Re: [CMLHope] Am I strong? Are we all strong? Read on...
Richard H. I agree, well said. I started Gleevec the first week in Janurary 2000 16 years ago and I'm still pumping blood. Of course the way these people drive here in Southwest Florida it's like driving in the Indy 500 with blindfolds on. greenie In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Marti it is good to hear your (voice) and see you here. I agree with you and Jeanie. I'll start my 14th year the first of March with this wonderful group of loving and caring friends. This history we give can only be given thru leadership of having been there fighting the fight. But leadership always needs a significant special leader (General, Admiral) too narrow our path so that we can win the current battle. Thanks for keeping us looking up to the sunrise of a new day and helping wash away all the doubt, fear, and other dark thoughts that detract us from fulfilling this life we have on Planet Earth. 18's Richard H. On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote: Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help each other when we can. This makes my 12 th year and I joined the group early on. And yes we are all leaders in our own way and pioneers with the tkis so that've can give our knowledge to the new warriors. I fight with faith and pills and I am a Christian. Much love. ππβ€οΈππ My Motto: Faith and Pills Jeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <_wa2...@gmail.com_ (javascript:) > wrote: For some reason my message did not come out so I am trying it once more, I do hope it does come through This is directed to Sandi and everyone else. Dearest Sandi, and I really mean that, but for a very special reason. It is not the words that I wright but it is my meaning. You and everyone else here are only here because all of us are meant to be here. Am I strong well maybe I am or I probably wouldn't be here right now. My question to you and everyone else that may be reading this are you also strong. You know what? You have to be because you are battling an awful disease, but my friends just like me am I still here, and are you. You bet we are. So no matter how strong I may be and no matter how strong any of you may be, guess what? We are still here together and until "uncle GOD" determinants otherwise this is where we stay. How many times have I been at deaths door? Now look at what you have. You have life, just as I do and do you know why it's really very simple because about a bit more then a decade ago some mortal man discovered a pill that changed the course of your lives. You, all of you are living proof. So I am not what anyone thinks about me because your living proof just as I am we are all strong in spite of what you think. Am I a leader of this group perhaps I am, however what about each and everyone else. Please try to understand people that are in a group are the power of that group. OK so lately I have a little more activity in my life health wise then normal (whatever that may be) So please lets everyone stop calling me the leader of this group because we all are some a little more some a little bit less but when we all come together we are a force to recon with. Remember 18's Have you ever noticed that I have never left it out before? Who knows maybe there is a reason. 18's is life, at least in my book. Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to _CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope
[CMLHope] blood vessels
Do any of you have problem with legs blood vessels because of Gleevec? From: Myvety2k via CMLHope Sent: Saturday, January 16, 2016 1:39 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... Richard H. I agree, well said. I started Gleevec the first week in Janurary 2000 16 years ago and I'm still pumping blood. Of course the way these people drive here in Southwest Florida it's like driving in the Indy 500 with blindfolds on. greenie In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Marti it is good to hear your (voice) and see you here. I agree with you and Jeanie. I'll start my 14th year the first of March with this wonderful group of loving and caring friends. This history we give can only be given thru leadership of having been there fighting the fight. But leadership always needs a significant special leader (General, Admiral) too narrow our path so that we can win the current battle. Thanks for keeping us looking up to the sunrise of a new day and helping wash away all the doubt, fear, and other dark thoughts that detract us from fulfilling this life we have on Planet Earth. 18's Richard H. On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote: Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help each other when we can. This makes my 12 th year and I joined the group early on. And yes we are all leaders in our own way and pioneers with the tkis so that've can give our knowledge to the new warriors. I fight with faith and pills and I am a Christian. Much love. ππβ€οΈππ My Motto: Faith and Pills Jeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 13, 2016, at 12:38 AM, Marty Gartenberg wrote: For some reason my message did not come out so I am trying it once more, I do hope it does come through This is directed to Sandi and everyone else. Dearest Sandi, and I really mean that, but for a very special reason. It is not the words that I wright but it is my meaning. You and everyone else here are only here because all of us are meant to be here. Am I strong well maybe I am or I probably wouldn't be here right now. My question to you and everyone else that may be reading this are you also strong. You know what? You have to be because you are battling an awful disease, but my friends just like me am I still here, and are you. You bet we are. So no matter how strong I may be and no matter how strong any of you may be, guess what? We are still here together and until "uncle GOD" determinants otherwise this is where we stay. How many times have I been at deaths door? Now look at what you have. You have life, just as I do and do you know why it's really very simple because about a bit more then a decade ago some mortal man discovered a pill that changed the course of your lives. You, all of you are living proof. So I am not what anyone thinks about me because your living proof just as I am we are all strong in spite of what you think. Am I a leader of this group perhaps I am, however what about each and everyone else. Please try to understand people that are in a group are the power of that group. OK so lately I have a little more activity in my life health wise then normal (whatever that may be) So please lets everyone stop calling me the leader of this group because we all are some a little more some a little bit less but when we all come together we are a force to recon with. Remember 18's Have you ever noticed that I have never left it out before? Who knows maybe there is a reason. 18's is life, at least in my book. Marty -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to cml...@googlegroups.com To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+u...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -
[CMLHope] Fwd: hi rob can you put me back on the cmlhope mailing list? Thanks Jeanie
Here is our Rob, the founder and leader of our Cml group. From: icandoall...@aol.com To: roblibe...@gmail.com Sent: 5/13/2014 6:03:03 P.M. Eastern Standard Time Subj: Re: hi rob can you put me back on the cmlhope mailing list? Thanks Jeanie Thanks so much and thanks for this list. Great job! Blessings, Jeanie<3 In a message dated 5/7/2014 9:29:12 P.M. Eastern Daylight Time, roblibe...@gmail.com writes: I added you. On Wed, May 7, 2014 at 4:20 PM, <_ICANDOALLTTC@aol.com_ (mailto:icandoall...@aol.com) > wrote: -- Robert W. Neill, Jr. Voice/Text 601-519-0075 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] rob's message long ago
I wanted to let all of you in the CML group know that my father Robert Wood Neill has passed away. Many of you who are long term members know that the CML group was started many years in the days long before Gleevec when my mother Laquita was diagnosed with CML. In a message dated 1/16/2016 7:39:14 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Richard H. I agree, well said. I started Gleevec the first week in Janurary 2000 16 years ago and I'm still pumping blood. Of course the way these people drive here in Southwest Florida it's like driving in the Indy 500 with blindfolds on. greenie In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Marti it is good to hear your (voice) and see you here. I agree with you and Jeanie. I'll start my 14th year the first of March with this wonderful group of loving and caring friends. This history we give can only be given thru leadership of having been there fighting the fight. But leadership always needs a significant special leader (General, Admiral) too narrow our path so that we can win the current battle. Thanks for keeping us looking up to the sunrise of a new day and helping wash away all the doubt, fear, and other dark thoughts that detract us from fulfilling this life we have on Planet Earth. 18's Richard H. On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote: Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help each other when we can. This makes my 12 th year and I joined the group early on. And yes we are all leaders in our own way and pioneers with the tkis so that've can give our knowledge to the new warriors. I fight with faith and pills and I am a Christian. Much love. ππβ€οΈππ My Motto: Faith and Pills Jeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <_wa2...@gmail.com_ (javascript:) > wrote: For some reason my message did not come out so I am trying it once more, I do hope it does come through This is directed to Sandi and everyone else. Dearest Sandi, and I really mean that, but for a very special reason. It is not the words that I wright but it is my meaning. You and everyone else here are only here because all of us are meant to be here. Am I strong well maybe I am or I probably wouldn't be here right now. My question to you and everyone else that may be reading this are you also strong. You know what? You have to be because you are battling an awful disease, but my friends just like me am I still here, and are you. You bet we are. So no matter how strong I may be and no matter how strong any of you may be, guess what? We are still here together and until "uncle GOD" determinants otherwise this is where we stay. How many times have I been at deaths door? Now look at what you have. You have life, just as I do and do you know why it's really very simple because about a bit more then a decade ago some mortal man discovered a pill that changed the course of your lives. You, all of you are living proof. So I am not what anyone thinks about me because your living proof just as I am we are all strong in spite of what you think. Am I a leader of this group perhaps I am, however what about each and everyone else. Please try to understand people that are in a group are the power of that group. OK so lately I have a little more activity in my life health wise then normal (whatever that may be) So please lets everyone stop calling me the leader of this group because we all are some a little more some a little bit less but when we all come together we are a force to recon with. Remember 18's Have you ever noticed that I have never left it out before? Who knows maybe there is a reason. 18's is life, at least in my book. Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to _CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+u...@cmlhope+u...@https://groups.google.com/d/https:_ (https://gr
Re: [CMLHope] rob's message long ago
I am very sorry to hear the news of the passing of your Father Robert. greenie Fort Myers, FL. In a message dated 1/16/2016 8:50:24 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: I wanted to let all of you in the CML group know that my father Robert Wood Neill has passed away. Many of you who are long term members know that the CML group was started many years in the days long before Gleevec when my mother Laquita was diagnosed with CML. In a message dated 1/16/2016 7:39:14 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Richard H. I agree, well said. I started Gleevec the first week in Janurary 2000 16 years ago and I'm still pumping blood. Of course the way these people drive here in Southwest Florida it's like driving in the Indy 500 with blindfolds on. greenie In a message dated 1/16/2016 12:47:03 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Marti it is good to hear your (voice) and see you here. I agree with you and Jeanie. I'll start my 14th year the first of March with this wonderful group of loving and caring friends. This history we give can only be given thru leadership of having been there fighting the fight. But leadership always needs a significant special leader (General, Admiral) too narrow our path so that we can win the current battle. Thanks for keeping us looking up to the sunrise of a new day and helping wash away all the doubt, fear, and other dark thoughts that detract us from fulfilling this life we have on Planet Earth. 18's Richard H. On Friday, January 15, 2016 at 6:03:03 AM UTC-6, Icandoallttc wrote: Hi Marty and good to hear from you. We were wondering what happened. I believe the founder and narrator of this group is Rob. His mother had leukemia. Are you there Rob??? Most of us have been here a long time. I believe the group was once a yahoo group. We are all warriors and help each other when we can. This makes my 12 th year and I joined the group early on. And yes we are all leaders in our own way and pioneers with the tkis so that've can give our knowledge to the new warriors. I fight with faith and pills and I am a Christian. Much love. ππβ€οΈππ My Motto: Faith and Pills Jeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jan 13, 2016, at 12:38 AM, Marty Gartenberg <_wa2...@gmail.com_ (javascript:) > wrote: For some reason my message did not come out so I am trying it once more, I do hope it does come through This is directed to Sandi and everyone else. Dearest Sandi, and I really mean that, but for a very special reason. It is not the words that I wright but it is my meaning. You and everyone else here are only here because all of us are meant to be here. Am I strong well maybe I am or I probably wouldn't be here right now. My question to you and everyone else that may be reading this are you also strong. You know what? You have to be because you are battling an awful disease, but my friends just like me am I still here, and are you. You bet we are. So no matter how strong I may be and no matter how strong any of you may be, guess what? We are still here together and until "uncle GOD" determinants otherwise this is where we stay. How many times have I been at deaths door? Now look at what you have. You have life, just as I do and do you know why it's really very simple because about a bit more then a decade ago some mortal man discovered a pill that changed the course of your lives. You, all of you are living proof. So I am not what anyone thinks about me because your living proof just as I am we are all strong in spite of what you think. Am I a leader of this group perhaps I am, however what about each and everyone else. Please try to understand people that are in a group are the power of that group. OK so lately I have a little more activity in my life health wise then normal (whatever that may be) So please lets everyone stop calling me the leader of this group because we all are some a little more some a little bit less but when we all come together we are a force to recon with. Remember 18's Have you ever noticed that I have never left it out before? Who knows maybe there is a reason. 18's is life, at least in my book. Marty -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CML...@googlegroups.com_ (javascript:) To unsubscribe from this group, send email to _CMLHope-u...@CMLHope-u...@http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscr
[CMLHope] CML Group and Web Site
Several were asking if I still manage the group. I still manage the group and the CMLHope web site. We recently updated the web site http://cmlhope.com to make it easier to use. We have weekly, sometimes daily posts, on new articles about CML. In addition to the group on GoogleGroups, we also have a Facebook group which has about 500 members and we now have a Twitter account where articles are posted daily which reach people who are not members of the Google or Facebook groups. Rob -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] CML Group and Web Site
Thanks Rob. My Motto: Faith and Pillsβ€οΈ With πJeanie ππ18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Jan 16, 2016, at 12:09 PM, Robert W Neill Jr wrote: > > Several were asking if I still manage the group. I still manage the > group and the CMLHope web site. We recently updated the web site > http://cmlhope.com to make it easier to use. > > We have weekly, sometimes daily posts, on new articles about CML. In > addition to the group on GoogleGroups, we also have a Facebook group > which has about 500 members and we now have a Twitter account where > articles are posted daily which reach people who are not members of > the Google or Facebook groups. > > Rob > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Am I strong? Are we all strong? Read on...
Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not happily. So many side effects. Makes you wonder if it's worth it Sent from my iPhone > On Jan 16, 2016, at 12:23 AM, Pete Pabon wrote: > > Diagnosed 1999 > Gleevec 2000 > 15 years still no phillies found > > > Date: Fri, 15 Jan 2016 10:18:43 -0500 > Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... > From: wa2...@gmail.com > To: cmlhope@googlegroups.com > > Well now I got a much refreshing title. Being that everyone is a leader of > this group so does it go to help all of us together. > > You know that it's been so long that I forgot about Rob. I do hope to hear > from him. I also had no idea about his mother having leukemia and I hope that > she is doing well. > > So many new things have happened since we were members and as I remember this > group was in fact a yahoo group but I just can't put my finger if it was for > sure. Some time has passed and my memory has not been my greatest asset so I > would really like to hear from Rob. > > Just think look at some of the people that were still around then (like > yourself) that are still around now. Hey what ever happened to CML will be > only be around for 5 years until the "Lukie Dragon" will come and get you. > > Do you remember that saying a very long time ago? Well that for sure has has > changed with all of these advancements using these TKI's and what is coming > down the pipe next. > > I'm telling you it will be that, no matter what you are and what you believe > in there will come a time near to now that this "Dragon" will meet it's > demise. > > You mark my words. > > 18's, > > Marty > > On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope > wrote: > Hi Marty and good to hear from you. We were wondering what happened. > I believe the founder and narrator of this group is Rob. His mother had > leukemia. Are you there Rob??? > Most of us have been here a long time. I believe the group was once a yahoo > group. > We are all warriors and help each other when we can. > This makes my 12 th year and I joined the group early on. > And yes we are all leaders in our own way and pioneers with the tkis so > that've can give our knowledge to the new warriors. > I fight with faith and pills and I am a Christian. > Much love. > οΈ > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 13, 2016, at 12:38 AM, Marty Gartenberg wrote: > > For some reason my message did not come out so I am trying it once more, I do > hope it does come through > > This is directed to Sandi and everyone else. > > Dearest Sandi, and I really mean that, but for a very special reason. It is > not the words that I wright but it is my meaning. You and everyone else here > are only here because all of us are meant to be here. Am I strong well maybe > I am or I probably wouldn't be here right now. > > > My question to you and everyone else that may be reading this are you also > strong. You know what? You have to be because you are battling an awful > disease, but my friends just like me am I still here, and are you. You bet we > are. > > > > So no matter how strong I may be and no matter how strong any of you may be, > guess what? We are still here together and until "uncle GOD" determinants > otherwise this is where we stay. > > > How many times have I been at deaths door? Now look at what you have. You > have life, just as I do and do you know why it's really very simple because > about a bit more then a decade ago some mortal man discovered a pill that > changed the course of your lives. You, all of you are living proof. > > > > So I am not what anyone thinks about me because your living proof just as I > am we are all strong in spite of what you think. > > > Am I a leader of this group perhaps I am, however what about each and > everyone else. Please try to understand people that are in a group are the > power of that group. > > > OK so lately I have a little more activity in my life health wise then normal > (whatever that may be) > > > > So please lets everyone stop calling me the leader of this group because we > all are some a little more some a little bit less but when we all come > together we are a force to recon with. > > > Remember 18's Have you ever noticed that I have never left it out before? Who > knows maybe there is a reason. 18's is life, at least in my book. > > > Marty > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cm
Re: [CMLHope] Am I strong? Are we all strong? Read on...
Congratulations for attaining the first year. None of this group want to be a part of this group. We joined to learn what we about this thing called CML. Yes most of us have many side effects of these heavy drugs. The only thing we can do is try to improve our outlook to the sunny side of life. If we can do this then the side effects (little obstacles) will slide into the background. I woke this morning and the sun was shining, What a great day it has been. When the clouds come that only means we will get some moisture to make the flowers show off their glory in their time. I do have several issues that are major, but it is not time for me to quit. As our Marty states 18's (that means life) Richard H. On Saturday, January 16, 2016 at 12:27:27 PM UTC-6, candles wrote: > > Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not > happily. So many side effects. Makes you wonder if it's worth it > > Sent from my iPhone > > On Jan 16, 2016, at 12:23 AM, Pete Pabon > > wrote: > > *Diagnosed 1999* > *Gleevec 2000* > > *15 years still no phillies found* > > -- > Date: Fri, 15 Jan 2016 10:18:43 -0500 > Subject: Re: [CMLHope] Am I strong? Are we all strong? Read on... > From: wa2...@gmail.com > To: cml...@googlegroups.com > > Well now I got a much refreshing title. Being that everyone is a leader of > this group so does it go to help all of us together. > > You know that it's been so long that I forgot about Rob. I do hope to hear > from him. I also had no idea about his mother having leukemia and I hope > that she is doing well. > > So many new things have happened since we were members and as I remember > this group was in fact a yahoo group but I just can't put my finger if it > was for sure. Some time has passed and my memory has not been my greatest > asset so I would really like to hear from Rob. > > Just think look at some of the people that were still around then (like > yourself) that are still around now. Hey what ever happened to CML will be > only be around for 5 years until the "Lukie Dragon" will come and get you. > > > Do you remember that saying a very long time ago? Well that for sure has > has changed with all of these advancements using these TKI's and what is > coming down the pipe next. > > I'm telling you it will be that, no matter what you are and what you > believe in there will come a time near to now that this "Dragon" will meet > it's demise. > > You mark my words. > > 18's, > > Marty > > On Fri, Jan 15, 2016 at 7:02 AM, 'Icandoallttc' via CMLHope < > cml...@googlegroups.com > wrote: > > Hi Marty and good to hear from you. We were wondering what happened. > I believe the founder and narrator of this group is Rob. His mother had > leukemia. Are you there Rob??? > Most of us have been here a long time. I believe the group was once a > yahoo group. > We are all warriors and help each other when we can. > This makes my 12 th year and I joined the group early on. > And yes we are all leaders in our own way and pioneers with the tkis so > that've can give our knowledge to the new warriors. > I fight with faith and pills and I am a Christian. > Much love. > [image: Kiss mark][image: Smiling Face with Halo][image: Heavy black > heart]οΈ[image: Heart with ribbon][image: Growing heart] > > My Motto: Faith and Pills > Jeanie [image: Fish][image: Fish]18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 13, 2016, at 12:38 AM, Marty Gartenberg > wrote: > > For some reason my message did not come out so I am trying it once more, I > do hope it does come through > > This is directed to Sandi and everyone else. > > Dearest Sandi, and I really mean that, but for a very special reason. It > is not the words that I wright but it is my meaning. You and everyone else > here are only here because all of us are meant to be here. Am I strong well > maybe I am or I probably wouldn't be here right now. > > > My question to you and everyone else that may be reading this are you also > strong. You know what? You have to be because you are battling an awful > disease, but my friends just like me am I still here, and are you. You bet > we are. > > > > So no matter how strong I may be and no matter how strong any of you may > be, guess what? We are still here together and until "uncle GOD" > determinants otherwise this is where we stay. > > > How many times have I been at deaths door? Now look at what you have. You > have life, just as I do and do you know why it's really very simple because > about a bit more then a decade ago some mortal man discovered a pill that > changed the course of your lives. You, all of you are living proof. > > > > So I am not what anyone thinks about me because your living proof just as > I am we are all strong in spite of what you
Re: [CMLHope] Pancreatitis while on Bosutinib
Thanks for your sharing. Her doctor is good in CML. She was diagnosed just 6 months ago. I think she is not good at handling stress caused by side effects even because her PCR was 0.1 at 3 months. I'll let her know your experiences and it will make her feel comfortable. Thanks Choi. 2016λ 1μ 15μΌ κΈμμΌ μ€ν 8μ 55λΆ 7μ΄ UTC+9, Icandoallttc λμ λ§: > Also see if she is drinking enough water. Usually when you start a tki > they put you on allinpurinol for a while to clean out the dead cancer > cells. I took it the first few months on my new ponatinib. > > My Motto: Faith and Pills > Jeanie ππ18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 15, 2016, at 5:56 AM, Icandoallttc > > wrote: > > Hi and yes pancreatis is a side effect of tkis. One of my side effects > after being on Tasigna was increased right side pain. I asked my onc about > it and he said if you had pancreatis you would be rolling on the floor with > pain. He did an MRI and my pancreas was fine. Is she going to a good > specialist in cml?? > Good luck. > > My Motto: Faith and Pills > Jeanie ππ18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > > On Jan 14, 2016, at 8:48 AM, Choi > > wrote: > > Hi, this is Choi. > > One of my CML friends has been on Bosutinib for 6 months. > Recently her blood test shows the possibility of pancreatitis(I think it's > elevation of lipase or amylase). > Her doctor stops bosutinib for about 1 week to treat this symptoms and > then is planning to resume bosutinib. > She is a little bit confused and doesn't see how can handle this > situations because she was genearlly OK while on bosutinib. > Do you heard or know bosutinib and pancreatitis? > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-u...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com . > For more options, visit https://groups.google.com/d/optout. > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
