Re: [CMLHope] My annual appreciation day

['Jeanie' via CMLHope]

Thanks Sweetheart
Those were beautiful.  You always brighten our day. 
I have been in so much pain lately and don't know if I should go to a dr or 
not. It started in my little right finger and then creeped on up my arm.  Now 
my heel and sometimes ankles are killing me.  The pain usually wakes me up 
nightly. I get up and massage it good.  Do any of my warriors suggest another 
dr?
Anyway I loved the video and appreciation day is a wonderful idea. My blood 
work show no leukemia.  My pain is probably old age and the answer more pills. 
Do any of you have this. It clears up during the day most of the time.  
My new dr seems to be kk. I haven't met with her that much yet. I guess the 
next step would be to try and get off pills. There are trials for that. 
Have a wonderful day everyone. 
Love you so very much 
Jeanie from Fl

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Feb 16, 2018, at 11:36 AM, Marty Gartenberg  wrote:
> 
> So that you know my annual appreciation day could be on any day and could 
> happen on any other day. It was set on my actual birthday  May 21st which is 
> also on the day of my bone marrow transplant.
> 
> So just to let you know how much all of you mean to me i am including this to 
> every one of you.
> Please turn the volume up, sit back and relax, and enjoy this. I sincerely 
> hope that it will put everything in prospective to you. 
> 
> 18's,
> 
> Marty
> -- 
> -- 
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Re: [CMLHope] My annual appreciation day

[Marty Gartenberg]

Hi Jeanie,

Sorry to hear about the pain your having. Hmm it sounds to me like a case
of gout but i could be wrong, for instance the gout usually starts in the
lower feet particularly in the big toe but can also manifest it self in any
joint of your body. It did for me and i suffered all kinds of terrible pain.

That was right after my diagnoses when i was put on Allopurinal and Hydrea.
About two weeks later my gout was gone and so was my very white cell count.
So what this meant is it usually takes about two weeks to distinguishes the
gout. It's to bad however that my white blood count was going up until i
got my BMT, but at least it "cured the gout".

>From then on no more gout but every once in a while it's ugly head
"craps"😖 up on me if i eat anything containing purines like red meat,
mushrooms etc which is my favorite especially smothered in mushrooms.  Now
there is more... Once i received my BMT and my Kidney transplant i had to
be put on Prednisone which will eliminate with in 30 minutes or so even
when you have an active attack.

I have been taking Allopurinal for over 30 years and  Prednisone for the
last 7 years. Yes i have no gout or very little gout for all of there
years, however there is both good and bad... I have already described the
good but the bad is that it increased my blood sugar level...

Jeanie, i am not a doctor but to answer your question, yes i would go see a
doctor because it is you that should have your questions answered. And
maybe i am wrong about the gout, who knows, but something to talk about
with your doctor?

Okay now Jeanie i have to answer a comment that you made. It is a really
good to hear that you began your post to me. I even copied and pasted
it  "Thanks
Sweetheart" i liked that and thought it was cute and i am passing this onto
you 🌷

By the way as you probably know that i live in Florida, in West Palm Beach
in a town called Boynton Beach right near the Florida Turnpike. Where do
you live?

You have a great day.

18's,

Marty

On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thanks Sweetheart
> Those were beautiful.  You always brighten our day.
> I have been in so much pain lately and don't know if I should go to a dr
> or not. It started in my little right finger and then creeped on up my
> arm.  Now my heel and sometimes ankles are killing me.  The pain usually
> wakes me up nightly. I get up and massage it good.  Do any of my warriors
> suggest another dr?
> Anyway I loved the video and appreciation day is a wonderful idea. My
> blood work show no leukemia.  My pain is probably old age and the answer
> more pills. Do any of you have this. It clears up during the day most of
> the time.
> My new dr seems to be kk. I haven't met with her that much yet. I guess
> the next step would be to try and get off pills. There are trials for that.
> Have a wonderful day everyone.
> Love you so very much
> Jeanie from Fl
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Feb 16, 2018, at 11:36 AM, Marty Gartenberg  wrote:
>
> So that you know my annual appreciation day could be on any day and could
> happen on any other day. It was set on my actual birthday  May 21st which
> is also on the day of my bone marrow transplant.
>
> So just to let you know how much all of you mean to me i am including this
> to every one of you.
> Please turn the volume up, sit back and relax, and enjoy this. I sincerely
> hope that it will put everything in prospective to you.
>
> 18's,
>
> Marty
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
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> "CMLHope" group.
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> group/CMLHope
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> 
>
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[CMLHope] Joyce and all

['Jeanie' via CMLHope]

Hi all
I was wondering about gout as my father and brother had it but this is the 
first time I've had this. My fathers big toe was swollen and was hurting so 
bad. 
Have any of you tried Voltaren cream?  It helps a lot but you need a 
prescription. 
I was drinking a coke a day and thought this might be it but quit and still 
hurt. 
Could be the Ponatinib.   I never had it with the other tki's.   Keep praying 
my warrior group.  
Thanks


My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Feb 18, 2018, at 9:46 AM, Marty Gartenberg  wrote:
> 
> Hi Jeanie,
> 
> Sorry to hear about the pain your having. Hmm it sounds to me like a case of 
> gout but i could be wrong, for instance the gout usually starts in the lower 
> feet particularly in the big toe but can also manifest it self in any joint 
> of your body. It did for me and i suffered all kinds of terrible pain.
> 
> That was right after my diagnoses when i was put on Allopurinal and Hydrea. 
> About two weeks later my gout was gone and so was my very white cell count. 
> So what this meant is it usually takes about two weeks to distinguishes the 
> gout. It's to bad however that my white blood count was going up until i got 
> my BMT, but at least it "cured the gout".
> 
> From then on no more gout but every once in a while it's ugly head "craps"😖 
> up on me if i eat anything containing purines like red meat, mushrooms etc 
> which is my favorite especially smothered in mushrooms.  Now there is more... 
> Once i received my BMT and my Kidney transplant i had to be put on Prednisone 
> which will eliminate with in 30 minutes or so even when you have an active 
> attack. 
> 
> I have been taking Allopurinal for over 30 years and  Prednisone for the last 
> 7 years. Yes i have no gout or very little gout for all of there years, 
> however there is both good and bad... I have already described the good but 
> the bad is that it increased my blood sugar level...
> 
> Jeanie, i am not a doctor but to answer your question, yes i would go see a 
> doctor because it is you that should have your questions answered. And maybe 
> i am wrong about the gout, who knows, but something to talk about with your 
> doctor?
> 
> Okay now Jeanie i have to answer a comment that you made. It is a really good 
> to hear that you began your post to me. I even copied and pasted it  "Thanks 
> Sweetheart" i liked that and thought it was cute and i am passing this onto 
> you 🌷
> 
> By the way as you probably know that i live in Florida, in West Palm Beach in 
> a town called Boynton Beach right near the Florida Turnpike. Where do you 
> live?
> 
> You have a great day.
> 
> 18's,
> 
> Marty
> 
>> On Sun, Feb 18, 2018 at 7:51 AM, 'Jeanie' via CMLHope 
>>  wrote:
>> Thanks Sweetheart
>> Those were beautiful.  You always brighten our day. 
>> I have been in so much pain lately and don't know if I should go to a dr or 
>> not. It started in my little right finger and then creeped on up my arm.  
>> Now my heel and sometimes ankles are killing me.  The pain usually wakes me 
>> up nightly. I get up and massage it good.  Do any of my warriors suggest 
>> another dr?
>> Anyway I loved the video and appreciation day is a wonderful idea. My blood 
>> work show no leukemia.  My pain is probably old age and the answer more 
>> pills. Do any of you have this. It clears up during the day most of the 
>> time.  
>> My new dr seems to be kk. I haven't met with her that much yet. I guess the 
>> next step would be to try and get off pills. There are trials for that. 
>> Have a wonderful day everyone. 
>> Love you so very much 
>> Jeanie from Fl
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> 🐠18's
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extramine
>> 0 CBL. ABL
>> 
>>> On Feb 16, 2018, at 11:36 AM, Marty Gartenberg  wrote:
>>> 
>>> So that you know my annual appreciation day could be on any day and could 
>>> happen on any other day. It was set on my actual birthday  May 21st which 
>>> is also on the day of my bone marrow transplant.
>>> 
>>> So just to let you know how much all of you mean to me i am including this 
>>> to every one of you.
>>> Please turn the volume up, sit back and relax, and enjoy this. I sincerely 
>>> hope that it will put everything in prospective to you. 
>>> 
>>> 18's,
>>> 
>>> Marty
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to CMLHope@googlegroups.com
>>> To unsubscribe from this group, send email to 
>>> cmlhope-unsubscr...@googlegroups.com
>>> For more options, visi

[CMLHope] Joyce

['Jeanie' via CMLHope]

So sorry to hear about all your problems. Did you get good care?  I have 
umbelical hernia. Been afraid to get it fixed.  Anyone had this fixed?
Mine happened due to umbelical surgery twice from gallbladder and getting tubes 
tied.  Just weakened the area. I wish I had had it fixed when I was younger.  
I live in the outskirts of Orlando. It's close to my daughters.  
Does anyone have any idea which type of dr I should see ?
I don't drink. Smoke. Overeat,and live a healthy lifestyle.  Pray for all 
Love you so very much 
Jeanie
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich  wrote:
> 
> Beautiful slideshow, Marty.  Thank you.
> Have not been on this site for 3 weeks.  Went to ER with gallbladder attack 
> and they did a CAT scan and noticed that my old hiatal hernia that has been 
> bugging me for some 20 years had twisted, and evidently that is a very bad 
> thing, because they put me in an ambulance and sent me from our local 
> hospital to BarnesJewish in St Louis and said I would have emergency surgery 
> as soon as I got there.  That didn’t happen but I was in the hospital for 3 
> days as they did test upon test.  I went home for 3 days and had surgery on 
> Monday the next week.  Had gallbladder removed and hiatal hernia was 
> repaired.  I was doing very well and planned to go home on Wednesday when my 
> oxygen levels went down.  Long story short:  I had blood clots in both lungs 
> and one in my right calf.  Was in hospital for 8 days and came home using 
> belly shots of Lovenox to bridge to warfarin.  Am doing better and gaining 
> strength.  Had to eat pureed food for 2 weeks.  Now on soft diet.  It was a 
> trying time because I am the caregiver for my husband who has CML and is also 
> legally blind.  But we  pulled through with the help of our two daughters.  
> I’ll have to get caught up on what went on while I was out of commission.
>Joyce in Southern Illinois
> 
> 
>> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg  wrote:
>> 
>> 
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
> 
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[CMLHope] Re: Joyce blood clots?

['Jeanie' via CMLHope]

His could you tell you had blood clots?. Lots in legs. I bruise easily my 
Ponatinib has blood clots as side effects.  

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extramine
0 CBL. ABL

> On Feb 18, 2018, at 12:32 PM, Jeanie  wrote:
> 
> 
> So sorry to hear about all your problems. Did you get good care?  I have 
> umbelical hernia. Been afraid to get it fixed.  Anyone had this fixed?
> Mine happened due to umbelical surgery twice from gallbladder and getting 
> tubes tied.  Just weakened the area. I wish I had had it fixed when I was 
> younger.  
> I live in the outskirts of Orlando. It's close to my daughters.  
> Does anyone have any idea which type of dr I should see ?
> I don't drink. Smoke. Overeat,and live a healthy lifestyle.  Pray for all 
> Love you so very much 
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
> 
>> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich  wrote:
>> 
>> Beautiful slideshow, Marty.  Thank you.
>> Have not been on this site for 3 weeks.  Went to ER with gallbladder attack 
>> and they did a CAT scan and noticed that my old hiatal hernia that has been 
>> bugging me for some 20 years had twisted, and evidently that is a very bad 
>> thing, because they put me in an ambulance and sent me from our local 
>> hospital to BarnesJewish in St Louis and said I would have emergency surgery 
>> as soon as I got there.  That didn’t happen but I was in the hospital for 3 
>> days as they did test upon test.  I went home for 3 days and had surgery on 
>> Monday the next week.  Had gallbladder removed and hiatal hernia was 
>> repaired.  I was doing very well and planned to go home on Wednesday when my 
>> oxygen levels went down.  Long story short:  I had blood clots in both lungs 
>> and one in my right calf.  Was in hospital for 8 days and came home using 
>> belly shots of Lovenox to bridge to warfarin.  Am doing better and gaining 
>> strength.  Had to eat pureed food for 2 weeks.  Now on soft diet.  It was a 
>> trying time because I am the caregiver for my husband who has CML and is 
>> also legally blind.  But we  pulled through with the help of our two 
>> daughters.  I’ll have to get caught up on what went on while I was out of 
>> commission.
>>Joyce in Southern Illinois
>> 
>> 
>>> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg  wrote:
>>> 
>>> 
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
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Re: [CMLHope] Re: Joyce blood clots?

[Marty Gartenberg]

Like i said go and see your doctor because she will answer your questions
if you ask her. There are so many things that it could be just start
somewhere. Most things are usually resolved very easily.

18's

Marty

On Sun, Feb 18, 2018 at 12:35 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> His could you tell you had blood clots?. Lots in legs. I bruise easily my
> Ponatinib has blood clots as side effects.
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Feb 18, 2018, at 12:32 PM, Jeanie  wrote:
>
>
> So sorry to hear about all your problems. Did you get good care?  I have
> umbelical hernia. Been afraid to get it fixed.  Anyone had this fixed?
> Mine happened due to umbelical surgery twice from gallbladder and getting
> tubes tied.  Just weakened the area. I wish I had had it fixed when I was
> younger.
> I live in the outskirts of Orlando. It's close to my daughters.
> Does anyone have any idea which type of dr I should see ?
> I don't drink. Smoke. Overeat,and live a healthy lifestyle.  Pray for all
> Love you so very much
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich  wrote:
>
> Beautiful slideshow, Marty.  Thank you.
> Have not been on this site for 3 weeks.  Went to ER with gallbladder
> attack and they did a CAT scan and noticed that my old hiatal hernia that
> has been bugging me for some 20 years had twisted, and evidently that is a
> very bad thing, because they put me in an ambulance and sent me from our
> local hospital to BarnesJewish in St Louis and said I would have emergency
> surgery as soon as I got there.  That didn’t happen but I was in the
> hospital for 3 days as they did test upon test.  I went home for 3 days and
> had surgery on Monday the next week.  Had gallbladder removed and hiatal
> hernia was repaired.  I was doing very well and planned to go home on
> Wednesday when my oxygen levels went down.  Long story short:  I had blood
> clots in both lungs and one in my right calf.  Was in hospital for 8 days
> and came home using belly shots of Lovenox to bridge to warfarin.  Am doing
> better and gaining strength.  Had to eat pureed food for 2 weeks.  Now on
> soft diet.  It was a trying time because I am the caregiver for my husband
> who has CML and is also legally blind.  But we  pulled through with the
> help of our two daughters.  I’ll have to get caught up on what went on
> while I was out of commission.
>Joyce in Southern Illinois
>
>
> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg  wrote:
>
>
> 
>
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
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Re: [CMLHope] Joyce

[Marty Gartenberg]

Jeanie,

Since you live in or near to Orlando (well you answered my question about
where you live. There are several very good hospitals in or near your area,
why don't you check them out.

Find one and a doctor that will fix your hernia. Why suffer anymore? Same
thing for you Joyce.

You have to know me by now, if something is wrong with me i make sure it is
taken care of asap PLEASE listen.

18's,

Marty

On Sun, Feb 18, 2018 at 12:32 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> So sorry to hear about all your problems. Did you get good care?  I have
> umbelical hernia. Been afraid to get it fixed.  Anyone had this fixed?
> Mine happened due to umbelical surgery twice from gallbladder and getting
> tubes tied.  Just weakened the area. I wish I had had it fixed when I was
> younger.
> I live in the outskirts of Orlando. It's close to my daughters.
> Does anyone have any idea which type of dr I should see ?
> I don't drink. Smoke. Overeat,and live a healthy lifestyle.  Pray for all
> Love you so very much
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
>
> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich  wrote:
>
> Beautiful slideshow, Marty.  Thank you.
> Have not been on this site for 3 weeks.  Went to ER with gallbladder
> attack and they did a CAT scan and noticed that my old hiatal hernia that
> has been bugging me for some 20 years had twisted, and evidently that is a
> very bad thing, because they put me in an ambulance and sent me from our
> local hospital to BarnesJewish in St Louis and said I would have emergency
> surgery as soon as I got there.  That didn’t happen but I was in the
> hospital for 3 days as they did test upon test.  I went home for 3 days and
> had surgery on Monday the next week.  Had gallbladder removed and hiatal
> hernia was repaired.  I was doing very well and planned to go home on
> Wednesday when my oxygen levels went down.  Long story short:  I had blood
> clots in both lungs and one in my right calf.  Was in hospital for 8 days
> and came home using belly shots of Lovenox to bridge to warfarin.  Am doing
> better and gaining strength.  Had to eat pureed food for 2 weeks.  Now on
> soft diet.  It was a trying time because I am the caregiver for my husband
> who has CML and is also legally blind.  But we  pulled through with the
> help of our two daughters.  I’ll have to get caught up on what went on
> while I was out of commission.
>Joyce in Southern Illinois
>
>
> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg  wrote:
>
>
> 
>
>
> --
> --
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Re: [CMLHope] My annual appreciation day

[bkbarney via CMLHope]

Dear Joyce, Oh my gosh!!! You have been through so much!! You are amazing! . I 
am so glad you came through your surgery and complications and get to be back 
home with your hubbie...glad that your daughters were able to help out as 
well!! Glad you are back here...take good care and keep on healing
18s and care,
Beth



-Original Message-
From: Joyce Mesnarich 
To: cmlhope 
Sent: Fri, Feb 16, 2018 11:09 pm
Subject: Re: [CMLHope] My annual appreciation day

Beautiful slideshow, Marty.  Thank you.
Have not been on this site for 3 weeks. Went to ER with gallbladder attack and 
they did a CAT scan and noticed that my old hiatal hernia that has been bugging 
me for some 20 years had twisted, and evidently that is a very bad thing, 
because they put me in an ambulance and sent me from our local hospital to 
BarnesJewish in St Louis and said I would have emergency surgery as soon as I 
got there.  That didn’t happen but I was in the hospital for 3 days as they did 
test upon test.  I went home for 3 days and had surgery on Monday the next 
week.  Had gallbladder removed and hiatal hernia was repaired.  I was doing 
very well and planned to go home on Wednesday when my oxygen levels went down.  
Long story short:  I had blood clots in both lungs and one in my right calf.  
Was in hospital for 8 days and came home using belly shots of Lovenox to bridge 
to warfarin.  Am doing better and gaining strength.  Had to eat pureed food for 
2 weeks.  Now on soft diet.  It was a trying time because I am the caregiver 
for my husband who has CML and is also legally blind. But we  pulled through 
with the help of our two daughters.  I’ll have to get caught up on what went on 
while I was out of commission.
Joyce in Southern Illinois


> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg  wrote:
> 
> 

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Re: [CMLHope] Joyce

[Joyce Mesnarich]

Jeanie,
Yes, I had wonderful care.  Was in the hospital for  8 days and only 
encountered 2 poor nurses.  I am  pushing 80 awfully close and wish I had done 
this operation sooner.  But you know how we do.  Accept the limitations and put 
up with it until it is an emergency.  Hope you find the reason for the pain in 
your hand and arm.
  Joyce in Southern Illinois


> On Feb 18, 2018, at 11:32 AM, 'Jeanie' via CMLHope  
> wrote:
> 
> 
> So sorry to hear about all your problems. Did you get good care?  I have 
> umbelical hernia. Been afraid to get it fixed.  Anyone had this fixed?
> Mine happened due to umbelical surgery twice from gallbladder and getting 
> tubes tied.  Just weakened the area. I wish I had had it fixed when I was 
> younger.  
> I live in the outskirts of Orlando. It's close to my daughters.  
> Does anyone have any idea which type of dr I should see ?
> I don't drink. Smoke. Overeat,and live a healthy lifestyle.  Pray for all 
> Love you so very much 
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extramine
> 0 CBL. ABL
> 
> On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich  > wrote:
> 
>> Beautiful slideshow, Marty.  Thank you.
>> Have not been on this site for 3 weeks.  Went to ER with gallbladder attack 
>> and they did a CAT scan and noticed that my old hiatal hernia that has been 
>> bugging me for some 20 years had twisted, and evidently that is a very bad 
>> thing, because they put me in an ambulance and sent me from our local 
>> hospital to BarnesJewish in St Louis and said I would have emergency surgery 
>> as soon as I got there.  That didn’t happen but I was in the hospital for 3 
>> days as they did test upon test.  I went home for 3 days and had surgery on 
>> Monday the next week.  Had gallbladder removed and hiatal hernia was 
>> repaired.  I was doing very well and planned to go home on Wednesday when my 
>> oxygen levels went down.  Long story short:  I had blood clots in both lungs 
>> and one in my right calf.  Was in hospital for 8 days and came home using 
>> belly shots of Lovenox to bridge to warfarin.  Am doing better and gaining 
>> strength.  Had to eat pureed food for 2 weeks.  Now on soft diet.  It was a 
>> trying time because I am the caregiver for my husband who has CML and is 
>> also legally blind.  But we  pulled through with the help of our two 
>> daughters.  I’ll have to get caught up on what went on while I was out of 
>> commission.
>>Joyce in Southern Illinois
>> 
>> 
>>> On Feb 16, 2018, at 10:36 AM, Marty Gartenberg >> > wrote:
>>> 
>>> 
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com 
>> -
>> 
>> You received this message because you are subscribed to the Google Groups 
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>> 
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>> cmlhope-unsubscr...@googlegroups.com 
>> 
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>> 
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> 
> 
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