, 2013 6:33 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today



Hi Beth, I'm not taking anything put I am going to check into it.
 
greenie
 

In a message dated 5/15/2013 6:11:22 P.M. Eastern Daylight Time, 
bkbar...@aol.com writes:
Greenie, are you on ponatinib? Let me know. Beth



-Original Message-
From: Myvety2k 
To: cmlhope 
Sent: Tue, May 14, 2013 6:36 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today



Hi Beth, Northwestern University and it's supported by Novartis.  
 
Greenie
 

In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time, 
bkbar...@aol.com writes:
GReenie, glad your cml is doing so well. What new study are you in? Beth



-Original Message-
From: Myvety2k 
To: cmlhope 
Sent: Tue, May 14, 2013 3:56 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today



HI Suzieq,  I went to Chicago on May 1st to see my Doctor, get my blood work 
and pickup my med's.  My son and is wife and my 7 month old grandson picked me 
up at Midway.  Doctor told me that I need not come back for (1) year only to 
pickup same.   She said if I want to I could see a cancer Doctor here in Fort 
Myers once a year that way I would be getting my month work every 6 months 
instead of every 3 months.  It's up to me.  So that's good news and they put me 
into another study with 2 other people plus some in other countries.  Good to 
here your doing O. K.
 
Greenie
 

In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, 
sheila.a.wat...@gmail.com writes:
Jeanie: 


So glad to hear these test results.  Just awesome.  I remember your past 
struggles.  


I go tomorrow for my sixth month Doctor visit.  Am curious to see if mine are 
still stable being on 200mgs instead of the 400. Will be hoping for these good 
blood counts as yours. :)


God Bless,
Suzieq

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 



-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 



-- 
-- 
[CMLHope]
A support group of http://cmlhope.com

Re: [CMLHope] Re: posting my blood panel results today

2013-05-15 Thread Myvety2k
Hi Beth, I'm not taking anything put I am going to check into  it.
 
greenie
 
 
In a message dated 5/15/2013 6:11:22 P.M. Eastern Daylight Time,  
bkbar...@aol.com writes:

Greenie, are you on ponatinib? Let me  know. Beth


-Original  Message-
From: Myvety2k 
To: cmlhope  
Sent: Tue, May 14, 2013 6:36  pm
Subject: Re: [CMLHope] Re: posting my blood panel results today


 
Hi Beth, Northwestern University and it's supported by  Novartis.  
 
Greenie
 
 
In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time, 
_bkbarney@aol.com_ (mailto:bkbar...@aol.com)  writes:

GReenie, glad your cml is doing so well. What  new study are you in? Beth


-Original  Message-
From: Myvety2k <_Myvety2k@aol.com_ (mailto:myvet...@aol.com) >
To: cmlhope  <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent:  Tue, May 14, 2013 3:56 pm
Subject: Re: [CMLHope] Re: posting my blood  panel results today


 
HI Suzieq,  I went to Chicago on May 1st to see my  Doctor, get my blood 
work and pickup my med's.  My son and is wife and  my 7 month old grandson 
picked me up at Midway.  Doctor told me that I  need not come back for (1) year 
only to pickup same.   She said if  I want to I could see a cancer Doctor 
here in Fort Myers once a year that  way I would be getting my month work 
every 6 months instead of every 3  months.  It's up to me.  So that's good news 
and they put me into  another study with 2 other people plus some in other 
countries.  Good  to here your doing O. K.
 
Greenie
 
 
In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, 
_sheila.a.watson@gmail.com_ (mailto:sheila.a.wat...@gmail.com)   writes:

Jeanie:  


So glad to hear these test results.  Just awesome.  I  remember your past 
struggles.  


I go tomorrow for my sixth month Doctor visit.  Am curious to  see if mine 
are still stable being on 200mgs instead of the 400.  Will be hoping for 
these good blood counts as yours. :)


God Bless,
Suzieq

-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to _CMLHope@googlegroups.com_ 
(mailto:CMLHope@googlegroups.com) 
To  unsubscribe from this group, send email to 
_CMLHope-unsubscribe@googlegroups.com_ 
(mailto:cmlhope-unsubscr...@googlegroups.com) 
For  more options, visit this group at 
http://groups.google.com/group/CMLHope
--- 
You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To unsubscribe from this group and stop receiving  emails from it, send an 
email to _cmlhope+unsubscribe@googlegroups.com_ 
(mailto:cmlhope+unsubscr...@googlegroups.com) .
For  more options, visit https://groups.google.com/groups/opt_out.





-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to _CMLHope@googlegroups.com_ 
(mailto:CMLHope@googlegroups.com) 
To  unsubscribe from this group, send email to 
_CMLHope-unsubscribe@googlegroups.com_ 
(mailto:cmlhope-unsubscr...@googlegroups.com) 
For  more options, visit this group at 
http://groups.google.com/group/CMLHope
--- 
You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To unsubscribe from this group and stop receiving emails  from it, send an 
email to _cmlhope+unsubscribe@googlegroups.com_ 
(mailto:cmlhope+unsubscr...@googlegroups.com) .
For  more options, visit https://groups.google.com/groups/opt_out.






-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to _CMLHope@googlegroups.com_ 
(mailto:CMLHope@googlegroups.com) 
To  unsubscribe from this group, send email to 
_CMLHope-unsubscribe@googlegroups.com_ 
(mailto:cmlhope-unsubscr...@googlegroups.com) 
For  more options, visit this group at 
http://groups.google.com/group/CMLHope
--- 
You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To unsubscribe from this group and stop receiving emails  from it, send an 
email to _cmlhope+unsubscribe@googlegroups.com_ 
(mailto:cmlhope+unsubscr...@googlegroups.com) .
For  more options, visit https://groups.google.com/groups/opt_out.





-- 
-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to _CMLHope@googlegroups.com_ 
(mailto:CMLHope@googlegroups.com) 
To  unsubscribe from this group, send ema

Re: [CMLHope] posting my blood panel results today

2013-05-15 Thread Myvety2k
Hi Jeanie, if you don't mine my asking where in Florida to you  live?  We 
just moved into a 55 and older community a few months ago and we  just love 
here.  5 min. from the gulf, Grace looks for shells while I fish  from shore 
or I take out my kayak.  
 
greenie
 
 
In a message dated 5/15/2013 6:48:45 P.M. Eastern Daylight Time,  
icandoall...@aol.com writes:

That is great Greenie.  I am a Florida Cracker and am a 6th  generation 
Floridian.
I can't even take it when it gets cold here hehe.
You are a lucky; I had to copay 2,500 for my gleevec for a while until I  
got some help with it.  Way to much money, but it saved my life.
Blessings,
Jeanie<3
 
 
In a message dated 5/14/2013 7:48:40 P.M. Eastern Daylight Time,  
myvet...@aol.com writes:

Hi Jeanie,  I was born in Chicago Southshore Hosp. my  family moved to 
Hobart, IN. 2 years later and I lived in the area most of my  life except 4 
years in Springfield, MO.  Moved back to Porter, IN.  two miles from Lake 
Michigan but the winter was hard on me so we moved  again to South Fort Myers, 
FL. 
a little over 2 years ago.  My much,  much, older brother lives in Naples, 
FL.  I miss my son and his family  but I just can't take the cold weather.  
I was in a study at  Northwestern back in 2000 with 200 people nation way 
before Gleevec was  approved by the FDA.  Their was 8 of us I was the only one 
from Indiana  and the others were from the Chicago area.  So I was a very 
lucky  person to get picked back then.  Gleevec was called STI571 back  then, 
It saved my life.
 
You take care of yourself,
 
Greenie
 
 
In a message dated 5/14/2013 6:37:06 P.M. Eastern Daylight Time,  
icandoall...@aol.com writes:

Hi Greenie and thanks so much for sharing.  I have had the  counts go up 
and down just like yours.  I like yogurt and honey; need  to cut down on the 
honey hehe.
I like the raw honey on toast and in yogurt.  I don't buy the  sweet kind 
of yogurt; just plain.
I eat healthy and walk daily; just easy walking nothing hard.  I  love to 
go on cruises and go about 3 times a year thanks to  my  daughters.
Blessings,
Jeanie<3
 
 
In a message dated 5/14/2013 9:12:55 A.M. Eastern Daylight Time,  
myvet...@aol.com writes:

Hi Jeanie, your test results have me beat by a mile  and I started Gleevec 
on Jan. 9th 2000 at 300 mg. each day.  Here  are some of my results.
 
WBC 5.9
RBC 3.71 L
Hemoglobin 12.5 L
Hematocrit 37.3 L
MCV 33.7
MCHC 33.5 
Platelets 176
RDW 13.5
Absolute Neutrophils 3.4
Absolute Lymphocytes 1.8
Glucose 95
Blood Urea Nitrogen 18
Calcium 8.7
Protein Total 6.9
Albumin 4.2
ALT 31
AST 39 H this the 3rd time that it's been this high in  over 13 years.  It 
was 51 a few months ago but the Doctor told me  not to worry about it.
Sodium 140
Chloride 105
Potassium 3.9
Creatinine 1.44 H it's been between 1.1 to 1.4 going  back to 1997 before I 
found out I had CML.  I found out that I had  CML two weeks before 
Christmas 1998.
I would like to get my RBC higher but my Doctor keeps  telling me to just 
leave it be.  Like they say if it's not broken  don't try to fix it.  They 
was a time that when I first started  taking Gleevec my WBC dropped to 2.6 and 
told me not to worry.   Dam it's hard not to worry when things  like this 
happen.  They see these results on other people but we  don't so it's hard to 
compare what is good and what's back.
 
Anyway your tests look good so keep what ever your  doing and don't change 
anything.
 
Take Care,
Greenie
 
 
In a message dated 5/14/2013 8:11:40 A.M. Eastern Daylight Time,  
icandoall...@aol.com writes:

 
WBC 6.2 range 3.8-10.8 thousand/ul
RBC 4.33 range 3.80-5.10 milliion/ul
Hemoglobin 13.5 range 11.7-15.5 g/dl
Hematocrit 41.4 range 35.0-45.0%
MCV 95.5 range 80.0-100.0 fl
MCH 31.2 range 27.0-33.0 pg
MCHC 32.c range 32.0-36.0 g/dl
RDW 13.7 range 11.0-15.0%
Platelet Count 257 range 140-400  thousand/ul
Absolute Neutrophils 3360 range 1500-7600  cells/ul
Absolute Lymphocytes 2362 range  850-3900/cells/ul
Absolute Monocytes 316 range 200-950  cells/ul
Absolute Eosinophils 130 range 15-5--  cells/ul
Absolute Basophils 31 range 0-200  cells/ul

Cholesterol was real high
Sugar was 119 a little high
Creatinine was a little high  0.99 range 0.60-0.93 mg/dl
Everything else was normal
Great report best I've had in a long  time
Blessings
Jeanie<3





 
 
In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time,  
cinem...@yahoo.com writes:

 
your lucky you  get the gleevec for $35. a month larry,good luck in keeping 
that as  low as you can.
i pay $3232. a  month  with mvp...rob.rhggoodrich@ yahoo.com



 
 

From: "icandoall...@aol.com"  
To: cmlhope@googlegroups.com  
Sent: Saturday,  May 4, 2013 11:53 AM
Subject: Re: [CMLHope]  insurance coverage



 
Hi Larry, call the company right away and ask if they cover  it.  Most are 
very helpful.
Jeanie<3
 
 
In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight  Time, 
la...@taper.com writes:

 
Hello group I have a question  .  my current insurance i

Re: [CMLHope] posting my blood panel results today

2013-05-15 Thread ICANDOALLTTC
That is great Greenie.  I am a Florida Cracker and am a 6th generation  
Floridian.
I can't even take it when it gets cold here hehe.
You are a lucky; I had to copay 2,500 for my gleevec for a while until I  
got some help with it.  Way to much money, but it saved my life.
Blessings,
Jeanie<3
 
 
In a message dated 5/14/2013 7:48:40 P.M. Eastern Daylight Time,  
myvet...@aol.com writes:

Hi Jeanie,  I was born in Chicago Southshore Hosp. my  family moved to 
Hobart, IN. 2 years later and I lived in the area most of my  life except 4 
years in Springfield, MO.  Moved back to Porter, IN.  two miles from Lake 
Michigan but the winter was hard on me so we moved  again to South Fort Myers, 
FL. 
a little over 2 years ago.  My much, much,  older brother lives in Naples, 
FL.  I miss my son and his family but I  just can't take the cold weather.  
I was in a study at Northwestern back  in 2000 with 200 people nation way 
before Gleevec was approved by the  FDA.  Their was 8 of us I was the only one 
from Indiana and the others  were from the Chicago area.  So I was a very 
lucky person to get picked  back then.  Gleevec was called STI571 back then, 
It saved my  life.
 
You take care of yourself,
 
Greenie
 
 
In a message dated 5/14/2013 6:37:06 P.M. Eastern Daylight Time,  
icandoall...@aol.com writes:

Hi Greenie and thanks so much for sharing.  I have had the counts  go up 
and down just like yours.  I like yogurt and honey; need to cut  down on the 
honey hehe.
I like the raw honey on toast and in yogurt.  I don't buy the  sweet kind 
of yogurt; just plain.
I eat healthy and walk daily; just easy walking nothing hard.  I  love to 
go on cruises and go about 3 times a year thanks to  my  daughters.
Blessings,
Jeanie<3
 
 
In a message dated 5/14/2013 9:12:55 A.M. Eastern Daylight Time,  
myvet...@aol.com writes:

Hi Jeanie, your test results have me beat by a mile and  I started Gleevec 
on Jan. 9th 2000 at 300 mg. each day.  Here are  some of my results.
 
WBC 5.9
RBC 3.71 L
Hemoglobin 12.5 L
Hematocrit 37.3 L
MCV 33.7
MCHC 33.5 
Platelets 176
RDW 13.5
Absolute Neutrophils 3.4
Absolute Lymphocytes 1.8
Glucose 95
Blood Urea Nitrogen 18
Calcium 8.7
Protein Total 6.9
Albumin 4.2
ALT 31
AST 39 H this the 3rd time that it's been this high in  over 13 years.  It 
was 51 a few months ago but the Doctor told me not  to worry about it.
Sodium 140
Chloride 105
Potassium 3.9
Creatinine 1.44 H it's been between 1.1 to 1.4 going  back to 1997 before I 
found out I had CML.  I found out that I had  CML two weeks before 
Christmas 1998.
I would like to get my RBC higher but my Doctor keeps  telling me to just 
leave it be.  Like they say if it's not broken  don't try to fix it.  They 
was a time that when I first started  taking Gleevec my WBC dropped to 2.6 and 
told me not to worry.   Dam it's hard not to worry when things  like this 
happen.  They see these results on other people but we  don't so it's hard to 
compare what is good and what's back.
 
Anyway your tests look good so keep what ever your doing  and don't change 
anything.
 
Take Care,
Greenie
 
 
In a message dated 5/14/2013 8:11:40 A.M. Eastern Daylight Time,  
icandoall...@aol.com writes:

 
WBC 6.2 range 3.8-10.8 thousand/ul
RBC 4.33 range 3.80-5.10 milliion/ul
Hemoglobin 13.5 range 11.7-15.5 g/dl
Hematocrit 41.4 range 35.0-45.0%
MCV 95.5 range 80.0-100.0 fl
MCH 31.2 range 27.0-33.0 pg
MCHC 32.c range 32.0-36.0 g/dl
RDW 13.7 range 11.0-15.0%
Platelet Count 257 range 140-400  thousand/ul
Absolute Neutrophils 3360 range 1500-7600  cells/ul
Absolute Lymphocytes 2362 range  850-3900/cells/ul
Absolute Monocytes 316 range 200-950  cells/ul
Absolute Eosinophils 130 range 15-5--  cells/ul
Absolute Basophils 31 range 0-200  cells/ul

Cholesterol was real high
Sugar was 119 a little high
Creatinine was a little high 0.99  range 0.60-0.93 mg/dl
Everything else was normal
Great report best I've had in a long time
Blessings
Jeanie<3





 
 
In a message dated 5/10/2013 8:46:55 A.M. Eastern Daylight Time,  
cinem...@yahoo.com writes:

 
your lucky you get  the gleevec for $35. a month larry,good luck in keeping 
that as low as  you can.
i pay $3232. a  month  with mvp...rob.rhggoodrich@ yahoo.com



 
 

From:  "icandoall...@aol.com" 
To: cmlhope@googlegroups.com  
Sent: Saturday, May  4, 2013 11:53 AM
Subject: Re: [CMLHope] insurance  coverage



 
Hi Larry, call the company right away and ask if they cover  it.  Most are 
very helpful.
Jeanie<3
 
 
In a message dated 5/3/2013 12:52:31 P.M. Eastern Daylight Time,  
la...@taper.com writes:

 
Hello group I have a question  .  my current insurance is  united health 
care it cost  35.00 a month for gleevec   .  my company is thinking  of 
switching to anthem blue cross  , I know there are different  plans but is 
anyone 
on gleevec using anthem , does it cover the  gleevec  ???  just trying to be 
prepared .  
 
Larry 
Lex  , ky  
 
God bless all the warriors .   

-- 
-- 
[CMLHope]
A support group of http://cm

Re: [CMLHope] Re: Arthritis ?

2013-05-15 Thread Suzieq
Marty & Patrick:

Thank ya'll both.  This is something to think about and will discuss it 
with my doctor when I see her.  I had to change my appointment from today 
until the 29th.  I have a really bad bout of sinusitis, head cold, coughing 
and hacking and didn't want to go up to the center and expose some of those 
there that might have compromised immune systems.  

I may go up to the grocery store and pick up some Cherry Juice as that is 
suppose to be excellent for gout.  It helps clear the uric acid from your 
system. My husband had to take the Allipurnial once as he had a bout of 
gout.  

Thank y'all so much for your help, prayers, & good wishes.  I've missed 
coming here to visit and talking with all of you.  I won't be so scarce 
again. :)

Keep Looking Up,
Suzieq

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.




Re: [CMLHope] Re: posting my blood panel results today

2013-05-15 Thread bkbarney
Greenie, are you on ponatinib? Let me know. Beth



-Original Message-
From: Myvety2k 
To: cmlhope 
Sent: Tue, May 14, 2013 6:36 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today



Hi Beth, Northwestern University and it's supported by Novartis.  
 
Greenie
 

In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time, 
bkbar...@aol.com writes:
GReenie, glad your cml is doing so well. What new study are you in? Beth



-Original Message-
From: Myvety2k 
To: cmlhope 
Sent: Tue, May 14, 2013 3:56 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today



HI Suzieq,  I went to Chicago on May 1st to see my Doctor, get my blood work 
and pickup my med's.  My son and is wife and my 7 month old grandson picked me 
up at Midway.  Doctor told me that I need not come back for (1) year only to 
pickup same.   She said if I want to I could see a cancer Doctor here in Fort 
Myers once a year that way I would be getting my month work every 6 months 
instead of every 3 months.  It's up to me.  So that's good news and they put me 
into another study with 2 other people plus some in other countries.  Good to 
here your doing O. K.
 
Greenie
 

In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, 
sheila.a.wat...@gmail.com writes:
Jeanie: 


So glad to hear these test results.  Just awesome.  I remember your past 
struggles.  


I go tomorrow for my sixth month Doctor visit.  Am curious to see if mine are 
still stable being on 200mgs instead of the 400. Will be hoping for these good 
blood counts as yours. :)


God Bless,
Suzieq

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 



-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-
 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.
 
 


-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from th

Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon

2013-05-15 Thread Marty Gartenberg
Hi Millie,

sorry it took so long to get back to you. Since I am on dialysis it is
sometimes difficult to do what I want. However we are both fighters so that
is what we know how to do. Even with all of your problems you are still
hanging in there and so am I.

As far as 18's well that is what we are trying to do, just staying alive
and trying to enjoy our lives.

So, it gives me great pleasure to wish you many more 18's

Marty


On Wed, May 8, 2013 at 11:45 AM, C.M. Houtz  wrote:

> **
> *Hi Marty.I did have the scope into my stomach done, and other then
> minor things, nothing showed up.  I did, however, spend a couple of days in
> the hospital as my blood thinner working overtime and I was bleeding
> internallyalso I was completely dehydrated.  The cause is still unknown
> ad I hadn't changed anything and was getting my blood work done on time,
> etc.  Now I find out that there is something going on with my liver and it
> worries me, but they have cut back on some of the medicine that could be
> causing it.  They also put me back on Home Care from our local hospital.
> They are great people, but it keeps me in the house, which is difficult,
> but right now, I can't go anywhere as I'm very weak from everything.  There
> are other things going on too, but I won't go into all of it.  Needless to
> say, I'm hoping to get these things cleared up.  They want to do a
> colonoscopy next, but that's going to wait until my hemorrhoids clear up.
> It seems like I'm getting hit from all sides right now, but I'm keeping
> busy and trying to think positive and that's the best I can do.  I am
> wondering if the Tasigna is causing the liver function problems.  It scares
> me to think of coming off of it, but it might be something I have to
> do.at least for a while.  I'll have to wait and see what my Oncologist
> says.  I see him in  a couple of weeks, but the nurses that will be coming
> in might just talk to him sooner and we'll  go from there.  I've lost about
> 20 lbs and that's not a bad thing.  I know that I'm not eating right, but
> just find it difficult to do that when it makes me sick, so on and on.  I
> am smiling and staying positiveor trying very hard.  Thanks for caring
> and hope I haven't given you to much information.  I'll try to keep
> everyone informed.  Don't know if others have had issues with their liver.
> If so, I'd appreciate hearing from them.  *
> **
> *Thanks for all of your 18's.I really need them now.*
> *Millie*
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/groups/opt_out.
>
>
>

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
-

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroups.com
To unsubscribe from this group, send email to 
cmlhope-unsubscr...@googlegroups.com
For more options, visit this group at http://groups.google.com/group/CMLHope
--- 
You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To unsubscribe from this group and stop receiving emails from it, send an email 
to cmlhope+unsubscr...@googlegroups.com.
For more options, visit https://groups.google.com/groups/opt_out.