[CMLHope] Re: Baldys Blog

[Richard H]

Thanks Marty!  Great info on for anyone under such a challenge.

Richard H.

>

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Re: [CMLHope] Digest for cml...@googlegroups.com - 2 updates in 1 topic

[Richard H]

I was told to put a bar at the foot of the bed where it radiated around my 
feet all night.  The one I really like is from a cotton picking family.  
Dampen a washcloth with apple cider vinegar and dampen the spot where the 
cramp is and in about 5 minutes the cramp disappears. DO NOT RUB IT IN JUST 
DAMPEN THE AREA.  YOU CAN ACTUALLY RUB THE SKIN OFF WHEN YOU SCRUB.  I was 
hurting bad and was rubbing for relief with the cloth and actually removed 
a layer and stopped when it started to sting.  After 14 1/2 years and 
taking 300mg Gleevec I still occasionally have them. 

Richard H.  

On Thursday, October 20, 2016 at 7:38:54 AM UTC-5, greenie wrote:
>
> Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold 
> soap and put it down along my legs.  It dose help.
>  
> greenie
>  
> In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time, 
> cml...@googlegroups.com  writes:
>
> Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had to get 
> up in the middle if night to walk out leg cramps. I too was put on Sprycel. 
>   And yes I would look in mirror and not recognize myself.  Just keep on 
> fighting warriors.  Blessings 
>
> My Motto: 
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center 
>
> On Sep 30, 2016, at 4:58 PM, lrc lrc  
> wrote:
>
> Gleevec has a big history of muscle cramps, especially in the hands and 
> the legs.   Gleevec also has side affects that include skin that is thin, 
> white rings around the eyes, water retention around the eyes to name just a 
> few.   I moved from Gleevec to Sprycel years ago and all the Gleevec issues 
> disappeared.  It was a wonderful change.  I suggest you review it with your 
> oncologist.  I am under care of the University of Michigan Cancer Center, 
> Dr. Talpaz.  
>
> On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS  > wrote:
>
>> We're happy to hear you're on the mend, Marty.  
>> It's been good to read other persons updates in their lives of CML and 
>> family changes, etc.  Sending sympathy to those whose family members have 
>> died within the past few months.  It's been so tough on each CMLer as we 
>> age or our family members are diagnosed with other types of cancers.
>>
>> Nick's got a Zauve's O Club number, but it's been a while since we've 
>> posted it.  Does anyone have a list?
>>
>> Wondered if any other persons with CML on Gleevec are experiencing 
>> multiple muscle cramps?
>> Or have large muscle wasting?
>> Thanks, Elizabeth Woods Nick's wife
>>
>>
>> On Friday, September 30, 2016 5:18 AM, "cml...@googlegroups.com 
>> "  wrote:
>>
>>
>> cmlhope@googlegroups.com 
>> 
>>  Google 
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>>- Angie, your card 
>>
>> 
>>  
>>- 2 Updates 
>>
>> Angie, your card 
>> 
>> ANGELYN ESDERS : Sep 30 12:20AM 
>>
>> You are most welcome.I fractured my 9th vertebra a month ago. I have had 
>> to give up almost everything I do. I understand pain.May we BOTH be dancing 
>> on tabletops by this time next year!Angie
>>  
>> From: Marty Gartenberg 
>> To: cml...@googlegroups.com  
>> Sent: Thursday, September 29, 2016 12:05 AM
>> Subject: [CMLHope] Angie, your card
>>
>> Hi Angie, you were so thoughtful to send me a get well card, and I wanted 
>> to thank you for your kindness.
>> 18's,
>> Marty-- 
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>> Marty Gartenberg : Sep 29 08:45PM -0400 
>>
>> 

[CMLHope] Baldys Blog

[Marty Gartenberg]

I once helped a man by the name of Adrian Sudsberry who had two different
types of Leukemia, he also had GVHD. He was a news journalist in England.
He would post on a site called Baldys Blog and there were a lot of people
trying to help him, one included Zavie Miller who I had the opportunity of
helping Zavie. This was when Zavie first started his Zavies zero list.

Here are several things that I posted on Baldys Blog...

Marty Gartenberg | February 5, 2008 2:13 AM

 | Reply

Hi Adrian,

I guess that you already heard all about me from my good friend Zavie
Miller. Yes, I have the proud distinction of being number 1 on his zero
list.

But now I have to tell you something, and that is yes, I also
have/had/have/had GVHD going on now for the last eighteen years, and would
you believe that I love each and every second of it. No, I'm not crazy, but
I am still alive after going on those eighteen years post the most awful
bone marrow transplant you can ever imagine. In those days I had to live in
a very small plastic bubble called a laminous air flow chamber that
measured five feet by nine feet, and I had to exist in there for more then
seven months. In all of this time I learned that having GVHD (of the gut,
liver, heart, lungs, eyes and skin) meant very little to me because I was
still alive to have that GVHD. As I became more advanced with it I would
just think about something that I wrote at the time for lack of anything
else to do. What can one do in a plastic bubble other then writing and
reading?

I wrote something called "The Window" and it is a true story, and several
years later I found it on the internet, plagirized. This really bothered me
because of some of the things this person/s said, but no matter because I
know what I wrote...

I am enclosing it so that you may know that as long as you are alive there
is always hope.

I only ask that you don't let that GVHD rule your life, but rather that you
rule it, and you will see that you will be much better off by doing just
that.

I wish you much health and happiness because I do know what you went
through and what your now going through, and you really deserve health and
happiness from now on...

GOD has blessed you (and me) just by giving you (and me) a beautiful donor
that has done just that... Saved our lives!

You mark my words, in a few years your going to be able to put all of this
behind you as I have, and you will go on to lead a wonderful productive
life.

GOD bless you as he already has and will keep on doing so...

Marty

The Window

This is a true story that took place more then eighteen years ago.

There were two men in the cancer ward of Mount Sinai Hospital in New York
City. They were in Ward KCC-6 North, which was at that time the cancer ward
at that hospital. Both of these men were suffering from the end stages of
Leukemia. They were there basically to die.

One of these men had his bed right next to the only window in the room. The
other one was across the room and had no access to the window.

The man by the window would always tell the other man how beautiful it was
looking out of that window, and let him know what was happening outside. He
would talk about the beautiful skies, and how all of the little children
were playing in Central Park.

He would tell about the green grass, and the people who were having a
picnic, and the dogs that were running around, as well as the ice cream
truck with the man selling ice cream pops to the little children, and the
hot dog vender also selling hot dogs with mustard and sour kraut. He would
tell the other man that he would be able to see all of this for himself
once he was healed.

This went on for about two weeks, and one morning the nurse came into the
room as she usually did, and presented these two men with their sponge
baths. She first went over to the man who was by the window to find that he
had passed away in his sleep. She then covered him up and left the room for
a couple of minutes.

When she returned, there was a doctor with her. This was a fairly new young
doctor who would pronounce the man dead, and at that particular time, 8:40
a.m. even though he had obviously passed away some time during the night.

The other man across the room with tears running down his cheeks became
quite depressed at seeing his roommate wheeled out of the room, declared
dead. He thought about how this man would always try to make him happy with
him describing all of the nice things he was able to see outside.

Later on that day the nurse returned and made up the bed in the room that
was now unoccupied. The man in the other bed asked if by any chance he
would be able to be put by the window. The nurse was a very kind and
compassionate woman besides being a very competent nurse, and she wheeled
him over.

Although this man was unable to prop himself up to see the outside because
he had recently had his Spleen surgically 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

[Myvety2k via CMLHope]

Wish I could say the same but, the throat that's a  bummer.  I know the 
feeling.
 
greenie
 
 
In a message dated 10/20/2016 10:40:26 A.M. Eastern Daylight Time,  
esd...@rogers.com writes:

 
I had wicked  cramps from Gleevec.15 years ago. A heavy yawn once got 
me cramps in my  throata very unpleasant feeling!
Over the  years the cramps all over my body diminished and disappeared.
HURRAY!


 
 
  

 From: Myvety2k via CMLHope  
To: cmlhope@googlegroups.com 
Sent: Thursday, October 20, 2016 8:38  AM
Subject: Re: [CMLHope]  Digest for cmlhope@googlegroups.com - 2 updates in 
1 topic



 
Gleevec gave me and still dose give me cramps, I use a bar  of Dial Gold 
soap and put it down along my legs.  It dose  help.
 
greenie
 
 
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Yes I had terrible cramps on Gleevec.  Even had trigger finger.  Had to get 
up in the middle if night to walk out leg cramps. I too was put  on 
Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep 
on 
fighting warriors.  Blessings 

My Motto:   
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >  wrote:




Gleevec has a big history of muscle cramps, especially in the  hands and 
the legs.   Gleevec also has side affects that include skin  that is thin, 
white rings around the eyes, water retention around the eyes  to name just a 
few.   I moved from Gleevec to Sprycel years ago and  all the Gleevec issues 
disappeared.  It was a wonderful change.   I suggest you review it with your 
oncologist.  I am under care of the  University of Michigan Cancer Center, 
Dr. Talpaz.  

On Fri, Sep 30, 2016 at 12:42 PM, NICK  WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) >  wrote:


 
We're  happy to hear you're on the mend, Marty.  
It's been good to read other persons updates in their lives of  CML and 
family changes, etc.  Sending sympathy to those whose  family members have died 
within the past few months.  It's been so  tough on each CMLer as we age or 
our family members are diagnosed with  other types of cancers.


Nick's  got a Zauve's O Club number, but it's been a while since we've 
posted  it.  Does anyone have a list?


Wondered  if any other persons with CML on Gleevec are experiencing 
multiple  muscle cramps?
Or  have large muscle wasting?
Thanks,  Elizabeth Woods Nick's wife




 
 
On Friday, September 30, 2016 5:18  AM, "_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) "  <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >  wrote:




 
 
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ANGELYN ESDERS  <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep  30 
12:20AM 

You are most welcome.I fractured my 9th  vertebra a month ago. I have had 
to give up almost everything I  do. I understand pain.May we BOTH be dancing 
on tabletops by this  time next year!Angie

From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >
To:  _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)   
Sent: Thursday, September 29, 2016 12:05 AM
Subject:  [CMLHope] Angie, your card

Hi Angie, you were so thoughtful  to send me a get well card, and I wanted 
to thank you for your  kindness.
18's,
Marty-- 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

[ANGELYN ESDERS]

I had wicked cramps from Gleevec.15 years ago. A heavy yawn once got me 
cramps in my throata very unpleasant feeling!Over the years the cramps all 
over my body diminished and disappeared.HURRAY!
  From: Myvety2k via CMLHope 
 To: cmlhope@googlegroups.com 
 Sent: Thursday, October 20, 2016 8:38 AM
 Subject: Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 
topic
   
 Gleevec gave me and still dose give me cramps, I use a bar of Dial Gold soap 
and put it down along my legs.  It dose help. greenie In a message dated 
10/17/2016 5:21:17 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes:
 Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had to get up 
in the middle if night to walk out leg cramps. I too was put on Sprycel.   And 
yes I would look in mirror and not recognize myself.  Just keep on fighting 
warriors.  Blessings 

My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started 
Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 
1/2015 Doctor Balducci Moffitt Cancer Center  
On Sep 30, 2016, at 4:58 PM, lrc lrc  wrote:

 
  Gleevec has a big history of muscle cramps, especially in the hands and the 
legs.   Gleevec also has side affects that include skin that is thin, white 
rings around the eyes, water retention around the eyes to name just a few.   I 
moved from Gleevec to Sprycel years ago and all the Gleevec issues disappeared. 
 It was a wonderful change.  I suggest you review it with your oncologist.  I 
am under care of the University of Michigan Cancer Center, Dr. Talpaz.   
 On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS  wrote:
 
   We're happy to hear you're on the mend, Marty.   It's been good to read 
other persons updates in their lives of CML and family changes, etc.  Sending 
sympathy to those whose family members have died within the past few months.  
It's been so tough on each CMLer as we age or our family members are diagnosed 
with other types of cancers. 
 Nick's got a Zauve's O Club number, but it's been a while since we've posted 
it.  Does anyone have a list? 
 Wondered if any other persons with CML on Gleevec are experiencing multiple 
muscle cramps? Or have large muscle wasting? Thanks, Elizabeth Woods Nick's 
wife 

On Friday, September 30, 2016 5:18 AM, "cmlhope@googlegroups.com" 
 wrote:


 
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 Angie, your card  
| ANGELYN ESDERS : Sep 30 12:20AM 

You are most welcome.I fractured my 9th vertebra a month ago. I have had to 
give up almost everything I do. I understand pain.May we BOTH be dancing on 
tabletops by this time next year!Angie
 
From: Marty Gartenberg 
To: cmlhope@googlegroups.com 
Sent: Thursday, September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your card

Hi Angie, you were so thoughtful to send me a get well card, and I wanted to 
thank you for your kindness.
18's,
Marty-- 
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| Marty Gartenberg : Sep 29 08:45PM -0400 

Angie,
 
There is a saying in the Aramaic Hebrew language Alivay Meaning Thank you
GOD for what you have done for me.
 
Also I am not looking to dance on any tabletops because both of us would
probably fall off and break something. Lets just both of us dance on the
floor together.
 
Oh Angie don't worry we will get there.
 
18's
 
Marty
 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

[Myvety2k via CMLHope]

Gleevec gave me and still dose give me cramps, I use a bar of  Dial Gold 
soap and put it down along my legs.  It dose help.
 
greenie
 
 
In a message dated 10/17/2016 5:21:17 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Yes I had terrible cramps on Gleevec.  Even had trigger finger. Had  to get 
up in the middle if night to walk out leg cramps. I too was put on  
Sprycel.   And yes I would look in mirror and not recognize myself.  Just keep 
on 
fighting warriors.  Blessings 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Sep 30, 2016, at 4:58 PM, lrc lrc <_kneesrbad2@gmail.com_ 
(mailto:kneesrb...@gmail.com) >  wrote:




Gleevec has a big history of muscle cramps, especially in the  hands and 
the legs.   Gleevec also has side affects that include skin  that is thin, 
white rings around the eyes, water retention around the eyes  to name just a 
few.   I moved from Gleevec to Sprycel years ago and all  the Gleevec issues 
disappeared.  It was a wonderful change.  I  suggest you review it with your 
oncologist.  I am under care of the  University of Michigan Cancer Center, 
Dr. Talpaz.  

On Fri, Sep 30, 2016 at 12:42 PM, NICK WOODS <_ksnwoods@prodigy.net_ 
(mailto:ksnwo...@prodigy.net) > wrote:


 
We're  happy to hear you're on the mend, Marty.  
It's been good to read other persons updates in their lives of CML  and 
family changes, etc.  Sending sympathy to those whose family  members have died 
within the past few months.  It's been so tough on  each CMLer as we age or 
our family members are diagnosed with other types  of cancers.


Nick's  got a Zauve's O Club number, but it's been a while since we've 
posted  it.  Does anyone have a list?


Wondered if  any other persons with CML on Gleevec are experiencing 
multiple muscle  cramps?
Or  have large muscle wasting?
Thanks,  Elizabeth Woods Nick's wife




 
 
On Friday, September 30, 2016 5:18  AM, "_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) " <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >  wrote:




 
 
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ANGELYN ESDERS <_esders@rogers.com_ (mailto:esd...@rogers.com) >: Sep 30 
12:20AM  

You are most welcome.I fractured my 9th vertebra a  month ago. I have had 
to give up almost everything I do. I  understand pain.May we BOTH be dancing 
on tabletops by this time  next year!Angie

From: Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >
To: _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com)  
Sent: Thursday,  September 29, 2016 12:05 AM
Subject: [CMLHope] Angie, your  card

Hi Angie, you were so thoughtful to send me a get well  card, and I wanted 
to thank you for your  kindness.
18's,
Marty-- 
-- 
[CMLHope]
A support  group of http://cmlhope.com/
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Marty Gartenberg <_wa2yyx@gmail.com_ (mailto:wa2...@gmail.com) >: Sep 29 
08:45PM -0400  

Angie,

There is a saying in the Aramaic  Hebrew language Alivay Meaning Thank you
GOD for what you have  done for me.

Also I am not looking to dance on any  tabletops because both of us would
probably fall off and break  something. Lets just both of us dance on the
floor  together.

Oh Angie don't worry we will get  there.

18's

Marty

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If you would like to join the CML web seminar sign up here
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Or call
888 510 9390
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My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

['Jeanie' via CMLHope]

I drink I can daily because I like it.  I wish I had known it reduced platelets 
when mine were so high.  Hehe

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Oct 20, 2016, at 8:08 AM, Ralph Bruno  wrote:
> 
> Marty - thanks for the link to the tonic water study.  Yes, it helps my 
> cramping a lot but, unlike the subject of this study, I don't 'celebrate' 
> with over a quart of tonic water for 2 consecutive days.  They also fail to 
> mentioned what he mixed with it in his celebration.  :)
> 
> Used in moderation and on occasion, say 6-8 ounces when cramping in my feet, 
> calves and hands keep me up at night, it's effective.  I wouldn't recommend 
> drinking as much of the individual in the study admits to.  Doesn't taste 
> that great either.
> 
> Regards,
> 
> >...rb
> 
>> On Wed, Oct 19, 2016 at 6:11 AM,  wrote:
>> 
>> cmlhope@googlegroups.com Google Groups  
>> Topic digest 
>> View all topics
>> Zavies list and cramps - 4 Updates
>> Digest for cmlhope@googlegroups.com - 5 updates in 1 topic - 3 Updates
>> Zavies list and cramps   
>> bvision : Oct 18 06:17AM -0700 
>> 
>> Please add me to the Z's list too. Gleevec from 2003-2008, Tasigna 
>> 2008-present.
>>  
>> Also, try tonic water for those cramps. I always keep bottles of Schweps 
>> or Canada Dry in the fridge. Just down an 8 ounce glass and be amazed. 
>> Works for me, has trace amounts of quinine, I'm told.
>>  
>> Blessings to all
>>  
>> Susan Rosenthal : Oct 18 11:07PM -0400 
>> 
>> Be careful with tonic water if your hemoglobin is low. It is possible to 
>> have it go lower.
>>  
>> Hugs,
>> Susan Rosenthal
>>  
>> Have a wonderful day
>>  
>> Marty Gartenberg : Oct 18 11:53PM -0400 
>> 
>> Please read this about Tonic Water, stay away from it. I guess that rb you
>> are being helped rather then hurt by it.
>>  
>> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365124/
>>  
>> 18's
>>  
>> Marty
>>  
>> On Tue, Oct 18, 2016 at 11:07 PM, 'Susan Rosenthal' via CMLHope <
>> Marty Gartenberg : Oct 18 11:54PM -0400 
>> 
>> Back to top
>> Digest for cmlhope@googlegroups.com - 5 updates in 1 topic 
>> "(null) (null)" : Oct 18 07:27AM -0400 
>> 
>> Put me on the zero list,
>> Kathy Cheatwood on Gleevec for 17 years
>>  
>> Sent from my iPad
>>  
>> Jeanie : Oct 18 08:25AM -0400 
>> 
>> Do you know your number?? I'll see if I can find it. Thanks and God bless. 
>>  
>> My Motto:
>> Faith and Pills
>> With Love
>> 18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/2015
>> Doctor Balducci Moffitt Cancer Center 
>>  
>> bvision : Oct 18 06:12AM -0700 
>> 
>> Please add me to the Z's list too. Gleevec from 2003-2008, Tasigna 
>> 2008-present.
>> Also, try tonic water for those cramps. I always keep bottles of Schweps 
>> or Canada Dry in the fridge, just down an 8 ounce glass and be amazed.
>> Blessings to all
>>  
>> >...rb
>>  
>> On Tuesday, October 18, 2016 at 7:28:02 AM UTC-4, (null) (null) wrote:
>> Back to top
>> You received this digest because you're subscribed to updates for this 
>> group. You can change your settings on the group membership page.
>> To unsubscribe from this group and stop receiving emails from it send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[Ralph Bruno]

Marty - thanks for the link to the tonic water study.  Yes, it helps my
cramping a lot but, unlike the subject of this study, I don't 'celebrate'
with over a quart of tonic water for 2 consecutive days.  They also fail to
mentioned what he mixed with it in his celebration.  :)

Used in moderation and on occasion, say 6-8 ounces when cramping in my
feet, calves and hands keep me up at night, it's effective.  I wouldn't
recommend drinking as much of the individual in the study admits to.
Doesn't taste that great either.

Regards,

>...rb

On Wed, Oct 19, 2016 at 6:11 AM,  wrote:

> cmlhope@googlegroups.com
> 
>  Google
> Groups
> 
> 
> Topic digest
> View all topics
> 
>
>- Zavies list and cramps <#m_-8894840648203061180_group_thread_0> - 4
>Updates
>- Digest for cmlhope@googlegroups.com - 5 updates in 1 topic
><#m_-8894840648203061180_group_thread_1> - 3 Updates
>
> Zavies list and cramps
> 
> bvision : Oct 18 06:17AM -0700
>
> Please add me to the Z's list too. Gleevec from 2003-2008, Tasigna
> 2008-present.
>
> Also, try tonic water for those cramps. I always keep bottles of Schweps
> or Canada Dry in the fridge. Just down an 8 ounce glass and be amazed.
> Works for me, has trace amounts of quinine, I'm told.
>
> Blessings to all
>
> Susan Rosenthal : Oct 18 11:07PM -0400
>
> Be careful with tonic water if your hemoglobin is low. It is possible to
> have it go lower.
>
> Hugs,
> Susan Rosenthal
>
> Have a wonderful day
>
> Marty Gartenberg : Oct 18 11:53PM -0400
>
> Please read this about Tonic Water, stay away from it. I guess that rb you
> are being helped rather then hurt by it.
>
> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365124/
>
> 18's
>
> Marty
>
> On Tue, Oct 18, 2016 at 11:07 PM, 'Susan Rosenthal' via CMLHope <
> Marty Gartenberg : Oct 18 11:54PM -0400
>
> Back to top <#m_-8894840648203061180_digest_top>
> Digest for cmlhope@googlegroups.com - 5 updates in 1 topic
> 
> "(null) (null)" : Oct 18 07:27AM -0400
>
> Put me on the zero list,
> Kathy Cheatwood on Gleevec for 17 years
>
> Sent from my iPad
>
> Jeanie : Oct 18 08:25AM -0400
>
> Do you know your number?? I'll see if I can find it. Thanks and God bless.
>
> My Motto:
> Faith and Pills
> With Love
> 18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/2015
> Doctor Balducci Moffitt Cancer Center
>
> bvision : Oct 18 06:12AM -0700
>
> Please add me to the Z's list too. Gleevec from 2003-2008, Tasigna
> 2008-present.
> Also, try tonic water for those cramps. I always keep bottles of Schweps
> or Canada Dry in the fridge, just down an 8 ounce glass and be amazed.
> Blessings to all
>
> >...rb
>
> On Tuesday, October 18, 2016 at 7:28:02 AM UTC-4, (null) (null) wrote:
> Back to top <#m_-8894840648203061180_digest_top>
> You received this digest because you're subscribed to updates for this
> group. You can change your settings on the group membership page
> 
> .
> To unsubscribe from this group and stop receiving emails from it send an
> email to cmlhope+unsubscr...@googlegroups.com.
>

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[CMLHope] Zavie's zero club group

['Jeanie' via CMLHope]

For those of you wanting to be added to the zero club list please email
bar...@wanado.fr
She will work with you.
Thanks 
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

-- 
-- 
[CMLHope]
A support group of http://cmlhope.com
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