Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

[bkbarney via CMLHope]

Dear Maria,

Yes, please keep us postedmany people here, most don't write consistently, 
but they do keep you and everyone else in their prayers...Glad you are here 
with us..Hope you feel better soon. and the platelets normalize and your 
re-uptake of the sprycel goes well.

Warm regards to you and love to everyone. Beth




-Original Message-
From: margood18 via CMLHope 
To: cmlhope 
Sent: Wed, Sep 3, 2014 9:16 am
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 
topic


Maria, sorry to hear about the insurance problems and infection.  Prayers that 
all will go well and your platelets will normalize.  Please let us know how you 
do. 


Marcie



-Original Message-
From: Maria Cashion 
To: cmlhope 
Sent: Tue, Sep 2, 2014 10:24 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 
topic


Hello everyone God bless you all!!! I have been out of touch for a while.  
My situation is still complicated, but rather uneventfull.  I went 
 to my appointment and my oncologist for the day told me that I might need 
another bone marrow aspiration and biopsy soon.  She was worried because my 
platelets went down. The problem is that I have not been able to take my 
sprycel steadily.  I have skipped some days.  Sprycel acts really strongly on 
my platelet count, and I know this is what is happenning.  Apparently, I have 
an infection also running around my system. To make it more interesting, I have 
been out of medication for a whole week due to insurance red tape...
I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
I have an appointment in two weeks...


Well, please take care Love you
Blessings!!! :)
Maria




On Tue, Sep 2, 2014 at 6:17 AM,  wrote:




cmlhope@googlegroups.com 
Google Groups 
 



Topic digest 
View all topics 

painful jaw? - 3 Updates 

painful jaw? 

icandoall...@aol.com: Sep 01 10:38AM -0400 

Hi Marty and thanks, yes I am going to get an antibiotic for it. I have 
been treating it with heat and etc. but no luck. It is something new that I 
have never had before, so it is a worry. I have had strep throat a lot of 
my young adult life, but not in later years, and it had to be treated with 
antibiotics.
How are you?
I am good except for this new pain. Looking forward to the fall.
Blessings,
Jeanie<3


In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time, 
wa2...@gmail.com writes:
 
Hi Jeanie, 
 
 
Having ear infections is not uncommon. However please don't do nothing 
about it because you don't want it to spread if it is an infection. Go get it 
treated by your doctor usually an antibiotic is all that you will need and 
once on it you would start feeling much better in a couple of days.
 
 
Also, having CML and being on any TKI you should look to avoid the sun. 
 
 
I hope that you will feel better real soon.
 
 
18's,
 
 
Marty
 
 
 
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
 
 
Hello to all my cml warriors,
I have been sick; my jaw is sore and it feels like my ear is infected. I 
have been home treating it with hot compresses and etc. Has anyone else 
had this happen? It is very painful.
Yes, I always get really hot if I don't keep my air going. I always spent 
time in the sun, but now this time is very limited.
I had really bad night sweats when I was first dx. I would run a fever, 
take a tylenol and sweat it off. Then it would come back again.
With Sprycel, I don't sweat unless I get really hot. I always thought 
sweat was another way for the body to expel waste products, so it isn't a bad 
thing.
Sorry to hear some can't take the Sprycel, as it has done wonders for me. 
We are all different so we have to listen to our bodies and decide along 
with our doctors advice.
Still worried about the high platelets, but don't get tested until the end 
of Sept.
Thanks for the prayers and all; we need them.
Pray for all in need at this time.
Blessings,
Jeanie<3


In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time, 
_ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net) writes:
 

 
 
 
 


On Monday, August 25, 2014 4:04 PM, NICK WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) > wrote:
 
 
 
 



Thanks, Peter. We think it's part of the body reaction to the medicine, 
too. You're so right! You do run out of steam when that happens.
Elizabeth W.
 
 
 
 



On Monday, August 25, 2014 3:48 PM, Peter <_pkschaub@gmail.com_ 
(mailto:pksch...@gmail.com) > wrote:
 
 
 
 


Hi Elizabeth.
I am on Tasigna. Whenever I do anything involving physical activity, like 
mowing the lawn, I am usually ok for the first 10 or 20 minutes. Then 
almost instantly, I start sweating profusely, especially in the face and around 
the neck and it isn't long after that, when I start running out of steam. 
It was like that too when I was taking Gleevec. So, I figure that this is 
part of the deal.
 
Pe

[CMLHope] Tasigna and kidney stone

[Teresa Tadros]

Hi to everyone. I am on Tasigna for the last 8 years. I develop kidney stones 
lately. I normal drink 10-12 water cups a day and watch my sodium. Did any one 
had this problem while they are on Tasigna. Please advise.

Sent from my iPad

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

[margood18 via CMLHope]

Maria, sorry to hear about the insurance problems and infection.  Prayers that 
all will go well and your platelets will normalize.  Please let us know how you 
do.


Marcie



-Original Message-
From: Maria Cashion 
To: cmlhope 
Sent: Tue, Sep 2, 2014 10:24 pm
Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 
topic


Hello everyone God bless you all!!! I have been out of touch for a while.  
My situation is still complicated, but rather uneventfull.  I went
 to my appointment and my oncologist for the day told me that I might need 
another bone marrow aspiration and biopsy soon.  She was worried because my 
platelets went down. The problem is that I have not been able to take my 
sprycel steadily.  I have skipped some days.  Sprycel acts really strongly on 
my platelet count, and I know this is what is happenning.  Apparently, I have 
an infection also running around my system. To make it more interesting, I have 
been out of medication for a whole week due to insurance red tape...
I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
I have an appointment in two weeks...


Well, please take care Love you
Blessings!!! :)
Maria




On Tue, Sep 2, 2014 at 6:17 AM,   wrote:

  

  

  
cmlhope@googlegroups.com
  
  
Google Groups  
  
  

  


  
  Topic digest
  View all topics  
  
  
painful jaw? -  3 Updates

  
painful jaw?
  
  

  icandoall...@aol.com: Sep 01 10:38AM -0400

Hi Marty and thanks, yes I am going to get an antibiotic for it.  I  
have 
been treating it with heat and etc. but no luck.  It is something new  that I 
have never had before, so it is a worry.  I have had strep throat a  lot of 
my young adult life, but not in later years, and it had to be treated  with 
antibiotics.
How are you?
I am good except for this new pain.  Looking forward to the  fall.
Blessings,
Jeanie<3
 
 
In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:
 
Hi Jeanie,  
 
 
Having ear infections is not uncommon. However please don't do nothing  
about it because you don't want it to spread if it is an infection. Go get it  
treated by your doctor usually an antibiotic is all that you will need and  
once on it you would start feeling much better in a couple of days.
 
 
Also, having CML and being on any TKI you should look to avoid the  sun. 
 
 
I hope that you will feel better real soon.
 
 
18's,
 
 
Marty
 
 
 
On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:
 
 
Hello to all my cml warriors,
I have been sick; my jaw is sore and it feels like my ear is  infected.  I 
have been home treating it with hot compresses and  etc.  Has anyone else 
had this happen?  It is very painful.
Yes, I always get really hot if I don't keep my air going.  I  always spent 
time in the sun, but now this time is very limited.
I had really bad night sweats when I was first dx.  I would run a  fever, 
take a tylenol and sweat it off.  Then it would come back  again.
With Sprycel, I don't sweat unless I get really hot.  I always  thought 
sweat was another way for the body to expel waste products, so it  isn't a bad 
thing.
Sorry to hear some can't take the Sprycel, as it has done wonders for  me.  
We are all different so we have to listen to our bodies and decide  along 
with our doctors advice.
Still worried about the high platelets, but don't get tested until the  end 
of Sept.
Thanks for the prayers and all; we need them.
Pray for all in need at this time.
Blessings,
Jeanie<3
 
 
In a message dated 8/25/2014 5:05:53 P.M. Eastern Daylight Time, 
_ksnwoods@prodigy.net_ (mailto:ksnwo...@prodigy.net)  writes:
 
 
 
 
 
 
 
 
On Monday, August 25, 2014 4:04 PM, NICK  WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) > wrote:
 
 
 
 
 
 
 
Thanks, Peter.  We think it's part of the body reaction to  the medicine, 
too.  You're so right!  You do run out of steam  when that happens.
Elizabeth  W.
 
 
 
 
 
 
 
On Monday, August 25, 2014 3:48 PM, Peter  <_pkschaub@gmail.com_ 
(mailto:pksch...@gmail.com) > wrote:
 
 
 
 
 
 
Hi Elizabeth.
I am on Tasigna. Whenever I do  anything involving physical activity, like 
mowing the lawn, I am usually  ok for the first 10 or 20 minutes. Then 
almost instantly, I start sweating  profusely, especially in the face and 
around 
the neck and it isn't long  after that, when I start running out of steam. 
It was like  that too when I was taking Gleevec. So, I figure that this is 
part of the  deal.
 
Peter
 
On  Monday, August 25, 2014 3:53:00 PM UTC-4, Nick wrote:  
 
 
 
 
 
We've had some hopeful news.  Nick's hemoglobin is  moving 

Re: [CMLHope] Digest for cml...@googlegroups.com - 3 updates in 1 topic

['Skip Duffie' via CMLHope]

.  
 


On Wednesday, September 3, 2014 5:47:22 AM, Marty Gartenberg  
wrote:
  


Hi Richard and Maria,

Richard, whenever we can get out of bed then it really is a good day. When I 
was a young child my father taught me that every day is a good day unless 
someone that we love dies. 

Maria, isn't it a shame that we all have to be dealing with insurance companies 
that may denigh us some life saving medications? This is simply unacceptable. I 
do hope that all of this will be worked out for you and everyone else that this 
may be happening to. 

18's,

Marty





On Wed, Sep 3, 2014 at 12:11 AM, Richard H  wrote:

Hope you receive good news after your CBC.  My ONC has a lab in his office and 
I have my results after about a 1/32 hour wait.  I have Iron Deficient Anemia 
that was found after I was diagnosised with CML.  He doesn't like to have a 
patient do a bone marrow biopsy because it is too painful.  I was on Gleevec 
for 5 + years and off for almost 6.  In Oct. I will do the mutation testing as 
I have something happening in my medical life.  I have several things can be 
causing my blood test to be out of sync, so we must do some elinination testing 
to find what tand who should be the lead Dr. to manage treatment.  
>
>
>My favorite response to the question "How are you doing?".  "I stood up this 
>morning looked around and said "Thank you God.  Its going to be a great day.  
>I hope you are having one also." 
>Richard H. 
>
>On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
>Hello everyone God bless you all!!! I have been out of touch for a while.  
>My situation is still complicated, but rather uneventfull.  I went
>> to my appointment and my oncologist for the day told me that I might need 
>> another bone marrow aspiration and biopsy soon.  She was worried because my 
>> platelets went down. The problem is that I have not been able to take my 
>> sprycel steadily.  I have skipped some days.  Sprycel acts really strongly 
>> on my platelet count, and I know this is what is happenning.  Apparently, I 
>> have an infection also running around my system. To make it more 
>> interesting, I have been out of medication for a whole week due to insurance 
>> red tape... 
>>I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
>>I have an appointment in two weeks...
>>
>>
>>Well, please take care Love you
>>Blessings!!! :) 
>>Maria
>>
>>
>>
>>On Tue, Sep 2, 2014 at 6:17 AM,  wrote:
>>
>>cmlhope@googlegroups.com   Google Groups  
>>>Topic digest 
>>>View all topics   
>>> * painful jaw? - 3 Updates
>>>painful jaw?   
>>>icando...@aol.com: Sep 01 10:38AM -0400  
>>>
>>>Hi Marty and thanks, yes I am going to get an antibiotic for it.  I  have 
>>>been treating it with heat and etc. but no luck.  It is something new  that 
>>>I 
>>>have never had before, so it is a worry.  I have had strep throat a  lot of 
>>>my young adult life, but not in later years, and it had to be treated  with 
>>>antibiotics.
>>>How are you?
>>>I am good except for this new pain.  Looking forward to the  fall.
>>>Blessings,
>>>Jeanie<3
>>>
>>>
>>>In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time, 
>>>wa2...@gmail.com writes:
>>> 
>>>Hi Jeanie, 
>>> 
>>> 
>>>Having ear infections is not uncommon. However please don't do nothing 
>>>about it because you don't want it to spread if it is an infection. Go get 
>>>it 
>>>treated by your doctor usually an antibiotic is all that you will need and 
>>>once on it you would start feeling much better in a couple of days.
>>> 
>>> 
>>>Also, having CML and being on any TKI you should look to avoid the  sun. 
>>> 
>>> 
>>>I hope that you will feel better real soon.
>>> 
>>> 
>>>18's,
>>> 
>>> 
>>>Marty
>>> 
>>> 
>>> 
>>>On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via  CMLHope 
>>><_cmlhope@googlegroups.com_ (mailto:cml...@googlegroups.com) > wrote:
>>> 
>>> 
>>>Hello to all my cml warriors,
>>>I have been sick; my jaw is sore and it feels like my ear is  infected.  I 
>>>have been home treating it with hot compresses and  etc.  Has anyone else 
>>>had this happen?  It is very painful.
>>>Yes, I always get really hot if I don't keep my air going.  I  always spent 
>>>time in the sun, but now this time is very limited.
>>>I had really bad night sweats when I was first dx.  I would run a  fever, 
>>>take a tylenol and sweat it off.  Then it would come back  again.
>>>With Sprycel, I don't sweat unless I get really hot.  I always  thought 
>>>sweat was another way for the body to expel waste products, so it  isn't a 
>>>bad 
>>>thing.
>>>Sorry to hear some can't take the Sprycel, as it has done wonders for  me. 
>>>We are all different so we have to listen to our bodies and decide  along 
>>>with our doctors advice.
>>>Still worried about the high platelets, but don't get tested until the  end 
>>>of Sept.
>>>Thanks for the prayers and all; we need them.
>>>Pray for all in nee

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

[Marty Gartenberg]

Maria, good luck with your blood test.

Here are some words to live by...

EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF
CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN
YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET
(MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET.

WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF
MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING
INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU
THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY.

EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE
BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE
SUCCESSFUL OUTCOME...

FOCUS...

Please look me up. Google Marty Gartenberg. Open CML hope then go to “The
Window”


18's


Marty


On Wed, Sep 3, 2014 at 8:22 AM, Maria Cashion 
wrote:

> Thanks both of you, Richard and Marty for your concern!!! I am doing OK
> and plan to have a CBC done in an hour or so.  I will start back on my
> Sprycel as soon as they draw the blood!!!
>
> Life is beautiful no matter what.  As I look back, I know that I am lucky
> and strong, and I wil never give up!
>
> Love you all!!!
>
> Maria
>
>
> On Wed, Sep 3, 2014 at 6:14 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>   Google
>> Groups
>> 
>> 
>>   Topic digest
>>  View all topics
>> 
>>
>>-  Digest for cmlhope@googlegroups.com - 3 updates in 1 topic
>><#1483b76ff50cfc6b_1483b01cae191b1e_group_thread_0> - 3 Updates
>>
>>   Digest for cmlhope@googlegroups.com - 3 updates in 1 topic
>> 
>>   Maria Cashion : Sep 02 10:24PM -0400
>>
>> Hello everyone God bless you all!!! I have been out of touch for a
>> while. My situation is still complicated, but rather uneventfull. I went
>> to my appointment and my oncologist for the day told me that I might need
>> another bone marrow aspiration and biopsy soon. She was worried because my
>> platelets went down. The problem is that I have not been able to take my
>> sprycel steadily. I have skipped some days. Sprycel acts really strongly
>> on my platelet count, and I know this is what is happenning. Apparently, I
>> have an infection also running around my system. To make it more
>> interesting, I have been out of medication for a whole week due to
>> insurance red tape...
>> I will resume my Sprycel 70 mcg dose daily tomorrow after I do another
>> CBC.
>> I have an appointment in two weeks...
>>
>> Well, please take care Love you
>> Blessings!!! :)
>> Maria
>>
>>
>>   Richard H : Sep 02 09:11PM -0700
>>
>> Hope you receive good news after your CBC. My ONC has a lab in his office
>> and I have my results after about a 1/32 hour wait. I have Iron Deficient
>> Anemia that was found after I was diagnosised with CML. He doesn't like
>> to
>> have a patient do a bone marrow biopsy because it is too painful. I was
>> on
>> Gleevec for 5 + years and off for almost 6. In Oct. I will do the
>> mutation
>> testing as I have something happening in my medical life. I have several
>> things can be causing my blood test to be out of sync, so we must do some
>> elinination testing to find what tand who should be the lead Dr. to
>> manage
>> treatment.
>>
>> My favorite response to the question "How are you doing?". "I stood up
>> this morning looked around and said "Thank you God. Its going to be a
>> great day. I hope you are having one also."
>> Richard H.
>>
>> On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
>>   Marty Gartenberg : Sep 03 04:47AM -0400
>>
>> Hi Richard and Maria,
>>
>> Richard, whenever we can get out of bed then it really is a good day. When
>> I was a young child my father taught me that every day is a good day
>> unless
>> someone that we love dies.
>>
>> Maria, isn't it a shame that we all have to be dealing with insurance
>> companies that may denigh us some life saving medications? This is simply
>> unacceptable. I do hope that all of this will be worked out for you and
>> everyone else that this may be happening to.
>>
>> 18's,
>>
>> Marty
>>
>>
>>
>>
>> On Wed, Sep 3, 2014 at 12:11 AM, Richard H 
>> wrote:
>>
>>   Back to top <#1483b76ff50cfc6b_1483b01cae191b1e_digest_top>
>>You received this digest because you're subscribed to updates for
>> this group. You can change your settings on the group membership page
>> 
>> .
>> To u

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

[Maria Cashion]

Thanks both of you, Richard and Marty for your concern!!! I am doing OK and
plan to have a CBC done in an hour or so.  I will start back on my Sprycel
as soon as they draw the blood!!!

Life is beautiful no matter what.  As I look back, I know that I am lucky
and strong, and I wil never give up!

Love you all!!!

Maria


On Wed, Sep 3, 2014 at 6:14 AM,  wrote:

> cmlhope@googlegroups.com
> 
>   Google
> Groups
> 
> 
>   Topic digest
>  View all topics
> 
>
>-  Digest for cmlhope@googlegroups.com - 3 updates in 1 topic
><#1483b01cae191b1e_group_thread_0> - 3 Updates
>
>   Digest for cmlhope@googlegroups.com - 3 updates in 1 topic
> 
>   Maria Cashion : Sep 02 10:24PM -0400
>
> Hello everyone God bless you all!!! I have been out of touch for a
> while. My situation is still complicated, but rather uneventfull. I went
> to my appointment and my oncologist for the day told me that I might need
> another bone marrow aspiration and biopsy soon. She was worried because my
> platelets went down. The problem is that I have not been able to take my
> sprycel steadily. I have skipped some days. Sprycel acts really strongly
> on my platelet count, and I know this is what is happenning. Apparently, I
> have an infection also running around my system. To make it more
> interesting, I have been out of medication for a whole week due to
> insurance red tape...
> I will resume my Sprycel 70 mcg dose daily tomorrow after I do another CBC.
> I have an appointment in two weeks...
>
> Well, please take care Love you
> Blessings!!! :)
> Maria
>
>
>   Richard H : Sep 02 09:11PM -0700
>
> Hope you receive good news after your CBC. My ONC has a lab in his office
> and I have my results after about a 1/32 hour wait. I have Iron Deficient
> Anemia that was found after I was diagnosised with CML. He doesn't like to
> have a patient do a bone marrow biopsy because it is too painful. I was on
> Gleevec for 5 + years and off for almost 6. In Oct. I will do the mutation
> testing as I have something happening in my medical life. I have several
> things can be causing my blood test to be out of sync, so we must do some
> elinination testing to find what tand who should be the lead Dr. to manage
> treatment.
>
> My favorite response to the question "How are you doing?". "I stood up
> this morning looked around and said "Thank you God. Its going to be a
> great day. I hope you are having one also."
> Richard H.
>
> On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
>   Marty Gartenberg : Sep 03 04:47AM -0400
>
> Hi Richard and Maria,
>
> Richard, whenever we can get out of bed then it really is a good day. When
> I was a young child my father taught me that every day is a good day unless
> someone that we love dies.
>
> Maria, isn't it a shame that we all have to be dealing with insurance
> companies that may denigh us some life saving medications? This is simply
> unacceptable. I do hope that all of this will be worked out for you and
> everyone else that this may be happening to.
>
> 18's,
>
> Marty
>
>
>
>
> On Wed, Sep 3, 2014 at 12:11 AM, Richard H 
> wrote:
>
>   Back to top <#1483b01cae191b1e_digest_top>
>You received this digest because you're subscribed to updates for this
> group. You can change your settings on the group membership page
> 
> .
> To unsubscribe from this group and stop receiving emails from it send an
> email to cmlhope+unsubscr...@googlegroups.com.
>

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Re: [CMLHope] Digest for cml...@googlegroups.com - 3 updates in 1 topic

[Marty Gartenberg]

Hi Richard and Maria,

Richard, whenever we can get out of bed then it really is a good day. When
I was a young child my father taught me that every day is a good day unless
someone that we love dies.

Maria, isn't it a shame that we all have to be dealing with insurance
companies that may denigh us some life saving medications? This is simply
unacceptable. I do hope that all of this will be worked out for you and
everyone else that this may be happening to.

18's,

Marty




On Wed, Sep 3, 2014 at 12:11 AM, Richard H 
wrote:

> Hope you receive good news after your CBC.  My ONC has a lab in his office
> and I have my results after about a 1/32 hour wait.  I have Iron Deficient
> Anemia that was found after I was diagnosised with CML.  He doesn't like to
> have a patient do a bone marrow biopsy because it is too painful.  I was on
> Gleevec for 5 + years and off for almost 6.  In Oct. I will do the mutation
> testing as I have something happening in my medical life.  I have several
> things can be causing my blood test to be out of sync, so we must do some
> elinination testing to find what tand who should be the lead Dr. to manage
> treatment.
>
> My favorite response to the question "How are you doing?".  "I stood up
> this morning looked around and said "Thank you God.  Its going to be a
> great day.  I hope you are having one also."
> Richard H.
>
> On Tuesday, September 2, 2014 9:24:59 PM UTC-5, Maria Cashion wrote:
>>
>> Hello everyone God bless you all!!! I have been out of touch for a
>> while.  My situation is still complicated, but rather uneventfull.  I went
>>  to my appointment and my oncologist for the day told me that I might
>> need another bone marrow aspiration and biopsy soon.  She was worried
>> because my platelets went down. The problem is that I have not been able to
>> take my sprycel steadily.  I have skipped some days.  Sprycel acts really
>> strongly on my platelet count, and I know this is what is happenning.
>>  Apparently, I have an infection also running around my system. To make it
>> more interesting, I have been out of medication for a whole week due to
>> insurance red tape...
>> I will resume my Sprycel 70 mcg dose daily tomorrow after I do another
>> CBC.
>> I have an appointment in two weeks...
>>
>> Well, please take care Love you
>> Blessings!!! :)
>> Maria
>>
>>
>> On Tue, Sep 2, 2014 at 6:17 AM,  wrote:
>>
>> cmlhope@googlegroups.com
>> 
>>   Google
>> Groups
>> 
>> 
>>   Topic digest
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>> 
>>
>>-  painful jaw?
>>
>> <#14839b5df3e5bae2_CAKVoHpA_0+iEwPLqE3yY+XsaF7423FEw3LTLs2qS_V4Gzvr0Kw@mail.gmail.com_14835de497b9c0b6_group_thread_0>
>>- 3 Updates
>>
>>   painful jaw?
>> 
>>   icando...@aol.com: Sep 01 10:38AM -0400
>>
>> Hi Marty and thanks, yes I am going to get an antibiotic for it. I have
>> been treating it with heat and etc. but no luck. It is something new that
>> I
>> have never had before, so it is a worry. I have had strep throat a lot of
>> my young adult life, but not in later years, and it had to be treated
>> with
>> antibiotics.
>> How are you?
>> I am good except for this new pain. Looking forward to the fall.
>> Blessings,
>> Jeanie<3
>>
>>
>> In a message dated 8/31/2014 11:31:20 A.M. Eastern Daylight Time,
>> wa2...@gmail.com writes:
>>
>> Hi Jeanie,
>>
>>
>> Having ear infections is not uncommon. However please don't do nothing
>> about it because you don't want it to spread if it is an infection. Go
>> get it
>> treated by your doctor usually an antibiotic is all that you will need
>> and
>> once on it you would start feeling much better in a couple of days.
>>
>>
>> Also, having CML and being on any TKI you should look to avoid the sun.
>>
>>
>> I hope that you will feel better real soon.
>>
>>
>> 18's,
>>
>>
>> Marty
>>
>>
>>
>> On Sun, Aug 31, 2014 at 11:06 AM, ICANDOALLTTC via CMLHope
>> <_cmlhope@googlegroups.com_ (mailto:cml...@googlegroups.com) > wrote:
>>
>>
>> Hello to all my cml warriors,
>> I have been sick; my jaw is sore and it feels like my ear is infected. I
>> have been home treating it with hot compresses and etc. Has anyone else
>> had this happen? It is very painful.
>> Yes, I always get really hot if I don't keep my air going. I always spent
>> time in the sun, but now this time is very limited.
>> I had really bad night sweats when I was first dx. I would run a fever,
>> take a tylenol and sweat it off. Then it would come back again.
>> With Sprycel, I don't sweat unless I get really hot. I always thought
>> sweat was another way for the body to exp