Re: [CMLHope] Creatine levels

[Richard H]

I totally agree.  My failure is to wave a salt shaker above the salad.  My 
wife also has to look for low sugar on those menus.

On Friday, May 6, 2016 at 6:12:19 AM UTC-5, greenie wrote:
>
> Thank you Richard for your reply, I know one thing I stopped using salt 
> and my wife never cooks with it but when you go out for dinned I have to 
> tell them no salt.
>  
> greenie
>  
> In a message dated 5/6/2016 12:01:34 A.M. Eastern Daylight Time, 
> rbhuf...@gmail.com  writes:
>
> Hi Greenie.  I am lucky to only have a small amount of leg swelling.  
> Between my heart and Gleevec it stays at level one. now.  I did loss 30 lbs 
> of water weight (without pills)  when I took my long break from Gleevec.  
> Heart and ONC recommended that I KEEP the FEET UP to help pump blood 
> through your feet and legs.  The higher the better.  I use a recliner chair 
> and attempt to nap with my feet above my head a couple of times a day.  
> That does help reduce the swelling.  My wife has had to use compression 
> stockings because of her new heart problems, but she gets dizzy when she 
> gets her feet even or above her head, and that does force the water to flow 
> through the system.  She also has to take the water pills because hers is 
> also collecting around the heart.  Just suggestions from a couple of Dr.s. 
> that might help the problem so you could use less water pills.
>
> The great news is you do have everything under control..  I'll be looking 
> for your report next month.
>
> 18's
> Richard H. 
>
>  
>
> On Thursday, May 5, 2016 at 8:47:36 AM UTC-5, greenie wrote: 
>>
>> Hi Group,  my Creatinine levels have always been on the high side going 
>> back to 1997 before I found out that I have CML.  They were 1.2 then and 
>> over the years now 2 months ago they are at a high of 1.67. but it goes up 
>> and down.  Sometimes 1.4 or 1.5. In December of 1998 is when I found that I 
>> had CML 2 weeks before Xmas.  But I started Gleevec the first week in Jan. 
>> of 2000.  
>>  
>> The last year I have been retaining water on my lower legs and feet and 
>> some days their is not a problem.  Take a water pill and helps, but here in 
>> Florida that could be some of it weather wise don't know.  Will see my 
>> Cancer Doctor at Northwestern in Chicago the 1st of June and will talk to 
>> here.
>>  
>> Take care everyone,
>>  
>> Greenie
>>  
>> In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time, 
>> wa2...@gmail.com writes:
>>
>> Beth, Jennie and all of you that are "residing" in this CMl web site are 
>> just EXCELLENT PEOPLE, it's just you don't realize it... Yet.
>>
>> 18's,
>>
>> Marty
>>
>> On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>>> Hi Beth and thanks. 
>>> My Creatine level was 0.9. The normal is 0.5-1.0. 
>>>
>>> My Motto: Faith and Pills❤️ 
>>> With Jeanie 18,s Chi 
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>>
>>> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope <
>>> cml...@googlegroups.com> wrote:
>>>
>>> CPK doubled in the last two months to 700. Monoclonal protein they had 
>>> been tracking for the last two years is up...BCR abl will hopefully be a 
>>> good result... Then we plan from there... 
>>>
>>> Marty, I just went to the national Bone Marrow Transplant Survivors 
>>> conference this weekend...I went as the caregiver and helper to my best 
>>> friend who is now 2.5 years out and struggling with graft vs host. I went 
>>> to 9 seminars and met lots of people ..wow...so humbling, inspiring, 
>>> overwhelming...and I thought of you.all those years agobefore all these 
>>> advances have been made.hope you are feeling better...I know you will 
>>> stay positive, and strong..I am thinking of you..
>>>
>>>
>>> and Jeanie,  the session I went to on faith, spirituality and illness 
>>> was right up your alley...you and many other's here..
>>>
>>> also did a nice piece on yoga and meditation, complementary medicines, 
>>> nutritionpain management, sleep issues...etc..etc..really well done 
>>> weekend. 
>>>
>>>
>>> and the importance of not getting lost in our heads, in fear, and 
>>> ruminating...but instead, staying anchored, and reaching out so we are not 
>>> in isolation
>>>
>>> Thinking of all of you..
>>>
>>> Love, Beth
>>> 18's..
>>>
>>>
>>> -Original Message-
>>> From: 'Icandoallttc' via CMLHope 
>>> To: cmlhope 
>>> Sent: Tue, May 3, 2016 12:12 pm
>>> Subject: Re: [CMLHope] Prayers are offered.
>>>
>>> What are the changes in your blood work if u don't mind sharing Beth?I 
>>> have several things out of range but just slightly. 
>>>
>>>
>>> My Motto: Faith and Pills❤️ 
>>> With Jeanie 18,s Chi 
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009

Re: [CMLHope] Creatine levels

[Marty Gartenberg]

Hi Richard,

I also have water collecting in my lower feet especially in my ankle's.
Ever since I had my kidney transplant. I also take some Lasix but I break
those tiny pills in half so they are only 10mg just before I go to sleep.
Yes, I do get up several times a night but it is well worth it considering
I had to go through dialysis.

However the most important thing is that I have a special wedged foam
pillow that I support my legs with, and every morning I get up with those
skinny lower legs.

As the day progress my ankle's also become swollen but not to bad.

Works for me!

18's,

Marty

On Fri, May 6, 2016 at 12:01 AM, Richard H  wrote:

> Hi Greenie.  I am lucky to only have a small amount of leg swelling.
> Between my heart and Gleevec it stays at level one. now.  I did loss 30 lbs
> of water weight (without pills)  when I took my long break from Gleevec.
> Heart and ONC recommended that I KEEP the FEET UP to help pump blood
> through your feet and legs.  The higher the better.  I use a recliner chair
> and attempt to nap with my feet above my head a couple of times a day.
> That does help reduce the swelling.  My wife has had to use compression
> stockings because of her new heart problems, but she gets dizzy when she
> gets her feet even or above her head, and that does force the water to flow
> through the system.  She also has to take the water pills because hers is
> also collecting around the heart.  Just suggestions from a couple of Dr.s.
> that might help the problem so you could use less water pills.
>
> The great news is you do have everything under control..  I'll be looking
> for your report next month.
>
> 18's
> Richard H.
>
>
>
> On Thursday, May 5, 2016 at 8:47:36 AM UTC-5, greenie wrote:
>>
>> Hi Group,  my Creatinine levels have always been on the high side going
>> back to 1997 before I found out that I have CML.  They were 1.2 then and
>> over the years now 2 months ago they are at a high of 1.67. but it goes up
>> and down.  Sometimes 1.4 or 1.5. In December of 1998 is when I found that I
>> had CML 2 weeks before Xmas.  But I started Gleevec the first week in Jan.
>> of 2000.
>>
>> The last year I have been retaining water on my lower legs and feet and
>> some days their is not a problem.  Take a water pill and helps, but here in
>> Florida that could be some of it weather wise don't know.  Will see my
>> Cancer Doctor at Northwestern in Chicago the 1st of June and will talk to
>> here.
>>
>> Take care everyone,
>>
>> Greenie
>>
>> In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time,
>> wa2...@gmail.com writes:
>>
>> Beth, Jennie and all of you that are "residing" in this CMl web site are
>> just EXCELLENT PEOPLE, it's just you don't realize it... Yet.
>>
>> 18's,
>>
>> Marty
>>
>> On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope <
>> cml...@googlegroups.com> wrote:
>>
>>> Hi Beth and thanks.
>>> My Creatine level was 0.9. The normal is 0.5-1.0.
>>>
>>> My Motto: Faith and Pills❤️
>>> With Jeanie 18,s Chi
>>> Dx 1/2004. CML Leukemia
>>> Started Gleevec 2/2004
>>> Started Tasigna  9/2009
>>> Started Sprycel 11/2009
>>> Started Ponatinib January 2015
>>> Dr Balducci Moffitt Cancer Center
>>>
>>> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope <
>>> cml...@googlegroups.com> wrote:
>>>
>>> CPK doubled in the last two months to 700. Monoclonal protein they had
>>> been tracking for the last two years is up...BCR abl will hopefully be a
>>> good result... Then we plan from there...
>>>
>>> Marty, I just went to the national Bone Marrow Transplant Survivors
>>> conference this weekend...I went as the caregiver and helper to my best
>>> friend who is now 2.5 years out and struggling with graft vs host. I went
>>> to 9 seminars and met lots of people ..wow...so humbling, inspiring,
>>> overwhelming...and I thought of you.all those years agobefore all these
>>> advances have been made.hope you are feeling better...I know you will
>>> stay positive, and strong..I am thinking of you..
>>>
>>>
>>> and Jeanie,  the session I went to on faith, spirituality and illness
>>> was right up your alley...you and many other's here..
>>>
>>> also did a nice piece on yoga and meditation, complementary medicines,
>>> nutritionpain management, sleep issues...etc..etc..really well done
>>> weekend.
>>>
>>>
>>> and the importance of not getting lost in our heads, in fear, and
>>> ruminating...but instead, staying anchored, and reaching out so we are not
>>> in isolation
>>>
>>> Thinking of all of you..
>>>
>>> Love, Beth
>>> 18's..
>>>
>>>
>>> -Original Message-
>>> From: 'Icandoallttc' via CMLHope 
>>> To: cmlhope 
>>> Sent: Tue, May 3, 2016 12:12 pm
>>> Subject: Re: [CMLHope] Prayers are offered.
>>>
>>> What are the changes in your blood work if u don't mind sharing Beth?I
>>> have several things out of range but just slightly.
>>>
>>>
>>> My Motto: Faith and Pills❤️
>>> With 

Re: [CMLHope] Creatine levels

[Myvety2k via CMLHope]

Thank you Richard for your reply, I know one thing I stopped  using salt 
and my wife never cooks with it but when you go out for dinned I  have to tell 
them no salt.
 
greenie
 
 
In a message dated 5/6/2016 12:01:34 A.M. Eastern Daylight Time,  
rbhuffm...@gmail.com writes:

Hi Greenie.  I am lucky to only have a small amount of leg  swelling.  
Between my heart and Gleevec it stays at level one. now.   I did loss 30 lbs of 
water weight (without pills)  when I took my long  break from Gleevec.  
Heart and ONC recommended that I KEEP the FEET UP to  help pump blood through 
your feet and legs.  The higher the better.   I use a recliner chair and 
attempt to nap with my feet above my head a couple  of times a day.  That does 
help reduce the swelling.  My wife has  had to use compression stockings 
because of her new heart problems, but she  gets dizzy when she gets her feet 
even or above her head, and that does force  the water to flow through the 
system.  She also has to take the water  pills because hers is also collecting 
around the heart.  Just suggestions  from a couple of Dr.s. that might help 
the problem so you could use less water  pills.

The great news is you do have everything under control..   I'll be looking 
for your report next month.

18's
Richard H.  



On Thursday, May 5, 2016 at 8:47:36 AM UTC-5, greenie  wrote:  
 
Hi Group,  my Creatinine levels have always been on  the high side going 
back to 1997 before I found out that I have CML.   They were 1.2 then and over 
the years now 2 months ago they are at a high of  1.67. but it goes up and 
down.  Sometimes 1.4 or 1.5. In December of  1998 is when I found that I had 
CML 2 weeks before Xmas.  But I started  Gleevec the first week in Jan. of 
2000.  
 
The last year I have been retaining water on my lower legs  and feet and 
some days their is not a problem.  Take a water pill and  helps, but here in 
Florida that could be some of it weather wise don't  know.  Will see my 
Cancer Doctor at Northwestern in Chicago the  1st of June and will talk to here.
 
Take care everyone,
 
Greenie
 
 
In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time, 
_wa2...@gmail.com_ (javascript:)  writes:

 
Beth, Jennie and all of you that are "residing" in this CMl web  site are 
just EXCELLENT PEOPLE, it's just you don't realize it...  Yet.


18's,


Marty


On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via  CMLHope 
<_cml...@googlegroups.com_ (javascript:) >  wrote:


Hi Beth and thanks. 
My Creatine level was 0.9. The normal is 0.5-1.0. 

My  Motto: Faith and Pills❤️  
With Jeanie 18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On May 3, 2016, at 2:44 PM, bkbarney via CMLHope <_cml...@googlegroups.com_ 
(javascript:) >  wrote:



CPK doubled in the last two  months to 700. Monoclonal protein they had 
been tracking for the last  two years is up...BCR abl will hopefully be a good 
result... Then we  plan from there...  


Marty, I just went to the national Bone Marrow Transplant  Survivors 
conference this weekend...I went as the caregiver and helper  to my best friend 
who is now 2.5 years out and struggling with graft  vs host. I went to 9 
seminars and met lots of people ..wow...so  humbling, inspiring, 
overwhelming...and I thought of you.all those  years agobefore all these 
advances have 
been made.hope you are  feeling better...I know you will stay positive, 
and strong..I am  thinking of you..




and Jeanie,  the session I went to on faith, spirituality  and illness 
was right up your alley...you and many other's  here..


also did a nice piece on yoga and meditation, complementary  medicines, 
nutritionpain management, sleep  issues...etc..etc..really well done 
weekend. 




and the  importance of not getting lost in our heads, in fear, and  
ruminating...but instead, staying anchored, and reaching out so we  are not in 
isolation

Thinking of all of  you..


Love, Beth
18's..


-Original  Message-
From: 'Icandoallttc' via CMLHope <_cml...@googlegroups.com_ (javascript:) >
To:  cmlhope <_cml...@googlegroups.com_ (javascript:) >
Sent:  Tue, May 3, 2016 12:12 pm
Subject: Re: [CMLHope] Prayers are  offered.


 
What are the changes in your blood work if u don't mind sharing  Beth?I 
have several things out of range but just slightly. 


My Motto: Faith and Pills❤️  
With Jeanie 18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope  
<_cml...@googlegroups.com_ (javascript:) >  wrote:




Beth, yes, a long time since you've posted. Please let us know  your 
results. Sending prayers and hugs. 


Marcie

Sent from my iPhone

On May 2, 2016, at 2:05 PM, bkbarney via CMLHope <_cml...@googlegroups.com_ 

Re: [CMLHope] Creatine levels

[Richard H]

Hi Greenie.  I am lucky to only have a small amount of leg swelling.  
Between my heart and Gleevec it stays at level one. now.  I did loss 30 lbs 
of water weight (without pills)  when I took my long break from Gleevec.  
Heart and ONC recommended that I KEEP the FEET UP to help pump blood 
through your feet and legs.  The higher the better.  I use a recliner chair 
and attempt to nap with my feet above my head a couple of times a day.  
That does help reduce the swelling.  My wife has had to use compression 
stockings because of her new heart problems, but she gets dizzy when she 
gets her feet even or above her head, and that does force the water to flow 
through the system.  She also has to take the water pills because hers is 
also collecting around the heart.  Just suggestions from a couple of Dr.s. 
that might help the problem so you could use less water pills.

The great news is you do have everything under control..  I'll be looking 
for your report next month.

18's
Richard H. 

 

On Thursday, May 5, 2016 at 8:47:36 AM UTC-5, greenie wrote:
>
> Hi Group,  my Creatinine levels have always been on the high side going 
> back to 1997 before I found out that I have CML.  They were 1.2 then and 
> over the years now 2 months ago they are at a high of 1.67. but it goes up 
> and down.  Sometimes 1.4 or 1.5. In December of 1998 is when I found that I 
> had CML 2 weeks before Xmas.  But I started Gleevec the first week in Jan. 
> of 2000.  
>  
> The last year I have been retaining water on my lower legs and feet and 
> some days their is not a problem.  Take a water pill and helps, but here in 
> Florida that could be some of it weather wise don't know.  Will see my 
> Cancer Doctor at Northwestern in Chicago the 1st of June and will talk to 
> here.
>  
> Take care everyone,
>  
> Greenie
>  
> In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time, 
> wa2...@gmail.com  writes:
>
> Beth, Jennie and all of you that are "residing" in this CMl web site are 
> just EXCELLENT PEOPLE, it's just you don't realize it... Yet.
>
> 18's,
>
> Marty
>
> On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope <
> cml...@googlegroups.com > wrote:
>
>> Hi Beth and thanks. 
>> My Creatine level was 0.9. The normal is 0.5-1.0. 
>>
>> My Motto: Faith and Pills❤️ 
>> With Jeanie 18,s Chi 
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope > > wrote:
>>
>> CPK doubled in the last two months to 700. Monoclonal protein they had 
>> been tracking for the last two years is up...BCR abl will hopefully be a 
>> good result... Then we plan from there... 
>>
>> Marty, I just went to the national Bone Marrow Transplant Survivors 
>> conference this weekend...I went as the caregiver and helper to my best 
>> friend who is now 2.5 years out and struggling with graft vs host. I went 
>> to 9 seminars and met lots of people ..wow...so humbling, inspiring, 
>> overwhelming...and I thought of you.all those years agobefore all these 
>> advances have been made.hope you are feeling better...I know you will 
>> stay positive, and strong..I am thinking of you..
>>
>>
>> and Jeanie,  the session I went to on faith, spirituality and illness 
>> was right up your alley...you and many other's here..
>>
>> also did a nice piece on yoga and meditation, complementary medicines, 
>> nutritionpain management, sleep issues...etc..etc..really well done 
>> weekend. 
>>
>>
>> and the importance of not getting lost in our heads, in fear, and 
>> ruminating...but instead, staying anchored, and reaching out so we are not 
>> in isolation
>>
>> Thinking of all of you..
>>
>> Love, Beth
>> 18's..
>>
>>
>> -Original Message-
>> From: 'Icandoallttc' via CMLHope 
>> To: cmlhope 
>> Sent: Tue, May 3, 2016 12:12 pm
>> Subject: Re: [CMLHope] Prayers are offered.
>>
>> What are the changes in your blood work if u don't mind sharing Beth?I 
>> have several things out of range but just slightly. 
>>
>>
>> My Motto: Faith and Pills❤️ 
>> With Jeanie 18,s Chi 
>> Dx 1/2004. CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna  9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib January 2015
>> Dr Balducci Moffitt Cancer Center
>>
>> On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope <
>> cml...@googlegroups.com > wrote:
>>
>> Beth, yes, a long time since you've posted. Please let us know your 
>> results. Sending prayers and hugs. 
>>
>> Marcie
>>
>> Sent from my iPhone
>>
>> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope > > wrote:
>>
>> Thank you Richard for your kind words and prayers. They are always so 
>> appreciated. You are such a stable presence here. I so appreciate your 
>> thoughts and help. I hope everyone is 

Re: [CMLHope] Creatine levels

[Myvety2k via CMLHope]

Hi Group,  my Creatinine levels have always been on the  high side going 
back to 1997 before I found out that I have CML.  They were  1.2 then and over 
the years now 2 months ago they are at a high of 1.67. but it  goes up and 
down.  Sometimes 1.4 or 1.5. In December of 1998 is when I  found that I had 
CML 2 weeks before Xmas.  But I started Gleevec the first  week in Jan. of 
2000.  
 
The last year I have been retaining water on my lower legs and  feet and 
some days their is not a problem.  Take a water pill and helps,  but here in 
Florida that could be some of it weather wise don't know.  Will  see my 
Cancer Doctor at Northwestern in Chicago the 1st of June and will  talk to here.
 
Take care everyone,
 
Greenie
 
 
In a message dated 5/5/2016 8:37:03 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
Beth, Jennie and all of you that are "residing" in this CMl web site  are 
just EXCELLENT PEOPLE, it's just you don't realize it... Yet.


18's,


Marty


On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via  CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:


Hi Beth and thanks. 
My Creatine level was 0.9. The normal is 0.5-1.0. 

My  Motto: Faith and Pills❤️  
With Jeanie 18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On May 3, 2016, at 2:44 PM, bkbarney via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:



CPK doubled in the last two  months to 700. Monoclonal protein they had 
been tracking for the last two  years is up...BCR abl will hopefully be a good 
result... Then we plan from  there...  


Marty, I just went to the national Bone Marrow Transplant Survivors  
conference this weekend...I went as the caregiver and helper to my best  friend 
who is now 2.5 years out and struggling with graft vs host. I went  to 9 
seminars and met lots of people ..wow...so humbling, inspiring,  
overwhelming...and I thought of you.all those years agobefore all  these 
advances have 
been made.hope you are feeling better...I know you  will stay positive, 
and strong..I am thinking of you..




and Jeanie,  the session I went to on faith, spirituality and  illness 
was right up your alley...you and many other's here..


also did a nice piece on yoga and meditation, complementary  medicines, 
nutritionpain management, sleep issues...etc..etc..really  well done 
weekend. 




and  the importance of not getting lost in our heads, in fear, and  
ruminating...but instead, staying anchored, and reaching out so we are  not in 
isolation

Thinking of all of you..


Love, Beth
18's..


-Original  Message-
From: 'Icandoallttc' via CMLHope <_cmlhope@googlegroups.com_ 
(mailto:cmlhope@googlegroups.com) >
To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Tue, May 3, 2016  12:12 pm
Subject: Re: [CMLHope] Prayers are offered.


 
What are the changes in your blood work if u don't mind sharing  Beth?I 
have several things out of range but just slightly. 


My Motto: Faith and Pills❤️  
With Jeanie 18,s Chi  
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center



On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:




Beth, yes, a long time since you've posted. Please let us know your  
results. Sending prayers and hugs. 


Marcie

Sent from my iPhone

On May 2, 2016, at 2:05 PM, bkbarney via CMLHope 
<_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote:



Thank you Richard for your  kind words and prayers. They are always so 
appreciated. You are such a  stable presence here. I so appreciate your 
thoughts 
and help. I hope  everyone is navigating the best they can. Know that I 
think of all of  you often...haven't written much because of my own journey...I 
am  sorry if I missed out on communicating with those who are struggling  
recently. All of you are in my heart.  


I do BCR abl next week..so please keep your fingers crossed. I  have more 
anxiety about this one for some reason... My basic blood  work shows some 
changes that are in the wrong direction...hopefully  things are stable in the 
CML realm.


Will keep you posted..


Much love and 18's, Beth

-Original  Message-
From: Richard H <_rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) >
To: CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) >
Sent: Sun, May 1,  2016 11:11 pm
Subject: Re: [CMLHope] Prayers are offered.


 
Thank you.
Richard

On Saturday, April 30, 2016  at 11:29:32 AM UTC-5, wa2yyx wrote:  
 
Just one thing to say Richard H. Your like the rock of  Gibraltar. 


18's to you!


Marty


On Sat, Apr 30, 2016 at 12:07 AM, Richard H    wrote:

I am 

Re: [CMLHope] Creatine levels

[Marty Gartenberg]

Beth, Jennie and all of you that are "residing" in this CMl web site are
just EXCELLENT PEOPLE, it's just you don't realize it... Yet.

18's,

Marty

On Wed, May 4, 2016 at 10:43 AM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi Beth and thanks.
> My Creatine level was 0.9. The normal is 0.5-1.0.
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope 
> wrote:
>
> CPK doubled in the last two months to 700. Monoclonal protein they had
> been tracking for the last two years is up...BCR abl will hopefully be a
> good result... Then we plan from there...
>
> Marty, I just went to the national Bone Marrow Transplant Survivors
> conference this weekend...I went as the caregiver and helper to my best
> friend who is now 2.5 years out and struggling with graft vs host. I went
> to 9 seminars and met lots of people ..wow...so humbling, inspiring,
> overwhelming...and I thought of you.all those years agobefore all these
> advances have been made.hope you are feeling better...I know you will
> stay positive, and strong..I am thinking of you..
>
>
> and Jeanie,  the session I went to on faith, spirituality and illness
> was right up your alley...you and many other's here..
>
> also did a nice piece on yoga and meditation, complementary medicines,
> nutritionpain management, sleep issues...etc..etc..really well done
> weekend.
>
>
> and the importance of not getting lost in our heads, in fear, and
> ruminating...but instead, staying anchored, and reaching out so we are not
> in isolation
>
> Thinking of all of you..
>
> Love, Beth
> 18's..
>
>
> -Original Message-
> From: 'Icandoallttc' via CMLHope 
> To: cmlhope 
> Sent: Tue, May 3, 2016 12:12 pm
> Subject: Re: [CMLHope] Prayers are offered.
>
> What are the changes in your blood work if u don't mind sharing Beth?I
> have several things out of range but just slightly.
>
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Beth, yes, a long time since you've posted. Please let us know your
> results. Sending prayers and hugs.
>
> Marcie
>
> Sent from my iPhone
>
> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope 
> wrote:
>
> Thank you Richard for your kind words and prayers. They are always so
> appreciated. You are such a stable presence here. I so appreciate your
> thoughts and help. I hope everyone is navigating the best they can. Know
> that I think of all of you often...haven't written much because of my own
> journey...I am sorry if I missed out on communicating with those who are
> struggling recently. All of you are in my heart.
>
> I do BCR abl next week..so please keep your fingers crossed. I have more
> anxiety about this one for some reason... My basic blood work shows some
> changes that are in the wrong direction...hopefully things are stable in
> the CML realm.
>
> Will keep you posted..
>
> Much love and 18's, Beth
>
> -Original Message-
> From: Richard H 
> To: CMLHope 
> Sent: Sun, May 1, 2016 11:11 pm
> Subject: Re: [CMLHope] Prayers are offered.
>
> Thank you.
> Richard
>
> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote:
>>
>> Just one thing to say Richard H. Your like the rock of Gibraltar.
>>
>> 18's to you!
>>
>> Marty
>>
>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H  wrote:
>>
>>> I am sorry to hear about all the problems everyone is reporting.  I am
>>> lifting prayers for healing to those with problems and for the caregivers
>>> prayers of understanding and strength to help them be the support they want
>>> and need to be.
>>>
>>> I am just coasting with all my problems and trying to deal with lower
>>> strength because of them.  I have changed a couple of Doctors because they
>>> started practicing too far away.  They have reviewed my records and have
>>> updated me on things that I don't remember being told about and clarified
>>> some things that were given as side inference.  I am also adding a new
>>> heart med and will be monitored to see if I need to change others on my
>>> list.
>>>
>>> 18's
>>>
>>> Richard H.
>>> --
>>> --
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>
>>> You received this message because you are subscribed to the Google
>>> Groups "CMLHope" group.
>>> To post to this group, send email to 

[CMLHope] Creatine levels

['Icandoallttc' via CMLHope]

Hi Beth and thanks. 
My Creatine level was 0.9. The normal is 0.5-1.0. 

My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On May 3, 2016, at 2:44 PM, bkbarney via CMLHope  
> wrote:
> 
> CPK doubled in the last two months to 700. Monoclonal protein they had been 
> tracking for the last two years is up...BCR abl will hopefully be a good 
> result... Then we plan from there...
> 
> Marty, I just went to the national Bone Marrow Transplant Survivors 
> conference this weekend...I went as the caregiver and helper to my best 
> friend who is now 2.5 years out and struggling with graft vs host. I went to 
> 9 seminars and met lots of people ..wow...so humbling, inspiring, 
> overwhelming...and I thought of you.all those years agobefore all these 
> advances have been made.hope you are feeling better...I know you will 
> stay positive, and strong..I am thinking of you..
> 
> 
> and Jeanie,  the session I went to on faith, spirituality and illness was 
> right up your alley...you and many other's here..
> 
> also did a nice piece on yoga and meditation, complementary medicines, 
> nutritionpain management, sleep issues...etc..etc..really well done 
> weekend. 
> 
> and the importance of not getting lost in our heads, in fear, and 
> ruminating...but instead, staying anchored, and reaching out so we are not in 
> isolation
> Thinking of all of you..
> 
> Love, Beth
> 18's..
> 
> 
> -Original Message-
> From: 'Icandoallttc' via CMLHope 
> To: cmlhope 
> Sent: Tue, May 3, 2016 12:12 pm
> Subject: Re: [CMLHope] Prayers are offered.
> 
> What are the changes in your blood work if u don't mind sharing Beth?I have 
> several things out of range but just slightly. 
> 
> 
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
> 
> On May 2, 2016, at 6:14 PM, 'Marcie Goodman' via CMLHope 
>  wrote:
> 
> Beth, yes, a long time since you've posted. Please let us know your results. 
> Sending prayers and hugs. 
> 
> Marcie
> 
> Sent from my iPhone
> 
> On May 2, 2016, at 2:05 PM, bkbarney via CMLHope  
> wrote:
> 
> Thank you Richard for your kind words and prayers. They are always so 
> appreciated. You are such a stable presence here. I so appreciate your 
> thoughts and help. I hope everyone is navigating the best they can. Know that 
> I think of all of you often...haven't written much because of my own 
> journey...I am sorry if I missed out on communicating with those who are 
> struggling recently. All of you are in my heart.
> 
> I do BCR abl next week..so please keep your fingers crossed. I have more 
> anxiety about this one for some reason... My basic blood work shows some 
> changes that are in the wrong direction...hopefully things are stable in the 
> CML realm.
> 
> Will keep you posted..
> 
> Much love and 18's, Beth
> 
> -Original Message-
> From: Richard H 
> To: CMLHope 
> Sent: Sun, May 1, 2016 11:11 pm
> Subject: Re: [CMLHope] Prayers are offered.
> 
> Thank you.
> Richard
> 
>> On Saturday, April 30, 2016 at 11:29:32 AM UTC-5, wa2yyx wrote:
>> Just one thing to say Richard H. Your like the rock of Gibraltar.
>> 
>> 18's to you!
>> 
>> Marty
>> 
>>> On Sat, Apr 30, 2016 at 12:07 AM, Richard H  wrote:
>>> I am sorry to hear about all the problems everyone is reporting.  I am 
>>> lifting prayers for healing to those with problems and for the caregivers 
>>> prayers of understanding and strength to help them be the support they want 
>>> and need to be.
>>> 
>>> I am just coasting with all my problems and trying to deal with lower 
>>> strength because of them.  I have changed a couple of Doctors because they 
>>> started practicing too far away.  They have reviewed my records and have 
>>> updated me on things that I don't remember being told about and clarified 
>>> some things that were given as side inference.  I am also adding a new 
>>> heart med and will be monitored to see if I need to change others on my 
>>> list.
>>> 
>>> 18's
>>> 
>>> Richard H.
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to cml...@googlegroups.com
>>> To unsubscribe from this group, send email to cmlhope-u...@googlegroups.com
>>> For more options, visit this group at http://groups.google.com/group/CMLHope
>>> --- 
>>> You received this message 

[CMLHope] creatine levels good article here

[ICANDOALLTTC]

http://www.kidneycoach.com/857/creatinine-levels/

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