Re: [CMLHope] 3 months off Gleevec

[Jamie Tufariello]

On Saturday, September 2, 2017, nycotb176  wrote:

> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with
> sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my
> dosage to 200. After a year, I was still in remission.No Philadelphia Bug
> found in the last 15 yrs. Six months ago I was told I may be a candidate
> for a clinical trial for individuals like me. I had to go thru a list of
> questions and when I was done I was told the trial had closed. I decided to
> take my self of the Gleevec and spoke to my oncologist and he told me that
> he felt I may be CURED (Which I don't like that word) Well its been 3
> months so far and no changes. Looking forward to the future. I was also
> told I would have to be off Gleevec for two years before they would be able
> to tell me the good news. Has anyone else tried to go off Gleevec
>
> --
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Re: [CMLHope] 3 months off Gleevec

['Jeanie' via CMLHope]

So happy for you.  Hope I can get the same results.  You are such an 
inspiration to me so keep up the good work.  
Love you so very much 

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope 
>  wrote:
> 
> Tony:
> 
> This Oct. 2, 2017, I will have been off Gleevec for two years.
> 
> So far, I've remained undetectable-had on blip February 2015, but Dr. Druker 
> assured me that happens about 4 months out and that the next month would show 
> undetectable again.  Been undetectable since just like he said😀
> 
> Had my last PCR test in June at his office.  I live in Miami and will be 
> getting another PCR test this month!  Keeping fingers crossed!
> 
> Hugs,
> Susan Rosenthal
> 
>> On Sep 2, 2017, at 11:45 PM, Tony Lanoue  wrote:
>> 
>> I just read last week on one of the Facebook groups that somebody has been 
>> off Gleevec for two years now and their counter remain stable. I am your 
>> other hand tried going off last year and my counts started coming back up. 
>> So this year I switched to Sprycel, going to stay on the Sprycel for one 
>> year then try to discontinue use. The studies show that people are having 
>> more success staying in remission after being on Sprycel. But like I said 
>> before some people are having success after being treated with Gleevec also! 
>> 
>> Sent from my iPhone
>> 
>> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:
>> 
>>> Do you see just what the meaning of 18's is...
>>> 
>>> Well all that counts is that your finally off of Gleevec. GOOD FOR 
>>> YOU
>>> 
>>> 18's,
>>> 
>>> Marty
>>> 
 On Sat, Sep 2, 2017 at 3:58 PM, nycotb176  wrote:
 Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis 
 of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 
 200. After a year, I was still in remission.No Philadelphia Bug found in 
 the last 15 yrs. Six months ago I was told I may be a candidate for a 
 clinical trial for individuals like me. I had to go thru a list of 
 questions and when I was done I was told the trial had closed. I decided 
 to take my self of the Gleevec and spoke to my oncologist and he told me 
 that he felt I may be CURED (Which I don't like that word) Well its been 3 
 months so far and no changes. Looking forward to the future. I was also 
 told I would have to be off Gleevec for two years before they would be 
 able to tell me the good news. Has anyone else tried to go off Gleevec
 -- 
 -- 
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>>> 
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Re: [CMLHope] 3 months off Gleevec

['Jeanie' via CMLHope]

Thanks for all Marty
The humming bird picture was so beautiful.  My sister has humming birds in her 
yard in the Smokie mountains where she has a summer cottage. I've never had 
them here but I love them. 
Looks like a hurricane might be headed our  way. Pray for all. 
I have cut back on my Ponatinib and will get my blood checked Wednesday so I'll 
see if my blood is ok.  I'm always worried about my blood.  It jumps right out 
of remission.  
Pray everyone. 
Blessings 
❤️🍧🍧❤️

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Sep 3, 2017, at 11:16 AM, Marty Gartenberg  wrote:
> 
> You know what Tony, i have known you for a long time and the one thing that 
> always impress me is that your always on top of things and being so is that 
> your mind will treat your body in a very helpful way.
> 
> No question about that. You'll see.
> 
> 18's,
> 
> Marty
> 
> PS still recovering from a fractured knee and tibia.
> 
>> On Sat, Sep 2, 2017 at 11:45 PM, Tony Lanoue  wrote:
>> I just read last week on one of the Facebook groups that somebody has been 
>> off Gleevec for two years now and their counter remain stable. I am your 
>> other hand tried going off last year and my counts started coming back up. 
>> So this year I switched to Sprycel, going to stay on the Sprycel for one 
>> year then try to discontinue use. The studies show that people are having 
>> more success staying in remission after being on Sprycel. But like I said 
>> before some people are having success after being treated with Gleevec also! 
>> 
>> Sent from my iPhone
>> 
>> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:
>> 
>>> Do you see just what the meaning of 18's is...
>>> 
>>> Well all that counts is that your finally off of Gleevec. GOOD FOR 
>>> YOU
>>> 
>>> 18's,
>>> 
>>> Marty
>>> 
 On Sat, Sep 2, 2017 at 3:58 PM, nycotb176  wrote:
 Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis 
 of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 
 200. After a year, I was still in remission.No Philadelphia Bug found in 
 the last 15 yrs. Six months ago I was told I may be a candidate for a 
 clinical trial for individuals like me. I had to go thru a list of 
 questions and when I was done I was told the trial had closed. I decided 
 to take my self of the Gleevec and spoke to my oncologist and he told me 
 that he felt I may be CURED (Which I don't like that word) Well its been 3 
 months so far and no changes. Looking forward to the future. I was also 
 told I would have to be off Gleevec for two years before they would be 
 able to tell me the good news. Has anyone else tried to go off Gleevec
 -- 
 -- 
 [CMLHope]
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>>> 
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>> 
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Re: [CMLHope] 3 months off Gleevec

[bkbarney via CMLHope]

Great news Susan. I too have attempted going off several times, but numbers 
creep up...Will discuss the possibility of riding it out for a bit longer time 
off, the next time I go off for a holiday and see if this is an option for me. 
I know it does not work for everyone, but am very grateful it works for many 
people I think more than half who try succeed. The good news is that it seems 
if your numbers do go up and you go back on your meds, things usually return to 
status quo without issue. I have been on sprycel now for 7 years. Hard to 
believe it's been that long! 


Take good care! 


Love to all.


18's Beth



-Original Message-
From: Tony Lanoue 
To: cmlhope 
Sent: Sun, Sep 3, 2017 12:39 pm
Subject: Re: [CMLHope] 3 months off Gleevec



That's great Susan, maybe I gave up too soon! That's good to know when I try 
going off Sprycel if my numbers come up a little bit I will try to ride it out 
and see if they start coming back down, thanks so much for the info! 

Sent from my iPhone

On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope 
 wrote:




Tony:


This Oct. 2, 2017, I will have been off Gleevec for two years.


So far, I've remained undetectable-had on blip February 2015, but Dr. Druker 
assured me that happens about 4 months out and that the next month would show 
undetectable again.  Been undetectable since just like he said😀


Had my last PCR test in June at his office.  I live in Miami and will be 
getting another PCR test this month!  Keeping fingers crossed!


Hugs,
Susan Rosenthal

On Sep 2, 2017, at 11:45 PM, Tony Lanoue  wrote:



I just read last week on one of the Facebook groups that somebody has been off 
Gleevec for two years now and their counter remain stable. I am your other hand 
tried going off last year and my counts started coming back up. So this year I 
switched to Sprycel, going to stay on the Sprycel for one year then try to 
discontinue use. The studies show that people are having more success staying 
in remission after being on Sprycel. But like I said before some people are 
having success after being treated with Gleevec also! 

Sent from my iPhone

On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:



Do you see just what the meaning of 18's is...


Well all that counts is that your finally off of Gleevec. GOOD FOR 
YOU


18's,


Marty



On Sat, Sep 2, 2017 at 3:58 PM, nycotb176  wrote:

Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec

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Re: [CMLHope] 3 months off Gleevec

[Marty Gartenberg]

I will Skype you when i can
I was up in PA and fell and fractured my knee and my tibia and in a
wheelchair now and back in Florida

Marty

On Sun, Sep 3, 2017 at 1:41 PM, Tony Lanoue  wrote:

> Thx Marty! Give me a shout sometime via Skype, it's been a while!
>
> Sent from my iPhone
>
> On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Tony:
>
> This Oct. 2, 2017, I will have been off Gleevec for two years.
>
> So far, I've remained undetectable-had on blip February 2015, but Dr.
> Druker assured me that happens about 4 months out and that the next month
> would show undetectable again.  Been undetectable since just like he said😀
>
> Had my last PCR test in June at his office.  I live in Miami and will be
> getting another PCR test this month!  Keeping fingers crossed!
>
> Hugs,
> Susan Rosenthal
>
> On Sep 2, 2017, at 11:45 PM, Tony Lanoue  wrote:
>
> I just read last week on one of the Facebook groups that somebody has been
> off Gleevec for two years now and their counter remain stable. I am your
> other hand tried going off last year and my counts started coming back up.
> So this year I switched to Sprycel, going to stay on the Sprycel for one
> year then try to discontinue use. The studies show that people are having
> more success staying in remission after being on Sprycel. But like I said
> before some people are having success after being treated with Gleevec
> also!
>
> Sent from my iPhone
>
> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:
>
> Do you see just what the meaning of 18's is...
>
> Well all that counts is that your finally off of Gleevec. GOOD FOR
> YOU
>
> 18's,
>
> Marty
>
> On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 
> wrote:
>
>> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with
>> sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my
>> dosage to 200. After a year, I was still in remission.No Philadelphia Bug
>> found in the last 15 yrs. Six months ago I was told I may be a candidate
>> for a clinical trial for individuals like me. I had to go thru a list of
>> questions and when I was done I was told the trial had closed. I decided to
>> take my self of the Gleevec and spoke to my oncologist and he told me that
>> he felt I may be CURED (Which I don't like that word) Well its been 3
>> months so far and no changes. Looking forward to the future. I was also
>> told I would have to be off Gleevec for two years before they would be able
>> to tell me the good news. Has anyone else tried to go off Gleevec
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
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>>
>
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Re: [CMLHope] 3 months off Gleevec

[Tony Lanoue]

Thx Marty! Give me a shout sometime via Skype, it's been a while!

Sent from my iPhone

On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope 
mailto:cmlhope@googlegroups.com>> wrote:

Tony:

This Oct. 2, 2017, I will have been off Gleevec for two years.

So far, I've remained undetectable-had on blip February 2015, but Dr. Druker 
assured me that happens about 4 months out and that the next month would show 
undetectable again.  Been undetectable since just like he said😀

Had my last PCR test in June at his office.  I live in Miami and will be 
getting another PCR test this month!  Keeping fingers crossed!

Hugs,
Susan Rosenthal

On Sep 2, 2017, at 11:45 PM, Tony Lanoue 
mailto:tonylan...@hotmail.com>> wrote:

I just read last week on one of the Facebook groups that somebody has been off 
Gleevec for two years now and their counter remain stable. I am your other hand 
tried going off last year and my counts started coming back up. So this year I 
switched to Sprycel, going to stay on the Sprycel for one year then try to 
discontinue use. The studies show that people are having more success staying 
in remission after being on Sprycel. But like I said before some people are 
having success after being treated with Gleevec also!

Sent from my iPhone

On Sep 2, 2017, at 8:30 PM, Marty Gartenberg 
mailto:wa2...@gmail.com>> wrote:

Do you see just what the meaning of 18's is...

Well all that counts is that your finally off of Gleevec. GOOD FOR 
YOU

18's,

Marty

On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 
mailto:djdannyvint...@gmail.com>> wrote:
Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec

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Re: [CMLHope] 3 months off Gleevec

[Tony Lanoue]

That's great Susan, maybe I gave up too soon! That's good to know when I try 
going off Sprycel if my numbers come up a little bit I will try to ride it out 
and see if they start coming back down, thanks so much for the info!

Sent from my iPhone

On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope 
mailto:cmlhope@googlegroups.com>> wrote:

Tony:

This Oct. 2, 2017, I will have been off Gleevec for two years.

So far, I've remained undetectable-had on blip February 2015, but Dr. Druker 
assured me that happens about 4 months out and that the next month would show 
undetectable again.  Been undetectable since just like he said😀

Had my last PCR test in June at his office.  I live in Miami and will be 
getting another PCR test this month!  Keeping fingers crossed!

Hugs,
Susan Rosenthal

On Sep 2, 2017, at 11:45 PM, Tony Lanoue 
mailto:tonylan...@hotmail.com>> wrote:

I just read last week on one of the Facebook groups that somebody has been off 
Gleevec for two years now and their counter remain stable. I am your other hand 
tried going off last year and my counts started coming back up. So this year I 
switched to Sprycel, going to stay on the Sprycel for one year then try to 
discontinue use. The studies show that people are having more success staying 
in remission after being on Sprycel. But like I said before some people are 
having success after being treated with Gleevec also!

Sent from my iPhone

On Sep 2, 2017, at 8:30 PM, Marty Gartenberg 
mailto:wa2...@gmail.com>> wrote:

Do you see just what the meaning of 18's is...

Well all that counts is that your finally off of Gleevec. GOOD FOR 
YOU

18's,

Marty

On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 
mailto:djdannyvint...@gmail.com>> wrote:
Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec

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Re: [CMLHope] 3 months off Gleevec

['Susan Rosenthal' via CMLHope]

Tony:

This Oct. 2, 2017, I will have been off Gleevec for two years.

So far, I've remained undetectable-had on blip February 2015, but Dr. Druker 
assured me that happens about 4 months out and that the next month would show 
undetectable again.  Been undetectable since just like he said😀

Had my last PCR test in June at his office.  I live in Miami and will be 
getting another PCR test this month!  Keeping fingers crossed!

Hugs,
Susan Rosenthal

> On Sep 2, 2017, at 11:45 PM, Tony Lanoue  wrote:
> 
> I just read last week on one of the Facebook groups that somebody has been 
> off Gleevec for two years now and their counter remain stable. I am your 
> other hand tried going off last year and my counts started coming back up. So 
> this year I switched to Sprycel, going to stay on the Sprycel for one year 
> then try to discontinue use. The studies show that people are having more 
> success staying in remission after being on Sprycel. But like I said before 
> some people are having success after being treated with Gleevec also! 
> 
> Sent from my iPhone
> 
> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:
> 
>> Do you see just what the meaning of 18's is...
>> 
>> Well all that counts is that your finally off of Gleevec. GOOD FOR 
>> YOU
>> 
>> 18's,
>> 
>> Marty
>> 
>>> On Sat, Sep 2, 2017 at 3:58 PM, nycotb176  wrote:
>>> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis 
>>> of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 
>>> 200. After a year, I was still in remission.No Philadelphia Bug found in 
>>> the last 15 yrs. Six months ago I was told I may be a candidate for a 
>>> clinical trial for individuals like me. I had to go thru a list of 
>>> questions and when I was done I was told the trial had closed. I decided to 
>>> take my self of the Gleevec and spoke to my oncologist and he told me that 
>>> he felt I may be CURED (Which I don't like that word) Well its been 3 
>>> months so far and no changes. Looking forward to the future. I was also 
>>> told I would have to be off Gleevec for two years before they would be able 
>>> to tell me the good news. Has anyone else tried to go off Gleevec
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
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>>> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] 3 months off Gleevec

[Marty Gartenberg]

You know what Tony, i have known you for a long time and the one thing that
always impress me is that your always on top of things and being so is that
your mind will treat your body in a very helpful way.

No question about that. You'll see.

18's,

Marty

PS still recovering from a fractured knee and tibia.

On Sat, Sep 2, 2017 at 11:45 PM, Tony Lanoue  wrote:

> I just read last week on one of the Facebook groups that somebody has been
> off Gleevec for two years now and their counter remain stable. I am your
> other hand tried going off last year and my counts started coming back up.
> So this year I switched to Sprycel, going to stay on the Sprycel for one
> year then try to discontinue use. The studies show that people are having
> more success staying in remission after being on Sprycel. But like I said
> before some people are having success after being treated with Gleevec
> also!
>
> Sent from my iPhone
>
> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg  wrote:
>
> Do you see just what the meaning of 18's is...
>
> Well all that counts is that your finally off of Gleevec. GOOD FOR
> YOU
>
> 18's,
>
> Marty
>
> On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 
> wrote:
>
>> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with
>> sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my
>> dosage to 200. After a year, I was still in remission.No Philadelphia Bug
>> found in the last 15 yrs. Six months ago I was told I may be a candidate
>> for a clinical trial for individuals like me. I had to go thru a list of
>> questions and when I was done I was told the trial had closed. I decided to
>> take my self of the Gleevec and spoke to my oncologist and he told me that
>> he felt I may be CURED (Which I don't like that word) Well its been 3
>> months so far and no changes. Looking forward to the future. I was also
>> told I would have to be off Gleevec for two years before they would be able
>> to tell me the good news. Has anyone else tried to go off Gleevec
>>
>> --
>> --
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>> A support group of http://cmlhope.com
>> -
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>> You received this message because you are subscribed to the Google Groups
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>>
>
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Re: [CMLHope] 3 months off Gleevec

[Pete Pabon]

Every two months



From: 'Jeanie' via CMLHope 
Sent: Sunday, September 3, 2017 8:07 AM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] 3 months off Gleevec

How often are u getting tested.  Thanks.

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center

On Sep 2, 2017, at 3:58 PM, nycotb176 
mailto:djdannyvint...@gmail.com>> wrote:

Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec

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Re: [CMLHope] 3 months off Gleevec

['Jeanie' via CMLHope]

How often are u getting tested.  Thanks. 

My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Sep 2, 2017, at 3:58 PM, nycotb176  wrote:
> 
> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
> the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
> After a year, I was still in remission.No Philadelphia Bug found in the last 
> 15 yrs. Six months ago I was told I may be a candidate for a clinical trial 
> for individuals like me. I had to go thru a list of questions and when I was 
> done I was told the trial had closed. I decided to take my self of the 
> Gleevec and spoke to my oncologist and he told me that he felt I may be CURED 
> (Which I don't like that word) Well its been 3 months so far and no changes. 
> Looking forward to the future. I was also told I would have to be off Gleevec 
> for two years before they would be able to tell me the good news. Has anyone 
> else tried to go off Gleevec
> -- 
> -- 
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Re: [CMLHope] 3 months off Gleevec

[Tony Lanoue]

I just read last week on one of the Facebook groups that somebody has been off 
Gleevec for two years now and their counter remain stable. I am your other hand 
tried going off last year and my counts started coming back up. So this year I 
switched to Sprycel, going to stay on the Sprycel for one year then try to 
discontinue use. The studies show that people are having more success staying 
in remission after being on Sprycel. But like I said before some people are 
having success after being treated with Gleevec also!

Sent from my iPhone

On Sep 2, 2017, at 8:30 PM, Marty Gartenberg 
mailto:wa2...@gmail.com>> wrote:

Do you see just what the meaning of 18's is...

Well all that counts is that your finally off of Gleevec. GOOD FOR 
YOU

18's,

Marty

On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 
mailto:djdannyvint...@gmail.com>> wrote:
Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with sclerosis of 
the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. 
After a year, I was still in remission.No Philadelphia Bug found in the last 15 
yrs. Six months ago I was told I may be a candidate for a clinical trial for 
individuals like me. I had to go thru a list of questions and when I was done I 
was told the trial had closed. I decided to take my self of the Gleevec and 
spoke to my oncologist and he told me that he felt I may be CURED (Which I 
don't like that word) Well its been 3 months so far and no changes. Looking 
forward to the future. I was also told I would have to be off Gleevec for two 
years before they would be able to tell me the good news. Has anyone else tried 
to go off Gleevec

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Re: [CMLHope] 3 months off Gleevec

[Marty Gartenberg]

Do you see just what the meaning of 18's is...

Well all that counts is that your finally off of Gleevec. GOOD FOR YOU[image:
Inline image 1]

18's,

Marty

On Sat, Sep 2, 2017 at 3:58 PM, nycotb176  wrote:

> Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with
> sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my
> dosage to 200. After a year, I was still in remission.No Philadelphia Bug
> found in the last 15 yrs. Six months ago I was told I may be a candidate
> for a clinical trial for individuals like me. I had to go thru a list of
> questions and when I was done I was told the trial had closed. I decided to
> take my self of the Gleevec and spoke to my oncologist and he told me that
> he felt I may be CURED (Which I don't like that word) Well its been 3
> months so far and no changes. Looking forward to the future. I was also
> told I would have to be off Gleevec for two years before they would be able
> to tell me the good news. Has anyone else tried to go off Gleevec
>
> --
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[CMLHope] 3 months off Gleevec

[nycotb176]

Going on 16 yrs on 400 gm of  Gleevec, when I was diagnosed with 
sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my 
dosage to 200. After a year, I was still in remission.No Philadelphia Bug 
found in the last 15 yrs. Six months ago I was told I may be a candidate 
for a clinical trial for individuals like me. I had to go thru a list of 
questions and when I was done I was told the trial had closed. I decided to 
take my self of the Gleevec and spoke to my oncologist and he told me that 
he felt I may be CURED (Which I don't like that word) Well its been 3 
months so far and no changes. Looking forward to the future. I was also 
told I would have to be off Gleevec for two years before they would be able 
to tell me the good news. Has anyone else tried to go off Gleevec

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