Re: [CMLHope] Email change
Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal > On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope > wrote: > > Yes I'm afraid they will lose s lot of customers with so many free. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > >> On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope >> wrote: >> >> Thank you, I'll give it a try. I don't understand something to do with AIM. >> >> greenie >> >> In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> DG: >> >> I'm telling you this doesn't make any sense. Call them up and complain. >> We've had AOL since it first began service. >> >> Hugs, >> Susan Rosenthal >> >>> On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope >>> wrote: >>> >>> It may be free but not my email as of the 15th of Dec. >>> >>> dg >>> >>> In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Greenie and others: >>> >>> AOL is freewhat are you guys talking about? We just pay $4.99 a month >>> to receive live support. >>> >>> Hugs, >>> Susan Rosenthal >>> On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope > wrote: > > As of December 5th I will no longer be using AOL. They have gone up to > $30.00 per month and Comcast is free for me so my new email address will > be > > (myvet...@comcast.net) > > Thanks to everyone, > > David (greenie) Greenberg > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsu
Re: [CMLHope] Email change
AIM is the instant "messenging" system with AOL...not their email. > On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope > wrote: > > Yes I'm afraid they will lose s lot of customers with so many free. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > >> On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope >> wrote: >> >> Thank you, I'll give it a try. I don't understand something to do with AIM. >> >> greenie >> >> In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> DG: >> >> I'm telling you this doesn't make any sense. Call them up and complain. >> We've had AOL since it first began service. >> >> Hugs, >> Susan Rosenthal >> >>> On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope >>> wrote: >>> >>> It may be free but not my email as of the 15th of Dec. >>> >>> dg >>> >>> In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Greenie and others: >>> >>> AOL is freewhat are you guys talking about? We just pay $4.99 a month >>> to receive live support. >>> >>> Hugs, >>> Susan Rosenthal >>> On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope > wrote: > > As of December 5th I will no longer be using AOL. They have gone up to > $30.00 per month and Comcast is free for me so my new email address will > be > > (myvet...@comcast.net) > > Thanks to everyone, > > David (greenie) Greenberg > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> - >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegrou
Re: [CMLHope] Hospital for Thanksgiving.
Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hospital for Thanksgiving.
Richard, First and most important is what kind of doctor you went to??? Was he or she a Nephrologist? As you know they are the ones that specialize with kidneys. If that doctor is not then i urge you to follow up with one. >From what i know having a sever infection will most probably effect your kidneys, but it is usually reversible. A lot of antibiotics will also do the same. In fact I know all about it because i had to have a kidney transplant but not for the same reason. Almost 29 years ago i had CML and subsequently a BMT which caused my to undergo total body radiation and huge amounts of chemotherapy. Then about twenty years later my kidneys failed and then for four years, dialysis then a kidney transplant. Now mind you Richard this should not happen to you but for my own circumstances it did happen to me. Now guess what? I was just released from the hospital because of a severe sepsis infection. Because of my knowledge when some of the IV antibiotics were offered to me one of which was Vancomycin because of my condition. Don't get me wrong Vancomycin is a very good antibiotic and i have used it many times, i even had to use it by myself during home care and i would sit there with an IV pole for a couple of hours under that home care nurse, but for the most part i did it by myself. Trust my i know what i am talking about and there are always some good things and also some bad things but the bottom line is that i am still alive and functional. Hey, I have been through the "ringer" but then so have most of you as well, and that bottom line also exists for everyone that may be reading this. You just have to know how to ask questions, try getting to the best doctors that you can, and be an advocate for yourself. You would really be surprised for yourself how it works. I have spent many, many hours on this because i have an obligation that i once made and i try living up to it. Now have you wondered why i end my communications with 18's? Well now you do, it is my obligation. 18's, Marty On Tue, Nov 28, 2017 at 12:30 AM, Richard H wrote: > Well riding the tide just didn't work out. I was having problems Sunday > the ninteenth with kisneys & such. Monday Morning all fluids stopped. My > Son was in and watched over me and when I did not recover on Tuesday he > took me to Doctor for testing and results sent me to hospital. We still > have not found the current problem with Kidneys, but did have a severe > infection. I am slowly recovering and back at home. I have Cronic Kidney > desiease beaacuse of TOO Many Powerful drugs. This is the first flair up > and everything the Drs. want to hear just aren't there for them to work > with. Seems like I am always a speciman for them to stand and scratch > their chin and always say "I've never seen anything like that!" > > 18's > Richard H. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Email change
Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope < cmlhope@googlegroups.com> wrote: > Does this mean I should be expecting a message from AOL soon? > > Hugs, > Susan Rosenthal > > On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope < > cmlhope@googlegroups.com> wrote: > > Yes I'm afraid they will lose s lot of customers with so many free. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > Thank you, I'll give it a try. I don't understand something to do with > AIM. > > greenie > > In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > DG: > > I'm telling you this doesn't make any sense. Call them up and complain. > We've had AOL since it first began service. > > Hugs, > Susan Rosenthal > > On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > It may be free but not my email as of the 15th of Dec. > > dg > > In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Greenie and others: > > AOL is freewhat are you guys talking about? We just pay $4.99 a month > to receive live support. > > Hugs, > Susan Rosenthal > > On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope < > cmlhope@googlegroups.com> wrote: > > I saw that Greenie. Makes me mad. I paid years ago and could never find > any company I liked better. They are still letting me use this email and > you can use email free. > I'll note that. Thanks. > > My Motto: > Faith and Pills > With Love > 🐠18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/2015 > Doctor Balducci Moffitt Cancer Center > > On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > As of December 5th I will no longer be using AOL. They have gone up to > $30.00 per month and Comcast is free for me so my new email address will be > > (myvet...@comcast.net) > > Thanks to everyone, > > David (greenie) Greenberg > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegroups.com > For more options, visit this group at http://groups.google.com/ > group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to CMLHope-unsubscribe@ > googlegr
Re: [CMLHope] Hospital for Thanksgiving.
Dear Richard, So sorry to hear about your troubles with your kidneys...These powerful drugs have affected many of us in many ways, including kidney function. I am hopeful that you will make a complete recovery and with proper and thoughtful care, you will be better very soon. You have been through a great deal already..you will get through this. I will keep you in my prayers..Take extra good care of yourself and remember to advocate for yourself, ask questions, and be sure they do not give you something to fight an infection that can cause ore problems for other organs. it's a delicate balance and we must all be our own advocates...Your body is strong and so are you...you can do this believe in you! Keep us posted...this is another bump on a long journey... take good care.. much love and 18's Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Tue, Nov 28, 2017 9:08 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, First and most important is what kind of doctor you went to??? Was he or she a Nephrologist? As you know they are the ones that specialize with kidneys. If that doctor is not then i urge you to follow up with one. >From what i know having a sever infection will most probably effect your >kidneys, but it is usually reversible. A lot of antibiotics will also do the same. In fact I know all about it because i had to have a kidney transplant but not for the same reason. Almost 29 years ago i had CML and subsequently a BMT which caused my to undergo total body radiation and huge amounts of chemotherapy. Then about twenty years later my kidneys failed and then for four years, dialysis then a kidney transplant. Now mind you Richard this should not happen to you but for my own circumstances it did happen to me. Now guess what? I was just released from the hospital because of a severe sepsis infection. Because of my knowledge when some of the IV antibiotics were offered to me one of which was Vancomycin because of my condition. Don't get me wrong Vancomycin is a very good antibiotic and i have used it many times, i even had to use it by myself during home care and i would sit there with an IV pole for a couple of hours under that home care nurse, but for the most part i did it by myself. Trust my i know what i am talking about and there are always some good things and also some bad things but the bottom line is that i am still alive and functional. Hey, I have been through the "ringer" but then so have most of you as well, and that bottom line also exists for everyone that may be reading this. You just have to know how to ask questions, try getting to the best doctors that you can, and be an advocate for yourself. You would really be surprised for yourself how it works. I have spent many, many hours on this because i have an obligation that i once made and i try living up to it. Now have you wondered why i end my communications with 18's? Well now you do, it is my obligation. 18's, Marty On Tue, Nov 28, 2017 at 12:30 AM, Richard H wrote: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: My Mushroom and Barley Soup
Just another thing to talk about. Ever notice that when your not feeling well most of the time when you eat something that is hot and soothing you start feeling better? Well this is what it is all about. And for me it was always fresh hot soup. Going back to when i had my BMT and living in a sterile bubble for many months with out having any access to any solid food of any kind but only being fed by an intervenes line using a type of nourishment called TPN. However i never felt hungry because my bowels shut down. and throughout the following months i was always lightheaded and always feeling disoriented. Then when i was finally able to leave i had some home prepared hot food and like magic i was feeling that this was the first time that i had eaten. It is amazing at what a good hot meal can do for you. Always try to eat the best that you can... 18's Marty On Mon, Nov 27, 2017 at 1:16 AM, Marty Gartenberg wrote: > Hi Joyce, > > Yes I am glad to be back at home. Now I will pass on the recipe for my > mushroom and barley soup. > > Everything listed here is for about 5 quarts. First get a quart of > Swanson beef broth 32 ounces but I usually make my own but it is very time > consuming so just plain beef broth will do. Add it to a pot, usually a 5 or > 6 quart pot will do. > > During it's cooking you will need to add more water because it will start > thickening. Add more water once it is needed because you don't want it to > thicken to quickly. Before you start make sure you have all of the > ingredients handy. > > A carrot, several stalks of celery, but wait there is still more...Make > sure that before you start everything that you have a fresh package of soup > greens that contain an onion, turnip, white radish and a few more things > including some dill and parsley. All of which must be chopped into small > squares. This step is important because all of these really enhance the > soup flavor. > > Plenty more to go... A packet of soup beans that contain inside of it a > small cellophane package of a powder that is the key all of this delicious > flavor. Now add all of this to the pot and add about two cups of water and > let it simmer on low heat a lid covering it almost to the point of boiling > but don't let it because everything about this soup is it's flavor and > aroma. > > Now add in a medium package of baby lima beans and a lot of fresh sliced > white mushrooms about 8 ounces or more depending on how much soup your > making. now let gently boil being careful to not over cook it, and > always suture it as you see fit. > > Finally the few ingredients. Take the cubed meat and cut it into little > pieces about half of the package and place it into the pot. Please remember > that the pot will usually be almost filled so just to be sure to have > another soup pot available because there is something that are soup marrow > bones and may take up more room. > > Toss them in and bring it to a gentle boil again. Then when the marrow in > the bones become soft usually about an hour or more, scoop It out and put > it back into the pot, and throw out the bones. from the soup pot > . > Almost done... Remember the Barley? Try to get pearl barley but any other > will do. Add about half a bag into the pot and remember you then must stir > the pot often on moderate heat to make sure the Barley does not burn but > make sure it is done because it will clump up and mess up your soup. > > Last things are salt, pepper, onion powder and garlic powder but never add > pieces of garlic because it may over power the soup add some paprika and if > you want a small amount of thyme but no basil leaves. > > Just remember to keep the cover on the pot until it boils down and you > will need to add some water, but always try to stir as you see fit > > Don't rush the soup, you will know when it is done. I guaranty you will > really enjoy this soup because it can be eaten as a soup or as a meal. > > The more that you practice the better that you will get making this soup. > Your taste buds and mouth will smile with joy what you have made. > > All of this was given to my be my parents that were cooks. When our > children came over to visit with their grandparents they would always get > that mushroom and barley soup. > > I sincerely hope that you will try it and enjoy it. Any questions ? > > If you decide to try it then would you let me know? > > Try to remember this, when you are happy then so is your body. When you > then try something new that you have never tried before you open up your > mind... > > 18's, > > Marty > > > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.go
Re: [CMLHope] Hospital for Thanksgiving.
Beth, a great hug to you for trying to help Richard out. You can plainly see what advocates we are to each other and how much we care for each other. Thank you. 🌷 18's, Marty On Tue, Nov 28, 2017 at 10:38 AM, bkbarney via CMLHope < cmlhope@googlegroups.com> wrote: > Dear Richard, > > So sorry to hear about your troubles with your kidneys...These powerful > drugs have affected many of us in many ways, including kidney function. I > am hopeful that you will make a complete recovery and with proper and > thoughtful care, you will be better very soon. You have been through a > great deal already..you will get through this. I will keep you in my > prayers..Take extra good care of yourself and remember to advocate for > yourself, ask questions, and be sure they do not give you something to > fight an infection that can cause ore problems for other organs. it's a > delicate balance and we must all be our own advocates...Your body is strong > and so are you...you can do this believe in you! > > Keep us posted...this is another bump on a long journey... > > take good care.. > > much love and 18's Beth > > > > -Original Message- > From: Marty Gartenberg > To: cmlhope > Sent: Tue, Nov 28, 2017 9:08 am > Subject: Re: [CMLHope] Hospital for Thanksgiving. > > Richard, > > First and most important is what kind of doctor you went to??? Was he or > she a Nephrologist? > As you know they are the ones that specialize with kidneys. If that doctor > is not then i urge > you to follow up with one. > > From what i know having a sever infection will most probably effect your > kidneys, but it is usually > reversible. A lot of antibiotics will also do the same. > > In fact I know all about it because i had to have a kidney transplant but > not for the same reason. > Almost 29 years ago i had CML and subsequently a BMT which caused my to > undergo total body > radiation and huge amounts of chemotherapy. Then about twenty years later > my kidneys failed > and then for four years, dialysis then a kidney transplant. > > Now mind you Richard this should not happen to you but for my own > circumstances it did happen > to me. Now guess what? I was just released from the hospital because of a > severe sepsis infection. > > Because of my knowledge when some of the IV antibiotics were offered to me > one of which was > Vancomycin because of my condition. Don't get me wrong Vancomycin is a > very good antibiotic > and i have used it many times, i even had to use it by myself during home > care and i would sit there > with an IV pole for a couple of hours under that home care nurse, but for > the most part i did it by myself. > > Trust my i know what i am talking about and there are always some good > things and also some bad things > but the bottom line is that i am still alive and functional. > > Hey, I have been through the "ringer" but then so have most of you as > well, and that bottom line also exists > for everyone that may be reading this. > > You just have to know how to ask questions, try getting to the best > doctors that you can, and be an advocate > for yourself. You would really be surprised for yourself how it works. > > I have spent many, many hours on this because i have an obligation that i > once made and i try living up to it. > > Now have you wondered why i end my communications with 18's? Well now you > do, it is my obligation. > > 18's, > > Marty > > > On Tue, Nov 28, 2017 at 12:30 AM, Richard H wrote: > > Well riding the tide just didn't work out. I was having problems Sunday > the ninteenth with kisneys & such. Monday Morning all fluids stopped. My > Son was in and watched over me and when I did not recover on Tuesday he > took me to Doctor for testing and results sent me to hospital. We still > have not found the current problem with Kidneys, but did have a severe > infection. I am slowly recovering and back at home. I have Cronic Kidney > desiease beaacuse of TOO Many Powerful drugs. This is the first flair up > and everything the Drs. want to hear just aren't there for them to work > with. Seems like I am always a speciman for them to stand and scratch > their chin and always say "I've never seen anything like that!" > > 18's > Richard H. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group > /CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A s
Re: [CMLHope] My Mushroom and Barley Soup
Joyce, I actually called Schnucks grocery store cooperate office and asked if they sell leasa vegetable mix, and the person actually went on the internet and saw a picture of it. He told me that he doesn't remember it but that he will find out and give me a return call. So i will wait until i hear back from him. Joyce, don't worry about it one way or another you will be able to get it or a substitute as well. If i could mail it to you i would but it is kept in the refrigerated area of the supermarkets, so that won't work. And yes Joyce, it is that important to me. It's like someone eating a crunchy sour or dill pickle behind you, your mouth starts to water.🤑 Until then keep those bones frozen. See i do have a sense of humor, but in structured ways. On Tue, Nov 28, 2017 at 2:07 AM, Joyce Mesnarich wrote: > Thank you very much, Marty. I now have a clear idea of what I need for > this delicious soup. We don’t have Publix but I think I can find all of > these items at our Schnucks grocery store. Bet you never heard of that > one. We do have a Walmart nearby. I bought the soup marrow bones today > and put them in the freezer until I get all the other ingredients. > > Joyce in Southern Illinois > > > On Nov 27, 2017, at 1:32 PM, Marty Gartenberg wrote: > > Hi Joyce, > > Soup greens and soup beans are two different things. First check out the > vegetable with mushroom > > Manischewitz soup mix. It comes in a cellophane round wrapper whit the bag > of spices included in the bag. Walmart sells it for less then $2.00 if you > buy it in the store. > > https://www.walmart.com/ip/Manischewitz-Vegetable-With-Mushr > ooms-Soup-Mix-6-oz/30867716?wmlspartner=wlpa&adid= > 2270&wl0=&wl1=g&wl2=c&wl3=42423897272&wl4= > pla-51320962143&wl5=9012041&wl6=&wl7=&wl8=&wl9=pla&wl10= > 8175035&wl11=online&wl12=30867716&wl13=&veh=sem > > When you see the picture please notice that little plastic bag inside of > it and look closely at the package. > > The other ingredients are Leasa soup mix. Picture shown below Try your > local supermarket or any other outlet, and it doesn't have to be the Leasa > brand. I don't know if there are any Publix supermarkets around you? But > they sell it. > > Also Leasa vegetable mix > > > ENJOY! > > 18's, > > Marty > > > > > > > > > On Mon, Nov 27, 2017 at 2:11 AM, Joyce Mesnarich wrote: > >> Thank you so much, Marty. I am going to make this as soon as I can get >> all the ingredients together. I have never seen a package of soup greens. >> Is that something that you find readily in your stores? Are there any >> actual greens in it? Or just onion, turnip (did you mean turnip greens or >> just a few turnips)? Sounds like it might be harder to find all the >> ingredients than to make the soup. I’ll also have to research the soup >> marrow bones. Don’t know where to find them either. we have what they >> call backbones. Is that the same? >> Thank you so much for your help. This sounds like a really healthy dish >> as well. >> Joyce in Southern Illinois >> >> >> On Nov 27, 2017, at 12:16 AM, Marty Gartenberg wrote: >> >> Hi Joyce, >> >> Yes I am glad to be back at home. Now I will pass on the recipe for my >> mushroom and barley soup. >> >> Everything listed here is for about 5 quarts. First get a quart of >> Swanson beef broth 32 ounces but I usually make my own but it is very time >> consuming so just plain beef broth will do. Add it to a pot, usually a 5 or >> 6 quart pot will do. >> >> During it's cooking you will need to add more water because it will start >> thickening. Add more water once it is needed because you don't want it to >> thicken to quickly. Before you start make sure you have all of the >> ingredients handy. >> >> A carrot, several stalks of celery, but wait there is still more...Make >> sure that before you start everything that you have a fresh package of soup >> greens that contain an onion, turnip, white radish and a few more things >> including some dill and parsley. All of which must be chopped into small >> squares. This step is important because all of these really enhance the >> soup flavor. >> >> Plenty more to go... A packet of soup beans that contain inside of it a >> small cellophane package of a powder that is the key all of this delicious >> flavor. Now add all of this to the pot and add about two cups of water and >> let it simmer on low heat a lid covering it almost to the point of boiling >> but don't let it because everything about this soup is it's flavor and >> aroma. >> >> Now add in a medium package of baby lima beans and a lot of fresh sliced >> white mushrooms about 8 ounces or more depending on how much soup your >> making. now let gently boil being careful to not over cook it, and >> always suture it as you see fit. >> >> Finally the few ingredients. Take the cubed meat and cut it into little >> pieces about half of the package and place it into the pot. Please remember >> that the pot will usually be
Re: [CMLHope] Email change
Susan, I think you should have gotten one by now. greenie In a message dated 11/28/2017 10:01:30 A.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cm
Re: [CMLHope] Email change
Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@CMLHope-unsubscr For more options, visit this group at _http://groups.google.com/http://groups_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@cmlhope+unsubscr. For more options, visit _https://groups.google.com/d/https:_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are
Re: [CMLHope] Email change
Greenie, We are all outstanding, we just have to open up our eyes to see it. Remember we all have our different problems but it is the ways that we must deal with them. Life is a learning process. 18's Marty On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope < cmlhope@googlegroups.com> wrote: > Marty, you are outstanding. > > greenie > > In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, > wa2...@gmail.com writes: > > Susan, no it doesn't mean that you should be expecting a message from AOL > is means that you should expecting a message from GOD wishing you well. 🌷 > > 18's, > > Marty > > On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Does this mean I should be expecting a message from AOL soon? >> >> Hugs, >> Susan Rosenthal >> >> On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> Yes I'm afraid they will lose s lot of customers with so many free. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> Thank you, I'll give it a try. I don't understand something to do with >> AIM. >> >> greenie >> >> In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> DG: >> >> I'm telling you this doesn't make any sense. Call them up and complain. >> We've had AOL since it first began service. >> >> Hugs, >> Susan Rosenthal >> >> On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> It may be free but not my email as of the 15th of Dec. >> >> dg >> >> In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> Greenie and others: >> >> AOL is freewhat are you guys talking about? We just pay $4.99 a >> month to receive live support. >> >> Hugs, >> Susan Rosenthal >> >> On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> I saw that Greenie. Makes me mad. I paid years ago and could never find >> any company I liked better. They are still letting me use this email and >> you can use email free. >> I'll note that. Thanks. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> As of December 5th I will no longer be using AOL. They have gone up to >> $30.00 per month and Comcast is free for me so my new email address will be >> >> (myvet...@comcast.net) >> >> Thanks to everyone, >> >> David (greenie) Greenberg >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group >> /CMLHope >> --- >> You received this message because
Re: [CMLHope] Email change
Very True... greenie In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, We are all outstanding, we just have to open up our eyes to see it. Remember we all have our different problems but it is the ways that we must deal with them. Life is a learning process. 18's Marty On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Gr
Re: [CMLHope] Email change
As my X wife would always tell me (I don't have any problems you have them all). She ends up an alcoholic, divorced and lost custody of there son which her lawyer husband has. As they say what goes around come's around. greenie In a message dated 11/28/2017 2:29:49 P.M. Eastern Standard Time, wa2...@gmail.com writes: Greenie, We are all outstanding, we just have to open up our eyes to see it. Remember we all have our different problems but it is the ways that we must deal with them. Life is a learning process. 18's Marty On Tue, Nov 28, 2017 at 12:29 PM, Myvety2k via CMLHope wrote: Marty, you are outstanding. greenie In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, wa2...@gmail.com writes: Susan, no it doesn't mean that you should be expecting a message from AOL is means that you should expecting a message from GOD wishing you well. 🌷 18's, Marty On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope wrote: Does this mean I should be expecting a message from AOL soon? Hugs, Susan Rosenthal On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope wrote: Yes I'm afraid they will lose s lot of customers with so many free. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope wrote: Thank you, I'll give it a try. I don't understand something to do with AIM. greenie In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: DG: I'm telling you this doesn't make any sense. Call them up and complain. We've had AOL since it first began service. Hugs, Susan Rosenthal On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope wrote: It may be free but not my email as of the 15th of Dec. dg In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie and others: AOL is freewhat are you guys talking about? We just pay $4.99 a month to receive live support. Hugs, Susan Rosenthal On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope wrote: I saw that Greenie. Makes me mad. I paid years ago and could never find any company I liked better. They are still letting me use this email and you can use email free. I'll note that. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope wrote: As of December 5th I will no longer be using AOL. They have gone up to $30.00 per month and Comcast is free for me so my new email address will be (myvet...@comcast.net) Thanks to everyone, David (greenie) Greenberg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe@googlegrouCMLHop For more options, visit this group at _http://groups.google.com/grouphttp://g_ (http://groups.google.com/group/CMLHope) --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscribe@googlegroucmlhop. For more options, visit _https://groups.google.com/d/ophttp_ (https://groups.google.com/d/optout) . -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscri
Re: [CMLHope] Hospital for Thanksgiving.
Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hospital for Thanksgiving.
Greenie, I am thinking about you too and hoping and praying that your kidneys will hold. It is a scary thing to have to live with fear and uncertainty. We are all with you.. I cannot imagine what it is like to lose a son, but I think you have a great deal of soul and resiliency to survive such a lose...and I imagine that you will navigate the kidney issues with the same grace you and your sweetie have navigated this past year. Grief can be so isolating and lonely..especially during the holidays.and so can living with a life threatening illness...as long as you are here, we are never alone.I am holding you both and Richard..and Marty, and Susan and Jeanie and and everyone else reading this stay positive...soak in the genuine love of this grouplike the suns rays... love, and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 3:58 pm Subject: Re: [CMLHope] Hospital for Thanksgiving. Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because yo
Re: [CMLHope] Hospital for Thanksgiving.
Thank you Susan.. greenie In a message dated 11/28/2017 5:11:34 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Hospital for Thanksgiving.
Thank you so much Beth. The kidney problem I'll just haft to live with but the lost of Derek I'm having a tuff time dealing with it but I will get through it. Greenie In a message dated 11/28/2017 7:29:08 P.M. Eastern Standard Time, cmlhope@googlegroups.com writes: Greenie, I am thinking about you too and hoping and praying that your kidneys will hold. It is a scary thing to have to live with fear and uncertainty. We are all with you.. I cannot imagine what it is like to lose a son, but I think you have a great deal of soul and resiliency to survive such a lose...and I imagine that you will navigate the kidney issues with the same grace you and your sweetie have navigated this past year. Grief can be so isolating and lonely..especially during the holidays.and so can living with a life threatening illness...as long as you are here, we are never alone.I am holding you both and Richard..and Marty, and Susan and Jeanie and and everyone else reading this stay positive...soak in the genuine love of this grouplike the suns rays... love, and 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 3:58 pm Subject: Re: [CMLHope] Hospital for Thanksgiving. Dear Richard and Greenie, You two are fighters. I know you can beat this attack on your kidneys by being patient and eating and drinking what they tell you to. So sorry, I will be praying for you both. 18's and hugs, Susan Z -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Nov 28, 2017 8:33 am Subject: Re: [CMLHope] Hospital for Thanksgiving. Richard, I hope everything works out for you I am having the same problem because I have stage 3 kidney disease and it's scary. greenie In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, rbhuffm...@gmail.com writes: Well riding the tide just didn't work out. I was having problems Sunday the ninteenth with kisneys & such. Monday Morning all fluids stopped. My Son was in and watched over me and when I did not recover on Tuesday he took me to Doctor for testing and results sent me to hospital. We still have not found the current problem with Kidneys, but did have a severe infection. I am slowly recovering and back at home. I have Cronic Kidney desiease beaacuse of TOO Many Powerful drugs. This is the first flair up and everything the Drs. want to hear just aren't there for them to work with. Seems like I am always a speciman for them to stand and scratch their chin and always say "I've never seen anything like that!" 18's Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/)
Re: [CMLHope] Email change
WHERE I hope he doesn't get wet. Sorry Greenie, I couldn't resist... Richard H On Tuesday, November 28, 2017 at 11:29:28 AM UTC-6, greenie wrote: > > Marty, you are outstanding. > > greenie > > In a message dated 11/28/2017 11:46:41 A.M. Eastern Standard Time, > wa2...@gmail.com writes: > > Susan, no it doesn't mean that you should be expecting a message from AOL > is means that you should expecting a message from GOD wishing you well. 🌷 > > 18's, > > Marty > > On Tue, Nov 28, 2017 at 7:35 AM, 'Susan' via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Does this mean I should be expecting a message from AOL soon? >> >> Hugs, >> Susan Rosenthal >> >> On Nov 27, 2017, at 4:17 PM, 'Jeanie' via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> Yes I'm afraid they will lose s lot of customers with so many free. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Nov 26, 2017, at 5:45 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> Thank you, I'll give it a try. I don't understand something to do with >> AIM. >> >> greenie >> >> In a message dated 11/25/2017 4:15:29 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> DG: >> >> I'm telling you this doesn't make any sense. Call them up and complain. >> We've had AOL since it first began service. >> >> Hugs, >> Susan Rosenthal >> >> On Nov 25, 2017, at 3:18 PM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> It may be free but not my email as of the 15th of Dec. >> >> dg >> >> In a message dated 11/25/2017 2:40:36 P.M. Eastern Standard Time, >> cmlhope@googlegroups.com writes: >> >> Greenie and others: >> >> AOL is freewhat are you guys talking about? We just pay $4.99 a >> month to receive live support. >> >> Hugs, >> Susan Rosenthal >> >> On Nov 25, 2017, at 2:31 PM, 'Jeanie' via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> I saw that Greenie. Makes me mad. I paid years ago and could never find >> any company I liked better. They are still letting me use this email and >> you can use email free. >> I'll note that. Thanks. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >> On Nov 25, 2017, at 7:38 AM, Myvety2k via CMLHope < >> cmlhope@googlegroups.com> wrote: >> >> As of December 5th I will no longer be using AOL. They have gone up to >> $30.00 per month and Comcast is free for me so my new email address will be >> >> (myvet...@comcast.net) >> >> Thanks to everyone, >> >> David (greenie) Greenberg >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe f
Re: [CMLHope] Hospital for Thanksgiving.
Thanks Beth. On Tuesday, November 28, 2017 at 6:29:07 PM UTC-6, Beth wrote: > > Greenie, > > I am thinking about you too and hoping and praying that your kidneys will > hold. It is a scary thing to have to live with fear and uncertainty. We are > all with you.. I cannot imagine what it is like to lose a son, but I think > you have a great deal of soul and resiliency to survive such a lose...and I > imagine that you will navigate the kidney issues with the same grace you > and your sweetie have navigated this past year. Grief can be so isolating > and lonely..especially during the holidays.and so can living with a > life threatening illness...as long as you are here, we are never > alone.I am holding you both > and Richard..and Marty, and Susan and Jeanie and and everyone else reading > this > > stay positive...soak in the genuine love of this grouplike the suns > rays... > > love, and 18's Beth > > > -Original Message- > From: 'Susan Zimmerman' via CMLHope > > > To: cmlhope > > Sent: Tue, Nov 28, 2017 3:58 pm > Subject: Re: [CMLHope] Hospital for Thanksgiving. > > Dear Richard and Greenie, > > You two are fighters. I know you can beat this attack on your kidneys by > being patient and eating and drinking what they tell you to. > So sorry, I will be praying for you both. > > > 18's and hugs, > Susan Z > > > -Original Message- > From: Myvety2k via CMLHope > > To: cmlhope > > Sent: Tue, Nov 28, 2017 8:33 am > Subject: Re: [CMLHope] Hospital for Thanksgiving. > > Richard, I hope everything works out for you I am having the same problem > because I have stage 3 kidney disease and it's scary. > > greenie > > In a message dated 11/28/2017 12:30:26 A.M. Eastern Standard Time, > rbhuf...@gmail.com writes: > > Well riding the tide just didn't work out. I was having problems Sunday > the ninteenth with kisneys & such. Monday Morning all fluids stopped. My > Son was in and watched over me and when I did not recover on Tuesday he > took me to Doctor for testing and results sent me to hospital. We still > have not found the current problem with Kidneys, but did have a severe > infection. I am slowly recovering and back at home. I have Cronic Kidney > desiease beaacuse of TOO Many Powerful drugs. This is the first flair up > and everything the Drs. want to hear just aren't there for them to work > with. Seems like I am always a speciman for them to stand and scratch > their chin and always say "I've never seen anything like that!" > > 18's > Richard H. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to CMLHope- > unsub...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to CMLHope- > unsub...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com . > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to CMLHope- > unsub...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com . > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send
Re: [CMLHope] Hospital for Thanksgiving.
Thanks Marty. Yes it was a Nephrologist. I have been seeing him for about 8 years. He identified the problem when I started @ 1.5. Last spring I was @ 2.5. My Fall figure jumped to 3.5 and while in the hospital it went over 4 before we identified the infection. I was back down to 3.5 and was progressing downward. I will have another test by the end of the week with Dr. and me hoping to to see 2.5. I am still on medicine program that will last 10 days. Thanks so much for your input. When I started this program, I thought about you and all you have been thru. That sure has made an easy path for me follow and keep the faith. 18's Richard H. On Tuesday, November 28, 2017 at 8:05:51 AM UTC-6, wa2yyx wrote: > > Richard, > > First and most important is what kind of doctor you went to??? Was he or > she a Nephrologist? > As you know they are the ones that specialize with kidneys. If that doctor > is not then i urge > you to follow up with one. > > From what i know having a sever infection will most probably effect your > kidneys, but it is usually > reversible. A lot of antibiotics will also do the same. > > In fact I know all about it because i had to have a kidney transplant but > not for the same reason. > Almost 29 years ago i had CML and subsequently a BMT which caused my to > undergo total body > radiation and huge amounts of chemotherapy. Then about twenty years later > my kidneys failed > and then for four years, dialysis then a kidney transplant. > > Now mind you Richard this should not happen to you but for my own > circumstances it did happen > to me. Now guess what? I was just released from the hospital because of a > severe sepsis infection. > > Because of my knowledge when some of the IV antibiotics were offered to me > one of which was > Vancomycin because of my condition. Don't get me wrong Vancomycin is a > very good antibiotic > and i have used it many times, i even had to use it by myself during home > care and i would sit there > with an IV pole for a couple of hours under that home care nurse, but for > the most part i did it by myself. > > Trust my i know what i am talking about and there are always some good > things and also some bad things > but the bottom line is that i am still alive and functional. > > Hey, I have been through the "ringer" but then so have most of you as > well, and that bottom line also exists > for everyone that may be reading this. > > You just have to know how to ask questions, try getting to the best > doctors that you can, and be an advocate > for yourself. You would really be surprised for yourself how it works. > > I have spent many, many hours on this because i have an obligation that i > once made and i try living up to it. > > Now have you wondered why i end my communications with 18's? Well now you > do, it is my obligation. > > 18's, > > Marty > > > On Tue, Nov 28, 2017 at 12:30 AM, Richard H > wrote: > >> Well riding the tide just didn't work out. I was having problems Sunday >> the ninteenth with kisneys & such. Monday Morning all fluids stopped. My >> Son was in and watched over me and when I did not recover on Tuesday he >> took me to Doctor for testing and results sent me to hospital. We still >> have not found the current problem with Kidneys, but did have a severe >> infection. I am slowly recovering and back at home. I have Cronic Kidney >> desiease beaacuse of TOO Many Powerful drugs. This is the first flair up >> and everything the Drs. want to hear just aren't there for them to work >> with. Seems like I am always a speciman for them to stand and scratch >> their chin and always say "I've never seen anything like that!" >> >> 18's >> Richard H. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com . >> For more options, visit https://groups.google.com/d/optout. >> > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to th
