Re: [CMLHope] Prayers are offered.

[Marty Gartenberg]

Hi Beth,

Try not to worry to much.
things will all work out.

Sending you a nice red rose. 

18's,

Marty

On Mon, May 2, 2016 at 6:14 PM, 'Marcie Goodman' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Beth, yes, a long time since you've posted. Please let us know your
> results. Sending prayers and hugs.
>
> Marcie
>
> Sent from my iPhone
>
> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope 
> wrote:
>
> Thank you Richard for your kind words and prayers. They are always so
> appreciated. You are such a stable presence here. I so appreciate your
> thoughts and help. I hope everyone is navigating the best they can. Know
> that I think of all of you often...haven't written much because of my own
> journey...I am sorry if I missed out on communicating with those who are
> struggling recently. All of you are in my heart.
>
> I do BCR abl next week..so please keep your fingers crossed. I have more
> anxiety about this one for some reason... My basic blood work shows some
> changes that are in the wrong direction...hopefully things are stable in
> the CML realm.
>
> Will keep you posted..
>
> Much love and 18's, Beth
>
> -Original Message-
> From: Richard H 
> To: CMLHope 
> Sent: Sun, May 1, 2016 11:11 pm
> Subject: Re: [CMLHope] Prayers are offered.
>
> Thank you.
> Richard
>
> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote:
>>
>> Just one thing to say Richard H. Your like the rock of Gibraltar.
>>
>> 18's to you!
>>
>> Marty
>>
>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H  wrote:
>>
>>> I am sorry to hear about all the problems everyone is reporting.  I am
>>> lifting prayers for healing to those with problems and for the caregivers
>>> prayers of understanding and strength to help them be the support they want
>>> and need to be.
>>>
>>> I am just coasting with all my problems and trying to deal with lower
>>> strength because of them.  I have changed a couple of Doctors because they
>>> started practicing too far away.  They have reviewed my records and have
>>> updated me on things that I don't remember being told about and clarified
>>> some things that were given as side inference.  I am also adding a new
>>> heart med and will be monitored to see if I need to change others on my
>>> list.
>>>
>>> 18's
>>>
>>> Richard H.
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>
>>> You received this message because you are subscribed to the Google
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>>> http://groups.google.com/group/CMLHope
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>>> an email to cmlhope+u...@googlegroups.com.
>>> For more options, visit https://groups.google.com/d/optout.
>>>
>>
>> --
> --
> [CMLHope]
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> -
>
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> A support group of http://cmlhope.com
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>
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>
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Re: [CMLHope] Prayers are offered.

[bkbarney via CMLHope]

Thank you Richard for your kind words and prayers. They are always so 
appreciated. You are such a stable presence here. I so appreciate your thoughts 
and help. I hope everyone is navigating the best they can. Know that I think of 
all of you often...haven't written much because of my own journey...I am sorry 
if I missed out on communicating with those who are struggling recently. All of 
you are in my heart.


I do BCR abl next week..so please keep your fingers crossed. I have more 
anxiety about this one for some reason... My basic blood work shows some 
changes that are in the wrong direction...hopefully things are stable in the 
CML realm.


Will keep you posted..


Much love and 18's, Beth


-Original Message-
From: Richard H 
To: CMLHope 
Sent: Sun, May 1, 2016 11:11 pm
Subject: Re: [CMLHope] Prayers are offered.



Thank you.
Richard

On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote:

Just one thing to say Richard H. Your like the rock of Gibraltar. 


18's to you!


Marty



On Sat, Apr 30, 2016 at 12:07 AM, Richard H  wrote:

I am sorry to hear about all the problems everyone is reporting.  I am lifting 
prayers for healing to those with problems and for the caregivers prayers of 
understanding and strength to help them be the support they want and need to be.

I am just coasting with all my problems and trying to deal with lower strength 
because of them.  I have changed a couple of Doctors because they started 
practicing too far away.  They have reviewed my records and have updated me on 
things that I don't remember being told about and clarified some things that 
were given as side inference.  I am also adding a new heart med and will be 
monitored to see if I need to change others on my list.

18's

Richard H.


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Re: [CMLHope] ZAVIE ZERO NUMBERS

[Marty Gartenberg]

Hi Sue,

Of course I wouldn't mind. I first started this in trying to share to of
our members especially the "new-bees" and I am praying that a lot more
become members of the group that Zavie first started.

18's,

Marty

I am also sending Marty a Zavie Zero List that we currently have so he can
share with you guys if you request from him



On Sun, May 1, 2016 at 10:37 AM, Sue  wrote:

> Hi All
>
>
>
> Thank you for the support of finding Zavie Miller Zero Number Participants
>
>
>
> What great success we have had
>
>
>
> From Number 1 [Marty G] to No 1381 Alison ? from the UK
>
>
>
>
>
>
> Ms Fran Mauri Comment in 2010
>
>
>
> 1366 Entries (zero number presentations)
>
>  947 valid Email Addresses
>
>  260 Invalid Email Addresses [European Addresses?]
>
> 149 No email Addresses
>
>
>
> 
>
>
>
> From 2010 to 2011 there were 9 Zero numbers presented to # 1375
>
>
>
> From 2011 to 2012 there were 6 Zero number presented to # 1381
>
>
>
> # 1381 is the last Number of the Zavie Zero Club  Member List
>
> "
>
>
>
>
>
> Colour code : Member is deceased
>
>
> Administrator
>
> Same person/2
> numbers
>
> 2 names for same
> number
>
> Number checked on
> web
>
> Entry in red
>
> Info to be checked
>
>
>
> Even though there are 1381 Zero Numbers
>
>
>
> We have been able to find and verify and cross check 1000 presentations as
> being correct
>
> Some names such as Alison – we have not been able to find her surname –
> but have info that this is the last number
>
>
>
> We have the facebook page -
> https://www.facebook.com/groups/1673390782910601/
>
>
>
> Named  ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ?
>
>
>
> We have four adminstrators from around the world (Two in Australia) (one
> in France) (one from the UK)
>
> We also have a Registrar and keeper of the Zavie Zero List – we are still
> updating – with new surnames, people who have passed, where people are now
> living
>
> Also the facebook page is able to reconnect people with each other –
>
>
>
> The Zavie Miller Zero List has been downloaded on a file from this page
>
>
>
> We are vetting any new members to the page to ensure they have CML and a
> Zavie  number
>
>
>
> I am also sending Marty a Zavie Zero List that we currently have so he can
> share with you guys if you request from him
>
>
>
> Other than that – please join facebook link attached
>
>
>
> Sue Hurt
>
> #1197
>
>
>
>
>
>
>
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* Sunday, 1 May 2016 6:21 PM
> *To:* Digest recipients 
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 3
> topics
>
>
>
> cmlhope@googlegroups.com
>
> Google Groups
> 
>
>
> 
>
> Topic digest
> View all topics
>
> · Zavie's Zero Club.xls <#m_-2080131056668791499_group_thread_0>
> - 2 Updates
>
> · Our son Alan Sago <#m_-2080131056668791499_group_thread_1> - 3
> Updates
>
> · Prayers are offered. <#m_-2080131056668791499_group_thread_2> - 2
> Updates
>
> Zavie's Zero Club.xls
> 
>
> Marty Gartenberg : Apr 30 12:36PM -0400
>
> So Joyce, you say that "I just don’t have anything worth reporting" Well
> you just did. A family all getting together especially a now member of your
> family who you haven't seen as yet.
>
> A lot to think about isn't it?
>
> 18's,
>
> Marty
> .
>
>
> Marcie Goodman : Apr 30 06:26PM -0400
>
> Susan, the feelings are very mutual. You are an inspiration to me. I am
> indeed blessed with a wonderful support system. Hoping that Monday or
> Tuesday my husband will head to inpatient rehab. He's a good patient, never
> complains and is so gracious and kind. The nurses love him and go out of
> their way to ensure he is comfortable and taken care of. I expect there
> will be bumps in the road ahead but nothing we can't get through together.
> Just like you and Roy and all of our dear friends on this site!
>
> Much love, Marcie
>
> Sent from my iPhone
>
>
> Back to top <#m_-2080131056668791499_digest_top>
>
> Our son Alan Sago
> 
>
> Jim Sago : Apr 30 05:40AM -0700
>
> Alan has CML since September of 2001 and is doing well with Glevleec (I'm
> not sure of the spelling). I joined this group shortly after that and have
> mostly just read the post. Alan is Zavie's number 524. He has 

Re: [CMLHope] ZAVIE ZERO NUMBERS

[Tanya Metaksa]

Hi there,
My husband, George Metaksa, was a Zavie Miller Zero Number Participant.  
However, I have lost the computer in which his number was sent and do not have 
it.
It probably was prior to 2010 because he became undetectable in approximately 
2006-2008.  If you could figure this out, I would be very grateful.
Tanya Metaksa
On May 1, 2016, at 10:37 AM, Sue  wrote:

Hi All
 
Thank you for the support of finding Zavie Miller Zero Number Participants
 
What great success we have had 
 
>From Number 1 [Marty G] to No 1381 Alison ? from the UK 
 

Ms Fran Mauri Comment in 2010 
 
1366 Entries (zero number presentations) 
 947 valid Email Addresses 
 260 Invalid Email Addresses [European Addresses?]
149 No email Addresses 
 

 
>From 2010 to 2011 there were 9 Zero numbers presented to # 1375
 
>From 2011 to 2012 there were 6 Zero number presented to # 1381 
 
# 1381 is the last Number of the Zavie Zero Club  Member List 
"  

Colour code : Member is deceased 
Administrator   
 
Same person/2 numbers   
   
2 names for same number 
  
Number checked on web   
  
Entry in red
Info to be checked
 
Even though there are 1381 Zero Numbers 
 
We have been able to find and verify and cross check 1000 presentations as 
being correct
Some names such as Alison – we have not been able to find her surname – but 
have info that this is the last number
 
We have the facebook page - https://www.facebook.com/groups/1673390782910601/ 

 
Named  ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ?
 
We have four adminstrators from around the world (Two in Australia) (one in 
France) (one from the UK)
We also have a Registrar and keeper of the Zavie Zero List – we are still 
updating – with new surnames, people who have passed, where people are now 
living 
Also the facebook page is able to reconnect people with each other – 
 
The Zavie Miller Zero List has been downloaded on a file from this page 
 
We are vetting any new members to the page to ensure they have CML and a Zavie  
number
 
I am also sending Marty a Zavie Zero List that we currently have so he can 
share with you guys if you request from him 
 
Other than that – please join facebook link attached
 
Sue Hurt
#1197
 
 
 
 
From: cmlhope@googlegroups.com  
[mailto:cmlhope@googlegroups.com ] 
Sent: Sunday, 1 May 2016 6:21 PM
To: Digest recipients >
Subject: [CMLHope] Digest for cmlhope@googlegroups.com 
 - 7 updates in 3 topics
 
cmlhope@googlegroups.com 


Google Groups 

  
 

Topic digest  <>
View all topics 

· Zavie's Zero Club.xls  - 2 Updates
· Our son Alan Sago  - 3 Updates
· Prayers are offered.  - 2 Updates
 <>Zavie's Zero Club.xls  

Marty Gartenberg >: Apr 30 12:36PM 
-0400 

So Joyce, you say that "I just don’t have anything worth reporting" Well
you just did. A family all getting together especially a now member of your
family who you haven't seen as yet.
 
A lot to think about isn't it?
 
18's,
 
Marty
.
 
Marcie Goodman >: Apr 30 06:26PM 
-0400 

Susan, the feelings are very mutual. You are an inspiration to me. I am indeed 
blessed with a wonderful support system. Hoping that Monday or Tuesday my 
husband will head to inpatient rehab. He's a good patient, never complains and 
is so gracious and kind. The nurses love him and go out of their way to ensure 
he is comfortable and taken care of. I expect there will be bumps in the road 
ahead but nothing we can't get through together. Just like you and Roy and all 
of our dear friends on this site!
 
Much love, Marcie
 
Sent from my iPhone
 
Back to top 
 <>Our son Alan Sago  

Jim Sago >: Apr 30